Re: Hello I am new to the group.... introduction!

[Guest guest]

---Hi,

My son just turn 1 yr old and has down syndrome. But, I've noticed

that he started banging his head.....is this a sign of autism? What

are the signs? Please, if someone out there knows what the early

signs are, let me know.

Worried in SC

In , " Pamela "

wrote:

>

> I am Pamela single MOM to 4 wonders! 16, Charissa 10

> Chanysse 5 and Jezeriah 10 months. My boys have down syndrome.

> has a dual diagnosis of autism/DS and Jezeriah shows some

> traits of autism as well. I believe diet is the key to autism and

> have started the SCD (Specific Carbohydrate Diet). I would like to

> know if others have used this diet. Also if others found successful

> ways to support learning and overall development.

>

> Hoping to connect with others to find answers to support kids with

> Down syndrome/Autism.

>

> Together we can learn so very much!

> Cheers!

> Pamela

>

[Guest guest]

Welcome Pamala, I am Laurie Mom to Mic I have Mic in an ABA school and is doing

very well. He didnt eat food for the last 3 years and lost all his words thats

when we discovered asd. Now after a year and 1/2 he has a few words and is

eating some foods.And has alot more eye contact and way more social. Still

doesnt play with toys and dangles everything he can but we are making

progress.Joan owner of this group could help you with diet, I know alot of kids

get better with diet I cant use diet yet we are just beginning to get Mic to eat

later I will turn his diet when hes eating enough to sustain. right now he gets

pediasure which he lived on for 3 years and thats it vanila only ,now the shool

has him eating yogurt pudding and a few babyfoods nothing with texture though.

Mic had surgery for reflux and I think that had something to do with his

aversion to food.Youll find alot of support here its we are like one big cyber

family. Laurie

[Guest guest]

I just recently joined the group too and I also have a son with Down syndrome.

He is 4 and we are pretty sure he also has autism. Is your son doing anything

in addition to the head banging? I would love to talk to you more-please email

me anytime. Mi@.... Were you

at the NDSC convention last weekend in Atlanta?

Take care and try not to worry-if your son does end up getting a dual diagnosis

there is a lot out there to help him. Next summer we are taking Lincoln to

Children's Therapy Works in Georgia for a three week intensive program that has

done wonders for kids with autism and they have also worked with children who

have DS.

________________________________

From: [mailto: ] On Behalf Of

tammy

Sent: Thursday, July 27, 2006 6:37 AM

To:

Subject: Re: Hello I am new to the group.... introduction!

---Hi,

My son just turn 1 yr old and has down syndrome. But, I've noticed

that he started banging his head.....is this a sign of autism? What

are the signs? Please, if someone out there knows what the early

signs are, let me know.

Worried in SC

In <mailto:%40yahoogroups.com> , " Pamela "

wrote:

>

> I am Pamela single MOM to 4 wonders! 16, Charissa 10

> Chanysse 5 and Jezeriah 10 months. My boys have down syndrome.

> has a dual diagnosis of autism/DS and Jezeriah shows some

> traits of autism as well. I believe diet is the key to autism and

> have started the SCD (Specific Carbohydrate Diet). I would like to

> know if others have used this diet. Also if others found successful

> ways to support learning and overall development.

>

> Hoping to connect with others to find answers to support kids with

> Down syndrome/Autism.

>

> Together we can learn so very much!

> Cheers!

> Pamela

>

[Guest guest]

Pamela: Welcome to the group! Where do you guys live?

Liz-Mom to Tori 6.5 yrs. PA

Hello I am new to the group.... introduction!

I am Pamela single MOM to 4 wonders! 16, Charissa 10

Chanysse 5 and Jezeriah 10 months. My boys have down syndrome.

has a dual diagnosis of autism/DS and Jezeriah shows some

traits of autism as well. I believe diet is the key to autism and

have started the SCD (Specific Carbohydrate Diet). I would like to

know if others have used this diet. Also if others found successful

ways to support learning and overall development.

Hoping to connect with others to find answers to support kids with

Down syndrome/Autism.

Together we can learn so very much!

Cheers!

Pamela

[Guest guest]

Tammy: I would check out the Autism checklist and see how well your little one

fits it's criteria. I think it is posted at our site. If not, check out

www.disabilitysolutions.org . There are several documents available to

read...one specifically geared toward the dual dx.

Liz-Mom to Tori 6.5 yrs.

Re: Hello I am new to the group.... introduction!

---Hi,

My son just turn 1 yr old and has down syndrome. But, I've noticed

that he started banging his head.....is this a sign of autism? What

are the signs? Please, if someone out there knows what the early

signs are, let me know.

Worried in SC

In , " Pamela "

wrote:

>

> I am Pamela single MOM to 4 wonders! 16, Charissa 10

> Chanysse 5 and Jezeriah 10 months. My boys have down syndrome.

> has a dual diagnosis of autism/DS and Jezeriah shows some

> traits of autism as well. I believe diet is the key to autism and

> have started the SCD (Specific Carbohydrate Diet). I would like to

> know if others have used this diet. Also if others found successful

> ways to support learning and overall development.

>

> Hoping to connect with others to find answers to support kids with

> Down syndrome/Autism.

>

> Together we can learn so very much!

> Cheers!

> Pamela

>

[Guest guest]

Our one dietary issue with Jake is cows milk. We find that his Autistic traits

come screaming out within 20 minutes of having milk or yogurt. He used to love

mac and cheese but since we have restricted his milk to just an occasional ice

cream, he never seems to want the mac and cheese. It is almost like he knows.

We have him on soy milk, soy yogurt, and when we can soy ice cream.

Holly

Hello I am new to the group.... introduction!

I am Pamela single MOM to 4 wonders! 16, Charissa 10

Chanysse 5 and Jezeriah 10 months. My boys have down syndrome.

has a dual diagnosis of autism/DS and Jezeriah shows some

traits of autism as well. I believe diet is the key to autism and

have started the SCD (Specific Carbohydrate Diet). I would like to

know if others have used this diet. Also if others found successful

ways to support learning and overall development.

Hoping to connect with others to find answers to support kids with

Down syndrome/Autism.

Together we can learn so very much!

Cheers!

Pamela

[Guest guest]

Holly,

I am new to the group. My 4 year old son has Down syndrome and we are 99.9%

sure he is also autistic. I started him on soy milk yesterday because I also

heard that cow's milk can be hard on these guys. Have you eliminated all dairy?

My son loves pizza and this we know is full of dairy because of the cheese.

Love to hear your thoughts. Also, are there national autism conventions like

there are DS conventions?

________________________________

From: [mailto: ] On Behalf Of

Holly Giglio

Sent: Thursday, July 27, 2006 9:55 AM

To:

Subject: Re: Hello I am new to the group.... introduction!

Our one dietary issue with Jake is cows milk. We find that his Autistic traits

come screaming out within 20 minutes of having milk or yogurt. He used to love

mac and cheese but since we have restricted his milk to just an occasional ice

cream, he never seems to want the mac and cheese. It is almost like he knows. We

have him on soy milk, soy yogurt, and when we can soy ice cream.

Holly

Hello I am new to the group.... introduction!

I am Pamela single MOM to 4 wonders! 16, Charissa 10

Chanysse 5 and Jezeriah 10 months. My boys have down syndrome.

has a dual diagnosis of autism/DS and Jezeriah shows some

traits of autism as well. I believe diet is the key to autism and

have started the SCD (Specific Carbohydrate Diet). I would like to

know if others have used this diet. Also if others found successful

ways to support learning and overall development.

Hoping to connect with others to find answers to support kids with

Down syndrome/Autism.

Together we can learn so very much!

Cheers!

Pamela

[Guest guest]

: Alot of kids with autism are gluten and casein sensitive. Families

whose children are affected by this swear by a gf-cf diet. There is a test for

this.

Liz

Hello I am new to the group.... introduction!

I am Pamela single MOM to 4 wonders! 16, Charissa 10

Chanysse 5 and Jezeriah 10 months. My boys have down syndrome.

has a dual diagnosis of autism/DS and Jezeriah shows some

traits of autism as well. I believe diet is the key to autism and

have started the SCD (Specific Carbohydrate Diet). I would like to

know if others have used this diet. Also if others found successful

ways to support learning and overall development.

Hoping to connect with others to find answers to support kids with

Down syndrome/Autism.

Together we can learn so very much!

Cheers!

Pamela

[Guest guest]

Liz,

What does the test entail? Do I have to go to a specialist or can my

pediatrician do it?

________________________________

From: [mailto: ] On Behalf Of

Liz D

Sent: Thursday, July 27, 2006 12:07 PM

To:

Subject: Re: Hello I am new to the group.... introduction!

: Alot of kids with autism are gluten and casein sensitive. Families

whose children are affected by this swear by a gf-cf diet. There is a test for

this.

Liz

Hello I am new to the group.... introduction!

I am Pamela single MOM to 4 wonders! 16, Charissa 10

Chanysse 5 and Jezeriah 10 months. My boys have down syndrome.

has a dual diagnosis of autism/DS and Jezeriah shows some

traits of autism as well. I believe diet is the key to autism and

have started the SCD (Specific Carbohydrate Diet). I would like to

know if others have used this diet. Also if others found successful

ways to support learning and overall development.

Hoping to connect with others to find answers to support kids with

Down syndrome/Autism.

Together we can learn so very much!

Cheers!

Pamela

[Guest guest]

: Celiac is usually handled by a Gastroenterologist. I can't remember

how the test was done (it was a few years ago). I am sure someone else on this

site can answer that.

Liz

Hello I am new to the group.... introduction!

I am Pamela single MOM to 4 wonders! 16, Charissa 10

Chanysse 5 and Jezeriah 10 months. My boys have down syndrome.

has a dual diagnosis of autism/DS and Jezeriah shows some

traits of autism as well. I believe diet is the key to autism and

have started the SCD (Specific Carbohydrate Diet). I would like to

know if others have used this diet. Also if others found successful

ways to support learning and overall development.

Hoping to connect with others to find answers to support kids with

Down syndrome/Autism.

Together we can learn so very much!

Cheers!

Pamela

[Guest guest]

Thanks, I'll check it out

Liz D wrote: Tammy: I would check out the Autism

checklist and see how well your little one fits it's criteria. I think it is

posted at our site. If not, check out www.disabilitysolutions.org . There are

several documents available to read...one specifically geared toward the dual

dx.

Liz-Mom to Tori 6.5 yrs.

Re: Hello I am new to the group.... introduction!

---Hi,

My son just turn 1 yr old and has down syndrome. But, I've noticed

that he started banging his head.....is this a sign of autism? What

are the signs? Please, if someone out there knows what the early

signs are, let me know.

Worried in SC

In , " Pamela "

wrote:

>

> I am Pamela single MOM to 4 wonders! 16, Charissa 10

> Chanysse 5 and Jezeriah 10 months. My boys have down syndrome.

> has a dual diagnosis of autism/DS and Jezeriah shows some

> traits of autism as well. I believe diet is the key to autism and

> have started the SCD (Specific Carbohydrate Diet). I would like to

> know if others have used this diet. Also if others found successful

> ways to support learning and overall development.

>

> Hoping to connect with others to find answers to support kids with

> Down syndrome/Autism.

>

> Together we can learn so very much!

> Cheers!

> Pamela

>

[Guest guest]

Hi ,

That's all I've noticed so far. Really, I'm basicly on my own, I knew of no

conventions. It's very difficult for me to get out, you see, I have 3 other

children, and work full time.

Tammy

wrote:

I just recently joined the group too and I also have a son with Down

syndrome. He is 4 and we are pretty sure he also has autism. Is your son doing

anything in addition to the head banging? I would love to talk to you

more-please email me anytime.

Mi@.... Were you at the NDSC convention last weekend in Atlanta?

Take care and try not to worry-if your son does end up getting a dual diagnosis

there is a lot out there to help him. Next summer we are taking Lincoln to

Children's Therapy Works in Georgia for a three week intensive program that has

done wonders for kids with autism and they have also worked with children who

have DS.

________________________________

From: [mailto: ] On Behalf Of

tammy

Sent: Thursday, July 27, 2006 6:37 AM

To:

Subject: Re: Hello I am new to the group.... introduction!

---Hi,

My son just turn 1 yr old and has down syndrome. But, I've noticed

that he started banging his head.....is this a sign of autism? What

are the signs? Please, if someone out there knows what the early

signs are, let me know.

Worried in SC

In <mailto:%40yahoogroups.com> , " Pamela "

wrote:

>

> I am Pamela single MOM to 4 wonders! 16, Charissa 10

> Chanysse 5 and Jezeriah 10 months. My boys have down syndrome.

> has a dual diagnosis of autism/DS and Jezeriah shows some

> traits of autism as well. I believe diet is the key to autism and

> have started the SCD (Specific Carbohydrate Diet). I would like to

> know if others have used this diet. Also if others found successful

> ways to support learning and overall development.

>

> Hoping to connect with others to find answers to support kids with

> Down syndrome/Autism.

>

> Together we can learn so very much!

> Cheers!

> Pamela

>

[Guest guest]

Hi ,

I am falling behind on my correspondence. I apologize.

We actually allow Jake to have pizza because it is one of his favorite foods.

The funny thing is that we do not notice the behaviors as much with cheese, just

milk and yogurt, and ice cream. We also let him have a little real ice cream

here and there. Luckily, he likes the soy ice cream as well. We usually use

the Tofutti ice cream. We use Silk or Natures Best soy milk, and silk yogurts.

Also, we try to use organic everything when available. Jake really likes this

juice called VRUIT. It is juice made from organic fruits and veggies but it

taste like fruit juice. We get it at Whole Foods. He loves it! He is just now

starting to eat more fresh fruits and veggies.

There are Autism conventions and the past DS conventions have had speaker son

dual diagnosis. I think more people are becoming aware that just because their

kids have DS does not mean they are except from possible Autism. We pretty much

knew when Jake was about 3. We did not get our diagnosis until last year.

This list serve is one of the best. I love that everyone can voice their

opinions without feeling assaulted. this is a wonderful group for ideas and

guidance.

Where are you located? We are in PA. We also lived in MI, AL and I was

born/raised in TX. Crazy!

Talk to you soon.

Holly

Hello I am new to the group.... introduction!

I am Pamela single MOM to 4 wonders! 16, Charissa 10

Chanysse 5 and Jezeriah 10 months. My boys have down syndrome.

has a dual diagnosis of autism/DS and Jezeriah shows some

traits of autism as well. I believe diet is the key to autism and

have started the SCD (Specific Carbohydrate Diet). I would like to

know if others have used this diet. Also if others found successful

ways to support learning and overall development.

Hoping to connect with others to find answers to support kids with

Down syndrome/Autism.

Together we can learn so very much!

Cheers!

Pamela