Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 wow, I don't even know what to say, I can't imagine what this must be like for you. I do know that you have a wonderful group of friends here that can help you along the way. (mom2adam) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 Oh Ursula, I can only imagine how your heart is aching right now. Who knows what will become of Zola's behaviors but you did the right thing by having them looked at and evaluated. I'm glad that she will get the E.I. Services she deserves. Maybe it is Autism and maybe it's not but you can't focus on that too much right now (I know, easier said than done). Just take it one day at a time and break it down hour by hour if you need to. Somedays I do that just to get by. Know that you and your husband are wonderful parents for checking into behaviors that you questioned or just didn't sit right with you. So many couples override that feeling for fear that something really could be wrong. They miss out on valuable E.I. time and many services that could be benefitting their child and family. Know that we are all here to listen and give you the support you need. I know there is an ABA provider in Charlottesville: Virginia Child Development Services ABA Home and School Program Development Donna Cattell-Gordon, BCBA P.O. Box 4424 Charlottesville, Virginia 22905 phone: email: virginiachild@... Maybe you have already looked into that. Have you found this site yet? It has everything " Autism " for Virginia- http://www.autismva.org/site_index.htm http://www.autismva.org/ http://www.viaschool.org/workshops.htm there's an ABA conference in Charlottesville next month! Sending big <<<<<<<<<<<hugs>>>>>>>>> your way Ursula. Hang in there. Jayne Ursula Goadhouse wrote: Sharon, Jayne, Margaret, Brigid, and liz, Thank you so much for writing me back. I was touched by each of your messages. After Rumi was diagnosed we started worrying about our 17 month old daughter, Zola, and had her evaluated, too, by a developmental specialist whose areas of expertise are Down syndrome and autism. Zola had a few things that just didn't seem quite right, like a delay in speech after starting out very precociously, some repetitive play with a moaning sound, and stranger anxiety that started at about 4 months, which has kept her grandmother and aunts and uncles from being able to hold her or be close to her. The specialist said she has enough red flags and speech delay, to give her the diagnosis of autism and recommends we get her the maximum of services. Wow...... now my head is really spinning. We will start Early Intervention right away. ABA has been recommended. Very expensive... About Rumi, He was diagnosed by the same developmental specialist who is the head of the pediatric division at the University of Virginia. The Zoloft was prescribed to see if it can alter the seratonin levels in a way that will allow him to sleep at night and possibly help his OCD behavior of having his hands constantly in his mouth. His nigh waking/behavior is so biochemical that we were happy to try the medication. So far, his sleep has not changed, but there have been a few hours here and there that his hands and face are dry...amazing! I am tracking his behaviors and we are giving the dosage a three week trail. 5 mg is the current dosage we are giving Rumi at bedtime. I am overwhelmed by the diagnoses of both my children. I am certain Rumi's diagnosis is accurate. I am still hoping that maybe Zola will " out grow it " or something. It hurts my heart to think she might regress from where she is or " slip away " , Oh that just kills me. She is so bright and shiny. From what I have heard, Rumi is likely top keep his loving hugs and kisses, but I know that that may be the charm of DS/ASD. I am in search of and am gathering information Like all the parents have done. ABA. floor time, chelation, vaccinations, signing, PECs....... this is not a clear road. I appreciate you sharing your experiences. It is comforting, educating, and connecting to community. thinking of all of you and your families, Ursula, mom of Rumi, 3, DS/ASD and Zola 17 months, ASD > Ursula, > > I read with a mixture of feelings your note of Rumi's diagnoses. > When Eddie > was diagnosed, I was devastated but it really is not as bad as it > seems and > through interventions of friends, educators and doctors who have > experience > in the field of Autism, we have overcome most of our obstacles. > > I am sure you will become quite educated in the field of Autism and > Rumi > will become the best he can be. The conference I spoke with you about > over > the phone can be found at DSAR.org. If Rumi has any oral motor or > feeding > issues, I would suggest the Rosenfeld-'s sessions. If I can > ever be > of assistance, please contact me.  > > Sharon > > Rumi's formal diagnosis > > Hi all, > Rumi was formally diagnoses with DS/ASD this past friday. My husband > and I feel both relief and sadness. He is prescribed Zoloft. Has > anyone had experience with this med with your child? > Best wishes, > Ursula > mom of Rumi, 3 yrs old, DS?ASD > Zola, 17 months > > > > -------------------------------------------------- > Checkout our homepage for information, bookmarks, and > photos of > our kids. Share favorite bookmarks, ideas, and other information by > including them. Don't forget, messages are a permanent record of the > archives for our list. http://groups.yahoo.com/group/ > -------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
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