Adrienne/Cindi

[Guest guest]

Hi, Everyone....A...I got the Adobe 7 downloaded...plus some photo crap with

it....and I still can't get it to come up!!! is due home on 10

days....I will wait till then. Thanks for all your help.

Cindi...when I moved back into the Lancaster area, I printed off 6-8 copies

of Joan's Dis. Sol and distributed them around this area. I gave them to the

main pediatrician groups, the two main groups that deal with infant stim

classes for DS kids and those that deal with OT and speech for DS kids. I also

gave one to our local DS group here. I had gotten out of the DS group

because of G's behaviors and the fact that *I* didn't feel like I belonged

there.

It was VERY depressing for many years. Now, as I get older and 'wiser', I

realize that is the wrong approach. I am at most of the DS group meetings and

had a table of info at the Buddy Walk this year. I have had several people

come up for info because they know of someone with a DS kid who 'fits' the

dual dx. It doesn't seem like a lot, but I know that I have helped a few

people. If we all took this approach, we could easily reach out to many more.

I

am more apt to open my mouth, too, whenever I see a child that I think meets

the dual dx. I will ask the parents if they have had the child evaluated.

Sometimes, people don't want to hear it.....plain and simple. I was one of

'those' people. I really thought the drs. had it all wrong and that the autism

would go away. I am thinking about putting a small 'blurb' in our local

paper under the 'Support Groups' section. I will have my name and phone number

and offer support for DS families with dual dx or those who have questions

about dual dx. That is on my mind for next years project. As one person,

there are a lot of little steps that you could take to help other families.

Take care, Everyone.

Margaret