RE: I've been asked to speak...

January 19, 2006

At 11:49 AM 1/19/2006, you wrote:

>I don't mind speaking in front of people but it's been awhile! I founded

>the local Ds support group in Rapid City, SD when we lived there and did

>some speaking with that and some short blips on the news for Buddy Walk

>awareness but that was all a long time ago, back in the days of just Ds! LOL!

>

> So, of course, I turn to you all for ideas and suggestions for my speech.

The thing to remember is speaking is that unless these students have dealt

with disabilities in their family they don't have a clue what you

experience. The more you can help them to see about day to day struggles

and joys the more they will take into their professional life and help

others down the road. I am sure you are going to do fine. It is great you

are doing this. Keep us informed.

Peggy Lou

www.parentingyourcomplexchild.com

www.lighthouseparents.com

http://parentingacomplexchild.blogspot.com/

January 19, 2006

Hey, Jayne!! Congratulations!!!!

Liz

I've been asked to speak...

> Hi there,

>

> Recently I sent an email out to several professors at Old Dominion

> University in Norfolk, VA regarding finding students to babysit for

> . His private OT had suggested that I may be able to find some OT,

> PT, SLP, or SPED students that are interested in some " hands on "

> experience. I thought it was a wonderful idea.

>

> I've heard back from several of the professors and it seems my email is

> circulating nicely around the campus! LOL!

>

> Today I received a call from a professor in the Speech Pathology

> Department. She is the Advisor for ODU's chapter of The National Student

> Speech Language Hearing Association. She has asked me to speak at their

> next meeting January 31st! She said she's been searching for interesting

> speakers and when she read my email this morning, it clicked - just how

> important a parents point of view would be to the students. The

> Organization is made up of about 40 Undergraduate, Graduate, and Doctoral

> Students in the SLP field. There are some staff that attend the meetings

> but mostly students. She wants me to speak for about 20 minutes and then

> open it up to Q & A's. The whole thing lasts about an hour.

> She basically wants me to tell my story and share my " wisdom " (her words

> not mine) LOL. She said to just share what I think is important with

> future SLP's, etc...

>

> I don't mind speaking in front of people but it's been awhile! I founded

> the local Ds support group in Rapid City, SD when we lived there and did

> some speaking with that and some short blips on the news for Buddy Walk

> awareness but that was all a long time ago, back in the days of just Ds!

> LOL!

>

> So, of course, I turn to you all for ideas and suggestions for my speech.

> Fire away, I'm all ears!

> Thanks so much -

> Jayne

>

> ---------------------------------

> Yahoo! Photos

> Ring in the New Year with Photo Calendars. Add photos, events, holidays,

> whatever.

>

January 19, 2006

Jayne,

When did you live in Rapid City?

One of my best friends lived there twice (once before

I knew her). She as a genetic counselor--Carol

Christianson and Carol STrom (you know, got

married...).

It' gets to be such a small, small world!

j

__________________________________________________

January 19, 2006

Hi Jayne,

Go for it!!

Charlyne

Mom to Zeb 13 DS/OCD/ASD?

Jayne Hickey wrote:

Hi there,

Recently I sent an email out to several professors at Old Dominion University in

Norfolk, VA regarding finding students to babysit for . His private OT

had suggested that I may be able to find some OT, PT, SLP, or SPED students that

are interested in some " hands on " experience. I thought it was a wonderful idea.

I've heard back from several of the professors and it seems my email is

circulating nicely around the campus! LOL!

Today I received a call from a professor in the Speech Pathology Department. She

is the Advisor for ODU's chapter of The National Student Speech Language Hearing

Association. She has asked me to speak at their next meeting January 31st! She

said she's been searching for interesting speakers and when she read my email

this morning, it clicked - just how important a parents point of view would be

to the students. The Organization is made up of about 40 Undergraduate,

Graduate, and Doctoral Students in the SLP field. There are some staff that

attend the meetings but mostly students. She wants me to speak for about 20

minutes and then open it up to Q & A's. The whole thing lasts about an hour.

She basically wants me to tell my story and share my " wisdom " (her words not

mine) LOL. She said to just share what I think is important with future SLP's,

etc...

I don't mind speaking in front of people but it's been awhile! I founded the

local Ds support group in Rapid City, SD when we lived there and did some

speaking with that and some short blips on the news for Buddy Walk awareness but

that was all a long time ago, back in the days of just Ds! LOL!

So, of course, I turn to you all for ideas and suggestions for my speech.

Fire away, I'm all ears!

Thanks so much -

Jayne

---------------------------------

Yahoo! Photos

Ring in the New Year with Photo Calendars. Add photos, events, holidays,

whatever.

January 20, 2006

In a message dated 1/19/2006 2:52:53 P.M. Eastern Standard Time,

jacksonsmom99@... writes:

don't mind speaking in front of people but it's been awhile! I founded the

local Ds support group in Rapid City, SD when we lived there and did some

speaking with that and some short blips on the news for Buddy Walk awareness

but

that was all a long time ago, back in the days of just Ds! LOL!

So, of course, I turn to you all for ideas and suggestions for my speech.

You'll do great Jayne. I do this every year at a couple colleges. Once I

did it at a large university here in Philly to a group of 50 students AND it

was televised in other classrooms as well....talk about shaking in my

shoes!!!!! I would suggest you bring pictures of ...... with

his

siblings, friends, at school, at play...whatever you have. Typically,

what I do is do a large posterboard and I also bring handouts (Maddie's IEP,

any therapy reports that were written particularly well over the years, info on

SI, ABA and other behavior techniques---depending on what the professor

needs addressed). My friend who teaches special education to college

students

usually writes up about 5 or 6 specific topics he's teaching at that time,

so I can narrow it down a bit. I always bring *Maddie's book* with me too,

that I had done up years ago...that's a big hit with the students. One

time, years ago, I was contacted by a student at a local college asking me if

she could spend a day with me and Maddie. Her professor had told the students

they had to come up with their own plan for learning sensitivity in relation

to families dealing with disability...that was hers. We had a great

day...she even went food shopping with us. She told me that day that she was

studying to be a geneticist and that before spending the day with us she firmly

believed that abortion was the only option for parents upon learning their

child had DS. I still have the letter she wrote me afterwards, thanking

me....in it she actually said *I want to be more like you*. It's the most

incredible feeling knowing you've impacted someone that way. I think you'll

do the same thing, Jayne. And you'll be so happy and proud of yourself, and

of !!!!!!

Good luck, and let us know how it went afterwards, K?

Donna

January 20, 2006

In a message dated 1/20/2006 8:32:08 A.M. Eastern Standard Time,

louandy@... writes:

I used to think that the SLP should

know how to sign. A few years ago one of 's staff was in a SLP

program and she said that learning sign language was a part of her

program now.

Louise, I remember when Maddie was 2 and Alison was 3, we were hanging out

back with the ST at the EI program Maddie was part of......Allie, AT THREE,

showed her all the signs she knew and the ST turned to me and said, " Wow, she

knows more than me " . That was the final straw that made me go in and ask

for another SLP to work with Maddie....LOL

Jayne, I forgot...I also always bring Maddie's communication pictures that

we use here at home.

Donna

January 20, 2006

Jayne what a great opportunity. I used to think that the SLP should

know how to sign. A few years ago one of 's staff was in a SLP

program and she said that learning sign language was a part of her

program now. I don't know if it was an elective or required but she was

taking classes in sign language. We haven't had any contact with SLP

for a number of years so I don't know their current program. For

communication with sign and using pictures to help plan his day is

important. I am currently putting together a sign book for his staff

that will include the name of the sign and a picture of the way he uses

it, staff signs with their picture, family signs with their picture etc.

A few I couldn't find in the sign books I have or the internet so I did

the signs and had my picture taken doing them. Thanks to Carol who made

a similar book for Trisha for the idea. Some day I may make a video of

the signs. I will give your request more thought and if I come up with

any other thoughts will let you know. Louise

I've been asked to speak...

Hi there,

Recently I sent an email out to several professors at Old Dominion

University in Norfolk, VA regarding finding students to babysit for

. His private OT had suggested that I may be able to find some

OT, PT, SLP, or SPED students that are interested in some " hands on "

experience. I thought it was a wonderful idea.

I've heard back from several of the professors and it seems my email

is circulating nicely around the campus! LOL!

Today I received a call from a professor in the Speech Pathology

Department. She is the Advisor for ODU's chapter of The National

Student Speech Language Hearing Association. She has asked me to speak

at their next meeting January 31st! She said she's been searching for

interesting speakers and when she read my email this morning, it clicked

- just how important a parents point of view would be to the students.

The Organization is made up of about 40 Undergraduate, Graduate, and

Doctoral Students in the SLP field. There are some staff that attend

the meetings but mostly students. She wants me to speak for about 20

minutes and then open it up to Q & A's. The whole thing lasts about an

hour.

She basically wants me to tell my story and share my " wisdom " (her

words not mine) LOL. She said to just share what I think is important

with future SLP's, etc...

I don't mind speaking in front of people but it's been awhile! I

founded the local Ds support group in Rapid City, SD when we lived there

and did some speaking with that and some short blips on the news for

Buddy Walk awareness but that was all a long time ago, back in the days

of just Ds! LOL!

So, of course, I turn to you all for ideas and suggestions for my

speech.

Fire away, I'm all ears!

Thanks so much -

Jayne

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January 20, 2006

Hi Joan,

Yes, it is a small world. I lived there 3 times thanks to the US Air Force.

Ellsworth AFB is home to the B-1B Bomber, which my husband flew until we moved

here to Virginia just over a year ago. I lived there from 94-96, 98-01, and

02-04. If we hadn't decided to hang our hat up at 20 years with the Air Force,

I'd be headed back there in the spring of this year! It's a beautiful area with

the Black Hills, Mt. Rushmore, Crazy Horse, Badlands, etc... - so much to see

and do. It holds a special place in my heart after living there so many times.

One of the many places I never thought I would call home but thanks to the Air

Force, we've seen the world! (translation - the midwest!)

Your friend's name rings a bell, I want to say she was either the only genetic

counselor or 1 of 2. I want to say there was one who came in from Sioux Falls

once or twice a month as well.

I'm sure she knows several of my friends in the Ds community there, probably

chatted with a few of them before or after their childs birth at Rapid City

Regional Hospital.

When did she live there? Is she still there?

The name of the Ds Support Group there is called Ups of Downs.

Small world!

Take care,

Jayne

Joan Medlen wrote:

Jayne,

When did you live in Rapid City?

One of my best friends lived there twice (once before

I knew her). She as a genetic counselor--Carol

Christianson and Carol STrom (you know, got

married...).

It' gets to be such a small, small world!

j

__________________________________________________

January 20, 2006

Thank you Louise.

You make a very important point about the sign language. I was very surprised

to find so many of 's SLP's along the way havn't known Sign Language. I

remember having to teach his SLP when he was 2 and I thought we were never going

to get ahead if I was the one constantly giving the SLP ideas - I was the one

who needed new ideas. I always said that I bet that therapist went on to be a

great therapist after her year of brainstorming with LOL!

I don't know if it is required now for them to take Sign Language but it

should be. I will talk about the importance of that and the importance of PECS

too.

Any other ideas are very appreciated, thanks Louise.

Take care,

Jayne

Louise & Andy wrote: