Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 Hi - We also live in New Jersey (Middlesex County)! I was thinking of taking Liam (10) to the Judy Center - would you recommend it? I was thinking that perhaps they could give us a good overall assessment of his development and skills and make suggestions for areas we should be addressing in OT, Speech and PT. I'm looking for someone other than the school system to take a look at the big picture and give us some guidance on what next. We got a diagnosis of PDD from Dr. Capone (although I'm questioning it at the moment) - do you think a trip to Judy is worth it? Nice to meet some fellow New Jerseyans! mom to Liam DS, PDD? - age 10 and Jack, NDA, 5 > > Hi Jane, > > I reside in northwestern New Jersey (Mount Olive Township). We brought our > son to the Down Syndrome Clinic at Hackensack University Medical > Center (Judy Center for Down Syndrome). > Dr. Fred Hirschenfang is the Medical Director, (201)996-JUDY. Most of the > children from 's school see Dr. Fred on an annual basis. He and his > staff are extremely knowledgeable. > > We also brought to the Child Development Center at town Memorial > Hospital, (973)971-5227. It was here where received the initial > PDD-NOS Diagnosis (Dr. Fadden or Dr. Nanna-Obi are excellent). > Unfortunately, it could take at least 2-3 months for appts., but it was > worth it. > > Finally, saw Dr. Capone at Kennedy Krieger Institute for a second > opinion. I'm so glad that we did and have decided to take the ride to > Baltimore on an annual basis. > > Best, > > Mom to , 35 months, DS-PDD-NOS > > > > > > >Reply-To: > >To: < > > >Subject: RE: Jane > >Date: Tue, 8 Aug 2006 09:57:39 -0400 > > > >Sara - I'm glad that our lack of dx was not just due to our poor parenting > >skills. That is what we encountered. An underlying sense of " what else > >could we expect given her low functioning level. " And this from a > >pediatric > >group who was considered expert in the arena of the disabled. They were > >great addressing her medical issues but little else. I am currently > >looking > >into a medical clinic run by the ARC - hopefully they will understand the > >issues of both DS and ASD better. > > > > > > > >We live near the New Jersey shore and have been fortunate in that NJ > >provides fairly decent schooling opportunities through age 21. > >attended a self-contained classroom in our school district until age 14 > >when > >she transferred to a private special -education school which she has just > > " aged " out of this spring. We are fortunate that the school had developed > >an adult program and since had been one of " theirs " they accepted her > >into their program in spite of her behavior issues. They know her and > >think > >she's cute and funny. > > > > > > > > stills lives at home with us but we've started to think about > >eventual > >placement since both my husband and I are older and with only a single > >older > >brother she will need something in place within a few years. I have to > >admit that the idea of placing her somewhere permanently brings tears to my > >eyes but I realize that we need to plan for her future. > > > > > > > >jane > > > > > > > > > > > > > > > > Jane > > > > > > > >* > >I am the mother of a 21yo young man who was not dx until he was 12yo. > >Primaary reason for the lack of secondary dx was that dr always dismissed > >his behavior as being a cognitive one (his issue) and poor parenting(my > >issue). > > > >We , my family, found the best source is a ds clinic with good > >developmental pediatrician. Many ds clinics will see people past 21 for > >dual > > > >dx. I don't know where you live, but let us know. We, on this list, live > >all over the world and have found good dr's in many parts of the world who > >could be of help to you. > > > >Is your daughter still in school, a day program, living at home, etc.? > > > >Sara - Choose to make lemonade, not complain about the lemons. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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