Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 Does anyone know of a local, regional, state, or national organization or agency that tracks the percentage of children diagnosed with autism in families with more than one child with autism?Thanks in advance,Alison Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 Alison, This data is in the realm of genetic research. I do not know of any one agency that collects this -- the CDC would be the closest, but I do not know of a specific website of theirs. Try googling " autism multiplex families " and you will find a cluster of behavioral and genetic studies that address the matter from a research perspective. Lenny > > > Does anyone know of a local, regional, state, or national organization or agency that tracks the percentage of children diagnosed with autism in families with more than one child with autism? > Thanks in advance,Alison > _________________________________________________________________ > Hotmail: Trusted email with Microsoft's powerful SPAM protection. > http://clk.atdmt.com/GBL/go/177141664/direct/01/ > http://clk.atdmt.com/GBL/go/177141664/direct/01/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 I called the CDC and they said " they will get back to me. " I beg to differ on your statement that this is in the realm of genetic research...this data may appear at first glance to be in the realm of genetic research, but it is not. If the CDC isn't sure of a true prevalence in the increase, surely they should be sure of a true prevalence in the increase of numbers of children within one family? It is a matter of simple tracking and so far, no one I have contacted has the data at hand, including Media Relations for the CDC. Dr. Wakefield wrote to me and said they have this information in their database at Thoughtful House. They may be the only ones! Anecdotally, I see more families impacted by more autism: and parents are caring for more than one child who is affected in the midst of state and local budget cuts. This information is important for agencies and organizations that have a direct impact on supports and service delivery. If I write about this, maybe I can plant a seed or two. > > > > > > Does anyone know of a local, regional, state, or national organization or agency that tracks the percentage of children diagnosed with autism in families with more than one child with autism? > > Thanks in advance,Alison > > _________________________________________________________________ > > Hotmail: Trusted email with Microsoft's powerful SPAM protection. > > http://clk.atdmt.com/GBL/go/177141664/direct/01/ > > http://clk.atdmt.com/GBL/go/177141664/direct/01/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 > > I called the CDC and they said " they will get back to me. " I beg to differ on your statement that this is in the realm of genetic research...this data may appear at first glance to be in the realm of genetic research, but it is not. My statement was not intended to be all exclusive. Multiplex families are frequently the subject of genetic research as the google search I suggested would show. So, no need to beg <wink>. The ARI database may have statistics on multiplex families, so you could check there, too. Lenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 The genetic studies have done bupkes to help my family. ARI is my next call, thanks! > > > > I called the CDC and they said " they will get back to me. " I beg to differ on your statement that this is in the realm of genetic research...this data may appear at first glance to be in the realm of genetic research, but it is not. > > > My statement was not intended to be all exclusive. Multiplex families are frequently the subject of genetic research as the google search I suggested would show. So, no need to beg <wink>. > > The ARI database may have statistics on multiplex families, so you could check there, too. > > Lenny > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 The Center for Human Genetics Autism Research at Duke might have info for you. ARI is a good call, too. pam > > > > I called the CDC and they said " they will get back to me. " I beg to differ on your statement that this is in the realm of genetic research...this data may appear at first glance to be in the realm of genetic research, but it is not. > > > My statement was not intended to be all exclusive. Multiplex families are frequently the subject of genetic research as the google search I suggested would show. So, no need to beg <wink>. > > The ARI database may have statistics on multiplex families, so you could check there, too. > > Lenny > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 you might try UC . M.i.n.d Institute http://www.ucdmc.ucdavis.edu/mindinstitute/stanOn Nov 6, 2009, at 8:28 AM, Alison wrote: Does anyone know of a local, regional, state, or national organization or agency that tracks the percentage of children diagnosed with autism in families with more than one child with autism?Thanks in advance,Alison Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. Quote Link to comment Share on other sites More sharing options...
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