Re: im new and want to introduce myself

[Guest guest]

Welcome Tammy,

I look forward to hearing more about and the rest of your family as

well. This is a good place to be and I think you will find that everyone is

most willing to help out any way they can.

Carol

Trishasmom

She isn't typical, She's Trisha!

If you always do what you always did, you'll always get what you've always

gotten.

[Guest guest]

Carol

Thank you so much for the welcome. It will be nice to be able to discuss

things with people who understand.

As I said I have four children..My oldest son Nicky..is 18, he joined the

Army back in August. great kid..or man I should say. Next my oldest daughter

Kayla she is 15 and is active in the Marine JROTC in school. My 5 yr old

daughter Kira is an incredible mind...I dont think there is enough information

for her to fill that big brain lol. Then there is Danny, he is three. I

suspected autism for quite sometime, in the beginning because there were no

words,

not even mama....he still does not call me mama. I waited because my oldest

son did not talk a lot until after he was 2. But he took off with the

vocabulary shortly after. I waited until danny was 2 1/2 before I took him in

and had

him evaluated. we did all the normal things ..audiology, speech pathology,

genetisists, etc. It is funny how most professionals side step around the idea

of developmental disorders...I suppose it is a touchy subject for some. All

i wanted was to get the correct help for him asap. My husband was in denial,

which made it harder...him thinking little Danny would just snap out of it.

the day after his diagnosis my husband quit his job and joined the army. there

is so much more..but I will stop here for now. One thing I will say though is

Danny is spectacular,he amazes me every day, and I wouldn't have him any

other way......Tammy

[Guest guest]

thanks for tell us about your family. You didn't mention so if I am

assuming wrong just let me know, does Danny have DS as well?

Carol

Trishasmom

She isn't typical, She's Trisha!

If you always do what you always did, you'll always get what you've always

gotten.

[Guest guest]

No he does not have DS,

[Guest guest]

thanks for explaining that, I just didn't want to assume wrong. lol

Carol

Trishasmom

She isn't typical, She's Trisha!

If you always do what you always did, you'll always get what you've always

gotten.

[Guest guest]

Thank you very much Jayne, we are in Southern California. My son is at Fort

Rucker in Alabama doing his AIT, He is going to be an Aviation Operations

specialist. And yes Kira constantly has questions lol, I look tons of stuff up,

just to make sure I have the right answers, she teaches me I guess.

Yes my husband had a very hard time when Danny was diagnosed. He could deny

it when I just suspected autism but was different story when he was diagnosed

by professionals, no more denial. I think that is why he joined Army to get

away. My other kids are all very helpful with him and show the same

excitement I do when he does a new sign or says something that sounds close to a

word...they are all great and i am blessed...Tammy

[Guest guest]

no problem lol

[Guest guest]

if you have any questions ask away. Does Danny use a communication device,

I read where you mentioned sign, Trisha uses sign as well. She also has a

communication device and the use PECS/Pics at school with her. I sure wish you

guys could hear her when she says please or some of the other words that

sound so good to my ears only because I have waited so long to hear them from

her. The one word she has been using for about 4-5 years now is Moma to the

point I'm ready to change my name. She will say moma and then nothing else and

I will say what and she will just say moma again and this goes on forever it

seems lol. But recently she has been saying other things and it is so

wonderful to hear them. Sometimes you have a hard time understanding some of

the

words and sometimes I have no clue what she says but she keeps trying and we

use other methods to back her up. She herself seems to be more comfortable

with signing though.

Carol

Trishasmom

She isn't typical, She's Trisha!

If you always do what you always did, you'll always get what you've always

gotten.

[Guest guest]

danny signs some words, like please, daddy and mama, he associates the sign

daddy with daddy, and please with knowing it gets him what he wants lol, i

bought a baby wordsworth dvd which incorporates signing with the word and the

object, and although I know he is just echoing and copying what is being

signed and said, all is progress to me. funny you said that sometimes you would

like to change your name, I have felt that way about my other kids sometimes,

hearing mama non stop, but anticipate danny calling me mama. he just started

preschool last week and will be learning all sorts of ways to communicte. his

teacher deals mainly with autistics, and there are only 5 others in the

class, all severly autisitc as well..its very exciting...Tammy

[Guest guest]

Jayne, danny just began preschool last week, he was getting help from the

regional center, with speech therapy and had a teacher come here twice a week,

but he turned three in December so school disrict had to take over, he is in

a great class with a great teacher. As far as it being hard to have my son

far away, it is but am so happy that he made such a big life decision early.

my husband is still finishing basic in south carolina. he joined day after my

son was diagnosed...Tammy

[Guest guest]

I hope you all dont mind me joining the group even though my son does not

have DS

[Guest guest]

In a message dated 1/8/2006 5:48:54 P.M. Eastern Standard Time,

Spclkitty35@... writes:

hope you all dont mind me joining the group even though my son does not

have DS

of course not! don't even think that! You are totally welcome!

Carol

Trishasmom

She isn't typical, She's Trisha!

If you always do what you always did, you'll always get what you've always

gotten.

[Guest guest]

Hi Tammy,

Welcome to the list. My husband is in the Air Force and we live in Virginia.

Where in California are you? We were stationed in Sacramento and Merced back in

the late 80's...both bases are closed now! But funny time has marched on...LOL!

I'm sure you are so proud of all your children- they sound very responsible.

And I'm sure Kira keeps you busy with the " why " questions - LOL. I imagine

she's a wonderful example of peer modeling for Danny.

Did your husband have a hard time when Danny was diagnosed with Ds? I know I

had a much harder time with the autism diagnosis than the Ds. I guess I felt

like I really had no control over the Ds occuring but somehow felt I may have

done something to make the Autism appear. I know now that I didn't do anything,

it's just the cards we were dealt. But you are right, I wouldn't change

- he's just perfect to me!

Take care,

Jayne

Mom to 3 including 6 1/2 Ds/Autism

Spclkitty35@... wrote:

Carol

Thank you so much for the welcome. It will be nice to be able to discuss

things with people who understand.

As I said I have four children..My oldest son Nicky..is 18, he joined the

Army back in August. great kid..or man I should say. Next my oldest daughter

Kayla she is 15 and is active in the Marine JROTC in school. My 5 yr old

daughter Kira is an incredible mind...I dont think there is enough information

for her to fill that big brain lol. Then there is Danny, he is three. I

suspected autism for quite sometime, in the beginning because there were no

words,

not even mama....he still does not call me mama. I waited because my oldest

son did not talk a lot until after he was 2. But he took off with the

vocabulary shortly after. I waited until danny was 2 1/2 before I took him in

and had

him evaluated. we did all the normal things ..audiology, speech pathology,

genetisists, etc. It is funny how most professionals side step around the idea

of developmental disorders...I suppose it is a touchy subject for some. All

i wanted was to get the correct help for him asap. My husband was in denial,

which made it harder...him thinking little Danny would just snap out of it.

the day after his diagnosis my husband quit his job and joined the army. there

is so much more..but I will stop here for now. One thing I will say though is

Danny is spectacular,he amazes me every day, and I wouldn't have him any

other way......Tammy

[Guest guest]

Ft Rucker yes, we were stationed in Alabama in 2001. Must be hard having your

baby so far from home. What is your husband doing in the Army, is he deployed?

I was asking if your husband had a hard time when Danny was diagnosed with

Down syndrome but I see now from a previous post that Danny doesn't have Ds -

sorry I was confused. I'm sure it's been really hard with the official

diagnosis of Autism. For all of us on this list we had the diagnosis of Down

syndrome and then the Autism came along. Either way, Autism is no walk in the

park. Hang in there.

My kids get so excited about all the new things does too. I think

they are such better citizens from having a sibling with a special need, they

are far more compassionate and understanding of people's differences. That's

something you can't learn just from a book.

Does Danny get school services? I'm sorry if you've said already.

Take care,

Jayne

Spclkitty35@... wrote:

Thank you very much Jayne, we are in Southern California. My son is at Fort

Rucker in Alabama doing his AIT, He is going to be an Aviation Operations

specialist. And yes Kira constantly has questions lol, I look tons of stuff up,

just to make sure I have the right answers, she teaches me I guess.

Yes my husband had a very hard time when Danny was diagnosed. He could deny

it when I just suspected autism but was different story when he was diagnosed

by professionals, no more denial. I think that is why he joined Army to get

away. My other kids are all very helpful with him and show the same

excitement I do when he does a new sign or says something that sounds close to a

word...they are all great and i am blessed...Tammy

[Guest guest]

thank you so much, as i read every ones posts, i feel less and less alone in

this. and am amazed at what all our kids have in common..this is truly a

good place to be. Tammy

[Guest guest]

Welcome, we all learn from each other, and we have so much in common

mostly cause we want the best for our kids, so glad you found this

great group, Dawn, 8yrs.

>

> I hope you all dont mind me joining the group even though my son

does not

> have DS

>

>

>

[Guest guest]

>

> thank you so much, as i read every ones posts, i feel less and less

alone in

> this. and am amazed at what all our kids have in common..this is

truly a

> good place to be. Tammy

>

>

>