Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 --- IB MailSpace Ad http://instantbuzz.com/83a46a17_16t ---- .Need more Customers? http://instantbuzz.com/83a46a17 ------------- MailSpace TM and Patent Pending -------------- Margaret: I cared for a few kids with ASD (before Tori was diagnosed) in a day care I worked at, and it became too familiar when I would go home and Tori would be doing alot of the things those kids were doing. Eventually, I started calling her by their names because it was like looking into a mirror at work. After mulling it over in my head and talking with the families of those kids with ASD, I thought to myself...something is definitely not right here. She acts more Autistic every day. We had a get together with our local support group families, and it finally kicked in that Tori was not socializing with the other kids...she was sitting either with me or in the house with dad. It's then I said she is not your typical kid with DS. I think the doctors don't know any more than we do unless they specialize in Autism. We, as parents, unfortunately, have to teach them a thing or 2 as well. I think that if you, as a mom, feels is pretty well informed about DS, feel there is something else going on with your child, different from what you've seen or read about on DS,-then you go for it. If your doctor(s) are willing to go further..great! If not-Push open every door, drain every brain, scream as loud as you can, to have your child evaluated and get them the services they deserve. The problem is that so many of our kids go undiagnosed with anything other than the DS that it inhibits them from getting those extra services kids with DS don't usually " qualify " for. Not that I want another label...but, hey if it gets them what they need...then GO FOR IT! I am sooo passionate about this dual diagnosis thing, because I see a few in my group that are not diagnosed. Our local group is going to try to put info out to our members about the dual diagnosis via our newsletter to make them aware that there could be an underlying reason for their child's odd behaviors..and it could be Autism. If all local support groups (at least until we can get the medical professionals involved) could alert families that this is a possibility, maybe we could help more kids. I know I am a dreamer, but hey...someone has to be! =) Sorry for ranting. I guess I am on a pedestal today. Tori is in camp and I have too much time to think. Did I say " think " ? Oh, my...anyway..I love you all and wish we could get the word to all the other families who are going through what we went through beforehand. Liz Liz > <<Some people just DON'T WANT TO KNOW. Unfortunately, we hear this > alot around my DS center. They are lucky they can handle the child having > DS, they can't even think about having any other issues to deal with.>> > > Hi, Everyone....Liz...I, too, was in denial for a long time, but I at > least > had Drs tell me he was autistic. I CHOOSE to stick my head in the sand > waiting for it to go away. That was 12 yrs ago. You would think with > all the > medical updates that more Drs would advice parents of dual dx'ing and > push them > for intervention therapies. Guess that's my point. Maybe it's because we > all > have kids and 'see' the autism so easily. Take care, Everyone. > Margaret > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2005 Report Share Posted July 12, 2005 whats this " instantbuzz.com " thing i keep getting with some of the mail?shawna _________________________________________________________________ Don’t just search. Find. Check out the new MSN Search! http://search.msn.click-url.com/go/onm00200636ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 No he has not. I thought the school psychologist would perform some sort of eval on Freddie. When I left her office I immediately made a call to my pediatrician. He submitted the referral through USCF Children's Hospital. In the mean time I read, read, read. It's a long story about getting referrals but I am sure you all know about that. We are military so times your referral troubles by 20 and you have our problems with the medical system. nna nna: Has your little one had a psychological evaluation by a licensed Pediatric Psychologist? They are the ones trained in diagnosing dd. Liz --------------------------------- Start your day with Yahoo! - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 Hey, maybe some of you other military moms can help her. The child needs to get a psych eval..and not one from a school psych for a dual diagnosis . Liz Liz > No he has not. I thought the school psychologist would perform some sort > of eval on Freddie. When I left her office I immediately made a call to my > pediatrician. He submitted the referral through USCF Children's Hospital. > In the mean time I read, read, read. It's a long story about getting > referrals but I am sure you all know about that. We are military so times > your referral troubles by 20 and you have our problems with the medical > system. > > nna > > > nna: Has your little one had a psychological evaluation by a > licensed > Pediatric Psychologist? > > They are the ones trained in diagnosing dd. > > Liz > > > --------------------------------- > Start your day with Yahoo! - make it your home page > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2005 Report Share Posted July 23, 2005 Thanks, Dawn. Yes, it is good to know that they somehow do outgrow that stage. BUT WHEN??? =) Liz Liz > hope Tori has a good weekend, I know how ya feel with the oubursts. > has them with frustration or sensory needs, but the good news > is he did outgrow the biting!! I am sure Tori will too, I love to hear > from the older kids parents that they outgrow things, yeaaaa, very > encouraging, take care have a good weekend! Dawn > > > > > > -------------------------------------------------- > Checkout our homepage for information, bookmarks, and photos > of our kids. Share favorite bookmarks, ideas, and other information by > including them. Don't forget, messages are a permanent record of the > archives for our list. http://groups.yahoo.com/group/ > -------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.