Re: New to Group, Jayne

September 13, 2005

In a message dated 9/13/2005 2:21:07 PM Eastern Standard Time,

kevini@... writes:

Sue

PS - we're in South Eastern CT

Hi Sue,

I am orginally from Fairfield , Ct. Moved away 4 years ago to Wheelling West

Virginia, I am now In Dutchess County New York, which is about an hour and a

half away from " home " .

Viola

September 14, 2005

Hi Sue and everyone,

Next time I go to the bookstore I think I will finally have to purchase " The Out

of Sync Child Has Fun " . I glanced at it real quick once but I think it would

probably have some great ideas in it. I probably need to re-read the first book

just to help me try to understand some of the new sensory issues seems

to be aquiring. I'm really looking forward to our appt with the private OT this

month - I need some help. Tonight he was really having a tough time, he's just

obsessed with tv and movies - it's all he wants to do when he's home. He hasn't

ate dinner with us for days now, he just is too obsessed with movies. Tonight

he was a mess. I finally did some joint compressions, brushed him, rocked him

and then he came around and was a new man. He came to the table and ate dinner

for me (hours after we'd eaten) and was happy. He obviously needed to get

organized internally. It was so funny - my son was doing his homework at the

table and said " This is really hard " , referring

to his homework, and just out of nowhere said " really hard " It was so

funny. He didn't look at us, he was just eating his ice cream and just repeated

what he heard I guess. My son and I cracked up. We needed that after the gloom

and doom that had just been occuring not 15 minutes before that!

I wish I could help you with where to find the fine line between letting them

stim and interupting that behavior when it's just not an appropriate time. I

find it blurs for me too. Sometimes I'm just too exhausted to deal with it and

other times it's just so hard, especially in public.

I thank God, everyday for this listserv - it's my saving grace.

Take care,

Jayne

KEVIN IWORSLEY wrote:

Hi Jayne,

Yes I've read the 'Out of Sync Child' - it was like getting struck with a

lightning bolt. We knew had sensory issues but didn't realize how far

reaching they were. We also have 'The Out of Sync Child Has Fun' - a lot of

great ideas there - they'll keep us going for quite some time and if nothing

else gives me ideas for rainy day activities!

As for the hand covering (should have also mentioned the 'anti-arch' vest we

made) - there is a fine line - on one hand these behaviors are calming and

organizing - Nate NEEDS them... on the other hand they become compulsive and

inappropriate in the wrong setting. Finding the proper balance is difficult but

I do firmly believe there are times we need to let these behaviors slide and

other times we need to intervene... any and all suggestions to clarify that fine

line (it blurs on occasion) are greatly appreciated!

Sue

PS - we're in South Eastern CT

__________________________________________________

September 14, 2005

Hi Jayne,

I'm sorry your having such difficulties - I hope the session with the OT will

help you find some answers. We were able to get ONE session is under our

insurance and it did WONDERS when we carried over what we learned at home.

I'm sure you can picture our child at dinner... grabbing, throwing utensils,

playing with his food, spilled milk that ANYONE would cry over (he likes to

watch it pour), trying to take food off other peoples plates even though he has

the same thing on his, etc, etc, etc.... we went to the OT session - I BEGGED

for the timing we should use for the brushing and joint compressions (they

wanted me to come back for this information) to help Nate organize - for us it

turned out to be every 2 hours for 2 weeks.

About 5 days into our therapy we took Nate to a restaurant - he wanted to sit at

the table in a regular chair (picture my panic)... for the first time EVER: Nate

left his placemat where it belonged, he ate his entire meal with utensils. Drank

from his cup without spilling AND placed it back by his plate. He didn't grab

for the napkins or salt and pepper or for food from anyone else - even though

they were all right next to him. I actually ENJOYED taking my son out to dinner!

I firmly believe that there is a significant piece of the puzzle that is sensory

related and if you can find the right intervention the results can give relief -

not that it's a cure... just one more support, but I'll lean on anything I can.

For anyone interested - I just found out that " The Out of Sync Child " has been

updated and should be out this month I believe - very soon if not already

available.

I wish you success with your appointment,

Sue

Re: New to Group, Jayne

Hi Sue and everyone,

Next time I go to the bookstore I think I will finally have to purchase " The

Out of Sync Child Has Fun " . I glanced at it real quick once but I think it

would probably have some great ideas in it. I probably need to re-read the

first book just to help me try to understand some of the new sensory issues

seems to be aquiring. I'm really looking forward to our appt with the

private OT this month - I need some help. Tonight he was really having a tough

time, he's just obsessed with tv and movies - it's all he wants to do when he's

home. He hasn't ate dinner with us for days now, he just is too obsessed with

movies. Tonight he was a mess. I finally did some joint compressions, brushed

him, rocked him and then he came around and was a new man. He came to the table

and ate dinner for me (hours after we'd eaten) and was happy. He obviously

needed to get organized internally. It was so funny - my son was doing his

homework at the table and said " This is really hard " , referring

to his homework, and just out of nowhere said " really hard " It was so

funny. He didn't look at us, he was just eating his ice cream and just repeated

what he heard I guess. My son and I cracked up. We needed that after the gloom

and doom that had just been occuring not 15 minutes before that!

I wish I could help you with where to find the fine line between letting them

stim and interupting that behavior when it's just not an appropriate time. I

find it blurs for me too. Sometimes I'm just too exhausted to deal with it and

other times it's just so hard, especially in public.

I thank God, everyday for this listserv - it's my saving grace.

Take care,

Jayne

KEVIN IWORSLEY wrote:

Hi Jayne,

Yes I've read the 'Out of Sync Child' - it was like getting struck with a

lightning bolt. We knew had sensory issues but didn't realize how far

reaching they were. We also have 'The Out of Sync Child Has Fun' - a lot of

great ideas there - they'll keep us going for quite some time and if nothing

else gives me ideas for rainy day activities!

As for the hand covering (should have also mentioned the 'anti-arch' vest we

made) - there is a fine line - on one hand these behaviors are calming and

organizing - Nate NEEDS them... on the other hand they become compulsive and

inappropriate in the wrong setting. Finding the proper balance is difficult but

I do firmly believe there are times we need to let these behaviors slide and

other times we need to intervene... any and all suggestions to clarify that fine

line (it blurs on occasion) are greatly appreciated!

Sue

PS - we're in South Eastern CT

__________________________________________________

September 14, 2005

Thanks Sue -

I'm banking on this OT really helping me with the sensory info I lack, I'll let

you all know how it pans out.

I CAN picture Nate at the table. It's so hard sometimes. That one session of

OT sounds like it was worth it's weight in gold. So just brushing him on a

regular schedule like that was enough to help him organize enough to make it

through that dinner - amazing!

If comes to the table and sits with us, it's usually because he wants us

to pray or he wants to slam glasses with everyone in " cheers " fashion, I thank

Gaston from Beauty and The Beast for this! So if brushing brings a child to

actually eat at the dinner table, I'm game.

Thanks for sharing your story.

Hope things continue to improve for you and your family.

Take care,

Jayne

PS. I forgot to tell you we are from Maine, since you are in Conn. I grew up in

Wisconsin and moved to Maine when I was 17 - Hubby is a native of Maine. That's

where we will retire to in 3 years when we finish this whirlwind adventure with

The Air Force.