After Reading the posts another thing in common

[Guest guest]

How great it would be if we could all live near one another.To do

outtings were other people could be the minority and we could be the

majority. How great it would be to be with parents and kids with

similar interest and disabilities. We all relate so well to each

other and every time I read a post of a newly dx child with DS and

autism I relate all over again to the parents frustrations.I have

friends that have children with DS and we were already friends

before our children were born. How weird is that? I see their

frustrations but nothing is more difficult than adding the autism,

non-verbal, head banging, self abuse,not potty trained, to the DS,

Oh and I forgot to add the stop, drop, and flop. In my opinion their

children are just a little slow.Like others the diagnoisis of Ds was

sad in the very biginning but then there was light. Then when the

child does not progress as well as children with Ds that are younger

you start thinking why? Next you get the autism dual dg after

pursing and pursing, just knowing something else has to be wrong and

again we are sadden by knowing we are going to have it even harder

that any parent with just DS could imagine.But you know ,these kids

we love ,and no matter what they truely love us. Just like the pet

that loves you no matter how you smell or what your hair looks like.

That unconditional love is great.Somehow we learn to communicate

with them and they learn to tell us their needs and in the end

everything will be okay. Yes we have tuff days very tuff days but

thank goodness we at least have each other in our group

who understand and can relate and can support us with advice.This

life maybe is not the perfect life but who do you know that really

has a perfect life. No one really does there is " Always Something "

as quoted by Gilda Radner in her book, It's Always Something " . For

those to young to know Ms. Radner she was a funny comedian on SNL

that died of cancer.Thank goodness our children have us because we

do care to make their lives the most it can be.In this world there

are many children that have no disabilites and they have terrible

parents.What would abussive parents do with children like ours I

shutter to think. Cyndi