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Re: Endoscopy with Dr Fell

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don't forget to buy the mirror monday 23rd , eli and christians bio med story plus a bit from jon tommey and written by sally beck and of cause treating autism conference is mentioned, i know you guys are doing it but its great the mirror wnated to do the story, oh mmr mentioned too , had to get that in x nina

Subject: Endoscopy with Dr FellTo: Autism-Biomedical-Europe Date: Friday, 20 February, 2009, 11:20 AM

Hi, is booked in to have this procedure with Dr Fell. He had reflux when he is younger, not so much now, although he is a very picky eater, so we don't get to see if the reflux is still there with the two food items he eats! I am not sure if he should go through this procedure, Is this worth doing, what can we expect from the results, I don't want to put him through anything unnecessary.

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It will be an outpatient admission with no prior clearout/prep (other than nil by mouth on the day), is that right? The main risk would be the anaesthesia but if it's been recommended, then it's probably needed to ascertain if there is any damage to the tissues. They will see the extent of scarring, inflammation, if there is any constricture, etc going on (long term untreated reflux can cause scarring and constricture in the esophagus). It's a worthwhile procedure on a kids whose diet is so severely restricted as reflux may significantly contribute to his food aversions. What are your specific concerns? Maybe someone can address them.

Darla

2009/2/20 jamesboydr

Hi, is booked in to have this procedure with Dr Fell. He had reflux when he is younger, not so much now, although he is a very picky eater, so we don't get to see if the reflux is still there with

the two food items he eats! I am not sure if he should go through this procedure, Is this worth doing, what can we expect from the results, I don't want to put him through anything unnecessary.

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Hi Nina yes i did tell all the people i know about it already, thanks

xx

>

>

> Subject: Endoscopy with Dr Fell

> To: Autism-Biomedical-Europe

> Date: Friday, 20 February, 2009, 11:20 AM

>

>

>

>

>

>

> Hi,

>

> is booked in to have this procedure with Dr Fell. He had

> reflux when he is younger, not so much now, although he is a very

> picky eater, so we don't get to see if the reflux is still there with

> the two food items he eats! I am not sure if he should go through this

> procedure, Is this worth doing, what can we expect from the results, I

> don't want to put him through anything unnecessary.

>

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great stuffx

Subject: Re: Endoscopy with Dr FellTo: Autism-Biomedical-Europe Date: Friday, 20 February, 2009, 11:41 AM

Hi Nina yes i did tell all the people i know about it already, thanks xx> > From: jamesboydr <jamesboydr@ ...>> Subject: [Autism-Biomedical- Europe] Endoscopy with Dr Fell> To: Autism-Biomedical- Europe@yahoogrou

ps.com> Date: Friday, 20 February, 2009, 11:20 AM> > > > > > > Hi,> > is booked in to have this procedure with Dr Fell. He had > reflux when he is younger, not so much now, although he is a very > picky eater, so we don't get to see if the reflux is still there with > the two food items he eats! I am not sure if he should go through this > procedure, Is this worth doing, what can we expect from the results, I > don't want to put him through anything unnecessary.>

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Sounds fantastic

nina lteif wrote:

>

> don't forget to buy the mirror monday 23rd , eli and christians bio

> med story plus a bit from jon tommey and written by sally beck and of

> cause treating autism conference is mentioned, i know you guys are

> doing it but its great the mirror wnated to do the story, oh mmr

> mentioned too , had to get that in x nina

>

>

>

>

> Subject: Endoscopy with Dr Fell

> To: Autism-Biomedical-Europe

> Date: Friday, 20 February, 2009, 11:20 AM

>

> Hi,

>

> is booked in to have this procedure with Dr Fell. He had

> reflux when he is younger, not so much now, although he is a very

> picky eater, so we don't get to see if the reflux is still there with

> the two food items he eats! I am not sure if he should go through

> this

> procedure, Is this worth doing, what can we expect from the

> results, I

> don't want to put him through anything unnecessary.

>

>

>

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Thanks Darla and Sara, we still thinking about it. And yes its on the

day from afternoon to sometime in the evening.But i am thinking of

doing 3d scan first and then if they find something yes endoscopy.

x

>

> It will be an outpatient admission with no prior clearout/prep

(other than

> nil by mouth on the day), is that right? The main risk would be the

> anaesthesia but if it's been recommended, then it's probably needed to

> ascertain if there is any damage to the tissues. They will see the

extent

> of scarring, inflammation, if there is any constricture, etc going

on (long

> term untreated reflux can cause scarring and constricture in the

> esophagus). It's a worthwhile procedure on a kids whose diet is so

severely

> restricted as reflux may significantly contribute to his food aversions.

> What are your specific concerns? Maybe someone can address them.

>

> Darla

> 2009/2/20 jamesboydr

>

> > Hi,

> >

> > is booked in to have this procedure with Dr Fell. He had

> > reflux when he is younger, not so much now, although he is a very

> > picky eater, so we don't get to see if the reflux is still there with

> > the two food items he eats! I am not sure if he should go through this

> > procedure, Is this worth doing, what can we expect from the results, I

> > don't want to put him through anything unnecessary.

> >

> >

> >

>

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Hi ,

sorry to write only now but wanted to say that our son had an endoscopy last summer with dr. Fell.

Up till the endoscopy Nicolas will start crying day and night all of a sudden while doing things that he liked and for us it got clear that he was in pain. He is non-verbal so it was very difficult to know exactly where the pain was coming from. We decided to do the endoscopy and it showed that he has acid reflux. He has been on medication since for it and although I don't like medicines I can say he is a much much happier boy, it was an amazing change.

What I wanted to say is that although endoscopy is a little bit invasive (Nicolas was quite poor for a couple of days following it) at least you get to know exactly what's happening and then it can be addressed. We found Dr Fell to be very good and very sensible in his approach.

Begona x

To: Autism-Biomedical-Europe Sent: Friday, 20 February, 2009 16:14:57Subject: Re: Endoscopy with Dr Fell

Thanks Darla and Sara, we still thinking about it. And yes its on theday from afternoon to sometime in the evening.But i am thinking ofdoing 3d scan first and then if they find something yes endoscopy. x>> It will be an outpatient admission with no prior clearout/prep(other than> nil by mouth on the day), is that right? The main risk would be the> anaesthesia but if it's been recommended, then it's probably needed to> ascertain if there is any damage to the tissues. They will see theextent> of scarring, inflammation, if there is any constricture, etc goingon (long> term untreated reflux can cause scarring and constricture in

the> esophagus). It's a worthwhile procedure on a kids whose diet is soseverely> restricted as reflux may significantly contribute to his food aversions.> What are your specific concerns? Maybe someone can address them.> > Darla> 2009/2/20 jamesboydr <jamesboydr@ ...>> > > Hi,> >> > is booked in to have this procedure with Dr Fell. He had> > reflux when he is younger, not so much now, although he is a very> > picky eater, so we don't get to see if the reflux is still there with> > the two food items he eats! I am not sure if he should go through this> > procedure, Is this worth doing, what can we expect from the results, I> > don't want to put him through anything unnecessary.> >> > > >>

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Dear Theresa

Good Luck with your decision, it can be difficult to know what to do

for the best sometimes really.

My daughter has been scoped twice (colonoscopy and endoscopy) once in

Aberdeen aged 4 and once in New York aged 9 (2.5 years ago). Both times

she was fine before and afterwards.

It was only after getting a diagnosis of colitis and appropriate

medication that she has moved forward with biomed. We have been using

dietary interventions/appropraite supps/testing since her diagnosis of

ASD at 3.

Lotsa Luck

Caroline

xx

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