Re: Our kids do grow and change

[Guest guest]

Sara thanks for sharing your memories on this special milestone day for

Elie. Louise

Our kids do grow and change

My dh and I were going over Elie's picture albums. Of course there are

no

pix of him sitting in a pool of poop, no odor tags, no cd's of his

screaming

for hours at a time, no pix of me running like a crazed person searching

for

him, etc. But each pix reminded of us of somehing at that age.

Today he is 21. He is house trained. He is using the bathroom

appropriately. Even closes the door most of the time and occasionally

washes his hands without direction.

He sorts his clothes from the clean laundry and puts it away. New this

week, he takes his dirty clothes from the hamper and puts it in the

laundry

room. He has not " gotten lost " even at this new house - not even once

and

we have no fence or security system yet. Now I wonder if we really need

one.... or am I pressing my luck. Elie just came and told me it was time

for lunch - " birthday lunch at 's. Then make a chocolate cake with

icecream, make a wish. Elie by himself. " So easy to please!!! No word of

money or presents.

Eating issues?? He would still eat his H'buger and ff with choclate milk

24/7, but he will eat what we eat as long as we sandwich the meat. He

even

ate at a chinese restaurant recently - of course he had chinese

spaghetti

and we brought a slice of his bread with us.

No more wheelchair when shopping. No mirror and most of the time no

" babies. But he does carry a dangly handkerchief.

And he is agreeing to sit on the green machine he was given last year!!

Maybe he will even ride it in this lifetime.

Went to summer school in this new environment. Did have 2 sit down

strikes

but he didn't hit anyone and he didn't curse anyone.

Of course no waiver funds and no respite or habilitation yet but we have

only been here a month.

Sara - Choose to make lemonade, not complain about the lemons.

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[Guest guest]

Totally agree here, thank you Sara for sharing this, I enjoyed the

title too. " Our Kids do grow and change " .

I know I do not have any pics of the " ugly or the bad, just the good "

issues. In a way maybe I should of taken some of them, just to throw

it at the school district in what we deal with at home or on our

outings but such a relief where were at now.

Nice that Elie has adapted to his new environment at your new place,

hope that Elie will continue.

I know you had mentioned about your daughter in the past, does she

live near y'all?

HAPPY 21st BIRTHDAY to ELIE!

Irma,17,DS/ASD

>

> Sara thanks for sharing your memories on this special milestone day

for

> Elie. Louise

[Guest guest]

Hi Sara,

Happy 21st Birthday to Elie! Are you taking him out for a beer? I am amazed at

how well he has transitioned to his new house and school. He is a man. Zeb tells

me that he is going to a bar and have a beer when he is 21,LOL, he doesn't know

what a bar is.

Charlyne

Mom to Zeb 13 DS/OCD/ASD?

sara cohen wrote:

My dh and I were going over Elie's picture albums. Of course there are

no

pix of him sitting in a pool of poop, no odor tags, no cd's of his screaming

for hours at a time, no pix of me running like a crazed person searching for

him, etc. But each pix reminded of us of somehing at that age.

Today he is 21. He is house trained. He is using the bathroom

appropriately. Even closes the door most of the time and occasionally

washes his hands without direction.

He sorts his clothes from the clean laundry and puts it away. New this

week, he takes his dirty clothes from the hamper and puts it in the laundry

room. He has not " gotten lost " even at this new house - not even once and

we have no fence or security system yet. Now I wonder if we really need

one.... or am I pressing my luck. Elie just came and told me it was time

for lunch - " birthday lunch at 's. Then make a chocolate cake with

icecream, make a wish. Elie by himself. " So easy to please!!! No word of

money or presents.

Eating issues?? He would still eat his H'buger and ff with choclate milk

24/7, but he will eat what we eat as long as we sandwich the meat. He even

ate at a chinese restaurant recently - of course he had chinese spaghetti

and we brought a slice of his bread with us.

No more wheelchair when shopping. No mirror and most of the time no

" babies. But he does carry a dangly handkerchief.

And he is agreeing to sit on the green machine he was given last year!!

Maybe he will even ride it in this lifetime.

Went to summer school in this new environment. Did have 2 sit down strikes

but he didn't hit anyone and he didn't curse anyone.

Of course no waiver funds and no respite or habilitation yet but we have

only been here a month.

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To:

>Subject: Re: understanding right and wrong/danger

>Date: Thu, 06 Jul 2006 06:02:56 -0000

>

>You could add to this list when he was younger, poop artist.

>runner/escape artist, into everything, etc. Our house was Fort Knox and

>I was such a hawk.

>Recently last month at one of the local support group meetings, there

>was a speaker who was discussing about the issues of us parents needing

>some time for ourselves, which is true.

>Then one parent/single with a 6 y/o daughter with AU whom I already

>know her issues that she has to deal with, raised her hand to speak up

>and see if the therapist could help her some, she had mentioned

>that " everyone has time " , then one of the AU Support group board

>member/grandfather to a 12 y/o grandson spoke up had to share his view

>and mentioned to her that " everyone can find some time like while her

>daughter is asleep, when you have some bath time, etc " . The mom had

>replied " daughter does not sleep, daughter follows her to the restroom,

>her daughter's grandmother is unable to watch her all the time, works

>part-time, no family or friends,ex-dh is not part of the picture, etc " .

>Then the parents with younger ones spoke up, had also mentioned that

>everyone their could help her, if she will ask.

>I could not stand it anymore as I knew most of the parents who spoke up

>whom meant well, have kids under the spectrum/HF level, most have

>family & friends, etc. The point here they never had to deal with

>issues like this as I know some of their stories.

>I had raised my hand, I was given the floor as always. I had mentioned

>every individual child under the spectrum are different & with me

>knowing her, the question here would be " Are we,the parent's ready to

>let go of our child under the spectrum to anyone? Is anyone trained,

>can we trust anyone to actually watch our kids? There are alot of

>issues that must be addressed. I had family and friends when my son was

>younger ready to help watch him, but I could not enjoy an evening out

>with friends or even be with my husband just for a movie or restaurant

>in peace, I was always checking up on about every 5 minutes, dh

>could not enjoy our date. What was the point of it? My son was in a

>similar boat like her daughter's issues. Until some of the issues are

>addressed with my son ABA, SI, Visual strategies/schedules, etc. now

>I'm able to go out not having to worry with the house turned upside

>down/redecorated, poop all over, self-injury to himself or to others,

>did not run off/escaped naked,etc.,there is alot involve here " .

>Then this gave one of the ABA therapist the opportunity to back me up

>by telling the AU support group on what some of us parents have to go

>through which was nice as he knew exactly where I was coming from. Once

>the speaker was done, then it was time to break away to the adult

>support group and before I headed out the door, many had thanked me for

>informing the group of the experiences I had gone through that some of

>us with kids under the spectrum when told something, it is not that

>easy.

>My son has outgrown so much compared to when he was younger, so with my

>son it has gotten better.

>Here is to finding some solutions around your child may they decrease

>to have some relief of comfort for many reasons.

>

>Irma,17,DS/ASD

>

>

>

>

>

>

>

>--------------------------------------------------

>Checkout our homepage for information, bookmarks, and photos of

>our kids. Share favorite bookmarks, ideas, and other information by

>including them. Don't forget, messages are a permanent record of the

>archives for our list. http://groups.yahoo.com/group/

>--------------------------------------------

>

[Guest guest]

Our daughter who is an OT who works with kids with sensory issues lives

about an hour south of us in an ATL suburb called Dunwoody. We see her

about every 2 weeks or so. Altho my husband has " volunteered " to be the

nanny for the 2 weeks that nanny goes back to school before baby Maya starts

her first year of pre-preschool!!

Interesting- Elie is only very slightly interested in Maya. He will help

get toys ready for her to play with while she visits, but pretty much ignors

her once she is here.

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To:

>Subject: Re: Our kids do grow and change

>Date: Fri, 07 Jul 2006 02:07:48 -0000

>

>Totally agree here, thank you Sara for sharing this, I enjoyed the

>title too. " Our Kids do grow and change " .

>I know I do not have any pics of the " ugly or the bad, just the good "

>issues. In a way maybe I should of taken some of them, just to throw

>it at the school district in what we deal with at home or on our

>outings but such a relief where were at now.

>Nice that Elie has adapted to his new environment at your new place,

>hope that Elie will continue.

>I know you had mentioned about your daughter in the past, does she

>live near y'all?

>

>

>HAPPY 21st BIRTHDAY to ELIE!

>

>Irma,17,DS/ASD

>

>

>

> >

> > Sara thanks for sharing your memories on this special milestone day

>for

> > Elie. Louise

>

>

>

>

>

>

>

>--------------------------------------------------

>Checkout our homepage for information, bookmarks, and photos of

>our kids. Share favorite bookmarks, ideas, and other information by

>including them. Don't forget, messages are a permanent record of the

>archives for our list. http://groups.yahoo.com/group/

>--------------------------------------------

>

[Guest guest]

I do remember this she is an OT who specializes with SI.

Living not far from you all, glad all worked out, how nice that

issues have ironed out and y'all can spend some time with your

granddaughter. Uncle Elie coming along even under his terms.

Elie has come along way with so much you have shared.

Can't believe how Maya will began preschool already,time flies.

Irma,17,DS/ASD

>

> Our daughter who is an OT who works with kids with sensory issues

lives

> about an hour south of us in an ATL suburb called Dunwoody. We see

her

> about every 2 weeks or so. Altho my husband has " volunteered " to

be the

> nanny for the 2 weeks that nanny goes back to school before baby

Maya starts

> her first year of pre-preschool!!

>

> Interesting- Elie is only very slightly interested in Maya. He

will help

> get toys ready for her to play with while she visits, but pretty

much ignors

> her once she is here.

>

>

>

> Sara - Choose to make lemonade, not complain about the lemons.

[Guest guest]

Hi Sara,

Zeb isn't overjoyed with the toddlers during their visits either. He liked

them better as babies but being so mobil and into everything he'd rather stay

away. Maya is too big for Elie to rock.

Charlyne

Mom to Zeb 13 DS/OCD/ASD?

sara cohen wrote:

Our daughter who is an OT who works with kids with sensory issues

lives

about an hour south of us in an ATL suburb called Dunwoody. We see her

about every 2 weeks or so. Altho my husband has " volunteered " to be the

nanny for the 2 weeks that nanny goes back to school before baby Maya starts

her first year of pre-preschool!!

Interesting- Elie is only very slightly interested in Maya. He will help

get toys ready for her to play with while she visits, but pretty much ignors

her once she is here.

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To:

>Subject: Re: Our kids do grow and change

>Date: Fri, 07 Jul 2006 02:07:48 -0000

>

>Totally agree here, thank you Sara for sharing this, I enjoyed the

>title too. " Our Kids do grow and change " .

>I know I do not have any pics of the " ugly or the bad, just the good "

>issues. In a way maybe I should of taken some of them, just to throw

>it at the school district in what we deal with at home or on our

>outings but such a relief where were at now.

>Nice that Elie has adapted to his new environment at your new place,

>hope that Elie will continue.

>I know you had mentioned about your daughter in the past, does she

>live near y'all?

>

>

>HAPPY 21st BIRTHDAY to ELIE!

>

>Irma,17,DS/ASD

>

>

>

> >

> > Sara thanks for sharing your memories on this special milestone day

>for

> > Elie. Louise

>

>

>

>

>

>

>

>--------------------------------------------------

>Checkout our homepage for information, bookmarks, and photos of

>our kids. Share favorite bookmarks, ideas, and other information by

>including them. Don't forget, messages are a permanent record of the

>archives for our list. http://groups.yahoo.com/group/

>--------------------------------------------

>

[Guest guest]

Hi Sara,

Does s-i-l not know that pre-preschool has kids with runny noses dripping on

toys and other kids? I think s-i-l needs the beer to chill.

Charlyne

Mom to Zeb 13 DS/OCD/ASD?

sara cohen wrote:

My s-i-l is still not thrilled with Elie being around his daughter.

The

newest remark is he doesn't wash his hands enough. But since Elie plays

with his own things and doesn't touch Maya, that isn't much of a problem.

Maya will be 2 on July 31st! Of course, now we have a rambunctious puppy,

so I am sure there will be an issue over that. I cannot help that my s-i-l

is undiagnosed (except by me) ADHD and OCD.

Note that I am not playing Nanny. I am strictly the visiting Grandma. I

cannot handle the constant cleaning, worry about water spots on the marble,

etc. Bob just ignors them! I always feel inadequate!!! Besides I already

raised oodles of kids. Bob was deployed. Now it is his turn.

Elie is so excited - After 3 weeks, I go to camp. Back my bags and sleep

overnite. And I am thrilled. The camp is located in the same county in

which we live - just 5 miles from our house.

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To:

>Subject: Re: Our kids do grow and change

>Date: Fri, 07 Jul 2006 15:51:05 -0000

>

>I do remember this she is an OT who specializes with SI.

>Living not far from you all, glad all worked out, how nice that

>issues have ironed out and y'all can spend some time with your

>granddaughter. Uncle Elie coming along even under his terms.

>Elie has come along way with so much you have shared.

>Can't believe how Maya will began preschool already,time flies.

>

>Irma,17,DS/ASD

>

>

>

> >

> > Our daughter who is an OT who works with kids with sensory issues

>lives

> > about an hour south of us in an ATL suburb called Dunwoody. We see

>her

> > about every 2 weeks or so. Altho my husband has " volunteered " to

>be the

> > nanny for the 2 weeks that nanny goes back to school before baby

>Maya starts

> > her first year of pre-preschool!!

> >

> > Interesting- Elie is only very slightly interested in Maya. He

>will help

> > get toys ready for her to play with while she visits, but pretty

>much ignors

> > her once she is here.

> >

> >

> >

> > Sara - Choose to make lemonade, not complain about the lemons.

>

>

>

>

>

>

>

>

>--------------------------------------------------

>Checkout our homepage for information, bookmarks, and photos of

>our kids. Share favorite bookmarks, ideas, and other information by

>including them. Don't forget, messages are a permanent record of the

>archives for our list. http://groups.yahoo.com/group/

>--------------------------------------------

>

[Guest guest]

You got it - he likes babies up to about 6-8 months. Then he would just as

soon they disappear.

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To:

>Subject: RE: Re: Our kids do grow and change

>Date: Fri, 7 Jul 2006 22:36:08 -0700 (PDT)

>

>Hi Sara,

> Zeb isn't overjoyed with the toddlers during their visits either. He

>liked them better as babies but being so mobil and into everything he'd

>rather stay away. Maya is too big for Elie to rock.

> Charlyne

> Mom to Zeb 13 DS/OCD/ASD?

>

>sara cohen wrote:

> Our daughter who is an OT who works with kids with sensory

>issues lives

>about an hour south of us in an ATL suburb called Dunwoody. We see her

>about every 2 weeks or so. Altho my husband has " volunteered " to be the

>nanny for the 2 weeks that nanny goes back to school before baby Maya

>starts

>her first year of pre-preschool!!

>

>Interesting- Elie is only very slightly interested in Maya. He will help

>get toys ready for her to play with while she visits, but pretty much

>ignors

>her once she is here.

>

>Sara - Choose to make lemonade, not complain about the lemons.

>

> >

> >Reply-To:

> >To:

> >Subject: Re: Our kids do grow and change

> >Date: Fri, 07 Jul 2006 02:07:48 -0000

> >

> >Totally agree here, thank you Sara for sharing this, I enjoyed the

> >title too. " Our Kids do grow and change " .

> >I know I do not have any pics of the " ugly or the bad, just the good "

> >issues. In a way maybe I should of taken some of them, just to throw

> >it at the school district in what we deal with at home or on our

> >outings but such a relief where were at now.

> >Nice that Elie has adapted to his new environment at your new place,

> >hope that Elie will continue.

> >I know you had mentioned about your daughter in the past, does she

> >live near y'all?

> >

> >

> >HAPPY 21st BIRTHDAY to ELIE!

> >

> >Irma,17,DS/ASD

> >

> >

> >

> > >

> > > Sara thanks for sharing your memories on this special milestone day

> >for

> > > Elie. Louise

> >

> >

> >

> >

> >

> >

> >

> >--------------------------------------------------

> >Checkout our homepage for information, bookmarks, and photos

>of

> >our kids. Share favorite bookmarks, ideas, and other information by

> >including them. Don't forget, messages are a permanent record of the

> >archives for our list. http://groups.yahoo.com/group/

> >--------------------------------------------

> >

[Guest guest]

wow!! happy birthday elie!! you are really growing up!! shawna

---------------------------------

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