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Hi everyone!

My name is Terri and I am 27 weeks pregnant with fraternal

twins, a boy and a girl ( and Hope). Recently, my

husband and I got the devastating news that has a pretty severe heart

defect. After several sonograms, echocardiograms, and an amniocentesis,

we were told that she has DS and an AVSD with DORV & her left ventricle is

moderately smaller than her right ventricle. Needless to say, this has

been a lot to digest over the past couple of weeks.

I was curious to see if anyone else out there has been in a

similar situation. All I am getting from the doctors seems to be negative—they

have asked several times about terminating her (even though I am too far along

to do it here in FL, they suggested going out of state!!).

At this point, I dread going to the doctor because every time

I go it seems like I get more bad news. Yesterday I was told that

is not thriving and that Will is too large for his gestational age. The

doctor said that this could put both of them in jeopardy, she suggested that we

may have to terminate to save Will…So, I am off the

perinatologist once again on Friday. I just don’t know how much

more bad news I can take.

If anyone out there has had a similar experience, I would

love to hear from you.

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