Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 Jane, Welcome to the group. I have a grown son(typical) who will be 30 come July. Trisha is 13 and has DS/Autism among other things. You will find this group to be like an extended family. Carol She isn't typical, She's Trisha! If we always do what we always did, we'll always get what we always gotten. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 Hi Jane, My name is Viola, I have 3 children, Tammy is 21(typical), Tania is 18(typical) , and 13, (DS and PDD(ons). Welcome to the group! Everyone here has been wonderful to me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 Welcome Jane, You will have lots to add with a 30 year old! I love to meet people with older kids. My Jake is only 6 1/2, a dually. He is a sweetie but a huge escape artist! He is doing great in school and really changing every day. Can't wait to hear more about your kids and you of course! Holly New to Listserv My Name is Jane and I live in Minnesota. I am new to this listserv and I am trying to get used to it. I have two children, both boys, with downs syndrome. , our first, is now 30 years old and the most wonderful child! Followed by two girls, who are fine, and then Jordan, our youngest, has the dual diagnosis of autism with downs syndrome. Jordan is now 9 years old, and we have been suspicious for a long time now that he also has autism. I have to say, it now seems, we have been through the worst. He is starting to come around, the schools have used the PEC system with him. Jordan is in a center based program with other disabled children but is not in a autism program. I did speak to his teacher about this and she felt they were doing a lot of the same things with Jordan that they would in an autism class. He does speak one word utterances mainly, once in a while you'll get the " let's go " , " you go " , " I love you " , stuff, but it is not the norm. They do both sign and speech at school. I am very happy to find this group, I have felt very much alone in dealing with Jordan. He doesn't interact well with other children, actually, he could care less. It bothers me, not him. Both boys have trisomy 21. Jordan does see Dr. Leightman, from the nutrivene- d crowd. He is the one, in august, who said Jordan shows a lot of the markers for autism. Dr. Kim McConnell, gave me information on the dual diagnosis, when Jordan was around 5 years old. Excuse my ramblings. Jane -------------------------------------------------- Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. http://groups.yahoo.com/group/ -------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 Hi Jane & welcome! My son Dylan is 10 w/down syndrome & I started suspecting autism about a year ago. I found this group & it really has changed things for us....just knowing others are out there going through similar things that we are. We don't have an official diagnosis....I am on a " waiting list " to get into the child development center @ children's in Milwaukee, WI. Dylan also has diabetes. He doesn't have any communication except for " yeah " . We use PECS & some sign language. Welcome! Becky, mom to Dylan, 10 RJGreenwood wrote: My Name is Jane and I live in Minnesota. I am new to this listserv and I am trying to get used to it. I have two children, both boys, with downs syndrome. , our first, is now 30 years old and the most wonderful child! Followed by two girls, who are fine, and then Jordan, our youngest, has the dual diagnosis of autism with downs syndrome. Jordan is now 9 years old, and we have been suspicious for a long time now that he also has autism. I have to say, it now seems, we have been through the worst. He is starting to come around, the schools have used the PEC system with him. Jordan is in a center based program with other disabled children but is not in a autism program. I did speak to his teacher about this and she felt they were doing a lot of the same things with Jordan that they would in an autism class. He does speak one word utterances mainly, once in a while you'll get the " let's go " , " you go " , " I love you " , stuff, but it is not the norm. They do both sign and speech at school. I am very happy to find this group, I have felt very much alone in dealing with Jordan. He doesn't interact well with other children, actually, he could care less. It bothers me, not him. Both boys have trisomy 21. Jordan does see Dr. Leightman, from the nutrivene- d crowd. He is the one, in august, who said Jordan shows a lot of the markers for autism. Dr. Kim McConnell, gave me information on the dual diagnosis, when Jordan was around 5 years old. Excuse my ramblings. Jane -------------------------------------------------- Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. http://groups.yahoo.com/group/ -------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 Welcome Jane to an awesome group. I am Liz, Mom to Tori, 5 y.o. DS/PDD-NOS/OCD/PS/NLD. You will find this group to be the best at the support you will receive. Liz New to Listserv > My Name is Jane and I live in Minnesota. I am new to this listserv > and I am trying to get used to it. I have two children, both boys, > with downs syndrome. , our first, is now 30 years old and the > most wonderful child! Followed by two girls, who are fine, and then > Jordan, our youngest, has the dual diagnosis of autism with downs > syndrome. Jordan is now 9 years old, and we have been suspicious > for a long time now that he also has autism. I have to say, it now > seems, we have been through the worst. He is starting to come > around, the schools have used the PEC system with him. Jordan is in > a center based program with other disabled children but is not in a > autism program. I did speak to his teacher about this and she felt > they were doing a lot of the same things with Jordan that they would > in an autism class. He does speak one word utterances mainly, once > in a while you'll get the " let's go " , " you go " , " I love you " , stuff, > but it is not the norm. They do both sign and speech at school. > > I am very happy to find this group, I have felt very much alone in > dealing with Jordan. He doesn't interact well with other children, > actually, he could care less. It bothers me, not him. Both boys > have trisomy 21. Jordan does see Dr. Leightman, from the nutrivene- > d crowd. He is the one, in august, who said Jordan shows a lot of > the markers for autism. Dr. Kim McConnell, gave me information on > the dual diagnosis, when Jordan was around 5 years old. > > Excuse my ramblings. Jane > > > > > > > -------------------------------------------------- > Checkout our homepage for information, bookmarks, and photos > of our kids. Share favorite bookmarks, ideas, and other information by > including them. Don't forget, messages are a permanent record of the > archives for our list. http://groups.yahoo.com/group/ > -------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 Thanks for the nice replies. I do look forward to all your comments. Jane New to Listserv > My Name is Jane and I live in Minnesota. I am new to this listserv > and I am trying to get used to it. I have two children, both boys, > with downs syndrome. , our first, is now 30 years old and the > most wonderful child! Followed by two girls, who are fine, and then > Jordan, our youngest, has the dual diagnosis of autism with downs > syndrome. Jordan is now 9 years old, and we have been suspicious > for a long time now that he also has autism. I have to say, it now > seems, we have been through the worst. He is starting to come > around, the schools have used the PEC system with him. Jordan is in > a center based program with other disabled children but is not in a > autism program. I did speak to his teacher about this and she felt > they were doing a lot of the same things with Jordan that they would > in an autism class. He does speak one word utterances mainly, once > in a while you'll get the " let's go " , " you go " , " I love you " , stuff, > but it is not the norm. They do both sign and speech at school. > > I am very happy to find this group, I have felt very much alone in > dealing with Jordan. He doesn't interact well with other children, > actually, he could care less. It bothers me, not him. Both boys > have trisomy 21. Jordan does see Dr. Leightman, from the nutrivene- > d crowd. He is the one, in august, who said Jordan shows a lot of > the markers for autism. Dr. Kim McConnell, gave me information on > the dual diagnosis, when Jordan was around 5 years old. > > Excuse my ramblings. Jane > > > > > > > -------------------------------------------------- > Checkout our homepage for information, bookmarks, and photos > of our kids. Share favorite bookmarks, ideas, and other information by > including them. Don't forget, messages are a permanent record of the > archives for our list. http://groups.yahoo.com/group/ > -------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 Thanks for the reply, Jordy is 9 so it's nice to hear where your at too. Jane Re: New to Listserv Hi Jane & welcome! My son Dylan is 10 w/down syndrome & I started suspecting autism about a year ago. I found this group & it really has changed things for us....just knowing others are out there going through similar things that we are. We don't have an official diagnosis....I am on a " waiting list " to get into the child development center @ children's in Milwaukee, WI. Dylan also has diabetes. He doesn't have any communication except for " yeah " . We use PECS & some sign language. Welcome! Becky, mom to Dylan, 10 RJGreenwood wrote: My Name is Jane and I live in Minnesota. I am new to this listserv and I am trying to get used to it. I have two children, both boys, with downs syndrome. , our first, is now 30 years old and the most wonderful child! Followed by two girls, who are fine, and then Jordan, our youngest, has the dual diagnosis of autism with downs syndrome. Jordan is now 9 years old, and we have been suspicious for a long time now that he also has autism. I have to say, it now seems, we have been through the worst. He is starting to come around, the schools have used the PEC system with him. Jordan is in a center based program with other disabled children but is not in a autism program. I did speak to his teacher about this and she felt they were doing a lot of the same things with Jordan that they would in an autism class. He does speak one word utterances mainly, once in a while you'll get the " let's go " , " you go " , " I love you " , stuff, but it is not the norm. They do both sign and speech at school. I am very happy to find this group, I have felt very much alone in dealing with Jordan. He doesn't interact well with other children, actually, he could care less. It bothers me, not him. Both boys have trisomy 21. Jordan does see Dr. Leightman, from the nutrivene- d crowd. He is the one, in august, who said Jordan shows a lot of the markers for autism. Dr. Kim McConnell, gave me information on the dual diagnosis, when Jordan was around 5 years old. Excuse my ramblings. Jane -------------------------------------------------- Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. http://groups.yahoo.com/group/ -------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2005 Report Share Posted October 18, 2005 Hi there Jane! Welcome! I am Adrienne and I have a husband, and 3 kids. Regan 12, (ds, Autism, visually impaired) 7 and Reece is 5. We got the DX of Autism when was 4 1/2. We never really realized he could have DS and Autism but through a friend and her son we soon realized was Autistic. Now, looking back, it's SO obvious! LOL.. but at the time I didn't have much to go on.. I just knew was ALOT different then all the other kids w/DS I knew. I just didn't know WHY. Glad you found this place. I am relatively new here but know a few from elsewhere. It's nice we have a place we can come and relate to! Glad your son is doing well! Hugs! A. > > My Name is Jane and I live in Minnesota. I am new to this listserv > and I am trying to get used to it. I have two children, both boys, > with downs syndrome. , our first, is now 30 years old and the > most wonderful child! Followed by two girls, who are fine, and then > Jordan, our youngest, has the dual diagnosis of autism with downs > syndrome. Jordan is now 9 years old, and we have been suspicious > for a long time now that he also has autism. I have to say, it now > seems, we have been through the worst. He is starting to come > around, the schools have used the PEC system with him. Jordan is in > a center based program with other disabled children but is not in a > autism program. I did speak to his teacher about this and she felt > they were doing a lot of the same things with Jordan that they would > in an autism class. He does speak one word utterances mainly, once > in a while you'll get the " let's go " , " you go " , " I love you " , stuff, > but it is not the norm. They do both sign and speech at school. > > I am very happy to find this group, I have felt very much alone in > dealing with Jordan. He doesn't interact well with other children, > actually, he could care less. It bothers me, not him. Both boys > have trisomy 21. Jordan does see Dr. Leightman, from the nutrivene- > d crowd. He is the one, in august, who said Jordan shows a lot of > the markers for autism. Dr. Kim McConnell, gave me information on > the dual diagnosis, when Jordan was around 5 years old. > > Excuse my ramblings. Jane > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2005 Report Share Posted October 18, 2005 Thanks for the nice email. It is wonderful to read all your comments. Jane Re: New to Listserv Hi there Jane! Welcome! I am Adrienne and I have a husband, and 3 kids. Regan 12, (ds, Autism, visually impaired) 7 and Reece is 5. We got the DX of Autism when was 4 1/2. We never really realized he could have DS and Autism but through a friend and her son we soon realized was Autistic. Now, looking back, it's SO obvious! LOL.. but at the time I didn't have much to go on.. I just knew was ALOT different then all the other kids w/DS I knew. I just didn't know WHY. Glad you found this place. I am relatively new here but know a few from elsewhere. It's nice we have a place we can come and relate to! Glad your son is doing well! Hugs! A. > > My Name is Jane and I live in Minnesota. I am new to this listserv > and I am trying to get used to it. I have two children, both boys, > with downs syndrome. , our first, is now 30 years old and the > most wonderful child! Followed by two girls, who are fine, and then > Jordan, our youngest, has the dual diagnosis of autism with downs > syndrome. Jordan is now 9 years old, and we have been suspicious > for a long time now that he also has autism. I have to say, it now > seems, we have been through the worst. He is starting to come > around, the schools have used the PEC system with him. Jordan is in > a center based program with other disabled children but is not in a > autism program. I did speak to his teacher about this and she felt > they were doing a lot of the same things with Jordan that they would > in an autism class. He does speak one word utterances mainly, once > in a while you'll get the " let's go " , " you go " , " I love you " , stuff, > but it is not the norm. They do both sign and speech at school. > > I am very happy to find this group, I have felt very much alone in > dealing with Jordan. He doesn't interact well with other children, > actually, he could care less. It bothers me, not him. Both boys > have trisomy 21. Jordan does see Dr. Leightman, from the nutrivene- > d crowd. He is the one, in august, who said Jordan shows a lot of > the markers for autism. Dr. Kim McConnell, gave me information on > the dual diagnosis, when Jordan was around 5 years old. > > Excuse my ramblings. Jane > -------------------------------------------------- Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. http://groups.yahoo.com/group/ -------------------------------------------- Quote Link to comment Share on other sites More sharing options...
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