Guest guest Posted March 20, 2000 Report Share Posted March 20, 2000 Hi Beverly, I wish you all the best and will keep you in my prayers. Hugs, Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2000 Report Share Posted March 31, 2000 Not yet. She was expecting to be in the hospital for at least 3 days, so hopefully she should be coming home soon. a ----- Original Message ----- From: " Esther & Carol " <cheerios2@...> < onelist> Sent: Thursday, March 30, 2000 11:32 PM Subject: [ ] Beverly > Has anyone heard how Beverly made out with her surgery? > > > ------------------------------------------------------------------------ > Get a NextCard Visa, in 30 seconds! > 1. Fill in the brief application > 2. Receive approval decision within 30 seconds > 3. Get rates as low as 2.9% Intro or 9.9% Fixed APR > Apply NOW! > 1/2646/4/_/478567/_/954477306/ > ------------------------------------------------------------------------ > > URL to change your membership options: /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2000 Report Share Posted April 5, 2000 No word yet. I am getting worried too. ----- Original Message ----- From: " Esther & Carol " <cheerios2@...> < onelist> Sent: Wednesday, April 05, 2000 2:47 PM Subject: [ ] Beverly > Any word from Beverly??........we are worried about her! > > > ------------------------------------------------------------------------ > LOW RATE, NO WAIT! > Get a NextCard Visa, in 30 seconds! Get rates > as low as 2.9% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > 1/2122/4/_/478567/_/954960552/ > ------------------------------------------------------------------------ > > URL to change your membership options: /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2000 Report Share Posted April 9, 2000 Thanks so much for the report on Beverly, Marilyn. I read it with a heavy heart though. Wish it were better news. How much can one person go through? If you talk to her again, Marilyn, please tell Beverly that we are all thinking of her here, and we are hoping that she will be feeling better very soon, that all of her medical mysteries will be solved, and that the docs can get her out of there quickly. We miss you, Marilyn, and hope you are OK. ----- Original Message ----- From: <webfreund@...> < onelist> Sent: Saturday, April 08, 2000 10:12 AM Subject: [ ] Beverly > Hi, All! > > Sorry that I've been too busy to participate in the list. But Beverly > just called me and asked me to post an update on her condition to the > list. I hope I got all the facts straight and they make sense to you. > > Bev went into LI Jewish hospital on March 28, supposedly for 48 hours. > Due to complications following her lung biopsy, she is still > hospitalized. She had been in ICU, but is in a regular room on the 8th > floor now with a great view. (IMHO it's a good sign regarding her > emotional state if she can enjoy the view, although she did say she was > depressed -- and understandably so.) > > The biopsy was okay, but she's had alot of complications, possibly due > to the fact that they took her off her regular meds and put her on > powerful immune suppressors. > > She said she lost alot of blood, but they don't know where it went. She > needed 2 emergency transfusions. She had an echo before the biopsy, but > now she has mitral valve cmplications, tachycardia and some congestive > heart failure. She has pneumonia in both lungs and is on oxygen. Her > liver function is out of wack and she has an absess collection by her > liver. She is supposed to be scheduled for a bone marrow aspiration. > > If anyone wants to ask me any questions, please write to my addy > directly, as I am still on nomail, although I do look at the archives > whenever I get a chance. > > Hugs to all.....Marilyn (aka Diz) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2000 Report Share Posted April 11, 2000 I'm glad to hear that Beverly is doing well enough to be released from the hospial tomorrow or Thursday. I have her address and will send a card to her. Thanks for the update on her, a! Elly ----- Original Message ----- From: a <aA@...> < onelist> Sent: Tuesday, April 11, 2000 9:32 AM Subject: [ ] Beverly > I spoke with Beverly today, and she asked me to tell everyone that she misses us very much. She is expecting to be released tomorrow or Thursday. They are still trying to figure out where 2 pints of blood went. She is waiting to have a bone marrow aspiration done, and then she is expecting to go home. > She is in good spirits, and can't wait to go home. > > a > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2000 Report Share Posted April 12, 2000 This is great news, a. I've been *very* worried about her, as I'm sure everyone has. I'm glad she's improving enough to go home. Thanks for letting us know. Kim ----- Original Message ----- From: " a " <aA@...> < onelist> Sent: Tuesday, April 11, 2000 11:32 AM Subject: [ ] Beverly > I spoke with Beverly today, and she asked me to tell everyone that she misses us very much. She is expecting to be released tomorrow or Thursday. They are still trying to figure out where 2 pints of blood went. She is waiting to have a bone marrow aspiration done, and then she is expecting to go home. > She is in good spirits, and can't wait to go home. > > a > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2000 Report Share Posted April 13, 2000 Dear Beverly, I am so glad you are home at last, as I am sure you are too! Welcome home! Please don't feel pressured to catch up too quickly, we will be here when you are ready to resume normal e-mailing!! lol Take care of you1 Fondly, Anne in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2000 Report Share Posted April 13, 2000 Beverly, You sure did give us a scare. Glad you're finally home. Take good care of yourself. Tery Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2000 Report Share Posted April 21, 2000 Is there a risk with a low grade fever? I have had them on and off since my cancer, and that was 23 yrs ago. I blamed it on lack ofd a spleen which they removed. I am taking the tylenol every 8 hrs as it says. Beverly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2000 Report Share Posted April 21, 2000 Your risks for infection are much higher because you don't have a spleen. I cut this out of Mayo: http://mayohealth.org/mayo/askphys/qa970606.htm .. Of greater importance is the long-term increase in risk of serious infection due to bacteria such as pneumococcus, meningococcus and Hemophilis influenzae. And prompt medical attention is indicated with early signs of a possible infection in anyone without a spleen. Beverly please make sure your doctors are aware of your spleenectomy. The low grade fevers may be the body's way of compensating for the lack of immune functions of the spleen. Since you are high risk, you need to be careful of infection. I'm glad you are still on antibiotics. a ----- Original Message ----- From: " Beka " <Beka@...> < egroups> Sent: Thursday, April 20, 2000 9:10 PM Subject: Re: [ ] BEVERLY > Is there a risk with a low grade fever? I have had them on and off since > my cancer, and that was 23 yrs ago. I blamed it on lack ofd a spleen > which they removed. I am taking the tylenol every 8 hrs as it says. > > Beverly > > > ------------------------------------------------------------------------ > High rates giving you headaches? The 0% APR Introductory Rate from > Capital One. 9.9% Fixed thereafter! > 1/3010/4/_/478567/_/956278394/ > ------------------------------------------------------------------------ > > URL to change your membership options: /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2000 Report Share Posted April 21, 2000 a, The imuran is what did me in. I was on penicillin for 9 yrs after the surgery. I know I always run a high wbc...normal is between 5-10,000 and I run 12-14,000. My last count was 30,000 from the pneumonia so I am run down, and have a whopping infection. My cardiologist wanted me out of the hospital before the residents killed me. I'll tell THAT story some other time. He felt I could rest at home just as easy. I thank you for your concern I tell everyone about my past medical history. Beverly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2000 Report Share Posted April 21, 2000 Beverly, Being in the medical field, I'm sure you know what to tell the docs I guess I don't have to tell you when to call the doc LOL! When you feel better, I'd like to hear about your hospitalization from hell. a ----- Original Message ----- From: " Beka " <Beka@...> < egroups> Sent: Thursday, April 20, 2000 9:43 PM Subject: Re: [ ] BEVERLY > a, > > The imuran is what did me in. I was on penicillin for 9 yrs after the > surgery. I know I always run a high wbc...normal is between 5-10,000 and > I run 12-14,000. My last count was 30,000 from the pneumonia so I am run > down, and have a whopping infection. My cardiologist wanted me out of > the hospital before the residents killed me. I'll tell THAT story some > other time. He felt I could rest at home just as easy. I thank you for > your concern I tell everyone about my past medical history. > > Beverly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 Best of luck on your new job, Beverly. You are really jumping back in soon. I hope you are going to be OK. You have been through so much. Are you sure you have rested enough? Your story about the resident and the IV scares the **** out of me. So many people never question anything, or don't even know what to ask, or are unconscious and don't even have a chance! Take it easy if you can. I'm worried about you. ----- Original Message ----- From: " Beka " <Beka@...> < egroups> Sent: Wednesday, April 26, 2000 3:59 PM Subject: Re: [ ] West Nile virus efforts in 17 states > June, > > Thanks for asking. I am feeling a tad stronger, but still anemic. I am > starting my new job monday HURRAY! Strangely enough it's at the hospital > that I was in <g>. I will be in peri-natal testing and doing sonograms > only on pregnant women. I think I'll miss the variety but now most of > all I miss a paycheck > > My RD won't let me go back on imuran for a month, to make sure all the > pneumonia is gone. I guess between flaring, no Dmard and anemia I am > weaker than usual. I see the hematologist on Fri afternoon to see if I > need the bone marrow aspiration done, and the cardiologist in 1 1/2 wks > to see if my heart rate went back to normal and I can get off digoxin. > Other than that, I try to go to the mall everyday and walk abit. My > lungs are not at compasity yet but I am trying. Funny how I forgot whats > its like not to be short of breath. Been since aug 99! > > I know this got kinda long winded but I promised the story of how a > resident tried to kill to kill me and here it is, thankfully I have some > medical knowledge. > > I was on lasix for my congestive heart failure and edema in my legs, > this was like day 9 of the hospitalization from hell. The resident comes > in and tells me my labs showed I have too much potassium, and need an > IV. <They gave me extra potassium too>. I asked what was going to be in > the IV and she said Sodium Chloride. I told her NO WAY, I'll increase my > water intake! Here I was, retaining water, on lasix and she wanted to be > me an IV that contains basically SALT WATER!! Talk about not reading > charts. So let thsi be a lesson, ask about every little thing they want > to do...especially in a teaching hospital. > > Thanks for all your love, prayers and good wishes as I mend. You guys > mean the world to me!!! > > Beverly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 Beverly, Please don't overdo things! I agree with you, ask questions!! DO NOT let people do things to your body unless you are sure what is going on. I constantly ask questions and often find that the medical field is incorrect. They do not know your system, or what you need. Patient be ware. Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2000 Report Share Posted September 17, 2000 Yes, he is a MD, trained in traditional medicine. Some therapies are not covered, such as the DMDS shots and NAET treatments. However the office visits and perscription drugs, ie antifungals and Chemet, are. Beverly > Is this doctor covered under your insurance plan? > > Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2000 Report Share Posted November 4, 2000 Hi Beverly, I am so glad to see you post. I was wondering how you were doing, wish it was better. I am glad to see you posting again, you are missed. We had a couple of 's so I had to add the Me Mom. Me Mom ---------- > From: Matsumura <Matsumura_Clan@...> > egroups > Subject: [ ] Beverly > Date: Wednesday, November 01, 2000 7:09 PM > > I'm so relieved to have word from you, Beverly! It's been so long. I've > often wondered about how you were doing. > > Wish that you had better health news, but your spirits sound good. > > That pulmonary specialist sounds like a genius. What was he thinking? I'd > want another opinion, too. A compassionate person wouldn't be to much to ask > for. > > Hope your job is going well. > > > > > ----- Original Message ----- > From: " Beka " <Beka@...> > < egroups> > Sent: Wednesday, November 01, 2000 6:15 PM > Subject: Re: [ ] Digest Number 1375 > > > > Hi all! > > > > Its been a while since I have posted. I have been skimming the digests > > for a while now. I am doing ok, taking it one day at a time. The > > prednisone gave me an unwanted side effect, I have a lipoma <fatty mass> > > in my spinal column from T1-L2. It is compressing my cord and causing a > > lot of pain. My breathing is also affected from the prednisone. Seems my > > lungs like the 20 mg a day and I can't breathe well without it. I took a > > pulmonary function test and failed horribly. I have severe loss of > > pulmonary funtion. I can't do stairs, or walk for more than a block > > without huffing and puffing so my social life has been cut down. I have > > been feeling ok, trying to go walking in the mall, or the boardwalk when > > weather allows it. I refuse to give in and I am going for another > > pulmonary consult as the first one said this is the best I can expect > > after radiation, RA, and the surgeries to my lungs. Oh yes, and he told > > me I was overweight LOL Like I don't have a mirror!!!! Gotta love that > > prednisone...hope everyone is doing good > > > > Beverly > > > > > > > > > > Our websites: http://rheumatoid.arthritis.freehosting.net/ > > http://www.rasupport.webprovider.com/ > > Change subscription options: > > > > > > > > > > Our websites: http://rheumatoid.arthritis.freehosting.net/ > http://www.rasupport.webprovider.com/ > Change subscription options: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2001 Report Share Posted November 10, 2001 Thank you! Beverley Smalley ----- Original Message ----- From: <cjheer@...> < > Sent: Friday, November 09, 2001 6:58 PM Subject: Beverly > Here is his contact info: > Dr. Pierre Blais > Innoval > 496 Westminster Ave. > Ottawa, Ontario > Canada K2A 2V1 > 613-728-8688 > > > Good luck, they are nice people when I talked to them on the phone I > was impressed! > > > > > > > In @y..., " Beverley Smalley " <kokomo@b...> wrote: > > How can I get ahold of him? > > Beverley Smalley > > ----- Original Message ----- > > From: <cjheer@i...> > > < @y...> > > Sent: Friday, November 09, 2001 6:01 PM > > Subject: Re: confused!!! > > > > > > > he can analyze them but I am not sure if they would show anything > if > > > they have been in the fridge or handled, unfortunatly they are not > > > supposed to be kept cold, it kills things I think. > > > > > > Check out some of the posts further back I think his info is > there I > > > think it is around 200 or 300 bucks and it depends on how much you > > > want done. > > > > > > > > > > > > > > > > > > > > > In @y..., " Beverley Smalley " <kokomo@b...> wrote: > > > > Can Dr. Blais analyze my implant that I have had for over 3 > years > > > and kept > > > > in the refrigerator? (nice when you have company) What is the > > > procedure and > > > > the cost? > > > > Beverley Smalley > > > > ----- Original Message ----- > > > > From: <cjheer@i...> > > > > < @y...> > > > > Sent: Friday, November 09, 2001 2:32 PM > > > > Subject: Re: confused!!! > > > > > > > > > > > > > First of all I would contact Dr blais and find out how he > wants > > > them > > > > > sent to him, second I would talk to your explanting surgeon > > > > > beforehand to make sure he knows that you want your implants > to be > > > > > packaged properly after explant so that they can be sent to Dr > > > Blais > > > > > for ananlysis, I would be sure that he understands you want > > > pictures > > > > > of the implants with the capsules on them before they are sent > > > > > anywhere, if he is offended by this I wouldn't trust him to > do the > > > > > job right. I would explain to him that you have heard of > women not > > > > > having capsules taken out and getting sicker and that you just > > > want > > > > > to be extremely careful, also get it in writting. > > > > > > > > > > I wouldn't worry so much about the time scheduled as I would > about > > > > > all this other stuff, because if the surgery runs over > schedule > > > they > > > > > are usually prepared for that, however if you are having any > > > second > > > > > thoughts about this PS I would be careful, you do not want to > > > have to > > > > > have more surgeries down the road. > > > > > > > > > > Call him and discuss these issues asap, to put your mind at > ease, > > > and > > > > > yes usually an explant and capsulectomy would take longer > than an > > > > > hour and a half, but who knows, most of us had lifts too. > > > > > > > > > > What incision is he using? > > > > > > > > > > Good luck and keep us posted! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > In @y..., cpannarale@y... wrote: > > > > > > Hello! > > > > > > > > > > > > I am slightly confused at what I should do for my > explantation. > > > > > > > > > > > > First, are my implants and capsules sent to a pathologist > > > > > > automatically or do I do this? > > > > > > > > > > > > Next, does dr. blais do this or does he just examine the > > > implants > > > > > > after pathology or before? > > > > > > > > > > > > Finally, I don't know if I missed the post but did Dr. Kolb > post > > > > > how > > > > > > long an explantation usually takes? Because I'm suppose to > be > > > > > having > > > > > > a complete capsulectomy no mastopexy and it's only scheduled > > > for 1 > > > > > > 1/2 hours while most of you seem to have had 3 hour > > > surgeries!!!! > > > > > > > > > > > > Can I expect my surgeon to be offended by asking him to take > > > > > pictures > > > > > > or videotaping the procedure? Whats the best way of trying > to > > > > > > guarantee that the capsules be taken out? > > > > > > > > > > > > Thanks, > > > > > > Charlene > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2002 Report Share Posted December 10, 2002 Prayers always work and Jesus said that where 2 or more come together in His name He will be there...well guess what...I am there with you...I too just finished week five and so far only nausea and slightly chapped lips...oh and my back itches all the time...My first husband told me he was bisexual, my second molested my daughter at the age of 3 and then he died from heroin overdose...I guess he got his...then I married a guy who abused my kids when I wasnt home, so out the door he went...and for the last...and I mean last husband...after 13 years of marriage he decided that he wanted to be a Krysty instead of a Kent...so...bye bye to him. Now I devote my life to Christ and my granddaughter who by the way made the National Honor Roll. I am so proud of her, and I am a full time college student at the age of 53, majoring in Human Services...yea right...I am gonna be a social worker for foster kids in crisis. Hang in there Bev and all who are fighting this dragon. Hugs Sandy " Beverly <angel888_us@...> " <angel888_us@...> wrote:Hi Everyone!I had my nurse call the other day and I told her about this wonderful group. As you all recall I had my moment and as I read I'm not the only one. My step mom alwas says, " God opens new doors when old ones close " . This Friday will be week five for me and other than the sores on the sides of my mouth and the depression(which I don't think would be as bad if I hadn't lost my job) I'm doing well. They said pegasys has less side effects and I think that's true. I know one thing is I try very hard to keep my spirits high, my mother died of lung cancer and I took care of her in her last days. They gave her six months tops but because we try to laugh every day she lasted a year and half. I'm finding it hard to fine foods that don't disagree with me, tomatoe sauce is just too tangy but thank goodness I like oatmeal and I add fresh fruits to it, umy! Being alwas fatigue puts a damper on things, but I try to take my dog for walks every day. And I got this great book in the mail that covers alot of areas dealing with chronic hepatitis b and c. It's The Hepatitis Workbook through the American Liver Foundation. It had a lot of good information and was free. I know one thing I and all of you will make it and if treatment dosn't work first time dosn't mean the fight is over. I've been through alot,(second husband raped a women, my son came out of the closet and living with someone with HIV postive, my third husband became very abusive and beat the grap out of me the night of my mother's showing)yet I awake each day. Good Luck All Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 Hi Sandy, Oh my gosh also praise God! I'm on hubby number 4 and he takes good care of me, but I can tell this (HCV)is hard for him too. He took a second job because his regular job has child support coming out of it and leave us with about $69-$78 aweek. My meds a month are $130. But you know you make it one way or another. I spoke to my doctor's nurse and she said my geno type was 1F(?) and my load is 998,000(?)they had to change my appointment to next Friday. I had a liver biopsy and it showed a little cirrhosis. My back itch bad too, and problems with driving and brain farts, lol. One day at a time. huggs, Beverly Hi Everyone! I had my nurse call the other day and I told her about > this wonderful group. As you all recall I had my moment and as I read > I'm not the only one. My step mom alwas says, " God opens new doors > when old ones close " . This Friday will be week five for me and other > than the sores on the sides of my mouth and the depression(which I > don't think would be as bad if I hadn't lost my job) I'm doing well. > They said pegasys has less side effects and I think that's true. I > know one thing is I try very hard to keep my spirits high, my mother > died of lung cancer and I took care of her in her last days. They > gave her six months tops but because we try to laugh every day she > lasted a year and half. I'm finding it hard to fine foods that don't > disagree with me, tomatoe sauce is just too tangy but thank goodness > I like oatmeal and I add fresh fruits to it, umy! Being alwas fatigue > puts a damper on things, but I try to take my dog for walks every > day. And I got this great book in the mail that covers alot of areas > dealing with chronic hepatitis b and c. It's The Hepatitis Workbook > through the American Liver Foundation. It had a lot of good > information and was free. I know one thing I and all of you will make > it and if treatment dosn't work first time dosn't mean the fight is > over. I've been through alot,(second husband raped a women, my son > came out of the closet and living with someone with HIV postive, my > third husband became very abusive and beat the grap out of me the > night of my mother's showing)yet I awake each day. Good Luck All > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2003 Report Share Posted February 16, 2003 Check your email Toots!! I sent you some links that I think will help you gather more info on this!! LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 > >>>>>>I also did another energy field therapy on tuesday called NMT > Neuromodulation Technique. I go about once a month and we have made > incredible -- > > where do you get this?? > Rica Im near Santa Fe.....home of " whacko " therapies like this! we love it. but you can find a practitioner in many places in the us and canada and maybe other countries at their web site. http://www.neuromodulationtechnique.com this is how i found my practitioner. she is a naturopath also and her husband is a DOM and acupuncturist and i think they are both nutionists as well?!!? ive made tremendous progress under her care. beverly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 In a message dated 9/2/2004 4:48:57 PM Mountain Daylight Time, defonz3@... writes: Im near Santa Fe.....home of "whacko" therapies like this! we love it. but you can find a practitioner in many places in the us and canada and maybe other countries at their web site.http://www.neuromodulationtechnique.com What exactly is it? I live near Boulder and that is another whacko area! Wondering if this is anything I should be checking out. Thanks, Deborah Quote Link to comment Share on other sites More sharing options...
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