Re: stop, drop and flop

[Guest guest]

I had a stop and drop situation yesterday for the first time in a long time. The

child in the class room decided he was going to really test me yesterday. He

began by hitting me on the arm over and over during a task. After about 10 times

of getting no reaction he gave up and did his work.He even hit his own arm,

maybe to see if his hand was working? We went to the hall to go to another class

and he just dropped.I sent the other children on and said I'll be there in a

minute. This adorable child looked at me like, I'm down and what are you going

to do about it. I looked at him and said " are you resting? " and just stood there

not looking at him. He got up almost immediately took my hand and went to the

next class.The entire day went like this with him doing everything he could to

get a reaction. When he realized I wasn't going to he stopped.

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[Guest guest]

Well, I completely missed this story - I have been

buried with work lately - but reading the aftermath, I

can say that it's nice to hear folks saying the same

things I do. Everything from, they pick up on our

fluster if we let it show to how much I've learned and

been shaped by living with my son.

In many ways, being Andy's mother has taught me to be

more gracious to others and at the same time, hold

them more accountable. There are many other lessons of

course.

As for the parking lot incident, that I didn't find, I

can tell you that Andy once decided a haircut was NOT

In his best interest and just SAT in this parking spot

where it would b ehard for anyone to see him. Since I

was alone with him, I just stood and made certain no

one parked there until he finally decided it was time

to move on.

It's really hard to keep your cool and also keep your

kid safe, especially if someone decides to make a

comment about their Cookie Monster doll.

The more we share our lives though, the more people

will understand - both those with kids who have DS

only and those who do not. This awareness is key to

improving the quailty of life and support available to

families like us (there are more than just those who

have DS and autism!).

We're all doing the best we know how! We need

different supports and that's what we need to get " out

there " for people to understand.

Take care,

Joan

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