Re: GERD/GLUTEN/CELIAC DISEASE/CASEIN

[Guest guest]

Liz, that's great to hear that Tori's been in a pleasant mood since starting the

Risperdal. I hope that the good moods stay. Wishful thinking is okay! How

long before you find out about the results for the gluten/casein bloodwork?

Becky

Liz D wrote:

Tori saw the Pediatric Gastro doctor today for her GERD, and is being put on

Carafate. He has also ordered bloodwork for gluten/casein antibodies..(1) to

rule out celiac disease and the other for allergies to either product. I was

surprised to hear that gluten intolerances could be affiliated with celiac

disease which kids with Ds are susceptible to. And so far, since she started

the Risperdal on Friday night, she has been in a much more pleasant mood. I'm

thinking it may be too soon for results-maybe I am just hopeful?

[Guest guest]

Nothing wrong with being hopeful Liz - hey whatever gets you through the day

right? <smile>

Glad to hear she's doing well. I will be interested to hear the results of her

bloodwork - wonder if that's something I should have done with next draw

- probably a good idea.

Take care,

Jayne

Liz D wrote:

Tori saw the Pediatric Gastro doctor today for her GERD, and is being put on

Carafate. He has also ordered bloodwork for gluten/casein antibodies..(1) to

rule out celiac disease and the other for allergies to either product. I was

surprised to hear that gluten intolerances could be affiliated with celiac

disease which kids with Ds are susceptible to. And so far, since she started

the Risperdal on Friday night, she has been in a much more pleasant mood. I'm

thinking it may be too soon for results-maybe I am just hopeful?

[Guest guest]

I will let you know as soon as we get the results. Wanted to have them done

anyway for my own sanity.

Re: GERD/GLUTEN/CELIAC DISEASE/CASEIN

> Nothing wrong with being hopeful Liz - hey whatever gets you through the

> day right? <smile>

> Glad to hear she's doing well. I will be interested to hear the results

> of her bloodwork - wonder if that's something I should have done with

> next draw - probably a good idea.

>

> Take care,

> Jayne

>

> Liz D wrote:

> Tori saw the Pediatric Gastro doctor today for her GERD, and is being put

> on Carafate. He has also ordered bloodwork for gluten/casein

> antibodies..(1) to rule out celiac disease and the other for allergies to

> either product. I was surprised to hear that gluten intolerances could be

> affiliated with celiac disease which kids with Ds are susceptible to. And

> so far, since she started the Risperdal on Friday night, she has been in a

> much more pleasant mood. I'm thinking it may be too soon for

> results-maybe I am just hopeful?

>

>

[Guest guest]

that's what I'm thinking too, for my own sanity. How long did they say the

results would take?

How does Tori do for blood draws? 's AWFUL!!!

Take care,

Jayne

Liz D wrote:

I will let you know as soon as we get the results. Wanted to have them done

anyway for my own sanity.

Re: GERD/GLUTEN/CELIAC DISEASE/CASEIN

> Nothing wrong with being hopeful Liz - hey whatever gets you through the

> day right? <smile>

> Glad to hear she's doing well. I will be interested to hear the results

> of her bloodwork - wonder if that's something I should have done with

> next draw - probably a good idea.

>

> Take care,

> Jayne

>

> Liz D wrote:

> Tori saw the Pediatric Gastro doctor today for her GERD, and is being put

> on Carafate. He has also ordered bloodwork for gluten/casein

> antibodies..(1) to rule out celiac disease and the other for allergies to

> either product. I was surprised to hear that gluten intolerances could be

> affiliated with celiac disease which kids with Ds are susceptible to. And

> so far, since she started the Risperdal on Friday night, she has been in a

> much more pleasant mood. I'm thinking it may be too soon for

> results-maybe I am just hopeful?

>

>

[Guest guest]

Hi all,

New to group...My daughter was on risperdal for about 8 months...was the

best thing and really saw her finally focus and make progress..however her

muscle tone is the pits and she really started to put on the pounds..and

with her mobility we decided we had to take her off...just be careful with

the weight gain..it was really the best drug we have tried so far.

-- Re: GERD/GLUTEN/CELIAC DISEASE/CASEIN

Liz, that's great to hear that Tori's been in a pleasant mood since starting

the Risperdal. I hope that the good moods stay. Wishful thinking is okay!

How long before you find out about the results for the gluten/casein

bloodwork?

Becky

Liz D wrote:

Tori saw the Pediatric Gastro doctor today for her GERD, and is being put on

Carafate. He has also ordered bloodwork for gluten/casein antibodies..(1)

to rule out celiac disease and the other for allergies to either product. I

was surprised to hear that gluten intolerances could be affiliated with

celiac disease which kids with Ds are susceptible to. And so far, since she

started the Risperdal on Friday night, she has been in a much more pleasant

mood. I'm thinking it may be too soon for results-maybe I am just hopeful?

[Guest guest]

Trishie: Welcome & Thanks for your input. We researched all of our choices

of meds and this seemed to be the best. Fortunately for now, Tori is really

tiny for being 5. She just got weighed and measured yesterday...still 32

lbs. and 39/3 " tall. However, we are keeping a close eye on all possible

side effects.

Liz

Re: GERD/GLUTEN/CELIAC DISEASE/CASEIN

>

> Liz, that's great to hear that Tori's been in a pleasant mood since

> starting

> the Risperdal. I hope that the good moods stay. Wishful thinking is

> okay!

> How long before you find out about the results for the gluten/casein

> bloodwork?

>

> Becky

>

> Liz D wrote:

> Tori saw the Pediatric Gastro doctor today for her GERD, and is being put

> on

> Carafate. He has also ordered bloodwork for gluten/casein antibodies..(1)

> to rule out celiac disease and the other for allergies to either product.

> I

> was surprised to hear that gluten intolerances could be affiliated with

> celiac disease which kids with Ds are susceptible to. And so far, since

> she

> started the Risperdal on Friday night, she has been in a much more

> pleasant

> mood. I'm thinking it may be too soon for results-maybe I am just

> hopeful?

>

>

>

[Guest guest]

Not quite sure how long it takes to get the results. Am making the call

today to schedule it. She hasn't been too bad for bloods as long as Daddy

is there.

Liz

Re: GERD/GLUTEN/CELIAC DISEASE/CASEIN

>

>

>> Nothing wrong with being hopeful Liz - hey whatever gets you through the

>> day right? <smile>

>> Glad to hear she's doing well. I will be interested to hear the results

>> of her bloodwork - wonder if that's something I should have done with

>> next draw - probably a good idea.

>>

>> Take care,

>> Jayne

>>

>> Liz D wrote:

>> Tori saw the Pediatric Gastro doctor today for her GERD, and is being put

>> on Carafate. He has also ordered bloodwork for gluten/casein

>> antibodies..(1) to rule out celiac disease and the other for allergies to

>> either product. I was surprised to hear that gluten intolerances could

>> be

>> affiliated with celiac disease which kids with Ds are susceptible to.

>> And

>> so far, since she started the Risperdal on Friday night, she has been in

>> a

>> much more pleasant mood. I'm thinking it may be too soon for

>> results-maybe I am just hopeful?

>>

>>

[Guest guest]

Celiac disease means gluten is toxic to you - a more serious reaction than

an 'intolerance', medically speaking. It is classified as an autoimmune

disease, not an allergy. Treatment is the same for CD as for gluten

intolerance - GF diet for life. Some people don't think it necessary to

differentiate b/w the two, and in many cases it may not be a big deal if a

GF diet is maintained. In some cases however, it is important to be sure to

have CD diagnosed - sometimes for school issues or extended family members,

etc. and to help the person w/ compliance to a GF diet. CD can cause

serious health problems if left untreated. The test results take several

days, depending on the lab. Be sure they are also testing IgA. Many people

w/ CD are also intolerant to dairy products (usually lactose, but can be

other components as well), so sounds like your dr. is pretty knowledgeable.

Hope that helps clarify - if you want more info, let me know. We got Conner

dx w/ CD at age 2 1/2 after doing blood tests, biopsy and treating for

reflux over several months. It was the continued reflux even on high doses

of meds for it - they didn't help. We figured out a year later that dairy

was also a problem - after several VERY expensive tests and scaring the

daylights out of us. He's much happier now. We spent a year w/ him being

very fussy and cranky - a couple of weeks gluten free diet and he was a

different kid.

T.

Conner's mom

Re: GERD/GLUTEN/CELIAC DISEASE/CASEIN

Not quite sure how long it takes to get the results. Am making the call

today to schedule it. She hasn't been too bad for bloods as long as Daddy

is there.

Liz

>> Liz D wrote:

>> Tori saw the Pediatric Gastro doctor today for her GERD, and is being put

>> on Carafate. He has also ordered bloodwork for gluten/casein

>> antibodies..(1) to rule out celiac disease and the other for allergies to

>> either product. I was surprised to hear that gluten intolerances could

>> be >> affiliated with celiac disease which kids with Ds are susceptible

to.

>> And>> so far, since she started the Risperdal on Friday night, she has

been in

>> a>> much more pleasant mood. I'm thinking it may be too soon for

>> results-maybe I am just hopeful?

>>

>>

[Guest guest]

...thanks so much for elaborating on it. This is new to us.

Liz

Re: GERD/GLUTEN/CELIAC DISEASE/CASEIN

>

>

> Not quite sure how long it takes to get the results. Am making the call

> today to schedule it. She hasn't been too bad for bloods as long as Daddy

> is there.

>

> Liz

>>> Liz D wrote:

>>> Tori saw the Pediatric Gastro doctor today for her GERD, and is being

>>> put

>>> on Carafate. He has also ordered bloodwork for gluten/casein

>>> antibodies..(1) to rule out celiac disease and the other for allergies

>>> to

>>> either product. I was surprised to hear that gluten intolerances could

>>> be >> affiliated with celiac disease which kids with Ds are susceptible

> to.

>>> And>> so far, since she started the Risperdal on Friday night, she has

> been in

>>> a>> much more pleasant mood. I'm thinking it may be too soon for

>>> results-maybe I am just hopeful?

>>>

>>>