Irma

[Guest guest]

Hi Irma,

We are home from the fair and I just happen to look at my emails at 4:30 am,lol.

I am so grateful for Gail's help. She is absolutely exhausted. I hope she is

still my friend after this past weekend. I will give her your message.

Charlyne

Mom to Zeb 12 DS/OCD/ASD?

mum592001 wrote:

Charlyne,

If you get this, tell Gail I said hi. She is just awesome this goes for

you to. Helping each other.

Reminds me of that song from Toy Story. Am I right Disney fans? I could

add the Lean On Me Lyrics. But I know we all have heard this song over

and over & over.

You've Got A Friend In Me Lyrics

You've got a friend in me

You've got a friend in me

When the road looks rough ahead

And you're miles and miles

From your nice warm bed

You just remember what your old pal said

Boy,you've got a friend in me

Yeah,you've got a friend in me

You've got a friend in me

You've got a friend in me

If you've got troubles,I've got'em too

There isn't anything I wouldn't do for you

We stick together and can see it through

Cause you've got a friend in me

You've got a friend in me

Some other folks might be

A little bit smarter than Iam

Bigger and stronger too

Maybe

But none of them will ever love you

The way I do,it's me and you

Boy,and as the years go by

Our friendship will never die

You're gonna see it's our destiny

You've got a friend in me

You've got a friend in me

You've got a friend in me

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[Guest guest]

Hi Irma!

Ohhhhhhhh, sure hope all he travel plans work out for you! Would be

Soooooooo nice to meet you, finally!

Wow, that is cool about the camp counselor for a Caribbean Cruise. You'll

have to share everything, step by step. Is home for the summer, or

does he attend ESY? Been VERY busy here with Seth home every day. But, I do

believe that he has made more progress than he would have at ESY, so it's well

worth it. Course, I'd keep all my kids home all year, if I could. I really

miss homeschooling the girls.

Gail :-)

Hi Gail,

Its in the works to try to fly out there, hopefully when you can

venture out there when its one of those " see it to believe it

moments " ,Ind., TN, & VA. to visit whoever we can. This is one of those

goals that I would love to meet anyone from the group list.

No promise for now as you know how this works, of course around

everyones schedule, but I'll think positive so that it will happen.

Even if its one of those getaway weekends.

We travel standby and even when hubby is unable to travel without us,

I'm starting to get the hang of traveling with by ourselves.

has made tremendous progress in this area by air or ground.

Here is something I'm looking into which I never would of consider but

how time flies with different views, just like coming out of my shell

on the shyness area.

I just received a letter & a free magazine from one of my friends out

in Dallas that the founder and editor of the journal called Spectrum,

for Parents of Children with Autism & Developmental Disabilities, that

the company sent it as a gift for attending the Autism Camp this

summer, if I would like to become a counselor for a Caribbean Cruise

for families with children with autism starting Nov. 27, 2005. This

sounds interesting so I might look into it. Time will tell if this

works out for me as I've been invited to numerous workshops and

conferences at discount prices and paid or maybe I just can't say no as

they have been very helpful my way when needed for which

will benefit from.

On the Caribbean Cruise they're looking for more counselors if anyone

is interested.

This summer I wanted to focus on 's medical issues, strict diet,

supplements, Movement Program, Chiro, the ongoing ABA/VB sessions, and

the ESY Program along with following up on the chart.

http://www.ds-health.com/recordsheet2.htm

Great improvements except a draw back this past weekend, ended

up eating some pizza and you can imagine its like feeding a druggie.

Love to meet y'all, fingers crossed.

Irma,17,DS/ASD

[Guest guest]

Hi Irma,

I just had to say your paving the path for other students that follow. Your

cheerleader.

Charlyne

Mom to Zeb 12 DS/OCD/ASD?

Adrienne wrote:

" so I guess my energy

to get where is at has paid off also for many others following

along. Just awsome! "

You know.. this is something I learned to truly appreciate alot this

year. That advocating for our children is a MUST.. but knowing your

actions and advocating AND energy can help others also.. which is

part of what it's all about!!!! It IS an awesome feeling!!!!

Knowledge is power!!!

A.

> > THREE CHEERS FOR SELF ADVOCACY! LOL.....

> >

> > A.

> >

> TOTALLY!

> Thought I share this.

> Yesterday I received a call from one of my son's ex-teacher and

she

> said something close enough, " Having , I was one step of

learning

> about Autism on how to teach him as I have 9 students with autism

this

> school year. Still learning due to their individual needs " .

> I keep her updated with any information, the school district has

cut

> down big times to pay educators to attend AU conferences and this

is

> all out of her own pocket. Her staff learns from her or will also

pay

> out of pocket when needed. The school psychologist and speech

therapist

> love working with her students, they are such a team. Missed those

> years, but love that many students are being treated as a person

and

> receiving the proper education needed before heading out to High

school.

> Middle school were the best years for . Its nice to know

that

> there are people who are willing to work with the older students

when

> some like my son in the past had fallen through the cracks during

their

> elementary years.

> I have been approached by other parents whom I have confronted

asking

> me which middle school has attended? Some have seen what

I've

> gone through and actually seen in action, so I guess my

energy

> to get where is at has paid off also for many others

following

> along. Just awsome!

>

> Irma,17,DS/ASD

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[Guest guest]

<<Dear Lord give me strength.>>

Irma...my prayers will be with you. You have more 'gumpshun' than I do!!!

Margaret

[Guest guest]

Irma how exciting I know you will do great. How wonderful so many

replied to your survey. Louise

Re: Charlyne

Why thank you Charlyne,

The best Cheerleader to have aboard, coming from you. Thanks!

Friday is a Task Force meeting on representing SA with information

that I have gathered from many whom I have been in contact with. Too

many have been calling me or emailing me whom have been interested

hearing about and what they could do for their child?

Of course I told them where is at, it took some work and for

them to remember that is .

I decided to turn it around and then asked away " What were they're

concerns? What do you want for your child? I then decided on a survey

to pass around and boy did everyone reply. The person whom invited me

to become her partner was so impressed to see alot of replies, that I

had actually motivated people to share their stories.

So with the parents concerns information I will be presenting at this

Friday's meeting and to see how much to target the main areas for the

biggie Town Hall meeting at a Texas State Conference next week. I am

getting the jitters. Dear Lord give me strength.

Thanks for always being there everyone, but please be my shadow.

Irma,17,DS/ASD

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[Guest guest]

Hi Irma,

I know exactly how you feel. I had the jitters when I spoke at a conference last

year. I am not a public speaker. It's my worst fear. I survived by keeping Zeb

in my mind and remembering all the difficult school issues I had dealt with in

the past. I did just fine. Zeb was asked to speak this year. He and his ed

consultant along with his elementary school team will be showcasing Zeb's

inclusive program. Zeb will answer questions from teachers and administrators

throughout the state. I will assist him if needed. You will do just fine.

Remember when you were the parent desperately looking for answers and how happy

you would have been to get the needed information. It will pull you through and

give you the strength to do a great job.

Charlyne

Mom to Zeb 12 DS/OCD/ASD?

mum592001 wrote:

Why thank you Charlyne,

The best Cheerleader to have aboard, coming from you. Thanks!

Friday is a Task Force meeting on representing SA with information

that I have gathered from many whom I have been in contact with. Too

many have been calling me or emailing me whom have been interested

hearing about and what they could do for their child?

Of course I told them where is at, it took some work and for

them to remember that is .

I decided to turn it around and then asked away " What were they're

concerns? What do you want for your child? I then decided on a survey

to pass around and boy did everyone reply. The person whom invited me

to become her partner was so impressed to see alot of replies, that I

had actually motivated people to share their stories.

So with the parents concerns information I will be presenting at this

Friday's meeting and to see how much to target the main areas for the

biggie Town Hall meeting at a Texas State Conference next week. I am

getting the jitters. Dear Lord give me strength.

Thanks for always being there everyone, but please be my shadow.

Irma,17,DS/ASD

> Hi Irma,

> I just had to say your paving the path for other students that

follow. Your cheerleader.

> Charlyne

> Mom to Zeb 12 DS/OCD/ASD?

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[Guest guest]

Hi Irma,

I'm so sorry to hear of your fall. I hope your back is ok considering all the

back issues you have had in the past. does communicate. He may not have

the speech but he does use other means. He gets his point across. Give these

parents this information regarding communication issues. They need to hear that

piece too.

Charlyne

Mom to Zeb 12 DS/OCD/ASD?

mum592001 wrote:

Ok, Charlyne,

Depending how I feel this coming Friday as I had a hard fall this

past Monday trying to redirect from going outside into the

pool area and I had lost my balance and boy am I feeling sore all

over, especially my neck and lower back area as I hit my head pretty

hard against the hard floor at one of my sisters house. I know I'm

such a clutz. I might contact my friend the Chiro so that I could get

a good adjustment, well after they do an x-ray. Never fails.

I remember this on your conference. I would love for to

communicate, but no luck in this area. I will keep this on mind on

your last verse of your message. Appreciate it very much.

Thanks,

Irma,17,DS/ASD

> Hi Irma,

> I know exactly how you feel. I had the jitters when I spoke at a

conference last year. I am not a public speaker. It's my worst fear.

I survived by keeping Zeb in my mind and remembering all the

difficult school issues I had dealt with in the past. I did just

fine. Zeb was asked to speak this year. He and his ed consultant

along with his elementary school team will be showcasing Zeb's

inclusive program. Zeb will answer questions from teachers and

administrators throughout the state. I will assist him if needed. You

will do just fine. Remember when you were the parent desperately

looking for answers and how happy you would have been to get the

needed information. It will pull you through and give you the

strength to do a great job.

> Charlyne

> Mom to Zeb 12 DS/OCD/ASD?

>

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[Guest guest]

Hi Irma,

I am taking one day at a time. I believe not ever having a child with

intellectual disabilities in their classes, the teachers had very low

expectations and fear of being unable to teach him. It is usually a fear of

failure on the teachers part that presents problems. Once they actually met Zeb

the teacher's realized that they could teach him. The principal has a high need

for control and is not happy he was forced to do something that he did not

initiate. It's was a control issue that was difficult for him to loose

especially to women. He will get over it and hopefully understand how rewarding

inclusion can be if done correctly. He is already taking credit for Zeb's

success,LOL. The ed consultant and inclusion facilitator spent endless hours

putting Zeb's program together and training the staff. We have all shrugged our

shoulders and let him take the credit. Whatever works is ok with us as long as

Zeb gets an education and is happy.

Charlyne

Mom to Zeb 12 DS/OCD/ASD?

mum592001 wrote:

Thanks for sharing Zeb's update. Glad the teachers are enjoying having

him aboard and not judging him like the princpal did. It does sound

like it'll be a good school year, not bad for JR High, now that

everyone is on the same page for now.

Irma,17,DS/ASD

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[Guest guest]

Hi Irma,

They listened because you have walked the walk and are an expert. I attending a

workshop to complete my national standards yesterday. They are not required yet

but I will be set when the time comes. It was a long day that I could barely

afford to give up with my fair schedule.

Charlyne

Mom to Zeb DS/OCD/ASD?

mum592001 wrote:

Whatever works is ok with us as long as Zeb gets an education and is

happy.

> Charlyne

> Mom to Zeb 12 DS/OCD/ASD?

>

Charlyne,

Your not going to believe this but for some reason I figure this was

going to happen where the Principal was going to want to take credit.

Well, as long ya'll have the principal where you need him at this point

this a foot in the door and certainly correct what counts the most is

having Master Zeb happy and educated.

Todays, Task Force meeting went well. I really thought I was just going

to sit there and listen but you were right, the thought of what I have

to go through with did bring the hidden warrior out of me. I can

not believe I have certain important people who works with the

community actually listen to who knows what I said. I can not believe

this is actually happening.

In the mean time I've been busy suggesting some ideas to several who

have emailed me from a bordertown I grew up who lacks what we have when

working with kids with autism. Other people had suggested for them to

move out. So they like my suggestion as they want to stay where they're

at. I told them its going take some work and it will involve their

community.

Next week the TEXAS AU State Conference the- Town Hall meeting. This

time I will zip it as I'm counting on others to speak at this one with

all the information that was sent by my friends. Unless I find my cue.

Irma,17,DS/ASD

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