Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 Hi, this is Deanna...mom to 5.....Alyssa, , Jarod, , and ~i~ Jordan. We just passed the 3 year date of Jordan's passing on the 2nd.....always hate this month. has been battling chronic sinus infections and has finished up 6 rounds of antibiotics this winter. We are hoping he does not need to have surgery to correct this....one more surgery is too much for this little guy. Everyone else is kinda status quo. Hope everyone is doing well....especially little who has forever been on my mind. Deanna mom to Alyssa, 12 , 10 Jarod, 5 , 3 (DS) ~i~Jordan (DS) 1/20/03-2/2/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 Things are crazy here. Zack took the eaves spout off the house (again) and the basement flooded (again). The same day, my brother called to tell me that my dad passed away. He is with my mom, and my now. So, we have been busy with cleaning the basement, visitations, funerals and clearing out my dad's house. I picked a bad month to start selling my daughter's clothes on Ebay. Hope everyone else's year started out on a better note. Sue -- mom to Zack, 13, DS, 2 ASD's, an VSD and a bad mitral valve; Matt, 12. 's Anomaly, Cataracts, Glaucoma, PDD, PFO, hearing loss; , forever four, DS, TOF, gtube, 04/20/96-12/31/00; Sami, 3, sensory issues, autistic tendencies, but so far doing great in regular preschool! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Hi Sue- Our twins were born with TOF and had repairs at 3 months for Brice and 6 months with Brenan. Did have any surgeries? OH, my gosh! You have so much on your plate right now. I will be praying for you! Dana Haedge Brenan and Brice-17 months TOF Hayden-3 Kambree-10 From: Multiples-DS [mailto:Multiples-DS ] On Behalf Of zmadad@... Sent: Monday, February 06, 2006 11:25 PM To: Multiples-DS Subject: Re: Check-in Day!, 2/6/2006, 12:00 am Things are crazy here. Zack took the eaves spout off the house (again) and the basement flooded (again). The same day, my brother called to tell me that my dad passed away. He is with my mom, and my now. So, we have been busy with cleaning the basement, visitations, funerals and clearing out my dad's house. I picked a bad month to start selling my daughter's clothes on Ebay. Hope everyone else's year started out on a better note. Sue -- mom to Zack, 13, DS, 2 ASD's, an VSD and a bad mitral valve; Matt, 12. 's Anomaly, Cataracts, Glaucoma, PDD, PFO, hearing loss; , forever four, DS, TOF, gtube, 04/20/96-12/31/00; Sami, 3, sensory issues, autistic tendencies, but so far doing great in regular preschool! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Sue, Sorry to hear about your dad and sorry to hear about the flooding. Hope things get a little easier for you soon. Irene Re: Check-in Day!, 2/6/2006, 12:00 am Things are crazy here. Zack took the eaves spout off the house (again) and the basement flooded (again). The same day, my brother called to tell me that my dad passed away. He is with my mom, and my now. So, we have been busy with cleaning the basement, visitations, funerals and clearing out my dad's house. I picked a bad month to start selling my daughter's clothes on Ebay. Hope everyone else's year started out on a better note. Sue -- mom to Zack, 13, DS, 2 ASD's, an VSD and a bad mitral valve; Matt, 12. 's Anomaly, Cataracts, Glaucoma, PDD, PFO, hearing loss; , forever four, DS, TOF, gtube, 04/20/96-12/31/00; Sami, 3, sensory issues, autistic tendencies, but so far doing great in regular preschool! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Deanna, I can't imagine your strength every year at this time, what a wonderful example you are to so many by keeping his memory alive. I hope recovers without needing any further RX or surgery. Irene Re: Check-in Day!, 2/6/2006, 12:00 am Hi, this is Deanna...mom to 5.....Alyssa, , Jarod, , and ~i~ Jordan. We just passed the 3 year date of Jordan's passing on the 2nd.....always hate this month. has been battling chronic sinus infections and has finished up 6 rounds of antibiotics this winter. We are hoping he does not need to have surgery to correct this....one more surgery is too much for this little guy. Everyone else is kinda status quo. Hope everyone is doing well....especially little who has forever been on my mind. Deanna mom to Alyssa, 12 , 10 Jarod, 5 , 3 (DS) ~i~Jordan (DS) 1/20/03-2/2/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Dana, Interesting that your boys had tetrology of Fallot it is not very common in kids with DS. My son is also a TOF boy he had shunt surgery at 6 months and open heart at 20 months. He will require further surgery when he is older but he is now almost 14........Merry -- RE: Check-in Day!, 2/6/2006, 12:00 am Hi Sue- Our twins were born with TOF and had repairs at 3 months for Brice and 6 months with Brenan. Did have any surgeries? OH, my gosh! You have so much on your plate right now. I will be praying for you! Dana Haedge Brenan and Brice-17 months TOF Hayden-3 Kambree-10 From: Multiples-DS [mailto:Multiples-DS ] On Behalf Of zmadad@...Sent: Monday, February 06, 2006 11:25 PMTo: Multiples-DS Subject: Re: Check-in Day!, 2/6/2006, 12:00 am Things are crazy here. Zack took the eaves spout off the house (again) and the basement flooded (again). The same day, my brother called to tell me that my dad passed away. He is with my mom, and my now. So, we have been busy with cleaning the basement, visitations, funerals and clearing out my dad's house. I picked a bad month to start selling my daughter's clothes on Ebay. Hope everyone else's year started out on a better note. Sue -- mom to Zack, 13, DS, 2 ASD's, an VSD and a bad mitral valve; Matt, 12. 's Anomaly, Cataracts, Glaucoma, PDD, PFO, hearing loss; , forever four, DS, TOF, gtube, 04/20/96-12/31/00; Sami, 3, sensory issues, autistic tendencies, but so far doing great in regular preschool! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Checking in from Illinois-- This is --mom to Luke (DS) and Jake, who will turn 4 in April. The boys are both in 1/2 day preschool, Jake in a " regular " class and Luke in a self-contained class, with students with a wide range of delays. To weigh in on that issue, I had big concerns initially placing Luke in a self-contained classroom, but now I'm very glad he's in this particular class. First of all, a class like Jake's, even with an aide, would have been too much for Luke. He has his own aide, his teacher is wonderful, and he receives the therapies he needs (PT, OT, Speech & Hearing Impaired (which he's not, but works with that teacher on signing)). We have seen such great strides lately, and finally Luke is showing us what we knew he was capable of. He gets so much one-on-one in his class, and at this point in time is really what he needs. Everyone's situation is different, and since this was our first school experience, I really didn't know what to expect. But for Luke this is the best fit at this time, and I fully expect when we get to kindergarten that he will be in an inclusive class with an aide. I'm so glad to hear about everyone's experiences, so I know what possibilities are out there for our children. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Sue, Hope you are doing well as you can thru all of this... Lots of prayers are headed your way... - Granata -----Original Message-----From: Multiples-DS [mailto:Multiples-DS ]On Behalf Of igercakSent: Tuesday, February 07, 2006 8:09 AMTo: Multiples-DS Subject: Re: Check-in Day!, 2/6/2006, 12:00 am Sue, Sorry to hear about your dad and sorry to hear about the flooding. Hope things get a little easier for you soon. Irene Re: Check-in Day!, 2/6/2006, 12:00 am Things are crazy here. Zack took the eaves spout off the house (again) and the basement flooded (again). The same day, my brother called to tell me that my dad passed away. He is with my mom, and my now. So, we have been busy with cleaning the basement, visitations, funerals and clearing out my dad's house. I picked a bad month to start selling my daughter's clothes on Ebay. Hope everyone else's year started out on a better note. Sue -- mom to Zack, 13, DS, 2 ASD's, an VSD and a bad mitral valve; Matt, 12. 's Anomaly, Cataracts, Glaucoma, PDD, PFO, hearing loss; , forever four, DS, TOF, gtube, 04/20/96-12/31/00; Sami, 3, sensory issues, autistic tendencies, but so far doing great in regular preschool! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Ditto from The Granata's... Deanna, you are something special... -----Original Message-----From: Multiples-DS [mailto:Multiples-DS ]On Behalf Of igercakSent: Tuesday, February 07, 2006 8:12 AMTo: Multiples-DS Subject: Re: Check-in Day!, 2/6/2006, 12:00 am Deanna, I can't imagine your strength every year at this time, what a wonderful example you are to so many by keeping his memory alive. I hope recovers without needing any further RX or surgery. Irene Re: Check-in Day!, 2/6/2006, 12:00 am Hi, this is Deanna...mom to 5.....Alyssa, , Jarod, , and ~i~ Jordan. We just passed the 3 year date of Jordan's passing on the 2nd.....always hate this month. has been battling chronic sinus infections and has finished up 6 rounds of antibiotics this winter. We are hoping he does not need to have surgery to correct this....one more surgery is too much for this little guy. Everyone else is kinda status quo. Hope everyone is doing well....especially little who has forever been on my mind. Deanna mom to Alyssa, 12 , 10 Jarod, 5 , 3 (DS) ~i~Jordan (DS) 1/20/03-2/2/03 Quote Link to comment Share on other sites More sharing options...
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