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Dear Friends,

I have a concern about Kayla. She is 7 yo, about 4' 3 " tall and weighs 57

pounds.

My question is this: Her stomach seems so large compared to the rest of her

body size. It is almost like it is swollen. I don't know if this is because

of the weight gain of 14 pounds in the last year or not. She is fairly small

boned and has always been real tiny, until the weight gain.

Has anyone seen this in their girls? Should we be concerned that it may be

something else? I have looked in medical web sites and have found nothing.

Any

information would be appreciated.

Thanks,

Beth

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Does she have Candida ... Yeast Overgrowth? Some poeple call it " Egyptian

belly "

Beverly Weakley

Mom of Jen

re: need advice

> Dear Friends,

>

> I have a concern about Kayla. She is 7 yo, about 4' 3 " tall and weighs 57

> pounds.

>

> My question is this: Her stomach seems so large compared to the rest of

her

> body size. It is almost like it is swollen. I don't know if this is

because

> of the weight gain of 14 pounds in the last year or not. She is fairly

small

> boned and has always been real tiny, until the weight gain.

>

> Has anyone seen this in their girls? Should we be concerned that it may

be

> something else? I have looked in medical web sites and have found

nothing.

> Any

> information would be appreciated.

>

> Thanks,

>

> Beth

>

> ------------------------------------------------------------------------

> Remember four years of good friends, bad clothes, explosive chemistry

> experiments.

> http://click./1/4051/6/_/475156/_/960395354/

> ------------------------------------------------------------------------

>

>

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Is she constipated?

Kathy

re: need advice

>Dear Friends,

>

>I have a concern about Kayla. She is 7 yo, about 4' 3 " tall and weighs 57

>pounds.

>

>My question is this: Her stomach seems so large compared to the rest of

her

>body size. It is almost like it is swollen. I don't know if this is

because

>of the weight gain of 14 pounds in the last year or not. She is fairly

small

>boned and has always been real tiny, until the weight gain.

>

>Has anyone seen this in their girls? Should we be concerned that it may be

>something else? I have looked in medical web sites and have found nothing.

>Any

>information would be appreciated.

>

>Thanks,

>

> Beth

>

>------------------------------------------------------------------------

>Remember four years of good friends, bad clothes, explosive chemistry

>experiments.

>http://click./1/4051/6/_/475156/_/960395354/

>------------------------------------------------------------------------

>

>

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Guest guest

You might want to see if she has impacted bowels. This is common in kids

with a tendancy towards constipation. READ WILLISS'S paper. Even Diahrreah

can be a form of CONSTIPATION, becuase a blockage is causing the loose

stools. Hard to explain, but very interesting implications. Fungal forms

(candida and other fungals) may be to blame as well as inadequate HCI or

enzymes in the gut. Heal the gut = heal some symptoms of autism, seen it

firsthand in my kids.

Kathy

Re: re: need advice

>I have heard of children who became ... unable to move their bowels. That

>can be very dangerous.

>Beverly Weakley

> re: need advice

>>

>>

>> >Dear Friends,

>> >

>> >I have a concern about Kayla. She is 7 yo, about 4' 3 " tall and weighs

>57

>> >pounds.

>> >

>> >My question is this: Her stomach seems so large compared to the rest of

>> her

>> >body size. It is almost like it is swollen. I don't know if this is

>> because

>> >of the weight gain of 14 pounds in the last year or not. She is fairly

>> small

>> >boned and has always been real tiny, until the weight gain.

>> >

>> >Has anyone seen this in their girls? Should we be concerned that it may

>be

>> >something else? I have looked in medical web sites and have found

>nothing.

>> >Any

>> >information would be appreciated.

>> >

>> >Thanks,

>> >

>> > Beth

>> >

>> >------------------------------------------------------------------------

>> >Remember four years of good friends, bad clothes, explosive chemistry

>> >experiments.

>> >http://click./1/4051/6/_/475156/_/960395354/

>> >------------------------------------------------------------------------

>> >

>> >

>>

>>

>> ------------------------------------------------------------------------

>> Everyday Is Kid's Day

>> Dad Only Has One

>> Click Here To Make It Special

>> http://click./1/5038/6/_/475156/_/960396127/

>> ------------------------------------------------------------------------

>>

>>

>

>

>------------------------------------------------------------------------

>Looking for Airfare deals?

>Visit Expedia.com for limited time offers

>http://click./1/5205/6/_/475156/_/960396523/

>------------------------------------------------------------------------

>

>

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Guest guest

I've heard that wheat, dairy, and soy can cause extensive bloating if the person

has food allergies/sensitivities. Is Kayla on a gfcf diet?

------------ Previous Message from renots123@... on 06/07/2000 12:29:07

PM ----------

Please respond to Autism_in_Girlsegroups

To: Autism_in_Girlsegroups

cc:

Subject: re: need advice

Dear Friends,

I have a concern about Kayla. She is 7 yo, about 4' 3 " tall and weighs 57

pounds.

My question is this: Her stomach seems so large compared to the rest of her

body size. It is almost like it is swollen. I don't know if this is because

of the weight gain of 14 pounds in the last year or not. She is fairly small

boned and has always been real tiny, until the weight gain.

Has anyone seen this in their girls? Should we be concerned that it may be

something else? I have looked in medical web sites and have found nothing.

Any

information would be appreciated.

Thanks,

Beth

------------------------------------------------------------------------

Remember four years of good friends, bad clothes, explosive chemistry

experiments.

http://click./1/4051/6/_/475156/_/960395354/

------------------------------------------------------------------------

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  • 3 years later...

My son just came home from school and told me that at his last hour class he had gotten sucker from his pen pal from another school. They had the students writing to each other. And his penpal sent that for a halloween treat. Anyway, he opened it and started to eat it when the bell rang. He got on his bus and there was a substitute bus driver. She told him to take it out of his mouth and throw it away. He said he did, then he smiled. I suppose he was embarrassed, and with having aspergers, didnt really know how to behave. Anyway, I really dont see how smiling was bad. But the bus driver said to him, "Stop smiling you F...ing scum face!"

I called the school but there was only a young girl working, and she kept trying to transfer me to voice mail, and it wasnt working. I wasnt sure which bus company it was, but I did find the right one when I called and asked. Im not very good at talking to people myself ( probably slight aspergers too) anyway, I told them the number of the bus my son rides, and I said that there was a subsitute bus driver who swore at my son. They said they would talk to her when she got back.

That was it. But I dont feel satisfied with that. I wish I would have told the whole story like my son told me. I feel scared about having that lady drive a school bus if she cant even control her self when she talks to kids. I know there is a shortage of school bus drivers where I live, but I dont want just anybody driving school busses. My son goes to a school out in the country where it is one school for grades kindergarden through 8th grade. He is in 7th grade. He said that the kindergardeners are the ones who sit in the front of the bus. So they are the ones who heard what she said. What other steps should I take in this? Or should I just leave it as it is? I find it so much easier to write than to actually have to talk in person about this. What do you all think?

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Talk to the principal and file a complaint with the superintendant of the school.

MISSYSAHM to some special kids!!!

Excuse Me While I Go Raise Tomorrow's Future.

need advice

My son just came home from school and told me that at his last hour class he had gotten sucker from his pen pal from another school. They had the students writing to each other. And his penpal sent that for a halloween treat. Anyway, he opened it and started to eat it when the bell rang. He got on his bus and there was a substitute bus driver. She told him to take it out of his mouth and throw it away. He said he did, then he smiled. I suppose he was embarrassed, and with having aspergers, didnt really know how to behave. Anyway, I really dont see how smiling was bad. But the bus driver said to him, "Stop smiling you F...ing scum face!"

I called the school but there was only a young girl working, and she kept trying to transfer me to voice mail, and it wasnt working. I wasnt sure which bus company it was, but I did find the right one when I called and asked. Im not very good at talking to people myself ( probably slight aspergers too) anyway, I told them the number of the bus my son rides, and I said that there was a subsitute bus driver who swore at my son. They said they would talk to her when she got back.

That was it. But I dont feel satisfied with that. I wish I would have told the whole story like my son told me. I feel scared about having that lady drive a school bus if she cant even control her self when she talks to kids. I know there is a shortage of school bus drivers where I live, but I dont want just anybody driving school busses. My son goes to a school out in the country where it is one school for grades kindergarden through 8th grade. He is in 7th grade. He said that the kindergardeners are the ones who sit in the front of the bus. So they are the ones who heard what she said. What other steps should I take in this? Or should I just leave it as it is? I find it so much easier to write than to actually have to talk in person about this. What do you all think?

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First step..

Written formal complaint to the Head of Transportation for your

District.

two...

I think you son deserves an apology. *sorry... I'm a respect addict*

three..

What the school does with that bus driver is their 'policies'... but

I would stay on top... and find out what DOES happen to this person!

DES *don't get me fired up... that was unexcusable!*

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Step 1

Put everything your son said and you feel into a letter to the bus company.

STep 2 have your son right his own version and send it with your letter.

Step 3 report this to your sons principal and your district superintendent in a letter

Do everything as nicely as possible. Tell them how concerned you are that very young children heard this exchange. A person like this should not be working with children. Also show them you are willing to hear "the other side". But stand your ground and don't back down.

need advice

My son just came home from school and told me that at his last hour class he had gotten sucker from his pen pal from another school. They had the students writing to each other. And his penpal sent that for a halloween treat. Anyway, he opened it and started to eat it when the bell rang. He got on his bus and there was a substitute bus driver. She told him to take it out of his mouth and throw it away. He said he did, then he smiled. I suppose he was embarrassed, and with having aspergers, didnt really know how to behave. Anyway, I really dont see how smiling was bad. But the bus driver said to him, "Stop smiling you F...ing scum face!"

I called the school but there was only a young girl working, and she kept trying to transfer me to voice mail, and it wasnt working. I wasnt sure which bus company it was, but I did find the right one when I called and asked. Im not very good at talking to people myself ( probably slight aspergers too) anyway, I told them the number of the bus my son rides, and I said that there was a subsitute bus driver who swore at my son. They said they would talk to her when she got back.

That was it. But I dont feel satisfied with that. I wish I would have told the whole story like my son told me. I feel scared about having that lady drive a school bus if she cant even control her self when she talks to kids. I know there is a shortage of school bus drivers where I live, but I dont want just anybody driving school busses. My son goes to a school out in the country where it is one school for grades kindergarden through 8th grade. He is in 7th grade. He said that the kindergardeners are the ones who sit in the front of the bus. So they are the ones who heard what she said. What other steps should I take in this? Or should I just leave it as it is? I find it so much easier to write than to actually have to talk in person about this. What do you all think?

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Write a letter to follow up with the "bus company", one to your principal, and one to the administrative offices of the district. That is totally unacceptable and they probably have a video of it as most busses have them now, ask to see it.

need advice

My son just came home from school and told me that at his last hour class he had gotten sucker from his pen pal from another school. They had the students writing to each other. And his penpal sent that for a halloween treat. Anyway, he opened it and started to eat it when the bell rang. He got on his bus and there was a substitute bus driver. She told him to take it out of his mouth and throw it away. He said he did, then he smiled. I suppose he was embarrassed, and with having aspergers, didnt really know how to behave. Anyway, I really dont see how smiling was bad. But the bus driver said to him, "Stop smiling you F...ing scum face!"

I called the school but there was only a young girl working, and she kept trying to transfer me to voice mail, and it wasnt working. I wasnt sure which bus company it was, but I did find the right one when I called and asked. Im not very good at talking to people myself ( probably slight aspergers too) anyway, I told them the number of the bus my son rides, and I said that there was a subsitute bus driver who swore at my son. They said they would talk to her when she got back.

That was it. But I dont feel satisfied with that. I wish I would have told the whole story like my son told me. I feel scared about having that lady drive a school bus if she cant even control her self when she talks to kids. I know there is a shortage of school bus drivers where I live, but I dont want just anybody driving school busses. My son goes to a school out in the country where it is one school for grades kindergarden through 8th grade. He is in 7th grade. He said that the kindergardeners are the ones who sit in the front of the bus. So they are the ones who heard what she said. What other steps should I take in this? Or should I just leave it as it is? I find it so much easier to write than to actually have to talk in person about this. What do you all think?

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Hi ,

I think you should most definately write to them. This was the most

unbeleivable behaviour. That woman should not be driving kids. If I

were you I would insist on a written appology and I would want to be

assured she will never drive my kids again!!

Sherryxx

> My son just came home from school and told me that at his last

hour class

> he had gotten sucker from his pen pal from another school. They had

the

> students writing to each other. And his penpal sent that for a

halloween treat.

> Anyway, he opened it and started to eat it when the bell rang. He

got on his bus

> and there was a substitute bus driver. She told him to take it out

of his mouth

> and throw it away. He said he did, then he smiled. I suppose he was

> embarrassed, and with having aspergers, didnt really know how to

behave. Anyway, I

> really dont see how smiling was bad. But the bus driver said to

him, " Stop smiling

> you F...ing scum face! "

> I called the school but there was only a young girl working, and

she kept

> trying to transfer me to voice mail, and it wasnt working. I wasnt

sure which

> bus company it was, but I did find the right one when I called and

asked. Im

> not very good at talking to people myself ( probably slight

aspergers too)

> anyway, I told them the number of the bus my son rides, and I said

that there was

> a subsitute bus driver who swore at my son. They said they would

talk to her

> when she got back.

> That was it. But I dont feel satisfied with that. I wish I

would have

> told the whole story like my son told me. I feel scared about

having that lady

> drive a school bus if she cant even control her self when she talks

to kids. I

> know there is a shortage of school bus drivers where I live, but I

dont want

> just anybody driving school busses. My son goes to a school out in

the country

> where it is one school for grades kindergarden through 8th grade.

He is in 7th

> grade. He said that the kindergardeners are the ones who sit in the

front of

> the bus. So they are the ones who heard what she said. What other

steps should

> I take in this? Or should I just leave it as it is? I find it so

much easier

> to write than to actually have to talk in person about this. What

do you all

> think?

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What I would do would be to write three letters (all the same) to

the Principal, the District Superintendent and the company that

supplies the school bus service (if it is not run directly by the

district). You can just copy and paste what you wrote to us. Make

sure that you mention in the first line that you have sent the

letter to other people (i.e. " a copy of this letter has been sent to

the District Superintendent and the manager of Busses 'R' Us

Transport " ). People are more likely to ask if they know that someone

else know that you are complaining. At the end of the letter ask for

a reply (i.e. 'I look forward to your reply, letting me know what

steps have been taken to prevent this problem from happening again. " )

Then I would let it go and try not to think about it too much -- I

know it would drive me nuts if I did.

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  • 6 years later...

Hi,My daughter is 3.5 yrs and in her 6th cast. We didn't get any correction in cast #3-5 and a 3 month brace break. We did see correction in this last cast. I would ask you doctor what he recommends. Our plan is to keep casting with occasional brace breaks until the doctor feels the cast aren't justified.Liz, Mom to Keira, 3.5 yrs in 6th cast in SLC Subject: Need AdviceTo: infantile_scoliosis Date: Friday, January 22, 2010, 4:05 AM

Hello all, my 3 year old daughter is in her 6th cast and she unfortunately she did not get any correction in her last 2 casts. She started with a 62 degree curve and is down to 24. My husband is feeling frustrated and wants to stop the casting. I say we should keep going. The other concern is that my daughter only weighs about 25 pounds, so we are concerned. Can anyone give me some advice? Thanks

's mom

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,

I wanted to ask about Rotation....If the Dr says that the rotation is pretty much resolved and there is no more rotation, but you still have a curve, can the rotation return if you stop casting and just brace???

if anyone has advice on this, I would love to hear it.. thanks Joanmom to Hayden 343 degrees down from 62Cast number 3Treated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Fri, January 22, 2010 8:33:11 AMSubject: RE: Need Advice

Hi,First of all - congrats on the correction! I know it's frustrating that you haven't seen any lately though. I would ask your doctor about 's rotation. If there is still rotation - I would continue casting.~Noah 4 1/2 years old9 months of casting in SLC; Currently on 1 1/2 years of bracing at 6* in braceAnd Mariella 11 months old - resolved Infantile Scoliosis

To: infantile_scoliosis @yahoogroups. comFrom: laur92enyahoo (DOT) comDate: Fri, 22 Jan 2010 04:05:28 +0000Subject: [infantile_scoliosi s] Need Advice

Hello all, my 3 year old daughter is in her 6th cast and she unfortunately she did not get any correction in her last 2 casts. She started with a 62 degree curve and is down to 24. My husband is feeling frustrated and wants to stop the casting. I say we should keep going. The other concern is that my daughter only weighs about 25 pounds, so we are concerned. Can anyone give me some advice? Thanks's mom

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Hi Joan,

I've been lead to believe by our doctor that rotation is the key to casting. The article "Derotational Casting" also emphisizes this. I'd ask about Hayden's rotation at every casting. The doc can also show it to you on the x-ray.

Yes, I'm told that rotation can return. However, I don't know what the odds/likely-hood of that happending is. I guess I've never asked.~Noah 4 1/2 years old9 months of casting in SLC; Currently on 2 years of bracing at 6* in braceAnd Mariella 12 months old - resolved Infantile Scoliosis

To: infantile_scoliosis From: hayro1611@...Date: Fri, 22 Jan 2010 07:28:32 -0800Subject: Re: Need Advice

,

I wanted to ask about Rotation....If the Dr says that the rotation is pretty much resolved and there is no more rotation, but you still have a curve, can the rotation return if you stop casting and just brace???

if anyone has advice on this, I would love to hear it.. thanks Joanmom to Hayden 343 degrees down from 62Cast number 3Treated at ish Rite Hospital Dallas, TX

From: Borlik <christina_borlikhotmail>To: infantile_scoliosis Sent: Fri, January 22, 2010 8:33:11 AMSubject: RE: Need Advice

Hi,First of all - congrats on the correction! I know it's frustrating that you haven't seen any lately though. I would ask your doctor about 's rotation. If there is still rotation - I would continue casting.~Noah 4 1/2 years old9 months of casting in SLC; Currently on 1 1/2 years of bracing at 6* in braceAnd Mariella 11 months old - resolved Infantile Scoliosis

To: infantile_scoliosis @yahoogroups. comFrom: laur92enyahoo (DOT) comDate: Fri, 22 Jan 2010 04:05:28 +0000Subject: [infantile_scoliosi s] Need Advice

Hello all, my 3 year old daughter is in her 6th cast and she unfortunately she did not get any correction in her last 2 casts. She started with a 62 degree curve and is down to 24. My husband is feeling frustrated and wants to stop the casting. I say we should keep going. The other concern is that my daughter only weighs about 25 pounds, so we are concerned. Can anyone give me some advice? Thanks's mom

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Joan,

I don't know about rotation post casting, but we did brace for over a year before her surgery. The reason we had to do surgery when we did is because the braces weren't able to hold her rotation. Her curves were being held in check, but not the rotation of her lower spine.

I don't know if that will help you or not as you know, Grace has congenital scoliosis, not IS.

Jane

To: infantile_scoliosis Sent: Fri, January 22, 2010 7:28:32 AMSubject: Re: Need Advice

,

I wanted to ask about Rotation.... If the Dr says that the rotation is pretty much resolved and there is no more rotation, but you still have a curve, can the rotation return if you stop casting and just brace???

if anyone has advice on this, I would love to hear it.. thanks Joanmom to Hayden 343 degrees down from 62Cast number 3Treated at ish Rite Hospital Dallas, TX

From: Borlik <christina_borlik@ hotmail.com>To: infantile_scoliosis @yahoogroups. comSent: Fri, January 22, 2010 8:33:11 AMSubject: RE: [infantile_scoliosi s] Need Advice

Hi,First of all - congrats on the correction! I know it's frustrating that you haven't seen any lately though. I would ask your doctor about 's rotation. If there is still rotation - I would continue casting.~Noah 4 1/2 years old9 months of casting in SLC; Currently on 1 1/2 years of bracing at 6* in braceAnd Mariella 11 months old - resolved Infantile Scoliosis

To: infantile_scoliosis @yahoogroups. comFrom: laur92enyahoo (DOT) comDate: Fri, 22 Jan 2010 04:05:28 +0000Subject: [infantile_scoliosi s] Need Advice

Hello all, my 3 year old daughter is in her 6th cast and she unfortunately she did not get any correction in her last 2 casts. She started with a 62 degree curve and is down to 24. My husband is feeling frustrated and wants to stop the casting. I say we should keep going. The other concern is that my daughter only weighs about 25 pounds, so we are concerned. Can anyone give me some advice? Thanks's mom

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I agree , I think it is key to why Keira's curve finally started to decrease after almost a year of staying the same; her rotation is almost gone. When we were in the brace over the summer her curve didn't improve, but we could actually start to see her rotation starting to increase. The PT thought so as well, but thought that it was due to the trunk muscles strengthening. However, since SLC doesn't due 'out of cast' xrays, we really have no clue what was going on. I asked our Dr about an out of cast/brace xray and his reply was that it wouldn't change the course of treatment so he didn't want the extra radiation exposure. I agreed.Liz, Mom to Keira - 3.5 yrs in cast #6 in SLCSubject: RE: Need AdviceTo: infantile_scoliosis Date: Friday, January 22, 2010, 3:52 PM

Hi Joan,

I've been lead to believe by our doctor that rotation is the key to casting. The article "Derotational Casting" also emphisizes this. I'd ask about Hayden's rotation at every casting. The doc can also show it to you on the x-ray.

Yes, I'm told that rotation can return. However, I don't know what the odds/likely- hood of that happending is. I guess I've never asked.~Noah 4 1/2 years old9 months of casting in SLC; Currently on 2 years of bracing at 6* in braceAnd Mariella 12 months old - resolved Infantile Scoliosis

To: infantile_scoliosis @yahoogroups. comFrom: hayro1611yahoo (DOT) comDate: Fri, 22 Jan 2010 07:28:32 -0800Subject: Re: [infantile_scoliosi s] Need Advice

,

I wanted to ask about Rotation.... If the Dr says that the rotation is pretty much resolved and there is no more rotation, but you still have a curve, can the rotation return if you stop casting and just brace???

if anyone has advice on this, I would love to hear it.. thanks Joanmom to Hayden 343 degrees down from 62Cast number 3Treated at ish Rite Hospital Dallas, TX

From: Borlik <christina_borlik@ hotmail.com>To: infantile_scoliosis @yahoogroups. comSent: Fri, January 22, 2010 8:33:11 AMSubject: RE: [infantile_scoliosi s] Need Advice

Hi,First of all - congrats on the correction! I know it's frustrating that you haven't seen any lately though. I would ask your doctor about 's rotation. If there is still rotation - I would continue casting.~Noah 4 1/2 years old9 months of casting in SLC; Currently on 1 1/2 years of bracing at 6* in braceAnd Mariella 11 months old - resolved Infantile Scoliosis

To: infantile_scoliosis @yahoogroups. comFrom: laur92enyahoo (DOT) comDate: Fri, 22 Jan 2010 04:05:28 +0000Subject: [infantile_scoliosi s] Need Advice

Hello all, my 3 year old daughter is in her 6th cast and she unfortunately she did not get any correction in her last 2 casts. She started with a 62 degree curve and is down to 24. My husband is feeling frustrated and wants to stop the casting. I say we should keep going. The other concern is that my daughter only weighs about 25 pounds, so we are concerned. Can anyone give me some advice? Thanks's mom

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Hi s Mom,

I would go with your gut. Bracing has less of chance in

maintaining her at 24 degrees. How is her rotation? Continued

casting should hold her where she is and you may even see some more

correction. Some children don’t see any improvement for 3 / 4 casts

and in the 5 th one, they see significant correction. Is she comfortable

in her casts?

HRH

From:

infantile_scoliosis

[mailto:infantile_scoliosis ] On Behalf Of laur92en

Sent: Thursday, January 21, 2010 9:05 PM

To: infantile_scoliosis

Subject: Need Advice

Hello all, my 3 year old daughter is in her 6th

cast and she unfortunately she did not get any correction in her last 2 casts.

She started with a 62 degree curve and is down to 24. My husband is feeling

frustrated and wants to stop the casting. I say we should keep going. The other

concern is that my daughter only weighs about 25 pounds, so we are concerned.

Can anyone give me some advice? Thanks

's mom

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