Guest guest Posted July 31, 2006 Report Share Posted July 31, 2006 Thanks Laurie -- where do I find the autism check list? Mikey is already diagnosed with autism (he was when he was 3), and I too, knew he had it but hearing the words officially was tough. His preschool teachers went with me to the meeting, and I lost it. I cried and cried and cried in front of all of them and for days later. I think I told you all that my husband passed away when Mikey was 2 years old, and it just makes it so much harder that I can't share this with my partner. Ahhhhhhhhhh. Anyhow, I'm going to write down all my concerns and behavior issues and hope the doctor will be able to give me some strategies to help him. thanks again, patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2006 Report Share Posted July 31, 2006 In a message dated 7/31/2006 9:57:59 P.M. Eastern Standard Time, mick8_7@... writes: Patty just do a search and put in autism checklists youll come up with alot of them I Id go thru those and print one out and just mark the symptons you see. I wish I could find the one I had.Theres so many fo them youd have to choose what one you like Great-- thanks Laurie. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2006 Report Share Posted July 31, 2006 Patty make a list of questions I am not one for using meds Mic is only 5 Mics dev ped watched Mic for 5 minutes and did a few little tests and dxed him. he knew I knew but I broke down and cried anyway I had already had his ped and another dev ped tell me it was asd but I wanted the big guy to say it was something else.I think he was shccked I cried because I had given him all the answers already Bring a copy of autism checklist with you filled out.The fact that Mic had stopped talking and eating pretty much secured the dev ped right away and the dangling.I cried alot that day . But I was gald to hear I didnt have muncheusen by proxy like my mother thought. Makes me laugh now.Everyone was looking me like I had 2 heads because I kept saying this is autism only person who knew I knew was Mics PT and Joan our list owner.It broke alot of hearst but I was beginning to think maybe there is something wrong with me maybe I am seeing things thank God for Joan our list owner and I took my mother to Mics PT with the autism checklist and she knew and had alittle talk with my mother.I was devastated for alittle while and then with help from this group and searching for help it was easier. Get right down to business and get help is the best way to go.Im pretty sure you already know Patty try to prepare everyone who cares and is in denial.I wanted to tell me it was severe sensory intgretion dysfunction not autism. Hope this helps. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2006 Report Share Posted July 31, 2006 Patty just do a search and put in autism checklists youll come up with alot of them I Id go thru those and print one out and just mark the symptons you see. I wish I could find the one I had.Theres so many fo them youd have to choose what one you like best. Or tey searching criteria for autism I just took a look there are so many sites.http://www.altonweb.com/cs/downsyndrome/index.htm This is one of them I used.Its from Riverbend downsyndrome. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2006 Report Share Posted July 31, 2006 when we went to the last developmental pediatrician, my main concern besides medication for behavior, was working on toilet training and how to create a sensible educational plan. Part of her team was an educational consultant and a psychologist. The psych helped us develop a behavior plan. She also led me to Steps to Independence, a book I still swear by which helped enormously with toilet training. The educational consultant helped me develope a teaching [plan for Elie. this was to include PECS, short instructioons, very concrete, time waiting for him to assimilate information due to his slow receptive understanding, etc. I would ask for help with those things that make life most difficult I would think that toilet training would be first on the list. Then how to give him a way to communicate. The running away? Locks and alarms!! Sara - Choose to make lemonade, not complain about the lemons. >From: hamburgpatti@... >Reply-To: >To: >Subject: need advice >Date: Mon, 31 Jul 2006 19:43:42 EDT > >Hi guys, > has an appointment on Friday with a developmental pediatrician. >So >far he has only been to his regular Pediatrician ( who has not been much >help >at all with his disability), and all the specialists like the eye doc, and >the ENT, orthopedic and some others. But I'm hoping to go in and get some >guidance and help with his growth and development. The thing is I'm not >sure >what to ask, what to expect, and all that. It's like I'm hoping she can >tell >me or give me something to make him magically better but I know that's not >going to happen. But I need help organizing my thought process. A lot of >your >children are taking some sort of meds -- How do I know what to ask for. >You all have so many great ideas and advice. Can some of you give me some >pointers to help me prep. for this appointment. > > is 7, DS and Autistic, he is still non verbal, not potty trained, >loves to " spin " things like belts and cords and towels and his sisters >bras, he >is constantly on the run, he will wander off if he's not supervised, he's >sweet and happy and has never had any kind of a meltdown or angry moment >in his >life, but basically he has his own agenda and it's hard to get him engaged >in >the activity of the moment. > >Thanks, Patty > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 In a message dated 8/1/2006 8:16:34 A.M. Eastern Standard Time, liz.desantis@... writes: Patty: Here is a list I got from Kennedy Kreiger many moons ago. Liz Thanks Liz -- He does fit into most of these categories. patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 Patty: Tori sees a Dev. Ped. who monitors her meds. What I would do is make a list of all his positive and negative behaviors. Having it in black & white makes it easier for all involved, because we can't remember everything. I use this when she has her psych evals as well. I update it as things change-for better or worse. I also keep in close contact with her when I see changes in Tori's behaviors. Hope this helps. Liz need advice Hi guys, has an appointment on Friday with a developmental pediatrician. So far he has only been to his regular Pediatrician ( who has not been much help at all with his disability), and all the specialists like the eye doc, and the ENT, orthopedic and some others. But I'm hoping to go in and get some guidance and help with his growth and development. The thing is I'm not sure what to ask, what to expect, and all that. It's like I'm hoping she can tell me or give me something to make him magically better but I know that's not going to happen. But I need help organizing my thought process. A lot of your children are taking some sort of meds -- How do I know what to ask for. You all have so many great ideas and advice. Can some of you give me some pointers to help me prep. for this appointment. is 7, DS and Autistic, he is still non verbal, not potty trained, loves to " spin " things like belts and cords and towels and his sisters bras, he is constantly on the run, he will wander off if he's not supervised, he's sweet and happy and has never had any kind of a meltdown or angry moment in his life, but basically he has his own agenda and it's hard to get him engaged in the activity of the moment. Thanks, Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 Patty: Here is a list I got from Kennedy Kreiger many moons ago. Liz Some Characteristics of a Child with Down syndrome & Autistic Spectrum Disorder Ø Child is reported to be developing at an expected pace up until about 1 year of age Ø Family begins to notice decreased skills with play, social interaction, eye contact Ø May exhibit numerous sensory issues with tactile, vestibular, and proprioceptive systems. Ø Exhibit preservative or self-stimulatory behaviors Ø Abnormal behaviors may be present and are listed below: ? Decreased or no eye contact ? Excessive mouthing of objects ? Staring directly into the lights ? Abnormal hand movements (such as flicking fingers in front of eyes, waving hands away from body, flapping of arms & stiffening of legs) ? Refusal to hold objects ? Flat affect ? Limited communication skills (signing or words) ? Decreased interaction with people ? Limited or no interest in toys ? Self-stimulatory behaviors (such as rocking, head banging, humming, teeth grinding) Re: need advice In a message dated 7/31/2006 9:57:59 P.M. Eastern Standard Time, mick8_7@... writes: Patty just do a search and put in autism checklists youll come up with alot of them I Id go thru those and print one out and just mark the symptons you see. I wish I could find the one I had.Theres so many fo them youd have to choose what one you like Great-- thanks Laurie. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 Tori takes Risperdal for her behaviors, and Prozac for her moods and they have helped immensely. I am not one for meds, but we got to a point where we all needed them. Liz Re: need advice In a message dated 8/1/2006 8:16:34 A.M. Eastern Standard Time, liz.desantis@... writes: Patty: Here is a list I got from Kennedy Kreiger many moons ago. Liz Thanks Liz -- He does fit into most of these categories. patty Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.