Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 Hi I am Viola my son kyle is 13, and has the dual diagnosis of down syndrome and PDD(nos) did not start with the autism untill the age of 9 1. Self stimulating behaviors ie, hand flapping, rocking etc. 2. loss of communication, talking to me about his day, his feelings, etc. 3. his desire to be alone rather than with the family really hurts!: I was wondering if any of you could identify 3 issues that face families who are touched by autism spectrum disorders and please try to be specific Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 1. How to explain things to younger siblings 2. Fighting for the educational rights of an autistic child 3. If you have a child severely impacted with autism its would really be hard to narrow it down to the top 3, because every aspect of you life is impacted. My son is down syndrome and autistic. I also have 4 other sons. 5 in total. 2 older than and 2 younger. Our family dynamics is completely unique and affected by and his needs. Hope this helps. :} HI--im a new comer! Hi everyone reading this! I am a graduate student taking an introduction to autism spectrum disorders class. As part of my course requirement i had to join a listserv group. I found this one to be very interesting. I was wondering if any of you could identify 3 issues that face families who are touched by autism spectrum disorders and please try to be specific. Any assistance would be great! Thanks! Lara -------------------------------------------------- Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. http://groups.yahoo.com/group/ -------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 Number one on our list would be communication Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 Lara: My name is Liz and our daughter, Tori, will be 6 on the 23rd. Tori was born with Down syndrome and has Autism. As other parents have said it is very difficult to list just 3..but I will try.. 1. Behaviors-explosive, impulsive 2. Self-stimulation-waving arms, shaking head wildly 3. Self-injurious behaviors-head bangs, hits self Hope this helps. Liz HI--im a new comer! > Hi everyone reading this! > I am a graduate student taking an introduction to autism spectrum > disorders class. As part of my course requirement i had to join a > listserv group. I found this one to be very interesting. > I was wondering if any of you could identify 3 issues that face > families who are touched by autism spectrum disorders and please try > to be specific. > Any assistance would be great! > Thanks! > Lara > > > > > > > -------------------------------------------------- > Checkout our homepage for information, bookmarks, and photos > of our kids. Share favorite bookmarks, ideas, and other information by > including them. Don't forget, messages are a permanent record of the > archives for our list. http://groups.yahoo.com/group/ > -------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Lara, If you need more specific information than below contact me. 1. Staff training to UNDERSTAND BEHAVIORS and have the support from professionals within the agency, i.e. psychologist, behavior specialists/analyst, to be available to help staff as needed. 2. COMMUNICATION – sign is our son’s primary mode of communication and we consistently have had to have an agency arrange to have staff trained to know how to sign the signs he knows. 3. FUTURE PLANNING – even though the families I have been associated don’t all have ASD it is an area that needs addressed as all will face it in the future. In our state many of these families have their family member at home and it is only on an emergency basis as the parent ages, gets sicker or dies that they can be admitted to an agencies home. Even then it takes months to happen to complete all the paper work, find or prepare the home to admit the individual. Louise Mom to 43, DS, Hearing Impaired, ASD (diagnosed at age 41) HI--im a new comer! Hi everyone reading this! I am a graduate student taking an introduction to autism spectrum disorders class. As part of my course requirement i had to join a listserv group. I found this one to be very interesting. I was wondering if any of you could identify 3 issues that face families who are touched by autism spectrum disorders and please try to be specific. Any assistance would be great! Thanks! Lara -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.375 / Virus Database: 267.15.2/252 - Release Date: 2/6/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Hi Louise! I was just wondering.. does do any self-stim or " acting out " behaviors? If so, can you provide me with an example. thanks lara Louise & Andy wrote: Lara, If you need more specific information than below contact me. 1. Staff training to UNDERSTAND BEHAVIORS and have the support from professionals within the agency, i.e. psychologist, behavior specialists/analyst, to be available to help staff as needed. 2. COMMUNICATION – sign is our son’s primary mode of communication and we consistently have had to have an agency arrange to have staff trained to know how to sign the signs he knows. 3. FUTURE PLANNING – even though the families I have been associated don’t all have ASD it is an area that needs addressed as all will face it in the future. In our state many of these families have their family member at home and it is only on an emergency basis as the parent ages, gets sicker or dies that they can be admitted to an agencies home. Even then it takes months to happen to complete all the paper work, find or prepare the home to admit the individual. Louise Mom to 43, DS, Hearing Impaired, ASD (diagnosed at age 41) HI--im a new comer! Hi everyone reading this! I am a graduate student taking an introduction to autism spectrum disorders class. As part of my course requirement i had to join a listserv group. I found this one to be very interesting. I was wondering if any of you could identify 3 issues that face families who are touched by autism spectrum disorders and please try to be specific. Any assistance would be great! Thanks! Lara -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.375 / Virus Database: 267.15.2/252 - Release Date: 2/6/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Lara, When is sitting watching TV he has a variety of things that he keeps moving. One is a ball in a sock that he has stretched by putting the sock in a door, closing the door and pulling on the sock to get it the right length. This ball and sock he twirls around a stick, back and forth. Those sticks or dowels have been cut to the right length by Dad. Other times he has a variety of sticks he chooses one to toss in the air and catches it. Sometimes he takes an insert from the newspaper, rolls it up, puts a rubber band on it and tosses it up in the air and catches it. Another is a metal Slinky that has to be cut in half only by Dad so it is the right length to move back and forth. He also has a whistle on a string he twirls around his finger. The whistle and string or 1/2 Slinky he can put in his pocket and will have these to twirl in the car. I have heard he has had these at work also without any problem. These have never presented a problem as he can get along without them if need be when going out on activities. Hitting and throwing (more detail if needed) have been identified on his behavior plan since he had the new psychological identifying the autism in '03 and a consultants evaluation in '04. We took the recommendations of these two to identify what would be addressed to help make 's life better. You may not know but a year ago we moved in residence from an agency where he lived for 12 years to a new one that we felt could better address all these needs. Last September he moved to the new agencies workshop. At a recent staffing swearing and spitting was increasing, these had previously been identified as precursors of the hitting and throwing. If more detail is needed contact me off list so as not to overload the list, I am happy to help you with any questions. By the way what is your Masters program and where? Louise HI--im a new comer! Hi everyone reading this! I am a graduate student taking an introduction to autism spectrum disorders class. As part of my course requirement i had to join a listserv group. I found this one to be very interesting. I was wondering if any of you could identify 3 issues that face families who are touched by autism spectrum disorders and please try to be specific. Any assistance would be great! Thanks! Lara -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.375 / Virus Database: 267.15.2/252 - Release Date: 2/6/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 In a message dated 2/6/2006 6:17:51 P.M. Eastern Standard Time, lfb537@... writes: I was wondering if any of you could identify 3 issues that face families who are touched by autism spectrum disorders and please try to be specific. Any assistance would be great! Thanks! Lara Lara, 1. Keeping Maddie safe (12, DS and autism)----she has no sense of danger, climbs out windows, runs in streets, elopes...... 2. Taking Maddie places is almost impossible because of her fear of new environments, certain sensory sounds, fear of people..... 3. Teaching Maddie....making sure those working with her know how to approach her, understand her, and help her be the best she can be. Donna Quote Link to comment Share on other sites More sharing options...
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