Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 I don't regret it and my health has continued to decline. I will say that I wonder sometimes if I had left them in maybe my body wouldn't be attacking itself, maybe it would still be fighting the implants. Maybe I wouldn't have as much damage to my joints, muscles...etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 , I have no regrets about taking out the implants and altho I have held my head high from day one and not hidden the fact that my chest is way flatter than it used to be, I do sometimes wish I had fuller breasts. I'm very grateful however, to be seeing improvements, even small ones, day by day so I will continue feeling proud of myself and my looks. Jackie ----- Original Messag e ----- From: cjheer@... Sent: Thursday, November 01, 2001 8:12 PM Subject: I am curious Does anyone here regret taking out the implants, weather you are sick still or not I am curious if anyone regrets it ?I did at first, when I still felt like crap but now I am so happy I did it! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 Shirl, Has any doctor suggested this idea to you that your body would be attacking itself less if the implants were still in? I find this a hard thing to consider, knowing that the implants would only continue to do damage as long as they are inside of you. I can't imagine that you might have been better off keeping them...but if you have heard this from a doctor, then I would be interested in knowing about it. Patty ----- Original Message ----- From: shg713@... Sent: Thursday, November 01, 2001 8:47 PM Subject: Re: I am curious I don't regret it and my health has continued to decline. I will say that I wonder sometimes if I had left them in maybe my body wouldn't be attacking itself, maybe it would still be fighting the implants. Maybe I wouldn't have as much damage to my joints, muscles...etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 I have huge enough breasts that I'm willing to share the wealth...... I wish I had flat breasts. Mine have been a C cup ever since explant----go figure. e > , > > I have no regrets about taking out the implants and altho I have held my head > high from day one and not hidden the fact that my chest is way flatter than it > used to be, I do sometimes wish I had fuller breasts. I'm very grateful > however, to be seeing improvements, even small ones, day by day so I will > continue feeling proud of myself and my looks. > > Jackie > ----- Original Messag > e ----- > From: cjheer@... > > Sent: Thursday, November 01, 2001 8:12 PM > Subject: I am curious > > > Does anyone here regret taking out the implants, weather you are sick > still or not I am curious if anyone regrets it ? > > I did at first, when I still felt like crap but now I am so happy I > did it! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 Nope, it was just something I thought of. The thing that I still don't understand is I had symptoms before they were removed but never had a diagnosis of any kind and nothing ever showed up in any x-rays, scans, biopsies or tests. Within days of explant I had these unusual pains...that have never gone away. And all the pains and damage to my muscles, joints etc... started happening rapidly and continued until now. The x-rays, scans and biopsies that I have now are all abnormal. I don't think I would be better off keeping them, I just wonder if I would have left them in maybe my body would be attacking the implants and not everything else so rapidly. It might sound crazy but it's just something I thought about. -Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 I believe that getting my implant out is the single best thing I've ever done for myself. Getting them was the worst! Rogene --- cjheer@... wrote: > Does anyone here regret taking out the implants, > weather you are sick > still or not I am curious if anyone regrets it ? > > I did at first, when I still felt like crap but now > I am so happy I > did it! > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 This note reminds me of a woman I met at a support meeting who had lost her breasts, first to cancer, then to implants. She had tailored a bra by inserting poly fiber in the bra and stitching a panel behind the poly to hold the fiber in place. She said cheerfully, that she had the best of both worlds, she could feel light and free, or she could be as large as she wanted to. Her modified bras were light, washable, and cool. She " bounced " and looked perfectly normal in clothing. Rogene --- Jackie <poopie@...> wrote: > , > > I have no regrets about taking out the implants and > altho I have held my head high from day one and not > hidden the fact that my chest is way flatter than it > used to be, I do sometimes wish I had fuller > breasts. I'm very grateful however, to be seeing > improvements, even small ones, day by day so I will > continue feeling proud of myself and my looks. > > Jackie > ----- Original Messag > e ----- > From: cjheer@... > > Sent: Thursday, November 01, 2001 8:12 PM > Subject: I am curious > > > Does anyone here regret taking out the implants, > weather you are sick > still or not I am curious if anyone regrets it ? > > I did at first, when I still felt like crap but > now I am so happy I > did it! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 They were removed en bloc. I did see the report and the pathologist that did it...his wife had silicone implants for 20 years and is sick from them, so I feel pretty confident about him. -Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 The main thing I noticed is that I could do more, I had more energy. But my energy now is about at 25% of what it was when I was healthy. For the 4 months before explant it was like 5%. I could get a drink of water for myself. So in that way I have improved. But I continued to decline with my health. My blood work is normal but my x-rays show fluid in all my joints, muscle atrophy and severe inflammation in my skin and muscles which my doctor labels as scleroderma. All these tests done before my explant were normal, now they aren't. I can tell you what happened to me and why I'm different from most everyone else. I had 2 mammograms with my implants in. I had the second on May 31, 1999 and June 1,1999 I was sick as a dog and I've never been the same after that. I'm not trying to tell anyone to keep there implants, I don't believe they should. I was just answering Pattys question as to if a doctor told me that. It's just an opinion and I guess no one really knows the answer to this or I would be getting healthy right now. -Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 If I exercise I get severe inflammation, from the scleroderma. I can't do much of that. It's like a double edge sword. I sleep very sound.....too much. Sometimes 10 hours a night. I 'm disabled, no work. I eat as healthy as I can. I can't have much in the way of vegetables. I have gastroparesis and they are very bad and can cause bleeding for me. So it's hard to find healthy stuff for me to eat. Plus, I'm around 100 lbs. It's hard to keep my weight up with the diets. -Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Shirl you wrote me when I still had implants and told me that you thought I should get my implants out and that you were allot better since having yours out, in fact I was very argumentive and skeptical about doing it and you seemed so positive about your explant, I am confused about your post here saying that within days you felt worse because you kind of painted a different picture to me than that I remember it very clearly. I also want to say that it is unusual that someone would get sicker after explant to the point you are describing so that other women here thinking about explant realize the majority of us get better not worse, I think there is a time when you do feel worse right after but within a year most women have some relief. I don't know why your case is different, but I am also curious didn't you say your lab work still was negative? Has that changed now? I really feel badly for your situation, however, maybe because you had the implants a little longer than Patty and I did, maybe that is a contributing factor, how long did you have them in total? Was it 3 years or something? I know had I waited any longer than I did I would probably also be much sicker. I am not telling you it is your fault I want you to know, I just don't want to give the impression to others that explant is a mistake, I do not believe your body would have been better off with the implants it would have just gone on and continued to get worse. In @y..., shg713@a... wrote: > Nope, it was just something I thought of. The thing that I still don't > understand is I had symptoms before they were removed but never had a > diagnosis of any kind and nothing ever showed up in any x-rays, scans, > biopsies or tests. Within days of explant I had these unusual pains...that > have never gone away. And all the pains and damage to my muscles, joints > etc... started happening rapidly and continued until now. The x- rays, scans > and biopsies that I have now are all abnormal. I don't think I would be > better off keeping them, I just wonder if I would have left them in maybe my > body would be attacking the implants and not everything else so rapidly. It > might sound crazy but it's just something I thought about. > > -Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Were your implants removed " en bloc " , that is the capsule removed with the implants still inside? It's possible that the contents of the implants were spilled into your chest cavity when they were removed. Have you read the surgical report? . . . You might get some info there, IF it tells the truth! Meanwhile, keep drinking 10-12 glasses of good water a day, and take extra water soluable vitamins to replace those washed away by drinking lots of water. Rogene --- shg713@... wrote: > Nope, it was just something I thought of. The > thing that I still don't > understand is I had symptoms before they were > removed but never had a > diagnosis of any kind and nothing ever showed up in > any x-rays, scans, > biopsies or tests. Within days of explant I had > these unusual pains...that > have never gone away. And all the pains and damage > to my muscles, joints > etc... started happening rapidly and continued until > now. The x-rays, scans > and biopsies that I have now are all abnormal. I > don't think I would be > better off keeping them, I just wonder if I would > have left them in maybe my > body would be attacking the implants and not > everything else so rapidly. It > might sound crazy but it's just something I thought > about. > > -Shirl- > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Are you following a good diet . . . very low in sugar? Are you getting enough deep sleep? Are you exercising, stretching? Are you under stress at home or at work? Overworked? Are you angry at someone, about something? I don't know about you, but even after having my implants out eight years, if I abuse myself in any one of these areas, I get sick. Rogene --- shg713@... wrote: > Nope, it was just something I thought of. The > thing that I still don't > understand is I had symptoms before they were > removed but never had a > diagnosis of any kind and nothing ever showed up in > any x-rays, scans, > biopsies or tests. Within days of explant I had > these unusual pains...that > have never gone away. And all the pains and damage > to my muscles, joints > etc... started happening rapidly and continued until > now. The x-rays, scans > and biopsies that I have now are all abnormal. I > don't think I would be > better off keeping them, I just wonder if I would > have left them in maybe my > body would be attacking the implants and not > everything else so rapidly. It > might sound crazy but it's just something I thought > about. > > -Shirl- > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Hi Rogene, yes I agree that there are lots of things that can keep us ill. Including the ones you mentioned and your right I am the same way, if I over do or under do these things I pay for it. I have learned allot of lessons regarding my body and I just can't treat myself the way I used to before implants, but if I stay active and eat well, I am so much better than before when I had the implants. I think in Shirls case something is amiss, wish I could figure out what. Love In @y..., Rogene S <saxony01@y...> wrote: > Are you following a good diet . . . very low in > sugar? > > Are you getting enough deep sleep? > > Are you exercising, stretching? > > Are you under stress at home or at work? Overworked? > > Are you angry at someone, about something? > > I don't know about you, but even after having my > implants out eight years, if I abuse myself in any one > of these areas, I get sick. > > Rogene > > > > > --- shg713@a... wrote: > > Nope, it was just something I thought of. The > > thing that I still don't > > understand is I had symptoms before they were > > removed but never had a > > diagnosis of any kind and nothing ever showed up in > > any x-rays, scans, > > biopsies or tests. Within days of explant I had > > these unusual pains...that > > have never gone away. And all the pains and damage > > to my muscles, joints > > etc... started happening rapidly and continued until > > now. The x-rays, scans > > and biopsies that I have now are all abnormal. I > > don't think I would be > > better off keeping them, I just wonder if I would > > have left them in maybe my > > body would be attacking the implants and not > > everything else so rapidly. It > > might sound crazy but it's just something I thought > > about. > > > > -Shirl- > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2001 Report Share Posted November 7, 2001 I felt pretty confident about my surgeon. He believed in the connection between implants and illness. He was recommended by many silicone implantee women on Ilenas list. Plus Dr. Vasey recommended him. That's why I felt so confident about him. I wonder if surgery is the only way you can find out if the capsules were left in? -Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2001 Report Share Posted November 7, 2001 Shirl, I hate to say this, but I would bet money that you still have your capsule inside you. I can't think of any other reason that you would be as sick as you are now, after explant. I have known two women, and there are probably more, who have had doctors tell them that they were going to perform a capsulectomy at explant, only to discover after not improving and undergoing additional surgery, that either part or all of the scar capsule was left inside of them. In the most recent case, it was a girl who had smooth saline implants for only 4 months, and she was told by Dr. Feng, her explanting surgeon, that her capsule was the thickest she had ever seen in someone who had smooth saline for only 4 months. She got to see the capsule after surgery, and said it was this brown, rotting yucky thing that had been sitting inside of her. And her original PS put on the report that a total capsulectomy had been done at explant! This case highlights more than any other I have seen, how important it is to use the services of a plastic surgeon that you can trust in! You can just never know what they are doing. There is one plastic surgeon in Texas who will even video tape the explant for you--maybe we need to be requesting this? That is the only way we will ever know the truth about our explants being done properly. I am really pissed about this case. This lying by the plastic surgeons has got to stop! I know you don't have the money to even begin thinking about another surgery if you indeed have capsules left inside of you, but I would bet that this is the case. Love, Patty ----- Original Message ----- From: shg713@... Sent: Saturday, November 03, 2001 8:49 PM Subject: Re: I am curious Nope, it was just something I thought of. The thing that I still don't understand is I had symptoms before they were removed but never had a diagnosis of any kind and nothing ever showed up in any x-rays, scans, biopsies or tests. Within days of explant I had these unusual pains...that have never gone away. And all the pains and damage to my muscles, joints etc... started happening rapidly and continued until now. The x-rays, scans and biopsies that I have now are all abnormal. I don't think I would be better off keeping them, I just wonder if I would have left them in maybe my body would be attacking the implants and not everything else so rapidly. It might sound crazy but it's just something I thought about.-Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2001 Report Share Posted November 7, 2001 Shirl I hate to say it but I have the same feeling about you .... I think if I was you, and had no money I would still talk to Dr Feng, email her, or just call her and ask her if she thinks this could be possible, tell her of how sick you are, my god Shirl I am really worried for you if this is the case. I also know who Patty is talking about and I had a gut feeling from the begining of the whole thing about this and I was right, I just don't trust the surgeons, that was why I chose Feng, it was her or no one, in my opinion I was better off leaving implants in my body than having some old scar tissue remnants left behind. Do you realize that scar capsule is where most of the shedding of the implant crud ends up, it is kind of like a filter, it collects all the crap in it, so that you could actually be healthier with the implants in you than just the capsule, which would be harder for your poor body to encapsulate and wall off there fore it would instead break it down and further send toxins into your bloodstream. There has got to be a way for you to find out shirl, seriously, please! I am worried for you and just hate to see your health decline. In @y..., " Patty " <fdp@l...> wrote: > Shirl, > I hate to say this, but I would bet money that you still have your capsule inside you. I can't think of any other reason that you would be as sick as you are now, after explant. > > I have known two women, and there are probably more, who have had doctors tell them that they were going to perform a capsulectomy at explant, only to discover after not improving and undergoing additional surgery, that either part or all of the scar capsule was left inside of them. In the most recent case, it was a girl who had smooth saline implants for only 4 months, and she was told by Dr. Feng, her explanting surgeon, that her capsule was the thickest she had ever seen in someone who had smooth saline for only 4 months. She got to see the capsule after surgery, and said it was this brown, rotting yucky thing that had been sitting inside of her. And her original PS put on the report that a total capsulectomy had been done at explant! This case highlights more than any other I have seen, how important it is to use the services of a plastic surgeon that you can trust in! You can just never know what they are doing. There is one plastic surgeon in Texas who will even video tape the explant for you--maybe we need to be requesting this? That is the only way we will ever know the truth about our explants being done properly. > > I am really pissed about this case. This lying by the plastic surgeons has got to stop! > > I know you don't have the money to even begin thinking about another surgery if you indeed have capsules left inside of you, but I would bet that this is the case. > Love, > Patty > ----- Original Message ----- > From: shg713@a... > @y... > Sent: Saturday, November 03, 2001 8:49 PM > Subject: Re: I am curious > > > Nope, it was just something I thought of. The thing that I still don't understand is I had symptoms before they were removed but never had a diagnosis of any kind and nothing ever showed up in any x- rays, scans, biopsies or tests. Within days of explant I had these unusual pains...that have never gone away. And all the pains and damage to my muscles, joints etc... started happening rapidly and continued until now. The x-rays, scans and biopsies that I have now are all abnormal. I don't think I would be better off keeping them, I just wonder if I would have left them in maybe my body would be attacking the implants and not everything else so rapidly. It might sound crazy but it's just something I thought about. > > -Shirl- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2001 Report Share Posted November 7, 2001 I think unfortunately surgery would be the only way to tell since the capsule is just scar tissue it wouldn't show up anyother way as far as I know, shoot I don't want to scare you, but I am so spun over this girls case it makes me question all the PS's out there, what if your scar tissue was like mine, so hard to remove Dr Feng told me that she felt that allot of other PS's might not have taken the time to do what she had in my case, she was so diligent about really getting every last pice of that stuff out of me, 5 hours on the table, and I was in pain from that for months and months. Shirl it can't hurt to investigate this just a little bit further, maybe we are wrong, but at the rate your health has been declining I would really look into it. Maybe it isn't the scar tissue, however why are you still so sick? It doesn't make sense. I am so bad but personally I don't even trust a male Dr at all to remove implants, I just feel like what can a man understand, I know that may seem totally dumb but it is my opinion. Call Dr Feng and see what she says. Also how many women does this PS implant who removed your implants? How may explants has he done? Did he show you the capsules like Dr Feng does? Did he take pictures of them? Were you in surgery allong time? Did he mention anything about how thick your capsules were? Were you in lots of pain for months? I am just concerned for you, if I were rich I would help you with some costs to get you to Dr Feng, even if it turned nothing up I think it would be good to know, sorry I don't have that kind of cash! I care allot about you Shirl! In @y..., shg713@a... wrote: > I felt pretty confident about my surgeon. He believed in the connection > between implants and illness. He was recommended by many silicone implantee > women on Ilenas list. Plus Dr. Vasey recommended him. That's why I felt so > confident about him. I wonder if surgery is the only way you can find out if > the capsules were left in? > > -Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2001 Report Share Posted November 7, 2001 You probably did have a good plastic surgeon if it came from the list of recommended plastic surgeons, although I know some of them were listed as "new" on the list, and may have changed their tune, who knows. It is also possible that they can remove most of the capsule, but leave some, as was the case of my other girlfriend who had the anterior capsule taken out, but not the posterior one. She went to Dr. Huang in Denver for the final surgery in which they found the posterior capsule and other gunk in there. That last little bit of scar capsule can make a difference in your healing or not, hard to believe. I am not sure how they can determine if there is residual scar capsule tissue inside you or not, without going right in there to explore and see it firsthand. Sad prospect. I think MRI's of the breast can see some things, but I have heard too, where residual scar tissue can look like dense tissue or calcified things or even cancerous tumors.....I don't know. My best suggestion would be to write Dr. Feng and she what she has to say. Maybe she knows how to determine if you have residual scar tissue or not. Please let us know what she tells you, Shirl! Love, Patty ----- Original Message ----- From: shg713@... Sent: Wednesday, November 07, 2001 9:39 AM Subject: Re: I am curious I felt pretty confident about my surgeon. He believed in the connection between implants and illness. He was recommended by many silicone implantee women on Ilenas list. Plus Dr. Vasey recommended him. That's why I felt so confident about him. I wonder if surgery is the only way you can find out if the capsules were left in?-Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2001 Report Share Posted November 8, 2001 I do have the path report and it says the capsules were removed. It has the size of them and everything. -Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2001 Report Share Posted November 8, 2001 , Do you know of any other way to tell if the capsules have been removed......other than surgery? -Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2001 Report Share Posted November 8, 2001 The easiest way to check this is to check the pathology report. . ----- Original Message ----- From: <cjheer@...> < > Sent: Wednesday, November 07, 2001 12:58 PM Subject: Re: I am curious > I think unfortunately surgery would be the only way to tell since the > capsule is just scar tissue it wouldn't show up anyother way as far > as I know, shoot I don't want to scare you, but I am so spun over > this girls case it makes me question all the PS's out there, what if > your scar tissue was like mine, so hard to remove Dr Feng told me > that she felt that allot of other PS's might not have taken the time > to do what she had in my case, she was so diligent about really > getting every last pice of that stuff out of me, 5 hours on the > table, and I was in pain from that for months and months. > > Shirl it can't hurt to investigate this just a little bit further, > maybe we are wrong, but at the rate your health has been declining I > would really look into it. Maybe it isn't the scar tissue, however > why are you still so sick? It doesn't make sense. > > I am so bad but personally I don't even trust a male Dr at all to > remove implants, I just feel like what can a man understand, I know > that may seem totally dumb but it is my opinion. > > Call Dr Feng and see what she says. > > Also how many women does this PS implant who removed your implants? > How may explants has he done? Did he show you the capsules like Dr > Feng does? Did he take pictures of them? > > Were you in surgery allong time? Did he mention anything about how > thick your capsules were? Were you in lots of pain for months? > > I am just concerned for you, if I were rich I would help you with > some costs to get you to Dr Feng, even if it turned nothing up I > think it would be good to know, sorry I don't have that kind of cash! > > I care allot about you Shirl! > > > > > > > > In @y..., shg713@a... wrote: > > I felt pretty confident about my surgeon. He believed in the > connection > > between implants and illness. He was recommended by many silicone > implantee > > women on Ilenas list. Plus Dr. Vasey recommended him. That's why > I felt so > > confident about him. I wonder if surgery is the only way you can > find out if > > the capsules were left in? > > > > -Shirl- > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2001 Report Share Posted November 8, 2001 The best way to check is to look at the path report. We can sometimes see them on MRI and US but not always. Any surgery that is too short is also suspect. . ----- Original Message ----- From: shg713@... Sent: Thursday, November 08, 2001 12:37 AM Subject: Re: Re: I am curious ,Do you know of any other way to tell if the capsules have been removed......other than surgery?-Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2001 Report Share Posted November 8, 2001 What is the size? . ----- Original Message ----- From: shg713@... Sent: Thursday, November 08, 2001 12:29 AM Subject: Re: Re: I am curious I do have the path report and it says the capsules were removed. It has the size of them and everything.-Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2001 Report Share Posted November 8, 2001 I've got them. -Shirl- Quote Link to comment Share on other sites More sharing options...
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