Re: Re: Carol-hearing aids

[Guest guest]

thanks she is on medication for the next 2 weeks and then goes back to see

how she is doing. Her new glasses should be ready in about 5-7 days but they

said we could pick them up at our convience so we will try to time it for

when she goes back to the ped since they are only about 5 mins away from each

other and it saves another hour long trip. The doctor said Trisha's skin is

very dry all over and recommended using a cream or lotion and something in her

bath. Any suggestions? She has very sensitive skin.

Carol

Trishasmom

She isn't typical, She's Trisha!

If you always do what you always did, you'll always get what you've always

gotten.

[Guest guest]

Carol, how great Trisha did so well with the exams today. Hope she is

feeling better soon. Louise

Re: Re: Carol-hearing aids

In a message dated 1/16/2006 12:22:47 P.M. Eastern Standard Time,

baldwinjbb@... writes:

Ben is under the treatment of a pediatric ENT, tubes at age 4,

etc...

Trisha had tubes when she was 18 months old and then again at 2 1/2 and

then

at 3 and then again at 4. At 5 she had her tonsils removed and then

at 6

1/2 she had tonsils removed again (they grew back) and her adenoids

removed.

Since she had the adenoids and tonsils removed she has been doing

pretty good

that is until today, I took her to the eye doctor and also to her ped

and

she has fluid in the ears and sinus and chest congestion. But that

isn't a

bad record considering she has had as many as 24 (they charted them)

ear

infections a year which we think may be the cause of her hearing loss.

We first

learned of her hearing loss around 6 after her surgery, she got hearing

aids

but would not keep them in and kept throwing them out the window,

losing them

on the playground and then flushing them down the toilet. So we were

worried

how she would do this time with the aids. She will keep them on at

school

or if we are doing work but " her " time they come off which the

audiologist

says is fine, that as she gets more comfortable with them she will wear

them

longer. She even asked for them once recently. She is getting new

glasses as

her RX has worsened a bit. They also fitted her glasses with a special

nose

piece that helps them not to slide so bad which might help her keep

them on

longer as well. She did so good at the Dr's office today. They were

amazed

at the difference. She had so many caution notes from last visit and

this

time she was a perfect little lady cooperating with them even to the eye

drops

even though she kept squeezing her eyes shut she still let them get the

drops

in which is much better than last time it took 3 of us. She even took

eye

tests they couldn't administer last time. She got to do the eye chart,

colored

glasses and depth perception test. She even for the very first time

let

them put her head in that harness to look in her eyes. I was so proud

of her.

And in the ped's office it was the same she let them look in her ears

and

down her throat it was awesome for the very first time to go and not

have to

fight her to let them look at her.

Carol

Trishasmom

She isn't typical, She's Trisha!

If you always do what you always did, you'll always get what you've

always

gotten.

[Guest guest]

dear carol trisha mom Ijust got in the middle of your letter of dry skin

michelle always had super dry skin and this year was the worst.but instead of

just putting thing out side the skin I use organic olive oil put it in

applesauce and they never know the different or they go ick as it goin the mouth

and down the shoot.cindyand michelle

Csvillars@... wrote: thanks she is on medication for the next 2 weeks and

then goes back to see

how she is doing. Her new glasses should be ready in about 5-7 days but they

said we could pick them up at our convience so we will try to time it for

when she goes back to the ped since they are only about 5 mins away from each

other and it saves another hour long trip. The doctor said Trisha's skin is

very dry all over and recommended using a cream or lotion and something in her

bath. Any suggestions? She has very sensitive skin.

Carol

Trishasmom

She isn't typical, She's Trisha!

If you always do what you always did, you'll always get what you've always

gotten.

[Guest guest]

In a message dated 1/17/2006 4:15:44 P.M. Eastern Standard Time,

jacksonsmom99@... writes:

Wow Carol, I'm so impressed with Trisha - quite the young lady.

I give part of the credit of course to Trisha, but the other part I think is

because of all the hard work they are doing the autism school. They have

been going back to the very basics and working with her on those and helping

with her sensory needs and communication needs. In other words, they are

doing just what I have been begging the public school to do for years and

years.

Carol

Trishasmom

She isn't typical, She's Trisha!

If you always do what you always did, you'll always get what you've always

gotten.

[Guest guest]

Wow Carol, I'm so impressed with Trisha - quite the young lady. I can only

imagine how wonderful it must have been to have her cooperate so nicely at both

appts. So glad things went well for you today. Sorry she's sick though, hope

she feels better soon.

Take care,

Jayne

Csvillars@... wrote:

In a message dated 1/16/2006 12:22:47 P.M. Eastern Standard Time,

baldwinjbb@... writes:

Ben is under the treatment of a pediatric ENT, tubes at age 4,

etc...

Trisha had tubes when she was 18 months old and then again at 2 1/2 and then

at 3 and then again at 4. At 5 she had her tonsils removed and then at 6

1/2 she had tonsils removed again (they grew back) and her adenoids removed.

Since she had the adenoids and tonsils removed she has been doing pretty good

that is until today, I took her to the eye doctor and also to her ped and

she has fluid in the ears and sinus and chest congestion. But that isn't a

bad record considering she has had as many as 24 (they charted them) ear

infections a year which we think may be the cause of her hearing loss. We

first

learned of her hearing loss around 6 after her surgery, she got hearing aids

but would not keep them in and kept throwing them out the window, losing them

on the playground and then flushing them down the toilet. So we were worried

how she would do this time with the aids. She will keep them on at school

or if we are doing work but " her " time they come off which the audiologist

says is fine, that as she gets more comfortable with them she will wear them

longer. She even asked for them once recently. She is getting new glasses as

her RX has worsened a bit. They also fitted her glasses with a special nose

piece that helps them not to slide so bad which might help her keep them on

longer as well. She did so good at the Dr's office today. They were amazed

at the difference. She had so many caution notes from last visit and this

time she was a perfect little lady cooperating with them even to the eye drops

even though she kept squeezing her eyes shut she still let them get the drops

in which is much better than last time it took 3 of us. She even took eye

tests they couldn't administer last time. She got to do the eye chart, colored

glasses and depth perception test. She even for the very first time let

them put her head in that harness to look in her eyes. I was so proud of her.

And in the ped's office it was the same she let them look in her ears and

down her throat it was awesome for the very first time to go and not have to

fight her to let them look at her.

Carol

Trishasmom

She isn't typical, She's Trisha!

If you always do what you always did, you'll always get what you've always

gotten.

[Guest guest]

I have awfully dry skin, eczema my whole life. I like the cetaphil products,

they are wonderful. I've also been impressed with the Aveeno products too.

Good luck,

Jayne

Csvillars@... wrote:

thanks she is on medication for the next 2 weeks and then goes back to see

how she is doing. Her new glasses should be ready in about 5-7 days but they

said we could pick them up at our convience so we will try to time it for

when she goes back to the ped since they are only about 5 mins away from each

other and it saves another hour long trip. The doctor said Trisha's skin is

very dry all over and recommended using a cream or lotion and something in her

bath. Any suggestions? She has very sensitive skin.

Carol

Trishasmom

She isn't typical, She's Trisha!

If you always do what you always did, you'll always get what you've always

gotten.

[Guest guest]

I just started using Gold Bond's medicated lotion for both Tori and myself.

It seems to work really well.

Liz

Re: Re: Carol-hearing aids

>I have awfully dry skin, eczema my whole life. I like the cetaphil

>products, they are wonderful. I've also been impressed with the Aveeno

>products too.

> Good luck,

> Jayne

>

> Csvillars@... wrote:

> thanks she is on medication for the next 2 weeks and then goes back to

> see

> how she is doing. Her new glasses should be ready in about 5-7 days but

> they

> said we could pick them up at our convience so we will try to time it for

> when she goes back to the ped since they are only about 5 mins away from

> each

> other and it saves another hour long trip. The doctor said Trisha's

> skin is

> very dry all over and recommended using a cream or lotion and something

> in her

> bath. Any suggestions? She has very sensitive skin.

>

> Carol

> Trishasmom

> She isn't typical, She's Trisha!

> If you always do what you always did, you'll always get what you've

> always

> gotten.

>

>

>

[Guest guest]

In a message dated 1/18/2006 9:02:19 A.M. Eastern Standard Time,

jacksonsmom99@... writes:

Well,I guess this proves that we're always learning and it's never too late

to start

I just got back from our monthly parent/teacher meeting and I feel very good

with the results. We discussed ESY and we all agree that it would be

beneficial for Trisha so our next step is to present it to the FAPT team when

we

meet next month to get the ball rolling on that. I also asked about possible

increase in her ST and OT and they agreed that would be good. They also

agreed that more intense socialization with her peers is needed and that is

being

worked on as we speak. We also are going to have OT, ST, PT consultations

set up through her MR case manager to see about getting more therapies for her

at home as well as at school. We are also checking into recreation therapy

as well. We are setting up an IEP meeting to put all of this into the IEP. I

still have not gotten used to how well this school cooperates with us, it's

just blows my mind every time we meet. I just can't say it enough, this move

to the autism school has been the best thing we could have done for Trisha

educationally wise. The school is going to see what they can do about the bus

aide problem and training the aid in autism. They are so supportive and so

full of praise for Trisha, so different than what we are used to and oh so

much better. I have confidence in this school which is not something I have

felt with the public schools. I know it is different for each child but in our

case the autism, ABA approach is working for Trisha.

Carol

Trishasmom

She isn't typical, She's Trisha!

If you always do what you always did, you'll always get what you've always

gotten.

[Guest guest]

In other words, they are

doing just what I have been begging the public school to do for years and

years.

Well,I guess this proves that we're always learning and it's never too late to

start. I know how good you must feel and know now that moving her to Faison was

the best decision! Congratulations.

Take care,

Jayne

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[Guest guest]

i like the cetaphil products too, the eucerin is also pretty good, and

there is another pretty exspensive, starts wit an " m " cant think of it, its

been

awhile since ive bought due to the price. shawna