a update - kinda long

[Guest guest]

I was doing an update of sorts elswhere and thought I would share it too, since

it's been a

long time...

Well, it seems has some new stimming behaviors that are over the top

lately. It's

becoming hard on us sometimes I guess. Over the years some things have been

worse

then others, and he usually has just like ONE thing he does.. then progresses to

the next

thing. But for months now it's progressed with the hitting and head banging,

music/

keyboard and he chews his blankets to the point of holes in them I even asked

the

Dentist last Friday to see what was going on in my boy's mouth as I was SURE he

must still

be teething molars or something.. but no Then, to top it all off, he is

stimming SO bad if

we go somewhere he gets VERY aggitated because he isn't at home with his

" fixes " . But..

we stay out anyway.. the boy needs breaks! And then all the grimmaces, possible

tics, ect..

seems there is just alot going on with him lately and I wish I knew what to do.

We don't

get far in the car and we can tell he is SO aggitated and it is breaking my

heart

Soooo we are dealing with alot of things lately. I was waiting to go to the DS

clinic after we

moved and they knew this, but I called today and left a message to just set up

our appt.

The oral chewing is so outta control his blankets are totally sopping wet. Today

I talked to

his OT and she sent home an oral chewer which I gave him and hid the blankets..

he is

using it off and on so that is good. And it doesn't look at " odd " as the chewing

of blankets.

LOL I just have to check him often because he will try to find a tshirt or

something else

I am hoping the clinic and help us some... I know some do meds for things like

this with

their kids and don't know if this is where we are headed or not.. but that too

has been on

my mind.. it might be a road we might have to travel down to see if it helps..

who knows.

And I think they might refer us to a doc for his tics, grimmaces, ect... we

talked about it on

the phone recently and I am thinking it might be good just to get a check up

that way.

We did go to an assistive tech fair this weekend and it was very cool. Lots of

adaptive stuff

for the disabled. We started the process on getting an adaptive

stroller, got the

script from the ped today and they also faxed it to the company we are going

through. So..

that is in the works.

We also are going to be working on an aug comm device for . We looked at

a few

and after a few talks with prior to Sat, we realized the odds of

talking and

communicating that way probably going to be non-existant, he is 8 and STILL has

never

uttered word in his whole life So, we looked at those devices and are

thinking long term

and this.. and going to try for the newer touch screen ones. The capabilties and

long term

ease would be better and less combersome overall. SO... that is going to be in

the works

too. I know the school district can provide one, but truthfully, when we move we

have to

give it back so we just want one here, if that makes sense. This if for his

future we feel,

not just for school.

We talked to a state MRDD blind services worker that does services for the

county we WILL

be moving too and he says what I have felt for a while.. probably should

be getting

more services as far as vision. That " functional vision " doesn't mean he CAN see

everything, it means he's just adjusted to what he has learned or remembered...

and I too

am thinking long term.. hence my bringing up of Braille. Just more thoughts and

more

ways of getting input for .

So that's in on the B Dussle front. I thought as he got older and

" understood " more

that things would get less and less.. but I am wrong with this concept so far.

Must start

to deal with the new turns before they really really get in the way more then

they already

are.

A.