Guest guest Posted December 16, 2005 Report Share Posted December 16, 2005 Hi Sherry, wish I could be more of a help to you, I just wanted to tell you I am thinking of you and just know we understand, this ride is made difficult when these wonderful kids that we love so much do things that are so hard to figure out, you remind me of myself in trying so so hard to figure it all out!! I find myself feeling desperate to help him when his behaviors come again, to help him in some way, cause I know he is telling me something. I know my son is only 8 but how thankful I am that I have you all to help me thru, we are all here for you, let us know what you and the doc. decide!!! you are a great mom to be working on these issues so intently, just wanted to tell ya that!!! Dawn, s mom P.S. I was thinking of trying the antidepresents again for A. also. > > Hi everybody, sorry to have been a stranger. We still haven't recovered from Hurricane Wilma which made a direct hit on our county (first since 1950). But we are alive and well (?) and I'm still reading along with all of you as this is the only place we are truly understood. > > I've managed to keep off of meds except for clonidine to sleep and synthroid for hypothyroidism for all these years. In August we made the first residential move ever in her life. We're in an apartment trying to sell our house. I was pleasantly surprised that she seemed to show no serious effects from the move nor from the hurricane. However I really think we are seeing some delayed reactions. Years ago we were offered SSRIs to help her anxiety and we managed to work thru things behaviorally and by changing her diet. Now however I am really worried about her. She is increasingly irritable and becoming more and more upset by things like the door not being open correctly or the toilet seat being down or someone's collar is folded over the wrong way. She's trying to severely limit her wardrobe and is yelling like a wounded animal if the verticals are not open to the correct angle. > > At this point it is really interfering with her learning and she seems so unhappy and angry all the time. We're seeing more SIBs again and more aggression again. Diet remains unchanged. > I've made an appt with our neuro for early January to see about getting her on luvox, which is what the majority of you recommended when I last asked about this. Is there anything special I should be aware of or be thinking about answers to for this visit? I've researched OCD but it's such a different ballgame with our kids especially if they are not very verbal. There hasn't been a drop of seratonin in either of our families' histories for generations so I always expected she would one day profit from some sort of antidepressent but I'm confused about the OCD issues and separating them from the DS, Autism and possible depression. She is absolutely unaffectionate and practically untouchable. We're back to those days when we don't know when a severe headbutt or eyepoke is coming; she's smacking herself in the head again repeatedly especially when she makes a mistake with her learning...even a totally errorless learning program. > > I can only conclude that the move, coupled with maybe even possible allergens in the apartment or just her progress into teenagehood has exacerbated these symptoms again. Are there any special websites you have found helpful in dealing with this compulsive stuff with our kids? Any input on what to be sure to mention to the doctor would be greatly appreciated too. Thanks so much and hugs to all your little and big kiddos. > Sherry Muhs, mom to 17 next month, DS/Autism and generalized whackiness > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2005 Report Share Posted December 16, 2005 Sorry you have seen a shift in your daughter . I am not familiar with meds and/or diets yet.. I hope you get some answers!!! Hugs and prayers! A. > > Hi everybody, sorry to have been a stranger. We still haven't recovered from Hurricane Wilma which made a direct hit on our county (first since 1950). But we are alive and well (?) and I'm still reading along with all of you as this is the only place we are truly understood. > > I've managed to keep off of meds except for clonidine to sleep and synthroid for hypothyroidism for all these years. In August we made the first residential move ever in her life. We're in an apartment trying to sell our house. I was pleasantly surprised that she seemed to show no serious effects from the move nor from the hurricane. However I really think we are seeing some delayed reactions. Years ago we were offered SSRIs to help her anxiety and we managed to work thru things behaviorally and by changing her diet. Now however I am really worried about her. She is increasingly irritable and becoming more and more upset by things like the door not being open correctly or the toilet seat being down or someone's collar is folded over the wrong way. She's trying to severely limit her wardrobe and is yelling like a wounded animal if the verticals are not open to the correct angle. > > At this point it is really interfering with her learning and she seems so unhappy and angry all the time. We're seeing more SIBs again and more aggression again. Diet remains unchanged. > I've made an appt with our neuro for early January to see about getting her on luvox, which is what the majority of you recommended when I last asked about this. Is there anything special I should be aware of or be thinking about answers to for this visit? I've researched OCD but it's such a different ballgame with our kids especially if they are not very verbal. There hasn't been a drop of seratonin in either of our families' histories for generations so I always expected she would one day profit from some sort of antidepressent but I'm confused about the OCD issues and separating them from the DS, Autism and possible depression. She is absolutely unaffectionate and practically untouchable. We're back to those days when we don't know when a severe headbutt or eyepoke is coming; she's smacking herself in the head again repeatedly especially when she makes a mistake with her learning...even a totally errorless learning program. > > I can only conclude that the move, coupled with maybe even possible allergens in the apartment or just her progress into teenagehood has exacerbated these symptoms again. Are there any special websites you have found helpful in dealing with this compulsive stuff with our kids? Any input on what to be sure to mention to the doctor would be greatly appreciated too. Thanks so much and hugs to all your little and big kiddos. > Sherry Muhs, mom to 17 next month, DS/Autism and generalized whackiness > > Quote Link to comment Share on other sites More sharing options...
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