Cyndi

[Guest guest]

hello, just reading your post about the one piece pjs, tried to find

these big enough last winter for and could not, so if you would

not mind, I would also love to have the site for those!! does

the same thing with his diaper, I know how you all feel!!! it is hard,

but we know we are all going through the same thing, this helps to

know we are not alone! great ideas, thanks!! is 53 or so pounds

and 8 yrs. I still cannot find pjs though that fit cause he is kinda

long legged! the one piece ones would be great!! thanks Cyndi, Dawn

[Guest guest]

Dawn, Hi here are some websites: for one piece sleepers-

http://easyaccessclothing.com/

http://www.kozykomfy.com/store/customer/register.php?js=n

disposible swim pants at:www.mypoolpant.com I I have more resources

will email you others. I hope these help. Cyndi

[Guest guest]

Hey Cyndi, thanks sooo much for the info!!! never had seen these

before, God Bless, Dawn

> hello, just reading your post about the one piece pjs, tried to find

> these big enough last winter for and could not, so if you

would

> not mind, I would also love to have the site for those!! does

> the same thing with his diaper, I know how you all feel!!! it is

hard,

> but we know we are all going through the same thing, this helps to

> know we are not alone! great ideas, thanks!! is 53 or so

pounds

> and 8 yrs. I still cannot find pjs though that fit cause he is kinda

> long legged! the one piece ones would be great!! thanks Cyndi, Dawn

[Guest guest]

, The therapist said we would work on replacing bad behaviors

with gone ones. Like the playdoh they will give him something to

feel in his hands that gives the same sensation. It's all gross to

me just thinking about it. He once did this while we were eating at

a resturant.You most definately have to take a shower yourself after

dealing with this. I am glad to hear you had success with him

stopping this. Your help is much appreciated Cyndi

>

> sounds a lot like Josh with his technique! :{ Josh went for

> total coverage - hair on down - then, when you try to get them to

> the tub, you end up showering yourself don't you!

>

> Hang in there! If you want my playdoh recipe or need to chat with

> someone after a poop disaster, let me know. I really thought

I

> would lose my mind, three times or more a day, day . . . after

> day . . . after day. But it DID stop. Have hope!

>

>

>

> P.S. Your questions - Josh is 5, soon to be six. We live in

> Wisconsin and we homeschool. Big brothers are going to be in 6th

> and 2nd grade. Josh will be in Kindergarten (of sorts) this fall.

>

>

> > a, sounds like he understands better, by changing

> > clothes and trying to clean himself up. sits and plays in

it

> > rubbing it all over himself. He will do it any time he gets a

> > chance. I was working on going to the potty one day and he has

set

> > on the potty for about 45 minutes. Not 5 minutes after he got up

> off

> > potty he was sitting next to me at the pool and reached in his

> pants

> > and pulled out a surprise. When you hold one hand and clean it

off

> > he is digging with the other and so on and so on. I need

handcuffs

> > while I am cleaning him. As for one piece sleepers at 10yrs of

age

> > and 86lbs one piece jumpers are rare. Thanks so much anyway for

> > trying to be helpful and sharing your story. At least I know

> things

> > won't always be this way. I hope. Thanks again Cyndi

> > > i would have reported the therapist i think, what we use to do

> is

> > just buy

> > > those blanket sleepers that zip and just put them on

backwards,

> > becasue the

> > > main time nathan would smear bm was very early moring ours or

> > during hte

> > > nite sometime, as for during the day, i agree unless its a

huge

> > problem i

> > > would stick to clothes that he can do, being more

independent.

> > When nathan

> > > would get bm all over we would make him hlep clean it up,(hand

> > over hand)

> > > and shower every time, and remind him go poopoo in the toilet

> not

> > our pants,

> > > and he would repeat us, no scolding or anything involved, its

> was

> > the idea

> > > that he would rather just pop in the toilet then make a big

mess

> > to clean up

> > > and have to shower, and i think it did some good becasue if he

> > does have an

> > > accident he washes up mostly himself or will say help mom poo

> poo,

> > and will

> > > get clean clothes on without being asked, so this may be an

idea

> > to try.

> > > shawna

> > >

> > >

_________________________________________________________________

> > > Express yourself instantly with MSN Messenger! Download today -

> > it's FREE!

> > > http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/

[Guest guest]

Donna, Thanks for the words of encouragement that eventually all

this will stop.When you wake up in the morning have to be somewhere

like an appointment and find your child covered in feces I feel like

having a mental breakdown. And although it doesn't help the

situation at the moment of the mess, just knowing I am not along

does help. I would not wish this life on my worst enemy. Have a

great Day. Cyndi

>

> In a message dated 7/27/2005 10:38:16 A.M. Eastern Standard Time,

> wfarmerswife3@y... writes:

>

> Hang in there! If you want my playdoh recipe or need to chat

with

> someone after a poop disaster, let me know. I really thought

I

> would lose my mind, three times or more a day, day . . . after

> day . . . after day. But it DID stop. Have hope!

>

>

>

>

>

>

> I haven't been reading a lot of mail from the list....just got

back from the

> shore, so I had set myself for no mail. We had this problem

with Maddie

> too. Well, it was worse because she has pica and poop was one

of her

> obsessions....UGH. There were days when I thought I'd go nuts

too. But it did

> stop. We still have to do poop clean ups, but it's not like it

was before.

> Hang in there.

> Donna

>

>

>

[Guest guest]

i think target and jc pennies has big sleepers, i stopped getting them when

he was around 11-12, becasue he didnt need them anymore, he started going to

the bathroom himself betwwen 9 and 10yrs of age, but i thank this to the

miralax. and he was a big boy too, he didnt slim up until the last couple

years, he just sprouted upwards fora change,lol. Dopnt get me wrong, nathan

had it everywhere too, and it took lots of patience and hand over hand , and

persistance on our part to get him the way he is now. I know other parents

have done this on this list too. It takes awhile but it does eventually sink

in. Nahtna still needs help with wiping himself, we use baby wipes, he is

getting a little better, but i dont always know when he is going if im

downsatirs doing laundry ect, and find out when the toilet is full, he isnt

a great flusher yet either. All our kids differ a little here and there, you

will figure out something im sure. shawna

_________________________________________________________________

Don’t just search. Find. Check out the new MSN Search!

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[Guest guest]

Cyndi, thank you so very much, I just knew you could help!!! well,

this is so up in the air cause I am really trying to talk my husband

into talking to some of his air guard buddies in Louisville cause I

am so afraid to be moving to another place where I am just not as

sure of.(they are not letting us know what or when all this will

happen) We lived in Versailles Ky, close to Lexington where my big

kids live. so you can see why I am interested in this area, you have

set my mind at ease that I can tell my husband that this area would

be good for . do you like the schools your other kidos are in?

anyway, I have a step daughter getting married Nov. 4 at the

Sealbach Hotel,(she works there) a little too fancy for me, this

country girl, but she really loves Louisville, thanks again Cyndi, I

just pray that your son will continue doing well, and it is so good

to hear you, his mom, making things right for him. is also

non verbal except pizza and stoppit!! funny huh? but he is

definitely lower functioning and very huge sensory problems, this

school sounds great! take care, Dawn

> Dawn, I love my sons school Churchill Park. This is a public

school

> that is total special needs. My son is profoundly DS & Autistic,

can

> only speak a little, and is self abusive.I used to have him in a

> school that had a FMD or Fundemetally Delayed Class and 30 minutes

a

> day he was segregrated into a regular class.Most regular classroom

> teachers have no idea what to do with kids like mine and at

Churchill

> Park all the teachers, art, PE, music, swimming, bowling, etc no

how

> to work with kids like .This school even had a sensory room in

> addition to the pool, and bowling alley.I have a whole family full

of

> teachers and I know by listening to them that they have no idea

what

> to do with handicapped kids. No experience. Now I really had no

> problem at the school was at prior to Churchill Park until

the

> FMD teacher left for Churchill Park and a new teacher came in. My

son

> was there for 2 years after this teacher left and he regressed.

Now he

> is back with his old teacher and progressing again.My son

completely

> quit talking.WE have a great autism program at the Weisskopp Child

> Evalution Center through the University of Louisville.We also have

> Down Syndrome of Louisville group that is somewhat helpful.Let me

know

> if you need any phone numbers for Jefferson County Public Schools,

> etc. When will you know if you are moving? Let me know. Cyndi

> > Hello, Dawn here, s mom! I thought I remembered that you

are

> > from Ky, is this right? the reason I ask is my husband may have

to

> > work there due to the fact that most likely our guard base will

> close

> > here in Tn. he could get transferred to Knoxville or Memphis but

we

> > lived in Ky. before, (All our " big kids " ) are here and I dont

want

> to

> > be too far from family if possible. Just wondering if you could

tell

> > me what you think about your area and the schools for your son.

>

> > was evaluated there in Louisville, is this where you are? so

thank

> you

> > so much in advance if you have any info for me. I always enjoy

> hearing

> > about yall, and glad the bus situation is working out. we live

close

> > to Nashville right now, take care.

[Guest guest]

Dawn, The day after I sent you the email I was told at school you

had already called. Churchill Park is a great school because

everyone is on the same page and the teachers just get it.My

daughter goes to a christian school and so I am not a good judge of

public schools other than Churchill Park.My family is made up of

school teachers that teach in the public schools.If I had to send my

daughter anywhere in the US to a public school I would makes sure

the school was a Traditional school such as Audubon for elementary

or JCTMS for Middle to High School. Why? Because these schools have

rules for keeping the children in line and the parents have to agree

to the penalties of misconduct. Let me know if you need any other

help with Louisville and I will be glad to assit. Is Churchill Park

mailing you info and a brochure about the school? Cyndi

> Cyndi, thank you so very much, I just knew you could help!!! well,

> this is so up in the air cause I am really trying to talk my

husband

> into talking to some of his air guard buddies in Louisville cause

I

> am so afraid to be moving to another place where I am just not as

> sure of.(they are not letting us know what or when all this will

> happen) We lived in Versailles Ky, close to Lexington where my big

> kids live. so you can see why I am interested in this area, you

have

> set my mind at ease that I can tell my husband that this area

would

> be good for . do you like the schools your other kidos are

in?

> anyway, I have a step daughter getting married Nov. 4 at the

> Sealbach Hotel,(she works there) a little too fancy for me, this

> country girl, but she really loves Louisville, thanks again Cyndi,

I

> just pray that your son will continue doing well, and it is so

good

> to hear you, his mom, making things right for him. is also

> non verbal except pizza and stoppit!! funny huh? but he is

> definitely lower functioning and very huge sensory problems, this

> school sounds great! take care, Dawn

>

>

>

>

> > Dawn, I love my sons school Churchill Park. This is a public

> school

> > that is total special needs. My son is profoundly DS & Autistic,

> can

> > only speak a little, and is self abusive.I used to have him in a

> > school that had a FMD or Fundemetally Delayed Class and 30

minutes

> a

> > day he was segregrated into a regular class.Most regular

classroom

> > teachers have no idea what to do with kids like mine and at

> Churchill

> > Park all the teachers, art, PE, music, swimming, bowling, etc no

> how

> > to work with kids like .This school even had a sensory room

in

> > addition to the pool, and bowling alley.I have a whole family

full

> of

> > teachers and I know by listening to them that they have no idea

> what

> > to do with handicapped kids. No experience. Now I really had no

> > problem at the school was at prior to Churchill Park until

> the

> > FMD teacher left for Churchill Park and a new teacher came in.

My

> son

> > was there for 2 years after this teacher left and he regressed.

> Now he

> > is back with his old teacher and progressing again.My son

> completely

> > quit talking.WE have a great autism program at the Weisskopp

Child

> > Evalution Center through the University of Louisville.We also

have

> > Down Syndrome of Louisville group that is somewhat helpful.Let

me

> know

> > if you need any phone numbers for Jefferson County Public

Schools,

> > etc. When will you know if you are moving? Let me know. Cyndi

> > > Hello, Dawn here, s mom! I thought I remembered that you

> are

> > > from Ky, is this right? the reason I ask is my husband may

have

> to

> > > work there due to the fact that most likely our guard base

will

> > close

> > > here in Tn. he could get transferred to Knoxville or Memphis

but

> we

> > > lived in Ky. before, (All our " big kids " ) are here and I dont

> want

> > to

> > > be too far from family if possible. Just wondering if you

could

> tell

> > > me what you think about your area and the schools for your

son.

> >

> > > was evaluated there in Louisville, is this where you are? so

> thank

> > you

> > > so much in advance if you have any info for me. I always enjoy

> > hearing

> > > about yall, and glad the bus situation is working out. we live

> close

> > > to Nashville right now, take care.

[Guest guest]

Dawn, My daughter goes to St. and will be attending Catholic

High School. My daughter is also in the 8th grade.Is her class

planning on taking a class trip? Where? Our school is thinking, New

York, Chicago, DC. Cyndi

> thanks Cyndi, yes I did speak with the school and they were very

> nice.The school sounds great! I should also ask for information in

> mail. she said I could just come by anytime I was in town. My

daughter

> is in the 8th gr. this year and is in a Catholic school that I love

> here. next year I just dont know what we will do for high school. I

am

> sure it will all work out as we wait to hear what in the world will

> happen to my husbands job situation!! it is hard not knowing but

this

> is nothing compared to all the folks that have struggled so much

with

> the huricanes and have no place to live at all! I feel for them all.

> Cyndi, thanks again for all your help. I'll let ya know what

happens.

> Dawn