Re: blood tests for c.d. etc...

[Guest guest]

In a message dated 2/21/2006 4:10:16 P.M. Eastern Standard Time,

jacksonsmom99@... writes:

What else should I have them check while they are doing the draw?

Celiac advanced test, CBC,????

Hypothyroidism. Listlessness (or no stamina) is a big sign of that. And

white blood count will tell them if he's fighting any infection. If

there's blood in the stools Jayne, have them do stool samples. No fun...been

there done that, along with the biopsy for celiac. None of this stuff is

fun,

that's for sure. I DESPISE blood draws and endoscopies and MRI's and and

and.......we had the leukemia scare too when Maddie was 3. She does have

GERD and hypothyroidism and is on meds for those.

Jayne, go to Len's web site to see what tests are appropriate for 's

age (_www.ds-health.com_ (http://www.ds-health.com) and click on the DS

preventive check list). He's also got a lot of info on all the other things

our kids are more prone to, and it helps to read it.

Good luck honey, and please do keep us posted, K?

Donna

[Guest guest]

Hi Jayne,

Dr Leshin has an article on his website in which he discusses all the

tests for celiac. http://www.ds-health.com/celiac.htm Here's a

little quote:

<<A few blood tests have been tried in the past with unhelpful

results, such as the antigliadin antibody (AGA) test, which is pretty

much abandoned now. The next blood test developed looks for

antiendomysium (or antiendomysial) antibodies (EMA). While the EMA

test is superior to the antigliadin test, the interpretation of the

test is operator-dependent and prone to errors. The newest blood test

looks for IgA antibodies to the enzyme transglutaminase (TG). TG is an

intracellular enzyme that binds gliadin and starts to process it in a

way that starts the autoimmune sequence in CD. As the TG test has

turned out to be a very sensitive and specific screening test for CD,

it has become the favored screening test, especially for children and

adults who have no symptoms of CD.>>

Dr Leshin also discusses tests for two genetic markers which I believe

are available to you in the USA. (We can't have these genetic marker

tests done in Australia unfortunately.)

I suggest you ask for 's B12 levels to be tested. They don't

check B12 levels in a full blood count (in Australia) but we found

that low B12 was the cause of Sophie's increasing lethargy. One B12

shot was all it took to perk her up again! She had to have a series

of them to build up her B12 levels, but since we put her on the GF/CF

diet her B12 levels have been good with no need for further injections.

Also make sure you mention 's lack of stamina because there are

many things which could cause it including low iron, thyroid and so

on. Your doctor should know what to check for.

Lisette

>

> Hi guys,

> I know it's been talked about before but I can't seem to find it on

> the archives, does anyone else have a tough time searching those

> archives besides me? LOL. Anyway, I'm interested in what the best

> blood test is for Celiac. I know there's the standard one they do

> but then I thought there was a more precise one. If anyone can

> share that, I'd really appreciate it.

>

> I also need to ask for a CBC, just doesn't seem to have any

> stamina lately. Last January, we went through a Leukemia scare and

> I'm nervous again for what they might find. I know I need to find

> out what the trouble is but sometimes when we know what they're

> prone to it makes it a bit more difficult to go through. I just

> need to suck it up and do the blood draw, as awful as that will be.

>

> I'm thinking screen for celiac since I'm not completely sure he

> doesn't have that. He's come up negative on just the standard blood

> test but I question his obsession with wheat and gluten, his bm's,

> and the other day he had a little blood in there - not from a

> fissure.

> What else should I have them check while they are doing the draw?

> Celiac advanced test, CBC,????

>

> Any info is welcome.

> thanks guys,

> Jayne

>

[Guest guest]

No, he doesn't take a daily vitamin, eats little to no fruit, and won't eat any

vegetables. He's an awful eater.

He would drink chocolate milk all the live long day if I let him. He's a big

drinker. Does that have something to do with it?

So Tori had to have the actual biopsy? Do they go under for that?

Thanks,

Jayne

Liz D wrote:

Oh, Geez! Jayne! Tori had the Celiac test/biopsy about 8 months ago. Does

he take daily vitamins? Does he drink alot of fluids?

Liz

blood tests for c.d. etc...

> Hi guys,

> I know it's been talked about before but I can't seem to find it on

> the archives, does anyone else have a tough time searching those

> archives besides me? LOL. Anyway, I'm interested in what the best

> blood test is for Celiac. I know there's the standard one they do

> but then I thought there was a more precise one. If anyone can

> share that, I'd really appreciate it.

>

> I also need to ask for a CBC, just doesn't seem to have any

> stamina lately. Last January, we went through a Leukemia scare and

> I'm nervous again for what they might find. I know I need to find

> out what the trouble is but sometimes when we know what they're

> prone to it makes it a bit more difficult to go through. I just

> need to suck it up and do the blood draw, as awful as that will be.

>

> I'm thinking screen for celiac since I'm not completely sure he

> doesn't have that. He's come up negative on just the standard blood

> test but I question his obsession with wheat and gluten, his bm's,

> and the other day he had a little blood in there - not from a

> fissure.

> What else should I have them check while they are doing the draw?

> Celiac advanced test, CBC,????

>

> Any info is welcome.

> thanks guys,

> Jayne

>

>

>

>

>

> --------------------------------------------------

> Checkout our homepage for information, bookmarks, and photos

> of our kids. Share favorite bookmarks, ideas, and other information by

> including them. Don't forget, messages are a permanent record of the

> archives for our list. http://groups.yahoo.com/group/

> --------------------------------------------

>

[Guest guest]

Thank you Lisette,

I had wrote down the info from Dr. Len's site and had heard about the genetic

markers. I didn't see them on his site but will go back and look for them. I

thought there was more than just the IgA and TG test.

After I sent the email, I thought about the Thyroid and have that down to

check as well.

Thank you for the info about B12. I'm thinking and hoping and praying he's

just low on a few things and we can straighten him up. I just hope it's not

something serious!

I appreciate the help so much.

Take care,

Jayne

sophiesmother2000 wrote:

Hi Jayne,

Dr Leshin has an article on his website in which he discusses all the

tests for celiac. http://www.ds-health.com/celiac.htm Here's a

little quote:

<<A few blood tests have been tried in the past with unhelpful

results, such as the antigliadin antibody (AGA) test, which is pretty

much abandoned now. The next blood test developed looks for

antiendomysium (or antiendomysial) antibodies (EMA). While the EMA

test is superior to the antigliadin test, the interpretation of the

test is operator-dependent and prone to errors. The newest blood test

looks for IgA antibodies to the enzyme transglutaminase (TG). TG is an

intracellular enzyme that binds gliadin and starts to process it in a

way that starts the autoimmune sequence in CD. As the TG test has

turned out to be a very sensitive and specific screening test for CD,

it has become the favored screening test, especially for children and

adults who have no symptoms of CD.>>

Dr Leshin also discusses tests for two genetic markers which I believe

are available to you in the USA. (We can't have these genetic marker

tests done in Australia unfortunately.)

I suggest you ask for 's B12 levels to be tested. They don't

check B12 levels in a full blood count (in Australia) but we found

that low B12 was the cause of Sophie's increasing lethargy. One B12

shot was all it took to perk her up again! She had to have a series

of them to build up her B12 levels, but since we put her on the GF/CF

diet her B12 levels have been good with no need for further injections.

Also make sure you mention 's lack of stamina because there are

many things which could cause it including low iron, thyroid and so

on. Your doctor should know what to check for.

Lisette

>

> Hi guys,

> I know it's been talked about before but I can't seem to find it on

> the archives, does anyone else have a tough time searching those

> archives besides me? LOL. Anyway, I'm interested in what the best

> blood test is for Celiac. I know there's the standard one they do

> but then I thought there was a more precise one. If anyone can

> share that, I'd really appreciate it.

>

> I also need to ask for a CBC, just doesn't seem to have any

> stamina lately. Last January, we went through a Leukemia scare and

> I'm nervous again for what they might find. I know I need to find

> out what the trouble is but sometimes when we know what they're

> prone to it makes it a bit more difficult to go through. I just

> need to suck it up and do the blood draw, as awful as that will be.

>

> I'm thinking screen for celiac since I'm not completely sure he

> doesn't have that. He's come up negative on just the standard blood

> test but I question his obsession with wheat and gluten, his bm's,

> and the other day he had a little blood in there - not from a

> fissure.

> What else should I have them check while they are doing the draw?

> Celiac advanced test, CBC,????

>

> Any info is welcome.

> thanks guys,

> Jayne

>

--------------------------------------------------

Checkout our homepage for information, bookmarks, and photos of our

kids. Share favorite bookmarks, ideas, and other information by including them.

Don't forget, messages are a permanent record of the archives for our list.

http://groups.yahoo.com/group/

--------------------------------------------

[Guest guest]

Thanks Donna,

I kind of figured a stool sample was in our future. I actually have the stuff

to collect it here from another time. It has to be refrigerated right? or

brought in asap if I remember correctly?

I glanced over the stuff on Dr. Len's site. How old was Maddie when you found

out about her thyroid? Did she have symptoms or did you find out about it by

routine blood screen?

I'm going to go back and look more thoroughly on his site.

Last January his WBC was low and they retested it and it was still low, they

thought maybe he just has a low WBC always? I'm gonna push for some further

testing this time and see what we can come up with. Something is definatlyl not

100%!

Thanks and yes, I'll let you know whatever I find out.

Take care,

Jayne

duffey48@... wrote:

In a message dated 2/21/2006 4:10:16 P.M. Eastern Standard Time,

jacksonsmom99@... writes:

What else should I have them check while they are doing the draw?

Celiac advanced test, CBC,????

Hypothyroidism. Listlessness (or no stamina) is a big sign of that. And

white blood count will tell them if he's fighting any infection. If

there's blood in the stools Jayne, have them do stool samples. No fun...been

there done that, along with the biopsy for celiac. None of this stuff is

fun,

that's for sure. I DESPISE blood draws and endoscopies and MRI's and and

and.......we had the leukemia scare too when Maddie was 3. She does have

GERD and hypothyroidism and is on meds for those.

Jayne, go to Len's web site to see what tests are appropriate for 's

age (_www.ds-health.com_ (http://www.ds-health.com) and click on the DS

preventive check list). He's also got a lot of info on all the other things

our kids are more prone to, and it helps to read it.

Good luck honey, and please do keep us posted, K?

Donna

[Guest guest]

In a message dated 2/21/2006 9:22:53 P.M. Eastern Standard Time,

jacksonsmom99@... writes:

No, he doesn't take a daily vitamin, eats little to no fruit, and won't eat

any vegetables. He's an awful eater.

He would drink chocolate milk all the live long day if I let him. He's a

big drinker. Does that have something to do with it?

So Tori had to have the actual biopsy? Do they go under for that?

Jayne,

Maddie is QUEEN of chocolate milk. I use Ovaltine because it has no

caffeine and it looks real chocolately with only a little in the glass. Back

when she first went to Dr. Capone, we saw a nutritionist (well, we spent time

with a feeding specialist at CHOP too....Maddie had TONS of issues with food

from the autism) who was so sweet. When I told her how upset I was about

the chocolate milk, she eased my mind. Now I do try to curtial how much

she'll drink, because along with food, it's become one of her obsessions. So

when she does such a good job at communicating that she wants it (A LOT), I'll

put about one ounce in, figuring an ounce at a time is better than a full

glass, since she just gobbles it no matter how much is in it.

Yes, they get put to sleep for the actual biopsy. It's done through an

upper endoscopy....Maddie's had 3 already and will probably do another one in

the spring or summer. No, it's not fun and I dread it like the plague

every time. But it's necessary to keep Maddie healthy. She gets blood draws

often too because of her hypothyroidism...we just did one and the levels are

off again, so another one in a month. It sucks!!!

Jayne, also have them test for viruses like Epstein Barr.....I remember

them testing Maddie for that when we were dealing with lethargy and failure to

thrive.

Donna

P.S. Hey, will eat yogurt??

[Guest guest]

In a message dated 2/21/2006 9:39:15 P.M. Eastern Standard Time,

jacksonsmom99@... writes:

It has to be refrigerated right? or brought in asap if I remember

correctly?

I glanced over the stuff on Dr. Len's site. How old was Maddie when you

found out about her thyroid? Did she have symptoms or did you find out about

it

by routine blood screen?

Jayne, yes you have to refrigerate it. I had to do it a couple times with

Maddie. I put it in a brown paper bag, so no one has to know what it is (my

kids would have NEVER opened the fridge again if they knew....LOL)

Maddie was 3 when we found out about being hypothyroid....the exact age of

onset for many kids with DS. It was done as part of normal testing for DS at

that age. Back when she was born, I had given my ped a copy of the DS

Preventive Medical Check List and he has been extremely diligent about

following

the guidelines. She's already been tested for AAI 3x too, because of

diligent medical folks!!! We're lucky.

Donna

[Guest guest]

Fortunately, Tori eats EVERYTHING & I mean everything... =) Sometimes

food, sometimes non-edibles! Why don't you try Ovaltine instead of

Chocolate Milk. I switched to Lactose free because milk gives me trouble,

and it seems to sit well with Tori. Does he like fruit snacks? I get Tori

the gummy type vitamins and she doesn't even know she is taking them. I

just put them in the dish with her fruit snacks every morning. I also give

her Acidophilus daily. Just sprinkle the stuff in her juice and she gets

her daily dose.

I believe she did go under for it, but I can't remember. We actually go

back for a follow-up. She does have GERD and the meds she is on really

helps. She had alot of gas and nasty poop prior to the medication.

Liz

blood tests for c.d. etc...

>

>

>> Hi guys,

>> I know it's been talked about before but I can't seem to find it on

>> the archives, does anyone else have a tough time searching those

>> archives besides me? LOL. Anyway, I'm interested in what the best

>> blood test is for Celiac. I know there's the standard one they do

>> but then I thought there was a more precise one. If anyone can

>> share that, I'd really appreciate it.

>>

>> I also need to ask for a CBC, just doesn't seem to have any

>> stamina lately. Last January, we went through a Leukemia scare and

>> I'm nervous again for what they might find. I know I need to find

>> out what the trouble is but sometimes when we know what they're

>> prone to it makes it a bit more difficult to go through. I just

>> need to suck it up and do the blood draw, as awful as that will be.

>>

>> I'm thinking screen for celiac since I'm not completely sure he

>> doesn't have that. He's come up negative on just the standard blood

>> test but I question his obsession with wheat and gluten, his bm's,

>> and the other day he had a little blood in there - not from a

>> fissure.

>> What else should I have them check while they are doing the draw?

>> Celiac advanced test, CBC,????

>>

>> Any info is welcome.

>> thanks guys,

>> Jayne

>>

>>

>>

>>

>>

>> --------------------------------------------------

>> Checkout our homepage for information, bookmarks, and photos

>> of our kids. Share favorite bookmarks, ideas, and other information by

>> including them. Don't forget, messages are a permanent record of the

>> archives for our list. http://groups.yahoo.com/group/

>> --------------------------------------------

>>

[Guest guest]

Good idea about the Ovaltine, I will buy some tomorrow - thank you.

No, he doesn't like fruit snacks. Yes, it would be so much easier if I could

get a vitamin in him.

He just doesn't eat anything anymore that I can stick it in or crush it into.

I wish he would be like the dog and fall for the 'ol pill in the cheese routine!

He's just too smart!

(please no one take offense, I'm not inferring that I wish my child was a dog

- it's simply a joke! - desperate times call for desparate measures!!)

What does Acidophilis do? I know it's in yogurt but what is the benefit of

taking it? Where do you get it, GNC? Is it a powder?

Thanks Liz,

Have you been back to the Doctor yet? What's the latest?

Happy Early Birthday to Tori! 6!!!

Jayne

Liz D wrote:

Fortunately, Tori eats EVERYTHING & I mean everything... =) Sometimes

food, sometimes non-edibles! Why don't you try Ovaltine instead of

Chocolate Milk. I switched to Lactose free because milk gives me trouble,

and it seems to sit well with Tori. Does he like fruit snacks? I get Tori

the gummy type vitamins and she doesn't even know she is taking them. I

just put them in the dish with her fruit snacks every morning. I also give

her Acidophilus daily. Just sprinkle the stuff in her juice and she gets

her daily dose.

I believe she did go under for it, but I can't remember. We actually go

back for a follow-up. She does have GERD and the meds she is on really

helps. She had alot of gas and nasty poop prior to the medication.

Liz

blood tests for c.d. etc...

>

>

>> Hi guys,

>> I know it's been talked about before but I can't seem to find it on

>> the archives, does anyone else have a tough time searching those

>> archives besides me? LOL. Anyway, I'm interested in what the best

>> blood test is for Celiac. I know there's the standard one they do

>> but then I thought there was a more precise one. If anyone can

>> share that, I'd really appreciate it.

>>

>> I also need to ask for a CBC, just doesn't seem to have any

>> stamina lately. Last January, we went through a Leukemia scare and

>> I'm nervous again for what they might find. I know I need to find

>> out what the trouble is but sometimes when we know what they're

>> prone to it makes it a bit more difficult to go through. I just

>> need to suck it up and do the blood draw, as awful as that will be.

>>

>> I'm thinking screen for celiac since I'm not completely sure he

>> doesn't have that. He's come up negative on just the standard blood

>> test but I question his obsession with wheat and gluten, his bm's,

>> and the other day he had a little blood in there - not from a

>> fissure.

>> What else should I have them check while they are doing the draw?

>> Celiac advanced test, CBC,????

>>

>> Any info is welcome.

>> thanks guys,

>> Jayne

>>

>>

>>

>>

>>

>> --------------------------------------------------

>> Checkout our homepage for information, bookmarks, and photos

>> of our kids. Share favorite bookmarks, ideas, and other information by

>> including them. Don't forget, messages are a permanent record of the

>> archives for our list. http://groups.yahoo.com/group/

>> --------------------------------------------

>>

[Guest guest]

Ovaltine is a great idea, you and Liz are so smart! " I need more Ovaltine Mom! "

I'm off for an Ovaltine run tomorrow - he better like it! :-)

Sometimes I can get to eat yogurt BUT it can only be Dannon Vanilla in

the huge tub that is served to " your royal highness " in his little tupperware

bowls!

What are you thinking I can get into the yogurt, I know you must have an idea

brewing Donna! :-)

I did leave a phone consult for the Doctor today and her nurse called back. I

told her what I wanted to test with the blood draw. She's going to talk with the

Dr. tomorrow and one of them will get back with me tomorrow. Patience isn't my

strong suit, when I want answers, I want them yesterday. Unfortunatley the

Military Healthcare system could care less about my thirst for knowledge! Of

course the nurse wanted to know why I wasn't calling his regular Doctor. His

Neuro-ped is a specialist he sees. His regular doctor that is assigned to him

is awful, he's never seen since we've been here (and I hope to keep it

that way). I prefer the Neuro ped because she's much more in tune with

's issues and quirks and things that make him tick.

I live for the day that I can just call the doc and get in on the same day!

Isn't that how it happens in the civilian world? only 2 more years....

So, I'll let you know what tomorrow brings.

Thanks for all of your help and suggestions, you all are always there for me

and I really appreciate it.

Take care,

Jayne

duffey48@... wrote:

Jayne,

Maddie is QUEEN of chocolate milk. I use Ovaltine because it has no

caffeine and it looks real chocolately with only a little in the glass. Back

when she first went to Dr. Capone, we saw a nutritionist (well, we spent time

with a feeding specialist at CHOP too....Maddie had TONS of issues with food

from the autism) who was so sweet. When I told her how upset I was about

the chocolate milk, she eased my mind. Now I do try to curtial how much

she'll drink, because along with food, it's become one of her obsessions. So

when she does such a good job at communicating that she wants it (A LOT), I'll

put about one ounce in, figuring an ounce at a time is better than a full

glass, since she just gobbles it no matter how much is in it.

Yes, they get put to sleep for the actual biopsy. It's done through an

upper endoscopy....Maddie's had 3 already and will probably do another one in

the spring or summer. No, it's not fun and I dread it like the plague

every time. But it's necessary to keep Maddie healthy. She gets blood draws

often too because of her hypothyroidism...we just did one and the levels are

off again, so another one in a month. It sucks!!!

Jayne, also have them test for viruses like Epstein Barr.....I remember

them testing Maddie for that when we were dealing with lethargy and failure to

thrive.

Donna

P.S. Hey, will eat yogurt??

[Guest guest]

Thanks Donna, AGAIN! :-)

I thought it had to be refrigerated and YES, brown bag it for sure, my kids

would DIE if they knew poop had been in the fridge!

I don't know how I'll catch that but I'll figure it out. I guess fishing it

out of the toilet isn't really possible, probably want a dry sample. (sorry -

too graphic but what can I say - this is reality list serv) LOL!

has had all the tests he's supposed to have too, I just tell the AF

docs what were doing, LOL. They have no clue so they just put in the order.

Wasn't til we moved here to Va that I finally found a Dr. who knew more about

than I did, medically speaking. I still get asked if I'm a nurse

occasionally since I take such a " pro-active " role in 's healthcare.

(smile) Once I was asked that solely on the fact that I used to wear clogs alot!

Go figure! Anyhoo.....

Thanks for helping me out with your suggestions and ideas Donna.

Take care,

Jayne

who's so tired she can't see straight and is giddy - pretty obvious from the

post I guess! Off to bed finally now that my oldest is done with his homework -

it's 11:00pm!

duffey48@... wrote:

In a message dated 2/21/2006 9:39:15 P.M. Eastern Standard Time,

jacksonsmom99@... writes:

It has to be refrigerated right? or brought in asap if I remember

correctly?

I glanced over the stuff on Dr. Len's site. How old was Maddie when you

found out about her thyroid? Did she have symptoms or did you find out about

it

by routine blood screen?

Jayne, yes you have to refrigerate it. I had to do it a couple times with

Maddie. I put it in a brown paper bag, so no one has to know what it is (my

kids would have NEVER opened the fridge again if they knew....LOL)

Maddie was 3 when we found out about being hypothyroid....the exact age of

onset for many kids with DS. It was done as part of normal testing for DS at

that age. Back when she was born, I had given my ped a copy of the DS

Preventive Medical Check List and he has been extremely diligent about

following

the guidelines. She's already been tested for AAI 3x too, because of

diligent medical folks!!! We're lucky.

Donna

[Guest guest]

Hey, Jayne: Acidophilus is a probiotic and comes in capsule form. It fights

off bad bacteria. I buy it from my nutritionist. Can you get liquid

vitamins and add it to his drinks without him noticing? I know Tori is a

lion when it comes to taking certain meds and is too smart to let me cover

them up with anything. Sorry I can't be of anymore help with Mr. J.

I did get to the dr. and all he said was to eat a bowl of Oatmeal a day and

a yogurt (I hate yogurt-so I take my Acidophilus) and that's it. I have to

stay away from things with seeds, nuts, rice, and CHEESE!!! I live on

cheese. Anyway, I have the infamous colonoscopy scheduled for 3/14 so they

can see what damage has been caused by the infection.

Yes, Missy is 6 yrs. old today...She has been having a bad week. Could be

because they had a 4-day weekend and she is so overwhelmed with her

birthday. She slapped a little boy at school yesterday in music. She & her

TSS are going to bake cupcakes this morning for her class. We are having a

party for her Sat.-but mostly adults-seeing she doesn't enjoy being around

other kids too much. Also, had to tell everyone not to wrap any gifts they

bring. That definitely would cause a major meltdown.

Hope all is settling down with you guys.

blood tests for c.d. etc...

>>

>>

>>> Hi guys,

>>> I know it's been talked about before but I can't seem to find it on

>>> the archives, does anyone else have a tough time searching those

>>> archives besides me? LOL. Anyway, I'm interested in what the best

>>> blood test is for Celiac. I know there's the standard one they do

>>> but then I thought there was a more precise one. If anyone can

>>> share that, I'd really appreciate it.

>>>

>>> I also need to ask for a CBC, just doesn't seem to have any

>>> stamina lately. Last January, we went through a Leukemia scare and

>>> I'm nervous again for what they might find. I know I need to find

>>> out what the trouble is but sometimes when we know what they're

>>> prone to it makes it a bit more difficult to go through. I just

>>> need to suck it up and do the blood draw, as awful as that will be.

>>>

>>> I'm thinking screen for celiac since I'm not completely sure he

>>> doesn't have that. He's come up negative on just the standard blood

>>> test but I question his obsession with wheat and gluten, his bm's,

>>> and the other day he had a little blood in there - not from a

>>> fissure.

>>> What else should I have them check while they are doing the draw?

>>> Celiac advanced test, CBC,????

>>>

>>> Any info is welcome.

>>> thanks guys,

>>> Jayne

>>>

>>>

>>>

>>>

>>>

>>> --------------------------------------------------

>>> Checkout our homepage for information, bookmarks, and photos

>>> of our kids. Share favorite bookmarks, ideas, and other information by

>>> including them. Don't forget, messages are a permanent record of the

>>> archives for our list. http://groups.yahoo.com/group/

>>> --------------------------------------------

>>>

[Guest guest]

Here's what I've learned about acidophilus/bifidophilus from my MD and

Pharmacist (who are both naturalists/health nuts, too) ----

70-80% of our immune system is in our colon. The 'dophiluses replenish the good

bacteria that our conventional/fast-food/fiberless/high-sugar/high-gluten diets

that we all eat, destroy. The best way to get them is powder or capsule form;

and the only way to store them is in the fridge in order to keep 'em alive.

That's the most concentrated way to receive the dophiluses. (I buy Natrens brand

#1 and #2 powder. I like the taste and add it to my Kefir. It's expensive ---

about $18/bottle and can be found at Whole Foods and Central Markets. Our local

pharm carries it.) Kefir is another way to get the D brothers --- it has more

of the dophiluses than yogurt. Yogurt is last. Just make sure all of it is

plain, without sugar. Any added sugar just defeats your purpose of keeping the

colon clean and working.

And then, you're supposed to be eating an all-organic diet (Yeah, Right); but

the old standard one ---- high in veggies, fruits, meats, and whole grains.

Nothing processed, artificial, fried, with white flour or white sugar (or a lot

of sugar in any other forms.) You know the drill. All I know is that it all

works ---- when we do it and when we stick to the routine. (Isn't that how it

all goes?)

Anyway, I mix the D brothers in with the Kefir and add POM (pomegranate juice)

to flavor. Sometimes I'll make smoothies with the dophiluses, plain Kefir, POM,

and fruit.

Hope this helps some.

Diane

blood tests for c.d. etc...

>>

>>

>>> Hi guys,

>>> I know it's been talked about before but I can't seem to find it on

>>> the archives, does anyone else have a tough time searching those

>>> archives besides me? LOL. Anyway, I'm interested in what the best

>>> blood test is for Celiac. I know there's the standard one they do

>>> but then I thought there was a more precise one. If anyone can

>>> share that, I'd really appreciate it.

>>>

>>> I also need to ask for a CBC, just doesn't seem to have any

>>> stamina lately. Last January, we went through a Leukemia scare and

>>> I'm nervous again for what they might find. I know I need to find

>>> out what the trouble is but sometimes when we know what they're

>>> prone to it makes it a bit more difficult to go through. I just

>>> need to suck it up and do the blood draw, as awful as that will be.

>>>

>>> I'm thinking screen for celiac since I'm not completely sure he

>>> doesn't have that. He's come up negative on just the standard blood

>>> test but I question his obsession with wheat and gluten, his bm's,

>>> and the other day he had a little blood in there - not from a

>>> fissure.

>>> What else should I have them check while they are doing the draw?

>>> Celiac advanced test, CBC,????

>>>

>>> Any info is welcome.

>>> thanks guys,

>>> Jayne

>>>

>>>

>>>

>>>

>>>

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