My new project

[Guest guest]

Hi everyone,

I'm taking a class in my master's program (in education, secondary), and it's a

general intro to Special Education. I happened to mention tonight that Ian had

that dual diagnosis, which the professor had never heard of before (though he

believes it is possible and wants to learn more about it). I have a research

presentation to do with a partner, and we've been allowed to present the dual

diagnosis -- an overview of Down syndrome, of course, and then how the autism

changes things. And so I come here to the experts.

Joan -- is it possible to get a)a single copy of each of the newsletters that

have been published, and b)30 copies of the first newsletter, the general

introduction to the dual diagnosis? I am willing to pay for them, but I'd have

to have them in hand soon. Is this at all possible? I'm also willing to print

them and copy them, if that's allowable.

Everyone -- would you be willing to write a couple of paragraphs about what it's

like to parent a child with this dual diagnosis? What the behaviors are, how

they differ from " just " Down syndrome, how do you feel approaching school

districts and CSEs about getting services, perhaps even some words about the

good and bad experiences you've had with teachers -- really, pretty much

anything and everything you are willing to share. Send them to me at

ckc@..., to avoid clogging up this list. If you'd like me to

change your child's name, I will do so, although to these people, the real name

would make the same difference.

I am kind of excited about this -- here's my chance to get to a classroom full

of teachers who may have one of our kids in his or her classroom, to explain the

real stuff that you can't find in textbooks. I've already spoken up tonight,

when one of my classmates talked about parents in denial and overbearing

parents. I explained what it is like to have a child with a disability -- how

teachers may come and go, but parents are forever; how it feels to be judged and

assessed from the moment you access special services; how it is to sit before a

committee with your hat in your hands, and beg for things for our children that

other children get without question.

I am also thinking of bringing Ian into class one day -- perhaps even for this

presentation -- that he becomes more than a name on a page or a representative

of a syndrome. What do you think of that? Is it asking him to be a performing

monkey, do you think?

Thanks for your attention, folks. Hope all is well with you and yours.

CK,

Mom to Ian (2/89),

(9/90),

and Rose (6/94)

[Guest guest]

Hi CK,

Masters!!! Good for you. I often use Zeb for training purposes. I do not feel I

am using him as a monkey. Any learning opportunities for professionals will

only benefit other children.

Charlyne

Mom to Zeb 12 DS/OCD/ASD?

CK wrote:

Hi everyone,

I'm taking a class in my master's program (in education, secondary), and it's a

general intro to Special Education. I happened to mention tonight that Ian had

that dual diagnosis, which the professor had never heard of before (though he

believes it is possible and wants to learn more about it). I have a research

presentation to do with a partner, and we've been allowed to present the dual

diagnosis -- an overview of Down syndrome, of course, and then how the autism

changes things. And so I come here to the experts.

Joan -- is it possible to get a)a single copy of each of the newsletters that

have been published, and b)30 copies of the first newsletter, the general

introduction to the dual diagnosis? I am willing to pay for them, but I'd have

to have them in hand soon. Is this at all possible? I'm also willing to print

them and copy them, if that's allowable.

Everyone -- would you be willing to write a couple of paragraphs about what it's

like to parent a child with this dual diagnosis? What the behaviors are, how

they differ from " just " Down syndrome, how do you feel approaching school

districts and CSEs about getting services, perhaps even some words about the

good and bad experiences you've had with teachers -- really, pretty much

anything and everything you are willing to share. Send them to me at

ckc@..., to avoid clogging up this list. If you'd like me to change

your child's name, I will do so, although to these people, the real name would

make the same difference.

I am kind of excited about this -- here's my chance to get to a classroom full

of teachers who may have one of our kids in his or her classroom, to explain the

real stuff that you can't find in textbooks. I've already spoken up tonight,

when one of my classmates talked about parents in denial and overbearing

parents. I explained what it is like to have a child with a disability -- how

teachers may come and go, but parents are forever; how it feels to be judged and

assessed from the moment you access special services; how it is to sit before a

committee with your hat in your hands, and beg for things for our children that

other children get without question.

I am also thinking of bringing Ian into class one day -- perhaps even for this

presentation -- that he becomes more than a name on a page or a representative

of a syndrome. What do you think of that? Is it asking him to be a performing

monkey, do you think?

Thanks for your attention, folks. Hope all is well with you and yours.

CK,

Mom to Ian (2/89),

(9/90),

and Rose (6/94)

[Guest guest]

In a message dated 7/10/2005 2:56:28 P.M. Eastern Standard Time,

charlyne1121@... writes:

Hi CK,

Masters!!! Good for you. I often use Zeb for training purposes. I do not

feel I am using him as a monkey. Any learning opportunities for professionals

will only benefit other children.

Charlyne

Mom to Zeb 12 DS/OCD/ASD?

DITTO CK. I'll write to you privately so you can use it for your project.

Donna