Jayne

[Guest guest]

Hi Jayne, so impressed with J teacher and his OT!!!! wow, they are on

top of things, I know you will stay on top of this too.Isnt it a shame

we must fight so hard, not only education wise but even with the

medical profession.Good Job Jayne. You know how he works best, with

, the photos are seeming to make a connection for him. but my

dad wants to look into something called " Able Links " it is a company

who he is working with who will use this software at some nursing

homes. anyway Jayne also,on s lab work, I remember one of his

levels was low and one was high. I dont know if the second one you

mentioned was the one that was off but the first one you mentioned was

off.I left the report with Vandy so they could have it on file. my ped

did not seem concerned but I will follow up in 6 mos. my memory is

soooo bad Jayne, I really cannot remember anything anymore!!!! My 14

yr old says she loves telling me funny things twice cause I forget and

the second time I laugh like I heard if for the first time!! ha ha,

see ya, let me know about ,(we will have to prepare together if

these boys need another sleep study!!!!)Dawn

[Guest guest]

In a message dated 4/6/2006 11:40:45 A.M. Eastern Standard Time,

jacksonsmom99@... writes:

Life is still crazy here but I'm keeping my head up.

is so much more energetic now that he's getting the synthroid.

Wow Jayne...that's gotta feel good, knowing he obviously feels better.

Keep us posted on the sleep study too (Maddie had one of those as well) and

know we're thinking of you.

Donna

[Guest guest]

<<My 14

yr old says she loves telling me funny things twice cause I forget and

the second time I laugh like I heard if for the first time!! ha ha,>>

Dawn, isn't this the coolest thing? I can actually watch repeats on TV now

without getting bored cause I can't remember how they ended LOL

Sherry

[Guest guest]

i kinda like watching the repeat videos too, lol, especially in my ripe old age

of 33, lol, i have a hard time hearing what they have to say so i often have the

closecaption on and nathan loves for me to read the role of someone on his

shows, and he will be someone else, he goes " read mommy read " , and watching a

fewtimes hleps me know what they are going to say let a lone help keep my memory

skills intact, you know what they say, dont use it you lose it, lol shawna

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[Guest guest]

Tonight I was watching Extreme Home Makeover, my weekly cry, and fell

asleep on me. I was able to snip the back a bit and get a little more over one

ear. He woke up after about 4 snips - not all the way awake, but enough to

fight me!!! I called it quits and carried him on up. It's Spring Break all this

week, so we'll " groom " every night while he's asleep. He'll be a good looking

kid come next Monday!!! LOL!

Thanks Margaret -

Jayne

mfroof@... wrote:

Hi, Everyone....Jayne...I use to have to cut Gareth's hair when he was

sleeping. I would wait an hour or so after he was asleep, turn on the small,

bedside light, and snip away. Some times, I could even roll him over from side

to side if I had to. Other times, it would take a couple of nights. but it

sure saved him from screaming and being terrified. Toe nails and finger nails

were done the same way. After he was put on meds, though, all those 'quirks'

went away.......and I don't miss them one bit!!! Now....he grows his hair

long and gets it cut whenever he decides. That is fine with me, but his Dad

calls him a 'long haired, hippy freak' and Gareth laughs.

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[Guest guest]

lol jayne your funny....... " groom " every night... lol have you ever thought

about taking him to the swimming pool or sitting him in a hot tub and

snipping???// my friend does that with her son....he gets so relaxed he's not

distracted by her sneaking in the little nail scissors.....

Jayne Hickey wrote: Tonight I was watching Extreme

Home Makeover, my weekly cry, and fell asleep on me. I was able to snip

the back a bit and get a little more over one ear. He woke up after about 4

snips - not all the way awake, but enough to fight me!!! I called it quits and

carried him on up. It's Spring Break all this week, so we'll " groom " every night

while he's asleep. He'll be a good looking kid come next Monday!!! LOL!

Thanks Margaret -

Jayne

mfroof@... wrote:

Hi, Everyone....Jayne...I use to have to cut Gareth's hair when he was

sleeping. I would wait an hour or so after he was asleep, turn on the small,

bedside light, and snip away. Some times, I could even roll him over from side

to side if I had to. Other times, it would take a couple of nights. but it

sure saved him from screaming and being terrified. Toe nails and finger nails

were done the same way. After he was put on meds, though, all those 'quirks'

went away.......and I don't miss them one bit!!! Now....he grows his hair

long and gets it cut whenever he decides. That is fine with me, but his Dad

calls him a 'long haired, hippy freak' and Gareth laughs.

---------------------------------

Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

countries) for 2¢/min or less.

[Guest guest]

In a message dated 4/10/2006 6:51:04 A.M. Eastern Standard Time,

leahbbaker@... writes:

lol have you ever thought about taking him to the swimming pool or sitting

him in a hot tub and snipping???//

I cut Maddie's hair in the tub. Not her bangs, but the back.

Donna

[Guest guest]

keep us posted!!! hope everything is ok. shawna

Jayne

>

> In a message dated 4/27/2006 1:47:09 P.M. Eastern Standard Time,

> jacksonsmom99@... writes:

>

> Bottom line for us: His ANC count is in the 600's (absolute neutrophil

> count) - for normal healthy person it should be around 1500! If it dips

> below

> 500 she wants to do a BONE MARROW BIOPSY! I'm a bit nervous of what she

> finds

> today, she'll know something by tomorrow. I " m actually off here in a few

> minutes to get from school and head to the hospital for the draw.

> This

> time we are going right to the Hem/Onc ward and having those nurses draw.

>

>

> Jayne, let us know as soon as you can, K?

> Good luck honey,

> Thinking of you,

> Donna

>

>

>

[Guest guest]

Hi Jayne,

" Shoe out the window " is such a cute chapter title. Glad you ended up

playing it safe retrieving it, yeah mom to the rescue!

At the Movement Program, this is the Dept. of Health & Kinesiology.

You would love it here for here to learn how to ride his

bike, etc. For its the areas needed and so they focus on the

sports being applied like with all the Special Olympics activities

and Challengers Baseball league and some of the clinicians even come

out to volunteer which works out as this is part of their internship

for a grade.

The clinician using a minimum of two different assessment devices,

depending on the client's age and motor needs, carefully assesses

each child. A formal written evaluation of the assessment is provided

in a conference with parents, which includes all test scores and a

movement program recommendation.

Most clients are experiencing movement difficulties in one or more fo

the four basic categories of movement.

* Perceptual skills (bosy and spatial awarenedd,identification of

body parts)

* Locomotor skills (walk, run, hop, jump, skip)

* Object Control Skills (throwing, catching, kicking, striking)

* Physical and motor fitness

The clinic is designed to help children who are experiencing movement

problems due to a lag in the growth and development process, or poor

personal social skills, or the inability to process information.

Good luck with the IEP meeting, awesome teacher.

On the IEP, what I overheard from parents at the Movement

Program. " will ride a bicycle with training wheels " , under

social Goals.

enjoyed riding the Trikes with those velcro on the pedals as

needed at the APE program when he was younger. I gave up on him

learning to ride a bike as he was growing up. He was getting hard to

control, he WAS a runner/escape artist and one of my fears of him

learning to ride the bile was taking off to who knows where.

Irma,17,DS/ASD

>

> Thanks Irma. The growth thing is a mystery, but that's great that

he's still growing! No doubt you take good care of his health Irma.

sounds like he's very well proportioned, does he like to move

around and exercise? I know you've mentioned the Movement Class,

what exactly do they do?

>

> Is Uremic Frost the name of your Brother's health condition? I

haven't heard of this. I'm sorry he is sick Irma.

>

>

> I try to be regular about not getting on the computer til

my " chores " are done but some days are harder than others - LOL!

Today, I didn't turn it on til noon.

> I need to get a bit more done though, before I pick up

for Private OT today.

>

> We have our IEP tomorrow. I've been so pleased with his teacher,

she has had me proof read everything and last night sent home a full

draft. I've never had such wonderful school to home communication!

She had sent home her Present Level of Performance page the other

night and as I was reading it I could see she was getting away from

the PLOP and more into next year and addressing needs. I was nervous

of how she would take my critique. But she was amazing, told me she

was just thrilled with my notes and that I'm so good, I should be a

teacher!!!! ROTFL!

> I feel pretty good going into the IEP tomorrow, I think it will

go smoothly.

> I just have to make sure OT doesn't try to cut back services and

that PT addresses all the areas he's still struggling with.

>

> Have any of you been able to work a bike riding goal in to an

IEP? Last year I was able to keep a goal with peddaling a tricycle

in but it wasn't really addressed very much. We got him the bike for

his b-day and he just doesn't get pedaling or steering. His PT

called yesterday and said she took out the goal as it's not academic

at all. I was bummed. Any idea on this????

>

> How nice to get the " new " furniture from your neighbor. Sorry

it's because her son had to be put in a group home, I hope that goes

well.

> Be careful and watch your back - rearranging all that

furniture. You can hurt your back doing anything. I once had mine

go out shaving my legs in the shower!!! I just felt it go as I was

leaning over my leg - awful - hubby had just deployed for 7 months, 1

hour earlier!!!

>

> Take care,

> Jayne