Re: Le people know your wishes.

[Guest guest]

At 08:34 AM 1/7/2006, you wrote:

>All my friend needed to do was tell the people on her son's team - the

>county MR, the ISP team, IEP team, family doctor what sshe wanted.

This is so important, Sara. Thanks for reminding us.

I put a copy of the funeral plan policy I bought for Ray, information

about where estate planning documents and the numbers for the estate

planning attorney and the designated guardian in the file of the county

case manager.

We are doing a new schedule, symbols, etc. because there have been so many

changes for Ray since his health crisis this summer and our move a

year ago. I am making a copy to leave with the consultant who helps me

with support staff training and getting community activities for

Ray. That way there is a back up in case of a fire. Even if there is a

car accident and the materials are here at home sometimes they are hard to

find in a crisis so it is good to have them easily available away from home.

Eventually I hope to have a list of attorneys who would have some knowledge

of special needs on my website. I have been trying to get referrals from

attorneys I know because I don't want to just take people out of the yellow

pages. I want to be sure of who I am recommending.

Peggy Lou

www.parentingyourcomplexchild.com

www.lighthouseparents.com

http://parentingacomplexchild.blogspot.com/

[Guest guest]

Sara: You are the best friend anyone could ask for.

Liz

Re: Single parent alert

>>Date: Fri, 6 Jan 2006 12:32:01 -0800 (PST)

>>

>>Hi Sara,

>> What tragic news. You are a good friend for taking her son temporarily.

>>I couldn't think of a better person he should be with at this difficult

>>time. Parents that cannot afford a will can write a short description of

>>their wishes and have it notarized for free at their local bank. It's

>>better than nothing.

>> Charlyne

>> Mom to Zeb 13 DS/OCD/ASD?

>>

>>sara cohen wrote:

>> Mionday, a friend of 17 years passed away. Her 21yo son with DS was

>> home

>>alone when her work called to ask why she had not called in to work. HEr

>>son replied, " Well Mom is dead right here with me! " ..

>>

>>Long story of police, cornor, family doctor, and finally I was called

>>----she left no available info on next of kin or her plans for the future.

>>Nothing listed with the county in whcih we lived - no PLAN!!!!!

>>

>>The son is now living with me while we try to work on a future plan. No

>>guardian, no POA, no plan. Today is NOT to late to make a plan - and

>>communicate it to your doctor, the school, the local police department,

>>family, friends, etc.

>>

>>NOW - not TOMORROW - NOW!!!!!

>>

>>

>>

>>Sara - Choose to make lemonade, not complain about the lemons.

>>

>>

>>

>>

>>

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