MO Autism Insurance Bill Text

January 9, 2009

The following is a link to the Missouri

Senate Autism insurance Bill. It was introduced today. I was hoping that some

of you from other states that have passed Autism legislation (those in Penn. State for sure)

would read the following bill and give me your thoughts. On the surface it

looks like a great bill, but I know that maybe once you start digging it really

is not. AS has a huge foothold in our state.

http://www.senate.mo.gov/09info/pdf-bill/intro/SB167.pdf

January 12, 2009

My quick assessment…

Lists medically necessary treatments covered prescribed by

liscenced physician. This is much better than the wording " evidenced

based " as it does open the door for a Doctor to prescribe treatments they

feel are necessary. This is a good thing in terms of some biomedical

treatments.

This bill is however written on the therapy side solely for ABA,

with a slight mention of speech, ot, etc. There is a 72 thousand dollar/per

year cap on this insurance bill for ABA as well. No mention of covering

other behavioral treatments like RDI, etc. So this part is limiting.

It also seems highly into the category of psychiatric care

(drugs, etc)-This piece definitely reeks of AS but the above medically

necessary language sounds more like someone from our prospective has a little

say in it's writing. Habilitative and rehabilitative language is great

language to have as well.

Also a good little change

from some of the normal AS wording is the definition of autism a

neurobiological disorder, an illness of the nervous

system

Usually they still use neurological condition.

Meanwhile I am no expert, my assessment only comes from having

read many of these recently. I hope Bob Krakow will jump in and give a

better assessment than I…Do you know any of the names involved in writing

this bill?-

From:

EOHarm [mailto:EOHarm ] On Behalf Of Aley

Family

Sent: Monday, January 12, 2009 1:28 PM

To: EOHarm

Subject: MO Autism Insurance Bill Text

I am sending this again because I did not get any

responses when I sent it last week.

The following is a link to the Missouri Senate Autism

insurance Bill. It was introduced today. I was hoping that some of you from

other states that have passed Autism legislation (those in Penn. State for

sure) would read the following bill and give me your thoughts. On the surface

it looks like a great bill, but I know that maybe once you start digging it

really is not. AS has a huge foothold in our state.

http://www.senate.mo.gov/09info/pdf-bill/intro/SB167.pdf

Aley

Missouri

aleymail@...

January 12, 2009

I hate to burst your bubble, Allsiom, but the SC bill also reads medically necessary treatments as presecribed by a doctor and does not cover bio-med treratments or anything close.

Mauirne

Subject: RE: MO Autism Insurance Bill TextTo: EOHarm Date: Monday, January 12, 2009, 1:50 PM

My quick assessment…

Lists medically necessary treatments covered prescribed by liscenced physician. This is much better than the wording "evidenced based" as it does open the door for a Doctor to prescribe treatments they feel are necessary. This is a good thing in terms of some biomedical treatments.

This bill is however written on the therapy side solely for ABA, with a slight mention of speech, ot, etc. There is a 72 thousand dollar/per year cap on this insurance bill for ABA as well. No mention of covering other behavioral treatments like RDI, etc. So this part is limiting.

It also seems highly into the category of psychiatric care (drugs, etc)-This piece definitely reeks of AS but the above medically necessary language sounds more like someone from our prospective has a little say in it's writing. Habilitative and rehabilitative language is great language to have as well.

Also a good little change from some of the normal AS wording is the definition of autism a neurobiological disorder, an illness of the nervous system

Usually they still use neurological condition.

Meanwhile I am no expert, my assessment only comes from having read many of these recently. I hope Bob Krakow will jump in and give a better assessment than I…Do you know any of the names involved in writing this bill?-

From: EOHarmyahoogroups (DOT) com [mailto:EOHarm@ yahoogroups. com] On Behalf Of Aley FamilySent: Monday, January 12, 2009 1:28 PMTo: EOHarmyahoogroups (DOT) comSubject: MO Autism Insurance Bill Text

I am sending this again because I did not get any responses when I sent it last week.

The following is a link to the Missouri Senate Autism insurance Bill. It was introduced today. I was hoping that some of you from other states that have passed Autism legislation (those in Penn. State for sure) would read the following bill and give me your thoughts. On the surface it looks like a great bill, but I know that maybe once you start digging it really is not. AS has a huge foothold in our state.

http://www.senate. mo.gov/09info/ pdf-bill/ intro/SB167. pdf

Aley

Missouri

aleymail@suddenlink .net

January 12, 2009

Maurine,

You can't go a doc. of our choosing & have them write a treatment

plan? We're left out in the cold??

I heard ours was approved by our FEAT board. A psychiatrist is a

member, also of AS & formerly NAAR, Constantino. :-(

>

> Subject: RE: MO Autism Insurance Bill Text

> To: EOHarm

> Date: Monday, January 12, 2009, 1:50 PM

>

> My quick assessment…

> Lists medically necessary treatments covered prescribed by

liscenced physician. This is much better than the wording " evidenced

based " as it does open the door for a Doctor to prescribe treatments

they feel are necessary. This is a good thing in terms of some

biomedical treatments.

>

> This bill is however written on the therapy side solely for ABA,

with a slight mention of speech, ot, etc. There is a 72 thousand

dollar/per year cap on this insurance bill for ABA as well. No

mention of covering other behavioral treatments like RDI, etc. So

this part is limiting.

>

> It also seems highly into the category of psychiatric care (drugs,

etc)-This piece definitely reeks of AS but the above medically

necessary language sounds more like someone from our prospective has

a little say in it's writing. Habilitative and rehabilitative

language is great language to have as well.

>

> Also a good little change from some of the normal AS wording is the

definition of autism a neurobiological disorder, an illness of the

nervous system

> Usually they still use neurological condition.

>

> Meanwhile I am no expert, my assessment only comes from having read

many of these recently. I hope Bob Krakow will jump in and give a

better assessment than I…Do you know any of the names involved in

writing this bill?-

>

> From: EOHarmyahoogroups (DOT) com [mailto:EOHarm@ yahoogroups. com] On

Behalf Of Aley Family

> Sent: Monday, January 12, 2009 1:28 PM

> To: EOHarmyahoogroups (DOT) com

> Subject: MO Autism Insurance Bill Text

>

> I am sending this again because I did not get any responses when I

sent it last week.

>

> The following is a link to the Missouri Senate Autism insurance

Bill. It was introduced today. I was hoping that some of you from

other states that have passed Autism legislation (those in Penn.

State for sure) would read the following bill and give me your

thoughts. On the surface it looks like a great bill, but I know that

maybe once you start digging it really is not. AS has a huge foothold

in our state.

> http://www.senate. mo.gov/09info/ pdf-bill/ intro/SB167. pdf

> Aley

> Missouri

>

> aleymail@suddenlink .net

>

January 12, 2009

well if the doctor recommends speech, Ot, PT, ABA, risperdal -you're good in SC, but if the recommendation is HBOT, DMSA or such-you can forget it.

Maurine

Subject: Re: MO Autism Insurance Bill TextTo: EOHarm Date: Monday, January 12, 2009, 4:48 PM

Maurine, You can't go a doc. of our choosing & have them write a treatment plan? We're left out in the cold?? I heard ours was approved by our FEAT board. A psychiatrist is a member, also of AS & formerly NAAR, Constantino. :-(> > From: Chap'N'Alli <chapnalli@. ..>> Subject: RE: MO Autism Insurance Bill Text> To: EOHarmyahoogroups (DOT) com>

Date: Monday, January 12, 2009, 1:50 PM> > > > > > > > > My quick assessment…> Lists medically necessary treatments covered prescribed by liscenced physician. This is much better than the wording "evidenced based" as it does open the door for a Doctor to prescribe treatments they feel are necessary. This is a good thing in terms of some biomedical treatments.> > This bill is however written on the therapy side solely for ABA, with a slight mention of speech, ot, etc. There is a 72 thousand dollar/per year cap on this insurance bill for ABA as well. No mention of covering other behavioral treatments like RDI, etc. So this part is limiting. > > It also seems highly into the category of psychiatric care (drugs, etc)-This piece definitely reeks of AS but the above medically

necessary language sounds more like someone from our prospective has a little say in it's writing. Habilitative and rehabilitative language is great language to have as well. > > Also a good little change from some of the normal AS wording is the definition of autism a neurobiological disorder, an illness of the nervous system> Usually they still use neurological condition. > > Meanwhile I am no expert, my assessment only comes from having read many of these recently. I hope Bob Krakow will jump in and give a better assessment than I…Do you know any of the names involved in writing this bill?-> > > > > From: EOHarmyahoogroups (DOT) com [mailto:EOHarm@ yahoogroups. com] On Behalf Of Aley Family> Sent: Monday, January 12, 2009 1:28 PM> To: EOHarmyahoogroups (DOT) com> Subject:

MO Autism Insurance Bill Text> > > > > > I am sending this again because I did not get any responses when I sent it last week. > > > > > The following is a link to the Missouri Senate Autism insurance Bill. It was introduced today. I was hoping that some of you from other states that have passed Autism legislation (those in Penn. State for sure) would read the following bill and give me your thoughts. On the surface it looks like a great bill, but I know that maybe once you start digging it really is not. AS has a huge foothold in our state. > http://www.senate. mo.gov/09info/ pdf-bill/ intro/SB167. pdf> Aley> Missouri > > > > aleymail@suddenlink

..net>

January 12, 2009

I was wrong. Our feat board is made up of parents & a BCBA

professional & a wonderful Neuropsych who gives great evals with

pages of reports to share with schools. Went to him once & he did

support diets along with the usual ABA, RDI.

Most parents residing on the board have abandoned biomed to my

knowledge, but could be wrong. Constantino is not a member. They get

some funding from AS & Constantine presents research updates,

naturally I never attend those. One year of NAAR years ago was

enough.

Kathy

wrote:

>

> Maurine,

>

> You can't go a doc. of our choosing & have them write a treatment

> plan? We're left out in the cold??

>

> I heard ours was approved by our FEAT board. A psychiatrist is a

> member, also of AS & formerly NAAR, Constantino. :-(

>

January 12, 2009

I think wer'e screwed due to medical error putting a bad name on

chelation. Would let the cat would be out of the bag if kids got

better.

Has anyone been able to use a plan for food allergies or yeast?

This really sucks!

Kathy

wrote:

>

> well if the doctor recommends speech, Ot, PT, ABA, risperdal -

you're good in SC, but if the recommendation is HBOT, DMSA or such-

you can forget it.

> Maurine

>

> Subject: Re: MO Autism Insurance Bill Text

> To: EOHarm

> Date: Monday, January 12, 2009, 4:48 PM

>

> Maurine,

>

> You can't go a doc. of our choosing & have them write a treatment

> plan? We're left out in the cold??

>

> I heard ours was approved by our FEAT board. A psychiatrist is a

> member, also of AS & formerly NAAR, Constantino. :-(

>

> >

> > From: Chap'N'Alli <chapnalli@ ..>

> > Subject: RE: MO Autism Insurance Bill Text

> > To: EOHarmyahoogroups (DOT) com

> > Date: Monday, January 12, 2009, 1:50 PM

> >

> > My quick assessment…

> > Lists medically necessary treatments covered prescribed by

> liscenced physician. This is much better than the

wording " evidenced

> based " as it does open the door for a Doctor to prescribe

treatments

> they feel are necessary. This is a good thing in terms of some

> biomedical treatments.

> >

> > This bill is however written on the therapy side solely for ABA,

> with a slight mention of speech, ot, etc. There is a 72 thousand

> dollar/per year cap on this insurance bill for ABA as well. No

> mention of covering other behavioral treatments like RDI, etc. So

> this part is limiting.

> >

> > It also seems highly into the category of psychiatric care

(drugs,

> etc)-This piece definitely reeks of AS but the above medically

> necessary language sounds more like someone from our prospective

has

> a little say in it's writing. Habilitative and rehabilitative

> language is great language to have as well.

> >

> > Also a good little change from some of the normal AS wording is

the

> definition of autism a neurobiological disorder, an illness of the

> nervous system

> > Usually they still use neurological condition.

> >

> > Meanwhile I am no expert, my assessment only comes from having

read

> many of these recently. I hope Bob Krakow will jump in and give a

> better assessment than I…Do you know any of the names involved in

> writing this bill?-

> >

> > From: EOHarmyahoogroups (DOT) com [mailto:EOHarm@ yahoogroups. com]

On

> Behalf Of Aley Family

> > Sent: Monday, January 12, 2009 1:28 PM

> > To: EOHarmyahoogroups (DOT) com

> > Subject: MO Autism Insurance Bill Text

> >

> > I am sending this again because I did not get any responses when

I

> sent it last week.

> >

> > The following is a link to the Missouri Senate Autism insurance

> Bill. It was introduced today. I was hoping that some of you from

> other states that have passed Autism legislation (those in Penn.

> State for sure) would read the following bill and give me your

> thoughts. On the surface it looks like a great bill, but I know

that

> maybe once you start digging it really is not. AS has a huge

foothold

> in our state.

> > http://www.senate. mo.gov/09info/ pdf-bill/ intro/SB167. pdf

> > Aley

> > Missouri

> >

> > aleymail@suddenlink .net

> >

>

January 12, 2009

Did they say Neuro-biological? This sounds as though bio-med treatment would be covered. Are you kidding? This is what I want, This looks fantastic to me, I'm not a Dr. or a politician. More input please..

Candyce

MO Autism Insurance Bill Text

I am sending this again because I did not get any responses when I sent it last week.

The following is a link to the Missouri Senate Autism insurance Bill. It was introduced today. I was hoping that some of you from other states that have passed Autism legislation (those in Penn. State for sure) would read the following bill and give me your thoughts. On the surface it looks like a great bill, but I know that maybe once you start digging it really is not. AS has a huge foothold in our state.

http://www.senate.mo.gov/09info/pdf-bill/intro/SB167.pdf

Aley

Missouri

aleymailsuddenlink (DOT) net

January 12, 2009

Oh Well,

Thanks Maurine.

MO Autism Insurance Bill Text

I am sending this again because I did not get any responses when I sent it last week.

The following is a link to the Missouri Senate Autism insurance Bill. It was introduced today. I was hoping that some of you from other states that have passed Autism legislation (those in Penn. State for sure) would read the following bill and give me your thoughts. On the surface it looks like a great bill, but I know that maybe once you start digging it really is not. AS has a huge foothold in our state.

http://www.senate.mo.gov/09info/pdf-bill/intro/SB167.pdf

Aley

Missouri

aleymailsuddenlink (DOT) net

January 12, 2009

Candyce,

Perhaps this bill will be entirely different from SC. I hope for your sake and others there it will be. maurine

Subject: Re: MO Autism Insurance Bill TextTo: EOHarm Date: Monday, January 12, 2009, 6:41 PM

Oh Well,

Thanks Maurine.

MO Autism Insurance Bill Text

I am sending this again because I did not get any responses when I sent it last week.

The following is a link to the Missouri Senate Autism insurance Bill. It was introduced today. I was hoping that some of you from other states that have passed Autism legislation (those in Penn. State for sure) would read the following bill and give me your thoughts. On the surface it looks like a great bill, but I know that maybe once you start digging it really is not. AS has a huge foothold in our state.

http://www.senate. mo.gov/09info/ pdf-bill/ intro/SB167. pdf

Aley

Missouri

aleymail@suddenlink .net

January 13, 2009

I'm in California. I do have speech and O.t. through our insurance. They will not cover anything for food rigidity or bio-med. I found a DAN!, but he won't even see us until we get our diet squared away.He told me to start with Zinc cream, (Topical) and Super nu-thera. Eddie won't take anything orally. I can't trick him by putting it in food, because he won't ever touch that food again. We are down to PBJ.We have been working on it in Behavioral Therapy and 2 days in O.T and today he touched a gooey banana3 times and a tangerine. Slowly we are making progress. It has been three weeks. Next step is to touch it to his lips.Slow and steady wins the race!Candyce

MO Autism Insurance Bill Text

I am sending this again because I did not get any responses when I sent it last week.

The following is a link to the Missouri Senate Autism insurance Bill. It was introduced today. I was hoping that some of you from other states that have passed Autism legislation (those in Penn. State for sure) would read the following bill and give me your thoughts. On the surface it looks like a great bill, but I know that maybe once you start digging it really is not. AS has a huge foothold in our state.

http://www.senate. mo.gov/09info/ pdf-bill/ intro/SB167. pdf

Aley

Missouri

aleymail@suddenlink .net

January 13, 2009

The Center in Columbia have their hands in this (they want to

control the direction of the state). Some may remember the

Center as the source of the study say thimerasol in Rhogam had nothing

to do with autism (based on phone interviews). One of the top dogs

there and author of that study worked for J & J.

There is also talk of " privatizing " - outsourcing autism services and

oversite to a third party out of state to supposedly cut costs.

> >

> > My quick assessment.

> >

> > Lists medically necessary treatments covered prescribed by liscenced

> > physician. This is much better than the wording " evidenced based "

> as it

> > does open the door for a Doctor to prescribe treatments they feel

> are

> > necessary. This is a good thing in terms of some biomedical

> treatments.

> >

> > This bill is however written on the therapy side solely for ABA,

> with a

> > slight mention of speech, ot, etc. There is a 72 thousand

> dollar/per year

> > cap on this insurance bill for ABA as well. No mention of covering

> other

> > behavioral treatments like RDI, etc. So this part is limiting.

> >

> > It also seems highly into the category of psychiatric care (drugs,

> etc)-This

> > piece definitely reeks of AS but the above medically necessary

> language

> > sounds more like someone from our prospective has a little say in

> it's

> > writing. Habilitative and rehabilitative language is great

> language to have

> > as well.

> >

> > Also a good little change from some of the normal AS wording is the

> > definition of autism a neurobiological disorder, an illness of the

> nervous

> > system

> >

> > Usually they still use neurological condition.

> >

> > Meanwhile I am no expert, my assessment only comes from having read

> many of

> > these recently. I hope Bob Krakow will jump in and give a better

> assessment

> > than I.Do you know any of the names involved in writing this bill?-

>

> >

> > From: EOHarm [mailto:EOHarm ] On

> Behalf Of

> > Aley Family

> > Sent: Monday, January 12, 2009 1:28 PM

> > To: EOHarm

> > Subject: MO Autism Insurance Bill Text

> >

> > I am sending this again because I did not get any responses when I

> sent it

> > last week.

> >

> > The following is a link to the Missouri Senate Autism insurance

> Bill. It

> > was introduced today. I was hoping that some of you from other

> states that

> > have passed Autism legislation (those in Penn. State for sure)

> would read

> > the following bill and give me your thoughts. On the surface it

> looks like a

> > great bill, but I know that maybe once you start digging it really

> is not.

> > AS has a huge foothold in our state.

> >

> > http://www.senate.mo.gov/09info/pdf-bill/intro/SB167.pdf

> >

> > Aley

> >

> > Missouri

> >

> > aleymail@

> >

>

January 13, 2009

>

It has been three weeks. Next step is to touch it to his lips.Slow and

steady wins the race!

Yes, that's right. It took a detailed behavioral plan with a bunch of

small steps and patience to " train " my son to eat pills given to him

by hand. He now pops 5 or 6 at a time (but refuses to wash them down

with a drink of water! -- you pick your battles. . .). I believe you

can teach a child almost any basic skill if you're willing to take the

small steps necessary to get there.

Lenny

January 13, 2009

Okay Lenny, you want to come over and teach my son to take pills???

That's one we haven't yet conquered…

Candace, I open or crush everything and put it in 100% organic

grape juice. That stuff hides almost all of our biomedical nasty tasters. I

only use about 2oz of juice. -

From:

EOHarm [mailto:EOHarm ] On Behalf Of schaferatsprynet

Sent: Monday, January 12, 2009 9:28 PM

To: EOHarm

Subject: Re: MO Autism Insurance Bill Text

>

It has been three weeks. Next step is to touch it to his lips.Slow and

steady wins the race!

Yes, that's right. It took a detailed behavioral plan with a bunch of

small steps and patience to " train " my son to eat pills given to him

by hand. He now pops 5 or 6 at a time (but refuses to wash them down

with a drink of water! -- you pick your battles. . .). I believe you

can teach a child almost any basic skill if you're willing to take the

small steps necessary to get there.

Lenny

January 13, 2009

>

> Okay Lenny, you want to come over and teach my son to take pills???

That's

> one we haven't yet conquered.

>

No. But I am good at teaching autistic kids to rollerskate. But

you'll have to come to Sacramento Kings Skate.

Lenny

January 13, 2009

One comment from the peanut gallery…pill, bite, pill, bite, pill

bite, pill, bite, pill, bite…And so on and so on and so on….

Liz P

January 13, 2009

My daugter now also takes very small pills with ease. She used to gag them up everytime. Had severe texture issues. Jenn L

RE: Re: MO Autism Insurance Bill Text

Okay Lenny, you want to come over and teach my son to take pills??? That's one we haven't yet conquered…

Candace, I open or crush everything and put it in 100% organic grape juice. That stuff hides almost all of our biomedical nasty tasters. I only use about 2oz of juice. -

From: EOHarm [mailto:EOHarm ] On Behalf Of schaferatsprynetSent: Monday, January 12, 2009 9:28 PMTo: EOHarm Subject: Re: MO Autism Insurance Bill Text

>It has been three weeks. Next step is to touch it to his lips.Slow andsteady wins the race!Yes, that's right. It took a detailed behavioral plan with a bunch ofsmall steps and patience to "train" my son to eat pills given to himby hand. He now pops 5 or 6 at a time (but refuses to wash them downwith a drink of water! -- you pick your battles. . .). I believe youcan teach a child almost any basic skill if you're willing to take thesmall steps necessary to get there.Lenny

January 13, 2009

Lenny,

I actually have the very first roller skating session with my daughter on Sun. Can you give me any tips for a kid's first time on skates? Jenn L

Re: MO Autism Insurance Bill Text

>> Okay Lenny, you want to come over and teach my son to take pills???That's> one we haven't yet conquered.> No. But I am good at teaching autistic kids to rollerskate. Butyou'll have to come to Sacramento Kings Skate.Lenny

January 13, 2009

That's a little far from MA. But I'll keep you in

mind. We did try the rollerskating once because we had my daughter's

Kindergarten birthday party there. Had I realized I needed at least one

adult to every kid that day I would have been a more affective teacher, instead

of a maniac on rollerskates just trying to make it through the 2 hours making

sure there were no trips to the hospital.…

We've got bowling down though! Although CJ occasionally likes

to throw his balls across several lanes and take out other people pins. LOL!

From:

EOHarm [mailto:EOHarm ] On Behalf Of schaferatsprynet

Sent: Monday, January 12, 2009 9:54 PM

To: EOHarm

Subject: Re: MO Autism Insurance Bill Text

>

> Okay Lenny, you want to come over and teach my son to take pills???

That's

> one we haven't yet conquered.

>

No. But I am good at teaching autistic kids to rollerskate. But

you'll have to come to Sacramento Kings Skate.

Lenny

January 13, 2009

lol-we have an ice-skating rink nearby, but that really scares me with the kids. would love to give it a try though someday. Maybe they could wear helmets.

M

Subject: RE: Re: MO Autism Insurance Bill TextTo: EOHarm Date: Tuesday, January 13, 2009, 9:24 AM

That's a little far from MA. But I'll keep you in mind. We did try the rollerskating once because we had my daughter's Kindergarten birthday party there. Had I realized I needed at least one adult to every kid that day I would have been a more affective teacher, instead of a maniac on rollerskates just trying to make it through the 2 hours making sure there were no trips to the hospital.…

We've got bowling down though! Although CJ occasionally likes to throw his balls across several lanes and take out other people pins. LOL!

From: EOHarmyahoogroups (DOT) com [mailto:EOHarm@ yahoogroups. com] On Behalf Of schaferatsprynetSent: Monday, January 12, 2009 9:54 PMTo: EOHarmyahoogroups (DOT) comSubject: Re: MO Autism Insurance Bill Text

>> Okay Lenny, you want to come over and teach my son to take pills???That's> one we haven't yet conquered.> No. But I am good at teaching autistic kids to rollerskate. Butyou'll have to come to Sacramento Kings Skate.Lenny

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