Guest guest Posted October 14, 2005 Report Share Posted October 14, 2005 Thanks again! We are watching her very cautiously. I can't even imagine her getting worse!!! Liz Re: Liz > At 02:08 PM 10/14/2005, you wrote: >>I just spoke with the dr. and we are going to up the >>Risperdal to .2 mls in the am. > > Many people have had great luck with Risperdal so I don't want to advise > you against it; however, I did want to tell you we got a lot more > meltdowns > on Risperdal as well as hyperactivity and mania. The doctor said to us > that it just wasn't high enough dose too but it got much worse with the > increase. You might want to just monitor that. > > > Peggy Lou > www.parentingyourcomplexchild.com > www.lighthouseparents.com > http://parentingacomplexchild.blogspot.com/ > > > > > -------------------------------------------------- > Checkout our homepage for information, bookmarks, and photos > of our kids. Share favorite bookmarks, ideas, and other information by > including them. Don't forget, messages are a permanent record of the > archives for our list. http://groups.yahoo.com/group/ > -------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2005 Report Share Posted October 22, 2005 Welcome Liz, I'm one of those Moms whose child is in placement outside our home. We are in Wisconsin and (16 years old) is in a group home an hour away. I complain that it is too far away but do realize that I am lucky that it isn't further. I am also lucky that the group home casemanager is a friend of mine and that I used to work for the agency. oh yeah, 's room mate also has ds and autism. I see weekly and he comes home for a night (of no sleep) once every three weeks. went into placement a year ago. Long story but the jist is that our in home services got cut, 's behaviors escalated to the point that he was hurting his younger siblings. I was exhausted and couldn't keep going. He is doing well in his placement, his school can't handle him but since he is currently only there 75 minutes a day it really doesn't matter. was diagnosed when he was 9 or 10. We did 40 hour a week in home program in addition to school for 5 years until funding disappeared. He is verbal but aggression, impulse control, obsessive compulsive issues, anxiety issues, tactile issues, pica (eating non-edibles) all make 's life difficult. But he is an amazing wonderful guy with a great personality that makes everyone work very hard for him. Welcome to the group. Karyn In a message dated 10/20/05 4:02:12 PM Central Daylight Time, writes: > Hi, Everyone....Liz....chewing up things as in dirt, poop, candles, etc? > That is called PICA and there are several kids on this site that have that, > > too. You are not the only one who has their child in a group home, either. > > There are several families who chime in and give us updates on their kids. > > Believe me, there were times (pre-med) that I seriously thought about that > vs > putting my son up for adoption. Voice your concerns and > frustrations....you two > are finding out a major milestone today. Let the anger and grief run their > > course....you are entitled to that. Take care, Everyone. > Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2005 Report Share Posted October 22, 2005 A TSS is a therapeutic support staff member who works with her, along with her Behavioral Specialist. Oh, the school and I are on great terms and trying to keep things as consistent as possible both at home and in the school. Fortunately, her aggressive behaviors have not reared their ugly head in the school. Liz Re: Need advice >> >> >> > Liz, Hi I know exactly what you are going through as I have faced >> > this with many many times.Have you tried to contact the > school >> > for suggestions? Do they have a resource teacher that could come > to >> > your house in the morning to help you? When I let my sons school >> > know the morning problems we were having they offered to help > have >> > someone come to my house to help with transtioning.What about >> > therapist that come to the home have you " asked " for help in the >> > morings? Did you get my last post? I believe like you the kids > want >> > something when biting, scratching, etc. We just have to figure > out >> > what. has not bitten me or anyone else in years. But he did > for >> > awhile when he was about (6) years old.Don't go this alone let > all >> > the professional know this is a priority and you and your child > need >> > help. Let me know if I can help from afar. Cyndi >> >> >> >> Unfortunately, she was aggressive prior to meds. That is one of >> > the reasons we started them. I think because she is getting > bigger >> > (a whole 32 lbs.) she is getting stronger, and it feels more >> > aggressive. However, she seems to be trying to bite more often > when >> > we don't react to the other aggressive behaviors. I understand > the >> > real need to ignore these behaviors, but she really hurts! I am >> > bruised on my legs and on my hand & arms between the kicking and > the >> > pinching & scratching. I've attempted to pinch her back, she > whines >> > a little and then does it again-so we know that doesn't work. >> > Fortunately, she has not started acting out like this in school, > and >> > God I hope she doesn't. She just refuses to walk. Out of 15 >> > attempts yesterday, she managed to walk to a destination 4 times >> > there. Today she managed 10 out of 15. >> >> >> >> Liz >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 Hi Karyn, I wish Zach were closer. When we lived in Florida, I don't know if the services were just that bad where I was or Florida in general isn't great for disabled kids. I had a lot of trouble getting assessments done and once they were done getting services. Zach had three different teachers when he was five and his school placement was changed twice in four months. It is so difficult for him to adjust to changes. His speech therapist didn't even know he could talk at all for two months. Anyhow, as he kept getting relabeled: in the space of one year he went from being in a special needs classroom to a educable mentally handicapped class to trainable class. The last straw for me was going to school three times a day because Zach acquired a spitting habit from another child. He was learning to sell popcorn to the " normal " kids, and his O.T. told me he would need those skills later. Sorry, but I thought then, maybe he would like to be an artist or garden, or work with animals, you understand. Why do people automatically think that! When Zach started learning more negative behaviors from school than positive we knew we had to look for something different. Zach still has things that are difficult for him in a complete fulltime at home situation. But he has friends, things he loves to do. He still isolates too much and chews on stuff and for thirteen he probably has a really small attention span. Academics are still difficult but we continue to make small victories. He is finally toileting all on his own!!! Yeah, didn't think that would ever happen. He is so funny though and has such a great sense of homor. Sometimes he gets into a little trouble with that. Thanks for writing. I miss him so much sometimes. I know how you feel. They are never out of your heart for a minute. Let me know how your son is doing. It has really helped me to find some folks to talk with about Zach. Take care. Liz - - In , KVanRyzin@a... wrote: > > Welcome Liz, > I'm one of those Moms whose child is in placement outside our home. We are in > Wisconsin and (16 years old) is in a group home an hour away. I > complain that it is too far away but do realize that I am lucky that it isn't > further. > I am also lucky that the group home casemanager is a friend of mine and that > I used to work for the agency. oh yeah, 's room mate also has ds and > autism. I see weekly and he comes home for a night (of no sleep) once every > three weeks. > went into placement a year ago. Long story but the jist is that our in > home services got cut, 's behaviors escalated to the point that he was > hurting his younger siblings. I was exhausted and couldn't keep going. > He is doing well in his placement, his school can't handle him but since he > is currently only there 75 minutes a day it really doesn't matter. > was diagnosed when he was 9 or 10. We did 40 hour a week in home > program in addition to school for 5 years until funding disappeared. He is verbal > but aggression, impulse control, obsessive compulsive issues, anxiety issues, > tactile issues, pica (eating non-edibles) all make 's life difficult. But > he is an amazing wonderful guy with a great personality that makes everyone > work very hard for him. > Welcome to the group. > > Karyn > > In a message dated 10/20/05 4:02:12 PM Central Daylight Time, > writes: > > > > Hi, Everyone....Liz....chewing up things as in dirt, poop, candles, etc? > > That is called PICA and there are several kids on this site that have that, > > > > too. You are not the only one who has their child in a group home, either. > > > > There are several families who chime in and give us updates on their kids. > > > > Believe me, there were times (pre-med) that I seriously thought about that > > vs > > putting my son up for adoption. Voice your concerns and > > frustrations....you two > > are finding out a major milestone today. Let the anger and grief run their > > > > course....you are entitled to that. Take care, Everyone. > > Margaret > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2005 Report Share Posted October 29, 2005 At 05:20 PM 10/29/2005, you wrote: ><<Mom-whatchadoin?>> This is Ray's favorite next to " where we going? " Peggy Lou www.parentingyourcomplexchild.com www.lighthouseparents.com http://parentingacomplexchild.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2005 Report Share Posted October 30, 2005 Margaret...It's like we are all playing the same part in the same movie.. Liz Liz > <<Mom-whatchadoin?>> > > Liz.............YUP !!!! Hello.....I'm peeing....what does it look like > I > am doing?!?!? Gareth knows he is not to walk into my bathroom, though. > It > doesn't help matters knowing that he has parked his butt on the floor > right > outside the door, though!!! It doesn't matter if it is so obvious....he > still > asks....and EXPECTS a reply!!! I'm washing dishes. I'm folding clothes. > I'm > peeing. I'm getting supper. Geesh......... > Thanks for laughs today....glad I am not the only one!!! > Margaret > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2005 Report Share Posted October 30, 2005 LOL-Peggy! Liz Re: Liz > At 05:20 PM 10/29/2005, you wrote: >><<Mom-whatchadoin?>> > > This is Ray's favorite next to " where we going? " > > > Peggy Lou > www.parentingyourcomplexchild.com > www.lighthouseparents.com > http://parentingacomplexchild.blogspot.com/ > > > > > -------------------------------------------------- > Checkout our homepage for information, bookmarks, and photos > of our kids. Share favorite bookmarks, ideas, and other information by > including them. Don't forget, messages are a permanent record of the > archives for our list. http://groups.yahoo.com/group/ > -------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2005 Report Share Posted October 30, 2005 Liz and Margaret, I once had a boy with Autism on my Special Olympic gymnastic team. He was the same. He had to know exactly what we were doing or getting ready to do at all times. He constantly asked " and then what are we going to do? " After several days of running through the list zillions of times, I asked him " what do you think we are going to do next? " Do you know that he actually knew what we were going to next, and then next, and then next. I guess he was testing me to see if I remembered what we were suppose to be doing! ha! I play this game with my typical daughter. She asks all the time, " how do you spell such and such? " " How do you think you spell it. " The boy with Autism taught me a good lesson and helped me realize he was more aware than I thought! Now, if only all our children were like this! Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2005 Report Share Posted November 7, 2005 <<Tori was an " all=nighter " until we found liquid melatonin. It was a life saver for us!>> Hi, Everyone....Liz...do you still need the Melatonin after she has been on the Risperdal? I am surprised if you do. The Risperdal was the med that let Gareth sleep all night.....but, then again, there was no Melatonin back then!!! Take care, Everyone. Margaret Quote Link to comment Share on other sites More sharing options...
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