Re: IRMA, and everyone!

[Guest guest]

Hi Dawn,

HAPPY NEW YEAR 2006!

Here is wishing this New year for you that will continue

progressing in the areas needed and you " mom " finding some relief to

know that you are on the right track for him at least to some extent

than not having any resource information.

I find myself back at the computer this morning with the relief of

the meds I'm under as I'm such an early bird and unable to do

anything besides get back on my feet and circulate them with small

walking steps needed, so wanted to return to my comfort zone reading

and caught your message, thanks. Just returned yesterday evening from

one of my sis's house and my surgery was a success this past Thursday

now its just following my doc's order's. I have a wonderful doc,

Thank God! My dh will be home for the return of school this coming

week and hope cooperates with his dad as mom will be out of

order at least for the first week.

My sister told me that was doing wonderful for her, she even

had gotten him to do so much as he was regressing in some areas which

were some of my concerns. My biggest concern has been the fact of him

inititating to the restroom as he has been having lots of peeing

accidents in his pants, even at school. In a way wonderful as I have

to continue pushing them for " Total communication " that they must

find some form of communication for him to make his wants and needs

known. The school forgets that just because he masters one area (like

staying on task and transitioning well during activities)that the

communication goals are still needed. I was told behind the scenes

mom is too smart and In-Home or parent Training is not needed my way,

huh! Nice compliment but hey there is so much that he will do for

others that he will not do for me. Typical teenager.

This is the last month of him being under a GI study which has not

shown any changes, this may be the the cause of his peeing accidents,

hard to tell. I'm back having to take him about every couple of

hours, as my sis worked with him had him do this and ended up just

tapping her wrist for time for restroom and he cooperated nicely.

What I've told the the medical team that this study lacks that I

brought up with this pilot study is the fact that the patients be

examined via endoscopy at the beginning and end of the study to

measure any type of disease-related damage in the GI tract. This is

my next mission to have him tested by a GI as I never have consider

it in the past but see that there would need to be some compelling

data indicating benefit, measurable demonstration of healing which I

have found some interest that play an important role in fostering

research on nutrition and the GI issues. Once the study is done with,

I already have a wonderful Naturopathy and nutritionist lined up for

him to be seen by which I'm looking forward to as I've already done

my homework on.

Boy, I hope I'm back on my feet again soon as I have been invited

with the AU Research Ctr. to attend a AU free medical conference with

them on the 14th and another workshop on Positive Behavioral

Intervention. Its such an honor to be asked and included here locally

as everyone has been opening their doors for and I, even when

they're free.

Wow! A good sign writing this message rambling on & still doing well,

but better not over do it.

You all are like family to me and I truly from the bottom of my heart

want to wish you the very happiest, successful New Year!

Irma,17,DS/ASD

>

>

>

> IRMA, you have been on my heart and I know you said you would not

be

> on the computer but cant wait to hear how you are feeling!!! I know

> you said your surgery was Dec. 29th, when and if you read this let

me

> know how you are and in the mean time, I will continue with prayers

> for you. I bet has done great with your sister and will take

> good care of his mom. We all care so much about you and just want

your

> recovery to be soooo smooth!

>

> Hello to everyone, havent caught up with all the posts, but wanted

to

> say happy holidays!!! and I are so blessed to have all of

you

> in our lives. there are so many smart folks on this list and I cant

> believe how much I learn everytime I read more, God Bless, Dawn

(home

> with as he listens to his tapes and lays around cause he

woke

> at 4;30 this morn!)

>

[Guest guest]

Thanks Donna,

Glad it happen this year that most of my family came around('05)and

not last year(2004)as I ended up going through some weird personal

family issues nothing to do with me, just an innocent bystander and I

ended up listening to our dear cyber friends who were very supportive

my way and glad I did. Prayers paid off.

How was your New Year's eve day? Did you have a family gathering and

cooked?

Wishing you and your family a Happy New Year!

Irma,17,DS/ASD

>

> Irma, I am glad to hear your surgery went well and you are

recovering

> nicely. And what a blessing to have a supportive family,

huh?!?! It makes all

> the difference.

> Take care of you,

> Donna

>

>

>