Question about supplemental income

[Guest guest]

In a message dated 8/18/2006 5:49:06 P.M. Eastern Standard Time,

liz.desantis@... writes:

Ok, I just reapplied for SSIDisability for Tori and was denied once again.

Isn't there a disability program out there for kids who are disabled (DS,

Autism & Legally Blind).

Trisha has been getting SSI since she was about 3 months old. Is she being

denied because of your income?

Carol

Trishasmom

She isn't typical, She's Trisha!

[Guest guest]

In a message dated 8/19/2006 8:06:09 A.M. Eastern Standard Time,

liz.desantis@... writes:

Carol: Yes..my dh makes too much. They say it like your are millionaires or

something. But, if things change and we are living on the street, then she

can qualify.

Well we aren't living on the street yet so you don't have to lose your home

to get it, you just can't have a pot to " p " in. :-)

When she turns 18 they go by her income instead of yours. Does she get

medicaid? Have you applied for medicaid because they have a few different

rules

for medicaid than SSI. I'd get her on medicaid if possible because when she

turns 18 it will make the process so much easier.

Carol

Trishasmom

She isn't typical, She's Trisha!

[Guest guest]

In a message dated 8/18/2006 5:49:06 P.M. Eastern Standard Time,

liz.desantis@... writes:

Ok, I just reapplied for SSIDisability for Tori and was denied once again.

Isn't there a disability program out there for kids who are disabled (DS,

Autism & Legally Blind). We don't get any supplemental support for her. there

is

a 3-year waiting list for FDFS funds.

Liz-Again we are in Pa.

Yes Liz. But she should have medical assistance. In order to qualify

for MA, you have to have a denial letter from SSI. Once you get an MA

card, you then choose an insurance company. We have Keystone Mercy. It

covers all co-pays for meds (our family insurance AETNA pays most med stuff),

scripts, and other items such as diapers (we don't get them anymore) and

various

types of equipment. However, you DO have to jump through many hoops to

qualify...surprise surprise.

Donna

[Guest guest]

Carol: Yes..my dh makes too much. They say it like your are millionaires or

something. But, if things change and we are living on the street, then she can

qualify.

Liz

Re: Question about supplemental income

In a message dated 8/18/2006 5:49:06 P.M. Eastern Standard Time,

liz.desantis@... writes:

Ok, I just reapplied for SSIDisability for Tori and was denied once again.

Isn't there a disability program out there for kids who are disabled (DS,

Autism & Legally Blind).

Trisha has been getting SSI since she was about 3 months old. Is she being

denied because of your income?

Carol

Trishasmom

She isn't typical, She's Trisha!

[Guest guest]

Carol: No we aren't on the street, yet. =) It is just so frustrating. She

has been on ACCESS since birth, Thank God. ACCESS is Pa. Medicaid. We also get

reimbursed for my dh & her med. ins. premiums via HIPP. That is so we keep her

insured through my dh's job and ACCESS picks up what his ins. doesn't, inc.

copays. It helps.

Liz

Liz

Re: Question about supplemental income

In a message dated 8/19/2006 8:06:09 A.M. Eastern Standard Time,

liz.desantis@... writes:

Carol: Yes..my dh makes too much. They say it like your are millionaires or

something. But, if things change and we are living on the street, then she

can qualify.

Well we aren't living on the street yet so you don't have to lose your home

to get it, you just can't have a pot to " p " in. :-)

When she turns 18 they go by her income instead of yours. Does she get

medicaid? Have you applied for medicaid because they have a few different

rules

for medicaid than SSI. I'd get her on medicaid if possible because when she

turns 18 it will make the process so much easier.

Carol

Trishasmom

She isn't typical, She's Trisha!

[Guest guest]

Hey, Donna! She has been on ACCESS since birth, Thank God. ACCESS. We also

get reimbursed for my dh & her med. ins. premiums via HIPP. That is so we keep

her insured through my dh's job and ACCESS picks up what his ins. doesn't, inc.

copays. It helps.

How is your clan doing?

Liz

Re: Question about supplemental income

In a message dated 8/18/2006 5:49:06 P.M. Eastern Standard Time,

liz.desantis@... writes:

Ok, I just reapplied for SSIDisability for Tori and was denied once again.

Isn't there a disability program out there for kids who are disabled (DS,

Autism & Legally Blind). We don't get any supplemental support for her. there

is

a 3-year waiting list for FDFS funds.

Liz-Again we are in Pa.

Yes Liz. But she should have medical assistance. In order to qualify

for MA, you have to have a denial letter from SSI. Once you get an MA

card, you then choose an insurance company. We have Keystone Mercy. It

covers all co-pays for meds (our family insurance AETNA pays most med stuff),

scripts, and other items such as diapers (we don't get them anymore) and

various

types of equipment. However, you DO have to jump through many hoops to

qualify...surprise surprise.

Donna

[Guest guest]

She could get SSI if you as a family qualify until she is 18. At 18 she

qualifies for SSI on her own.

But she is qualaified for Medicaid based on her disability - isn't she? In

PA, she can qualify for SSI based on her disability. SHe would then

qualify for Medicaid even though the family is over income.

Then she would be eligible for FSF - and three years only means she is on

the list. I was also told it would be 3 years. After I called twice (once

every six months) , Elie qualified for FSF. After 2 years of it, he

qualified for PFDS funds (known as the capped waiver in PA). Don't give

up!!

Liz - What county are you in? I may know a advocate in your county.

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To: < >, <downsyndrome >,

><Parents_of_special_needs_kids_DE_MD_PA >

>Subject: Question about supplemental income

>Date: Fri, 18 Aug 2006 17:42:45 -0400

>

>Ok, I just reapplied for SSIDisability for Tori and was denied once again.

>Isn't there a disability program out there for kids who are disabled (DS,

>Autism & Legally Blind). We don't get any supplemental support for her.

>there is a 3-year waiting list for FDFS funds.

>

>Liz-Again we are in Pa.

>

> " Success manifests in small daily events, not only in accomplishing great

>things " - Remez Sasson

>

>

>

>

[Guest guest]

Tori,

Go to someone who knows about waivers. If your state

includes parental income to determine eligibility then

what you need is a medicaid waiver. You won't get SSI,

nor will she qualify, (in your state) but you might

qualify for one of the waiver programs. We have like

ONE here in Oregon, the Childhood Intensive Behavior

Waiver. Designed to help families who would send their

kids to an institution otherwise.

But that's the path you need to try and chase with a

caseworker, I think/hope/imagine.

Joan

--- Liz D wrote:

> Ok, I just reapplied for SSIDisability for Tori and

> was denied once again. Isn't there a disability

> program out there for kids who are disabled (DS,

> Autism & Legally Blind). We don't get any

> supplemental support for her. there is a 3-year

> waiting list for FDFS funds.

>

> Liz-Again we are in Pa.

>

> " Success manifests in small daily events, not only

> in accomplishing great things " - Remez Sasson

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

> --------------------------------------------------

> Checkout our homepage for information,

> bookmarks, and photos of our kids. Share favorite

> bookmarks, ideas, and other information by including

> them. Don't forget, messages are a permanent record

> of the archives for our list.

> http://groups.yahoo.com/group/

> --------------------------------------------

>

[Guest guest]

Thanks, Joan!!

Re: Question about supplemental income

Tori,

Go to someone who knows about waivers. If your state

includes parental income to determine eligibility then

what you need is a medicaid waiver. You won't get SSI,

nor will she qualify, (in your state) but you might

qualify for one of the waiver programs. We have like

ONE here in Oregon, the Childhood Intensive Behavior

Waiver. Designed to help families who would send their

kids to an institution otherwise.

But that's the path you need to try and chase with a

caseworker, I think/hope/imagine.

Joan

--- Liz D wrote:

> Ok, I just reapplied for SSIDisability for Tori and

> was denied once again. Isn't there a disability

> program out there for kids who are disabled (DS,

> Autism & Legally Blind). We don't get any

> supplemental support for her. there is a 3-year

> waiting list for FDFS funds.

>

> Liz-Again we are in Pa.

>

> " Success manifests in small daily events, not only

> in accomplishing great things " - Remez Sasson

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

> --------------------------------------------------

> Checkout our homepage for information,

> bookmarks, and photos of our kids. Share favorite

> bookmarks, ideas, and other information by including

> them. Don't forget, messages are a permanent record

> of the archives for our list.

> http://groups.yahoo.com/group/

> --------------------------------------------

>

[Guest guest]

Joan is partially right.

In PA, once you qualify by disability for SSI, and get a DIS-qualifying

letter from SSi based on income, you are then eligible for Access and

MEdicaid thru a (in most counties) an HMO. In the SE part of PA, the best

available(IMHO)for kids with disabilities is Keystone Mercy. The behavior

mental health portion is handled by CCBH (I believe) in most of the counties

in the SE.

Once that papee cahse is over, then your support coordinator needs to do a

PUNS which is a Priortization of Urgency of Needs document. This

determines if you are eligible (does not determine if you GET) for Person

Directed Family Support money, Community Support Waiver, or only Family

Support money. the determination of eligiblity is based on what you tell

them, document to them on the PUNS> It is VERY IMPORTANT that you tell them

how very difficult it is to live with Tori. Detail some of the more

horrific things you have dealt with. DO NOT UNDERESTIMATE the difficulty.

Family support money is not Medicaid but comes out of the base funds that

allow your county MH/MR to function. However, in most counties, you are not

eligible for anything until you complete all the process for Mediciade.

It is still subjective, but you can appeal all of this. Casey, the

undersecretary of MH/MR is very interested in what makes the system not work

for you. So tell him!!!

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To:

>Subject: Re: Question about supplemental income

>Date: Sat, 19 Aug 2006 11:14:07 -0700 (PDT)

>

>Tori,

>

>Go to someone who knows about waivers. If your state

>includes parental income to determine eligibility then

>what you need is a medicaid waiver. You won't get SSI,

>nor will she qualify, (in your state) but you might

>qualify for one of the waiver programs. We have like

>ONE here in Oregon, the Childhood Intensive Behavior

>Waiver. Designed to help families who would send their

>kids to an institution otherwise.

>

>But that's the path you need to try and chase with a

>caseworker, I think/hope/imagine.

>

>Joan

>

>

>--- Liz D wrote:

>

> > Ok, I just reapplied for SSIDisability for Tori and

> > was denied once again. Isn't there a disability

> > program out there for kids who are disabled (DS,

> > Autism & Legally Blind). We don't get any

> > supplemental support for her. there is a 3-year

> > waiting list for FDFS funds.

> >

> > Liz-Again we are in Pa.

> >

> > " Success manifests in small daily events, not only

> > in accomplishing great things " - Remez Sasson

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

> >

> > --------------------------------------------------

> > Checkout our homepage for information,

> > bookmarks, and photos of our kids. Share favorite

> > bookmarks, ideas, and other information by including

> > them. Don't forget, messages are a permanent record

> > of the archives for our list.

> > http://groups.yahoo.com/group/

> > --------------------------------------------

> >

[Guest guest]

Now it may be a matter of each state's determining how they determine

eligiblity...but in VA SSI/medicaid has NOTHING to do with FAMILY

income, it is all about your child's income...does your child receive

any income his/her name. (is your child a child movie star, getting any

residuals from those cute photo shoots, any support from an ex-spouse

paid directly tho him/her?)

If that is the case..then you may have difficulty...at which I would

then look into setting up a living trust fund...so the funding goes

into it and NOT into your child's pocket/bank statement.

Also look at the possiblity of qualifying for Medicaid Early & Periodic

Screening & Diagnostic Treatment Benefit

www.cms.hhs.gov/MedicaidEarlyPeriodicScrn

Donna ez

________________________________________________________________________

Check out AOL.com today. Breaking news, video search, pictures, email

and IM. All on demand. Always Free.

[Guest guest]

>

> Now it may be a matter of each state's determining how they

determine

> eligiblity...but in VA SSI/medicaid has NOTHING to do with FAMILY

> income, it is all about your child's income...does your child

receive

> any income his/her name. (is your child a child movie star, getting

any

> residuals from those cute photo shoots, any support from an ex-

spouse

> paid directly tho him/her?)

>

> If that is the case..then you may have difficulty...at which I

would

> then look into setting up a living trust fund...so the funding goes

> into it and NOT into your child's pocket/bank statement.

>

> Also look at the possiblity of qualifying for Medicaid Early &

Periodic

> Screening & Diagnostic Treatment Benefit

> www.cms.hhs.gov/MedicaidEarlyPeriodicScrn

>

>

>

>

> Donna ez

Donna you might want to check that information again. I live in VA

and they do go by Parent's income. When I was working it would

fluxate depending on how much I made.

[Guest guest]

FEDERAL law says that SSI for an impaired person under the age of 18 must

include family's income as part of the formula. However, after being

qualified for SSI by reason of disability, but disqualified due to family

income, one can then qualify for MEDICAIDE dependent on the disability and

the state in which one lives. After age 18, only the direct income of the

person applying is necessary. Thus the family could be millionaires but the

person age 18 does not receive any money, holds no bank account - that

person could receive SSI>

Sara - Choose to make lemonade, not complain about the lemons.

>From: dmartin336@...

>Reply-To:

>To:

>Subject: Question about supplemental income

>Date: Sun, 20 Aug 2006 23:24:11 -0400

>

>Now it may be a matter of each state's determining how they determine

>eligiblity...but in VA SSI/medicaid has NOTHING to do with FAMILY

>income, it is all about your child's income...does your child receive

>any income his/her name. (is your child a child movie star, getting any

>residuals from those cute photo shoots, any support from an ex-spouse

>paid directly tho him/her?)

>

>If that is the case..then you may have difficulty...at which I would

>then look into setting up a living trust fund...so the funding goes

>into it and NOT into your child's pocket/bank statement.

>

>Also look at the possiblity of qualifying for Medicaid Early & Periodic

>Screening & Diagnostic Treatment Benefit

>www.cms.hhs.gov/MedicaidEarlyPeriodicScrn

>

>

>

>

>Donna ez

>________________________________________________________________________

>Check out AOL.com today. Breaking news, video search, pictures, email

>and IM. All on demand. Always Free.

>

>

>

>--------------------------------------------------

>Checkout our homepage for information, bookmarks, and photos of

>our kids. Share favorite bookmarks, ideas, and other information by

>including them. Don't forget, messages are a permanent record of the

>archives for our list. http://groups.yahoo.com/group/

>--------------------------------------------

>