Re: Carol

[Guest guest]

In a message dated 3/6/2006 5:05:12 P.M. Eastern Standard Time,

ICANFIELD@... writes:

Would you remind me what Trisha is receiving with the OT?

Trisha is getting 30 mins of OT a week. Her sensory needs have been the

primary focus so far and she has made a lot of progress and is now beginning

to

develop more skilled tasks. Therapy sessions include 10-15 minutes of

tactile input and the other 15 minutes for skill development. Current Focus

and

recommendations:

independent buttoning, grasp development for writing name, independent

toileting including cleaning herself more effciently, general body awareness

activities to increase her orientation and skills with motor performance,

adequate

positioning for postural deficits and insecurities, adequate ongoing sensory

input to continue to decrease self stimulatory behaviors

Carol

Trishasmom

She isn't Typical, She's Trisha!

[Guest guest]

In a message dated 3/6/2006 5:05:12 P.M. Eastern Standard Time,

ICANFIELD@... writes:

I was shocked! This kinda makes me a liar or ahve

baby him too much as told today, in regards to you know what I'm

going through. This morning another incredible day.

sometime we are just so used to doing things that we just didn't see when

they learned to do some things for themselves. :-) But isn't it a great

discovery now that you know? Awesome job Mom and !

Carol

Trishasmom

She isn't Typical, She's Trisha!

[Guest guest]

In a message dated 3/6/2006 5:35:34 P.M. Eastern Standard Time,

ICANFIELD@... writes:

The OT also involves co-treatment with the ST, right?

Sounds like a great foundation.

yes they do work together, and what is even better is that they are partners

in their private practice as well.

Carol

Trishasmom

She isn't Typical, She's Trisha!

[Guest guest]

In a message dated 3/6/2006 7:20:57 P.M. Eastern Standard Time,

ICANFIELD@... writes:

" I hear, and I forget

(or can't process)

I see, and I remember

(I am cued)

I do, and I understand

Give me all three, SUCCESS!!

From J.L.Bells, D.C. Barnett, R. , & C. Gallardo

oh I like that! Think I will take it to our IEP meeting tomorrow. :-)

Carol

Trishasmom

She isn't Typical, She's Trisha!

[Guest guest]

Thank you Carol,

Actually the tent would be a Godsend for as this is

therapeutic for him.

This past Saturday it was not a good day for him. Get this a totally

differenct . He jumped off the bed went to the restroom without

any assistance, he actually did the routine all on his own without

any physical or verbal prompt, did not even need the visual supports

I say. He was not a zombie, you get the picture.

I had his clothes laid out and I was placing my makeup on and I

lloked over expecting him taking forever washing his hands and he was

already dressed and done correctly. Except the shoes were put it on

wrong than he walked towards me and must of felt them odd as he

looked down sat on the floor and removed them and placed them on

well. Then he came over to the other side of the sink where I was at

and told him to wash his hands, face, brush teeth, shave, lip

balm,comb, sounds like alot but his visual pics were there and I

would just point at the whatever task at the time. He did wonderful,

needed help with the shaving & grooming.

Then once done, he walked out of the restroom, grabbed his items/DVD

of the day placed them in a tote bag that he uses and was ready to

walk out the door. I was shocked! This kinda makes me a liar or ahve

baby him too much as told today, in regards to you know what I'm

going through. This morning another incredible day.

It is incredible how much even if limited Trisha is communicating

this is success for the time she has been at the school that she is

attending and I like the fact how she is generalizing and making some

connection. Love how you explained this as always.

Would you remind me what Trisha is receiving with the OT?

Thank you,

Irma,17,DS/ASD

[Guest guest]

Carol,

How wonderful! Trisha's OT is a good one with what you had shared

with the program assigned for her and what progress made.

The OT also involves co-treatment with the ST, right?

Sounds like a great foundation.

Thank you,

Irma,17,DS/ASD

>

>

> In a message dated 3/6/2006 5:05:12 P.M. Eastern Standard Time,

> ICANFIELD@... writes:

>

> Would you remind me what Trisha is receiving with the OT?

>

>

>

> Trisha is getting 30 mins of OT a week. Her sensory needs have

been the

> primary focus so far and she has made a lot of progress and is

now beginning to

> develop more skilled tasks. Therapy sessions include 10-15

minutes of

> tactile input and the other 15 minutes for skill development.

Current Focus and

> recommendations:

> independent buttoning, grasp development for writing name,

independent

> toileting including cleaning herself more effciently, general body

awareness

> activities to increase her orientation and skills with motor

performance, adequate

> positioning for postural deficits and insecurities, adequate

ongoing sensory

> input to continue to decrease self stimulatory behaviors

>

> Carol

> Trishasmom

> She isn't Typical, She's Trisha!

>

>

>

>

[Guest guest]

Definitely as said by several friends of mine-

Have:

ation, Collaboration, Coordination, Carryover

Which provides the individual with an integrative experience for

meeting the demands of motor tasks and communication.

" I hear, and I forget

(or can't process)

I see, and I remember

(I am cued)

I do, and I understand

Give me all three, SUCCESS!!

From J.L.Bells, D.C. Barnett, R. , & C. Gallardo

> yes they do work together, and what is even better is that they

are partners

> in their private practice as well.

>

> Carol

> Trishasmom

> She isn't Typical, She's Trisha!

>

>

>

>

[Guest guest]

Wow. Way to go . Sounds he is doing great.

Peggy

>

> Thank you Carol,

> Actually the tent would be a Godsend for as this is

> therapeutic for him.

> This past Saturday it was not a good day for him. Get this a

totally

> differenct . He jumped off the bed went to the restroom

without

> any assistance, he actually did the routine all on his own without

> any physical or verbal prompt, did not even need the visual

supports

> I say. He was not a zombie, you get the picture.

> I had his clothes laid out and I was placing my makeup on and I

> lloked over expecting him taking forever washing his hands and he

was

> already dressed and done correctly. Except the shoes were put it

on

> wrong than he walked towards me and must of felt them odd as he

> looked down sat on the floor and removed them and placed them on

> well. Then he came over to the other side of the sink where I was

at

> and told him to wash his hands, face, brush teeth, shave, lip

> balm,comb, sounds like alot but his visual pics were there and I

> would just point at the whatever task at the time. He did

wonderful,

> needed help with the shaving & grooming.

> Then once done, he walked out of the restroom, grabbed his

items/DVD

> of the day placed them in a tote bag that he uses and was ready to

> walk out the door. I was shocked! This kinda makes me a liar or

ahve

> baby him too much as told today, in regards to you know what I'm

> going through. This morning another incredible day.

>

> It is incredible how much even if limited Trisha is communicating

> this is success for the time she has been at the school that she

is

> attending and I like the fact how she is generalizing and making

some

> connection. Love how you explained this as always.

>

> Would you remind me what Trisha is receiving with the OT?

>

> Thank you,

> Irma,17,DS/ASD

>

[Guest guest]

wow he sounds just like Trisha. She is constantly wanting to eat. I'm

missing a block of cheese and you know where I found the wrapper? under her

bed

where she stuck it after eating it all. I don't think its about being hungry

but I'm wondering if she just doesn't know she has had enough and she either

likes the taste or the texture or if it's because she can now ask for it and

be understood? But then that doesn't explain the raiding of the fridge.

:-)

Carol

Trishasmom

She isn't Typical, She's Trisha!

[Guest guest]

In a message dated 3/17/2006 11:19:41 A.M. Eastern Standard Time,

ViPorier@... writes:

also is not into sweets, much prefers carbs like pasta,

pizza, chips. Interesting. He also will not have anything to do with

soda or

pop, only drinks juice or milk.

now see Trisha isn't into much sweets either but she sure loves her french

fries, pasta, pizza chips as well. She loves milk, juice and ice tea but only

rarely drinks a soda and then not much of it.

Carol

Trishasmom

She isn't Typical, She's Trisha!

[Guest guest]

Dylan is a thin guy too. He's 70 lbs & almost 11. I think it's the diabetes &

quirky eating that's kept him thin. He's never had a peice of chocolate, candy

or any kind of sweets or cookie. A blessing, I guess, since he's got diabetes

too. He's very active though too, and I'm sure that helps.

Becky

ViPorier@... wrote:

We have a full size trampoline in the yard. I intially bought it when my

daughters were still in high school as they were both cheerleaders, and that

practiced thier tucks and backhandsprings. However, really loves it, he

goes out there and jumps and jumps not only good exercise but great for his

sensory issues. Like I said is 13 and only weighs 82 pds. Very lean good

looking boy. also is not into sweets, much prefers carbs like pasta,

pizza, chips. Interesting. He also will not have anything to do with soda or

pop, only drinks juice or milk.

Viola

[Guest guest]

Hi Carol,

I think Zeb eats because he is bored. If I constantly play with him and keep

him busy the food isn't as big of an issue. Zeb also sneaks food but throws the

wrappers in the trash. I never know until I look for something.

Charlyne

Mom to Zeb 13 DS/OCD/ASD?

Csvillars@... wrote:

wow he sounds just like Trisha. She is constantly wanting to eat. I'm

missing a block of cheese and you know where I found the wrapper? under her bed

where she stuck it after eating it all. I don't think its about being hungry

but I'm wondering if she just doesn't know she has had enough and she either

likes the taste or the texture or if it's because she can now ask for it and

be understood? But then that doesn't explain the raiding of the fridge.

:-)

Carol

Trishasmom

She isn't Typical, She's Trisha!

[Guest guest]

Irma,

I am so glad your meeting went so well. Are they putting together a

communication book of symbols for ? Of course we know that comunication

books, just like communication devices are bulky and cumbersome not to mention

not

good for spontaneous conversation but there are also pluses. When they

don't have a sign or a word then the pictures are a great help in getting

across

what they are trying to tell us. PECs goes a little bit farther than just

using picture symbols as it teaches them to ask for things and to respond to

things they might not otherwise have a way to do. When you think about it we

use total communication every day in our lives maybe not in the boardmaker

symbols per se but it's still the same thing. We use our voices, gestures,

signs, pictures, schedules etc. So my point is this, if we need this to get

through our days then just think how much more beneficial it is for our kids.

I spoke to a lady just recently who's son was non-verbal and he has major

behavior issues and when I asked if he signed or if they used pictures with him

she said no, that she wanted him to be like everyone else and use his voice

and that he was going to learn to talk as long as she had any say over it. So

I said ok, I understand your view point but may I ask you a question. She

said yes and so I asked her, was she insisting on him using voice for him or

for herself. She looked shocked and then when I thought she might get mad

and leave, but then she asked me what I thought and I told her about Trisha and

how we use a total communication package with her and how it has lessened

her frustration levels and ours as well and how much happier she is when she

can communicate and someone understands. I then asked her, how she would feel

if someone were trying to make her speak a foreign language because that is

what they wanted for her and she started to say something and then stopped and

looked at me and said, " that is exactly what I have been doing with my

child " . I am happy to say that her child is now being evaluated for other

modes

of communication and she is already seeing signs of less frustration coming

from him. :-)

Carol

Trishasmom

She isn't Typical, She's Trisha!

[Guest guest]

Yesterday's ARD/IEP team were all new and they were all awesome!

In the beginning it did not begin well though but once they heard me,

then it was all a different tune.

Finally some open-minded, more knowlegeable than the HS teacher and

staff/ARD team.

I brought up sign language, they told me no problem, and sure enough

did sign at home during his snap buttoning his pants that he

needed " help " . has learn how to snap his button but there are

those times when the zipper thingy gets hard to get out and it was

nice to catch him signing " help " .

The SLP wanted the list of words that I had on hand of what

use to be able to vocalize which were over 200 words that were loud

and clear as his current teacher is just beginning to know .

She was also interested on his video's.

His teacher began saying that " maybe will never learn to talk "

but then I had to reply with no no " can talk, thanks to VB,not

in a conversational way but able to make his needs and wants known or

just calling me " mom, come here, go away, leave me alone, shut-up or

quiet.etc " . Nowadays his words are returning as I told them that as

we get on the van, the van does not move until we all say " check "

with our tumbs up and he is the first one to get on and loud and

clear with his thumb up saying " check " . They were in shock and one of

them had watery eyes as they heard this.

I gave the list of words and video documentation, once again amazed

all of a sudden the team were all brainstorming with some strategies

on the goals needed for him to get back on track to make his wants

and needs known.

On what you had mentioned with Trisha " find " the symbol, this is

exactly what the AU specialist brought up as one of the goals which I

will be working on at home too. This is nice to read about Trisha's

teaching skill here. How exciting to hear what Trisha did, yea!

We are also going to incoporate at school and home using a children's

alarm/vibrating watch which they are going to provide which they will

be focusing on teaching him every 2 hours at least for now.

http://www.pottymd.com/solutions/productpage.asp?id=23

I chose this one as it sounds close to what Temple Grandin had

mentioned when I had the opportunity to speak to her, MISS Guru I say

who has taught me so much with what she shares.

They even want to purchase his GF/CF food items when they head out to

the grocery stores, so I have to send a list or maybe some pics of

the things I allow for his breakfast, lunch & snacks & fluids.

Building the independence skills.

could also graduate next year with the HS peers, which is just

receiving a certificate of attending the HS as he is at a new

placement, " anything for " they told me they are willing to

help out and even the transportation people have been wonderful. That

they actually heard singing. : )

Oh man I forgot to ask about the Music therapy. No biggie, I'll bring

it up with the director or even the speech therapist this.

I really was expecting the worst going around in circles at the ARD

meeting, its nice to speak to people who have some autism training

and they are aware of not being able to pull one on me which was nice

for a change as I did have some documentations that they were

surprised to hear that I have cyber-family sharing strategies,etc, AU

specialist, Ed Consultant, professors who work with adults, the list

of the workshops, conferences, etc. The many hats I have to wear.

So far a-oky with the current placement for now.

Irma,17,DS/ASD

> As you know, we use Total Communication with Trisha and so does

the school.

> In addition to using sign, communication device, they have begun

to use PECS

> as well and have set a communication book and are working on

teaching Trisha

> to " find " the symbol she needs to communicate a thought.

Yesterday she

> found the symbol for " too loud " and signed room so they were able

to understand

> that the room was too loud for her and took her outside for a

quiet break.

>

> Carol

> Trishasmom

> She isn't Typical, She's Trisha!

>

>

>

>

[Guest guest]

Are you setting up his communication book by categories and color coding

them? It's so much easier for them to learn how to find them if they don't

have

to look through the whole book. You can set it up keeping in mind his

specific needs. For us we are setting it up at home with a section for food,

movies, verbs, etc. I haven't decided on all the colors or categories right

now,

I know we have food as yellow so far.

We have to be realistic when it comes to technology and yes while it can be

helpful it also can be limiting so we just have to know the limitations and

work around that. I picture myself using a communication device and I know

that if I was not able to make my own boards or not be able to change them out

when I needed a new one I would not use the device that often. So I try to

keep than in mind for Trisha and have other alternatives so when the device is

not convientent then we fall back to something else. The communication book

is the same way. You can make smaller books to take with you when you go

to familiar places like the grocery store or to eat or to Grandma's house etc.

Each has it's good and bad points and it's just remembering that no one way

is going to be perfect. I know I keep preaching about total communication

but it's so important to give our kids a well rounded way to communicate. I

know I " m preaching to the choir right now but you'd be surprised at how many

children are still limited in their communication abilities because some

parents/teachers think only verbalization should be accepted. Ok, my sermon

is

done for this week now I guess I'll have to think of another topic for next

week's sermon. lol

Carol

Trishasmom

She isn't Typical, She's Trisha!

[Guest guest]

Wow! Where were you when I needed this support back when was a

youngster? I definitely would not mind having you approach me to give

one of the most precious gift of sharing what her child could

learn/do thanks to your experience with Trisha. Nice that you

envision her child's life on this arena.

Yes, I have begun the communication book for , the educational

consultant whom I had consult with privately told me to try the topic

board only with so that he could make that connection of

locating the pics when needed. I have been trying this at home and he

is coming along, next step insert into the communication book once I

see him making that connection of removing the pic and handing it to

me or who ever is around.

Thank you for all your support my way with sharing what you know or

about Trisha's adventure of her emerging skills. Thank you for

mentioning about the communication book being bulky, etc, this should

not be an issue, so true. I could see it something like when a person

needs to use a wheelchair. The same goes for the communication book.

This was one of the issues with the EX-AU specialist a couple of

years ago mentioning when denying PECS that " you do not want

to carry a book around, describing it " .Denied sign language due to it

not being universal, denied the communication device due another

bulky, etc. etc. Yep, fell for it but not anymore and so when I still

hear this, makes me upset. Breath 1,2,3. Bowling has really helped me

get my frustration out.

It is better than being silence indeed. I still remember that saying

you had shared about the doc in regards to walking in and turning off

the lights or breaking a pencil, at one of those IEP meetings,

perfect example of why any tool could be used or accomadations

needed. It has cut down alot of frustration.

just arrived from school and the bus driver and aide once

again heard him. I just thanked them and smile.

Irma,17,DS/ASD

>

> Irma,

>

> I am so glad your meeting went so well. Are they putting together

a

> communication book of symbols for ? Of course we know that

comunication

> books, just like communication devices are bulky and cumbersome

not to mention not

> good for spontaneous conversation but there are also pluses.

When they

> don't have a sign or a word then the pictures are a great help in

getting across

> what they are trying to tell us. PECs goes a little bit farther

than just

> using picture symbols as it teaches them to ask for things and to

respond to

> things they might not otherwise have a way to do. When you think

about it we

> use total communication every day in our lives maybe not in the

boardmaker

> symbols per se but it's still the same thing. We use our voices,

gestures,

> signs, pictures, schedules etc. So my point is this, if we need

this to get

> through our days then just think how much more beneficial it is

for our kids.

> I spoke to a lady just recently who's son was non-verbal and he

has major

> behavior issues and when I asked if he signed or if they used

pictures with him

> she said no, that she wanted him to be like everyone else and use

his voice

> and that he was going to learn to talk as long as she had any say

over it. So

> I said ok, I understand your view point but may I ask you a

question. She

> said yes and so I asked her, was she insisting on him using voice

for him or

> for herself. She looked shocked and then when I thought she might

get mad

> and leave, but then she asked me what I thought and I told her

about Trisha and

> how we use a total communication package with her and how it has

lessened

> her frustration levels and ours as well and how much happier she

is when she

> can communicate and someone understands. I then asked her, how

she would feel

> if someone were trying to make her speak a foreign language

because that is

> what they wanted for her and she started to say something and then

stopped and

> looked at me and said, " that is exactly what I have been doing

with my

> child " . I am happy to say that her child is now being evaluated

for other modes

> of communication and she is already seeing signs of less

frustration coming

> from him. :-)

>

> Carol

> Trishasmom

> She isn't Typical, She's Trisha!

>

>

>

>

[Guest guest]

LOL, you're terrible. You could preach all you want and hope many who

believe their " one size fits all " program should read and listen to

everyone's perspective. Too many wasted years hearing of the unknown.

It is a shame when has to learn at this age, him missing out

on so much. No child should pass to the secondary level without any

form of communication even due to a disability.

The only reason its happening is because finally I took it to the

next level crawling through the tunnel of snakes. Such a wake up call.

My presence has been needed at a new AU support group for adults. Not

a pretty site to see how many parents who fell through the same " dumb

parent treatment " cracks. It is a shame to see their adult child not

have any form of communication its just sad. Lots of behavior indeed

and the parents seem pretty stressed out without any good help. Most

of what I am hearing from the parents are how too many centers are

only for the money, give the individual pills, set them in the corner

to deteriorate so they could collect from the individual.

Sorry, jump off here and now to the communication book that was given

to me at the AU Camp for Educators was nicely set, colored coded

according to the outline of the PECS then one of the private trainer

who only came for a short time than never returned but before removed

all the pics out, told me it was pretty overwhelming for , then

began cutting the poly-color file in strips. Made me mad and I wanted

to replace it. I have been searching to replace them as I really did

prefer this but none of the office supplies carries them and I search

online but no luck.

I'll see if I could get a hold of the lady who gave it to me and see

where did she get the colorful pages. In the mean time I bought

something similar to it as its the early stages for now.

That's incredible on how much Trisha could do. Miss IQ. : )

Irma,17,DS/ASD

>

> Are you setting up his communication book by categories and color

coding

> them? It's so much easier for them to learn how to find them if

they don't have

> to look through the whole book. You can set it up keeping in mind

his

> specific needs. For us we are setting it up at home with a

section for food,

> movies, verbs, etc. I haven't decided on all the colors or

categories right now,

> I know we have food as yellow so far.

>

> We have to be realistic when it comes to technology and yes while

it can be

> helpful it also can be limiting so we just have to know the

limitations and

> work around that. I picture myself using a communication device

and I know

> that if I was not able to make my own boards or not be able to

change them out

> when I needed a new one I would not use the device that often. So

I try to

> keep than in mind for Trisha and have other alternatives so when

the device is

> not convientent then we fall back to something else. The

communication book

> is the same way. You can make smaller books to take with you

when you go

> to familiar places like the grocery store or to eat or to

Grandma's house etc.

> Each has it's good and bad points and it's just remembering that

no one way

> is going to be perfect. I know I keep preaching about total

communication

> but it's so important to give our kids a well rounded way to

communicate. I

> know I " m preaching to the choir right now but you'd be surprised

at how many

> children are still limited in their communication abilities

because some

> parents/teachers think only verbalization should be accepted.

Ok, my sermon is

> done for this week now I guess I'll have to think of another topic

for next

> week's sermon. lol

>

> Carol

> Trishasmom

> She isn't Typical, She's Trisha!

>

>

>

>

[Guest guest]

I, as a teacher, believe that,whether it be sign language, PECS,

commmunication board or spoken language, all children have to have some way to

communicate. The child in my classroom is 9 and can barely communicate anything.

No one bothered is what I am guessing.I came in talking to him constantly,

learned as much signing as I could only to be told no sign language, so I use

pictures and will try to get him to say words without being overbearing.When my

son was in school, I was considered the " dumb parent " . No parent is dumb. If

anything the parent is not informed by the people who are suppose to help the

child so they don't know what to do.

You all have a great group here. There is so much information. As parent

and teacher I am on both sides and this is why I got into the field. I wanted to

help parents get what they need and not be run over. Irma's post is right on

target.(as are all of the posts here) Preach, preach, and preach more.Get the

messages out there.

---------------------------------

Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with Yahoo!

Messenger with Voice.

[Guest guest]

This is awesome Carol. Way to go Trisha!!!!

Csvillars@... wrote: Yesterday she

found the symbol for " too loud " and signed room so they were able to understand

that the room was too loud for her and took her outside for a quiet break.

Carol

Trishasmom

She isn't Typical, She's Trisha!