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I'm re-posting because no one responded (incredible but true!!)

I was wondering what reading programs they used with Gareth or any other

children with Ds and Autism who have successfully learned to read. My

son is 8 and before the autism really set in (between 4 & 5) he knew all

the letters of the alphabet and had a sight word vocabulary of over 30

words. Now he is completely non-verbal and does not attend to print at

all. We tried several SSRIs with no improvements, then moved to

risperdal and saw limited improvement with connection to others but no

gains in any other areas. Now he's on Abilify and I see less than with

risperdal. We're going to see Dr. Capone in next week but I am really

discouraged.

Kim Amenabar

mom to (8 with DS & ASD) and Klaudia (10)

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Hi Kim,

My little Josh is doing pretty good with reading considering he is

only 5, soon to be 6. He adores the Love and Learning videos and a

little computer CD set from Southwestern Publishing. I also use a

flash CD program with him and he's had everything phonics related

from Vtech since he was born! LOL!

I'm still trying to dig out from a move or I would elaborate on them

again. I think I posted a more lengthy and enthusiastic message

about one or all of the aforementioned on this list somewhere.

We homeschool, and there is only so much Mom to go around, so I take

advantage of everything technology has to offer to get to those 200

repetitions I was told he would need to learn something. :)

Good luck!

> I'm re-posting because no one responded (incredible but true!!)

>

> I was wondering what reading programs they used with Gareth or any

other

> children with Ds and Autism who have successfully learned to

read. My

> son is 8 and before the autism really set in (between 4 & 5) he

knew all

> the letters of the alphabet and had a sight word vocabulary of

over 30

> words. Now he is completely non-verbal and does not attend to

print at

> all. We tried several SSRIs with no improvements, then moved to

> risperdal and saw limited improvement with connection to others

but no

> gains in any other areas. Now he's on Abilify and I see less than

with

> risperdal. We're going to see Dr. Capone in next week but I am

really

> discouraged.

>

>

> Kim Amenabar

> mom to (8 with DS & ASD) and Klaudia (10)

>

>

>

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:

loved the Love & Learning videos (and still does) but he does

not read any of the words anymore. We also have tons of phonics toys

and he has a bookcase full of books in his room but he has really lost

interest in the past few years. I'll check out the other program you

mentioned.

Thanks,

Kim

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Kim,

Wow, the fact that nder has lost interest in the Love and Learning

videos is really scarey to me. I didn't think Josh would ever do that,

but you have shown me it is possible.

The only other thing I can think of is I have tried to keep things in

rotation. We go off of Love and Learning and then try the flash

series, then go to the one from Southwestern. I rotate flash cards,

phonics tiles and writing things on a Magnadoodle, chalkboard and a

super sized newsprint pad. His interest seems to wax and wane as it

does for certain books, certain videos, certain danglies, certain

foods, certain preferences . . . :)

I hope you are able to revive his interest. Josh has just recently

allowed me to read him a book again - it's been almost two years!!!!!

Have hope!!!

Let us know how things go.

> :

>

> loved the Love & Learning videos (and still does) but he

does

> not read any of the words anymore. We also have tons of phonics toys

> and he has a bookcase full of books in his room but he has really

lost

> interest in the past few years. I'll check out the other program you

> mentioned.

>

> Thanks,

> Kim

>

>

>

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have you discussed aricept or something similair with him? has been

on 5mg for 3weeks now and he is talking more than ever, its rather funny to

listen to him, and over this last whole week his ESY teacher says he is doing an

awesome job. Our docs goal is to slowly work nathan up to 15mg daily. We

tried it last year but all nathan would do wile on just the 5mg was sleep

constantly at school or car or at home, so we stopped and waited to try again

before school started to see how he handles it. Im sure you probably allready

know It is suppose to really help ds individuals with cognition and memory, and

our doc has had great success with other pt's with ds on it. Meds affect all

our children so differently, but for nathan he has been more socialable

lately, very funny, even joking, but it may just be his age, just turning 14

recently, or it may be the aricept, or the combination of the two, Its really

hard

to figure out sometimes. shawna

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i just posted , sorry it took me awhile, but i worked all weekend---Im not

sure if i told you guys but i did finally get a great job at a hospital with

great pay and excellent benefits, and i work 12 hours shifts, every other

weekend and and a few days every other week, so i am home mostly during the

week,

and as usual i work nights so i am home during the day if needed. but i

agree many are prbably on vacation etc b4 school starts up full time again, my

boys just have overa week left. Last night was the last day for the swimming

pool, they had free food and drinks and many games throug out the day. We are

thinking about taking the boys to a waterpark this weekend if the weather

cooperates, it cooled off greatly here in iowa . shawna

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