Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 ellen....between me and my kids we recieve $1800 per month for lynme disability..... there may not be many of us but we are now getting dis. due to lyme ........proven chronic.....the problem is ssd is not eay to get for anyone and most lymies get discouraged at the first denial......u must appeal appeal..appeal....and as always educate them on what lyme is.....just help someone last nite to file ....gave them my experiance ......we must as hard as it is be strong....(yea i know i feel like crap rite now....but we must fight....) love to all Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 In a message dated 1/10/00 1:46:48 PM Eastern Standard Time, lyme-aidonelist writes: << Date: Mon, 10 Jan 2000 13:43:51 EST From: BearyPrety@... Subject: Re: Getting Patakis attention In a message dated 01/10/2000 12:15:57 PM Eastern Standard Time, LuRock@... writes: << Hi Group, Dr. B says that we need to have our message conveyed directly to Governor Pataki. Was wondering if a rally at his Albany office is in order..... Obviously, the OPMC aren't listening to us.... Any thoughts? Time is running out! >> I'll go , anyone else? just tell me where and when . diana >> Hi , I am ready and I am pretty sure I could round up a few others. I suppose we would need to find out exactly where his office is... Probably , just in the state buildings. We could carpool it to Albany. There are plenty of Lymies up in that area too. I would think , on a short notice, the turnout would not bew a s good as NYC, but How many do we need to make a statement??? Any plans for another rally in NYC or do we move elsewhere? Any other ideas? Anyone else? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 Jeannine, Disability payments vary with the very maximum being about 1,300 a month. However, the government has hit on a plan for saving much of this money. THey have found it more cost effective to turn us all down. If they succeed in getting all our docs out of business, they will have proved there is no chronic Lyme disease, and therefore no more need for Disability payments. I am dead serious. Their solution to the expense of Disability payments will be very simple. Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 Jeannine, The cost to insurers is not really a motivating factor either, since they pass it on to the consumers. Insurance companies give much more to politicians' campaigns than does the average consumer, so their bottom line is really all that counts. Am I sounding a bit cynical? Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 Jeannine, Now on a more positive note.... If you want to come to NY to lobby that would be great. You are an outstanding spokesperson (although maybe you should leave the costume home.) Anyone else let me know by e-mail if you are interested in helping New Yorkers visit their elected officials to discuss the situation with them. If I can coordinate people via e-mail, I will do it. Ellen. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 Jeannine, Me again. Good letter! Thanks. Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 In a message dated 01/10/2000 3:29:33 PM Eastern Standard Time, LuRock@... writes: << Any plans for another rally in NYC or do we move elsewhere? Any other ideas? Anyone else? >> Hey listen this is a critical situation and we need to act fast. I'll do both, albany & nyc again. but we have to know if anyone will attend, and if so how many people can commit to showing up. If we do decide to protest .. we have to do it this week. Next week may be too late. Whos in for NYC again and whos in for ALBANY? I think Pataki's office is our best bet and we should bring our children with us !!! diana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 Ellen Lubarsky wrote: > > From: ellenlu@... (Ellen Lubarsky) > > Jeannine, > Now on a more positive note.... If you want to come to NY to lobby that > would be great. You are an outstanding spokesperson (although maybe you > should leave the costume home.) Anyone else let me know by e-mail if > you are interested in helping New Yorkers visit their elected officials > to discuss the situation with them. If I can coordinate people via > e-mail, I will do it. > Ellen. Dear Ellen: Count me in, unless I'm herxing - I'm on IV 5 1/2 hours/day now, plus orals, and am not feeling particularly perky, but please include me anyway. Lovette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2000 Report Share Posted August 21, 2000 >>>Message: 17 >>>Date: Sun, 20 Aug 2000 21:35:02 -0400 >>> From: " Nittany Lion " <dasweeney@...> >>>Subject: Vitamin K - PDR >>>PDR.net for NursesHere it is , let me know if you need any others I have the PDR >>>online. >>>>-Dawn Dawn, Can you look up the instert for Rogam? Thanks, ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2000 Report Share Posted August 21, 2000 Ya I would love a copy of Rhogam too! List Owner of Vaccinations and Vaccine Info www.geocities.com/mom2q (my work in progress!) Mom of two great kids who are vaccine free! Vitamin K - PDR >>>PDR.net for NursesHere it is , let me know if you need any others I have the PDR >>>online. >>>>-Dawn Dawn, Can you look up the instert for Rogam? Thanks, ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 , I'll send the RhoGAM PDR entry next. FYI I am on No Mail/Web Only so I sometimes don't catch all the messages. Feel free to email me at dasweeney@... to make sure I get the message. -Dawn > >>>Message: 17 > >>>Date: Sun, 20 Aug 2000 21:35:02 -0400 > >>> From: " Nittany Lion " <dasweeney@p...> > >>>Subject: Vitamin K - PDR > > >>>PDR.net for NursesHere it is , let me know if you need any > others I have the PDR >>>online. > > >>>>-Dawn > > Dawn, > > Can you look up the instert for Rogam? > > Thanks, > > > ________________________________________________________________ > YOU'RE PAYING TOO MUCH FOR THE INTERNET! > Juno now offers FREE Internet Access! > Try it today - there's no risk! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 Hi , My seven-year-old autistic son, ny, had to go into hospital last weekend to have a piece of glass removed from his foot last weekend. He was given a general anesthetic, and took it very well. Afterwards, he was sick (vomiting, I mean) for a few hours, but that soon stooped, and he's fine now. Hope that helps. Let me know if you want any more information. Best wishes, Adam Feinstein ---------- >From: > >Subject: [ ] Digest Number 945 >Date: Mon, Mar 5, 2001, 6:31 pm > > Date: Mon, 5 Mar 2001 06:48:15 -0800 > From: " G " <chris50@...> > Subject: Anesthesia and Autism > > Hi everyone~ > > I know this subject has come up before on some of my lists. I'd saved the > posts but unfortunately had a problem with my ISP and everything was wiped > out a month or so ago. > > A Mom has written to me asking about anesthesia for her daughter (12 yo). > If anyone has websites I'd appreciate them. Also, any personal experience, > what was actually used, any affects, etc., I would appreciate it so I can > pass this on to her. She seems to be in urgent need so anything anyone can > provide would be most appreciated. > > Thanks in advance! :-) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Lana, After carefully considering your meds, I agree with the others that it sounds low for OCD, but it has a component of bi-polar which has different concerns. My only question is: with the OCD not being medicated in therapuetic levels, how does anyone know whether this is truly bipolar, and not just OCD rage and obsessions? Otherwise, no, it is not a lot ... Lana: I have two friends with bipolar children. All 3 kids are on many different meds. I suggest that you sign on to a bipolar list where you can talk with parents of kids with bipolar disorder. I think you will find that Park is not being overmedicated. The really important thing is to find someone experienced in treating BPD. Was it you I gave the email of my friend? Please share your concern about the meds with the doc at your appointment. I think we often fall into the trap of trying to out guess the docs. Lord knows I have played around with them myself. I have found honesty to be the best policy when questioning the med issue with my son's pdoc. Jule Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2001 Report Share Posted April 8, 2001 Hi, Everyone, <<<I just discovered the following web page which discusses a connection between root canals and systemic illnesses including arthritis: http://rheumatic.org/teeth.htm I thought this was very interesting, so I have created a poll to find out how many of us have had one or more root canal therapies: /surveys?id=630623>>> , I had arthritis since my teens (granted only aches and stiffness, no joint swelling yet) well before any root canal. So, although I voted 'yes' on the poll, the question really should be on timing... Good idea, though! I've been reading about this and the mercury fillings that some people are apparently sensitive to. Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2001 Report Share Posted April 8, 2001 Sorry, I'm having trouble getting into the poll. However, I wanted to respond. I have had several root canals. I have always had trouble with my teeth. I will be anxious to hear the results. Allayne RE: [ ] Digest Number 945 > Hi, Everyone, > > <<<I just discovered the following web page which discusses a connection > between root canals and systemic illnesses including arthritis: > > http://rheumatic.org/teeth.htm > > I thought this was very interesting, so I have created a poll to find > out how many of us have had one or more root canal therapies: > > /surveys?id=630623>>> > > , I had arthritis since my teens (granted only aches and stiffness, no > joint swelling yet) well before any root canal. So, although I voted 'yes' > on the poll, the question really should be on timing... > > Good idea, though! I've been reading about this and the mercury fillings > that some people are apparently sensitive to. > > Geri > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 <Stachybotrys is not really anything new to scientists. But most of the work so far has been in the realm of veterinary science. Much less is known about its effects on humans, said Kay Soper, an indoor air quality specialist at the Texas Department of Health. "The studies that have been done have dealt more with farm animals and agricultural settings, with moldy hay and grain, and a lot of it has been more on ingestion of these kind of things," Soper said.> when i first found out about my 11 years of exposure at close range to over 35 million cfu's of stachybotrys (along with aspergillus and penicillium), i thought, "surely some scientist will need me in a study." that was five years ago. although there has been no dearth of effort on my part to contact experts, no one has ever asked me to serve as a test case in a study. i understand the reason: animals and hay produce profits, but sick human beings don't. greed is contaminating this world more than any deadly toxin. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 Did my upper body workout on Monday night afterall. I did them at night and then when I was trying to get asleep got chestpains. Guess I overdid it (this happened last year when I started BFL but didn't finish). The pains didn't last long at all but still scary. I think I'll do less weights next time and slowly work into the chest exercises. I wasn't sore yesterday, but I did hit the " throw up zone " and was shakey and aching when I was done, so I must have done some good. There is a free climbing wall near me. I think I'll start going there on Thursdays. I know the last time I did it my upper body ached for a week! Didn't do the lower body workout yesterday because of an emergency telephone call from a friend who had to take her son to the hospital. Blew the diet today, but will start anew tomorrow. I bought some of the Boca burgers. They are all right, but let me tell you the spicy chicken boca is excellent!! you can't even tell it's soy and not any chicken. SO good. I also found a candybar called Pure Delight. I tried the dark chocolate bar. It's for those on lowcarb diets. It has less calories than a Hershey bar. It tastes great but the after taste is another story. It contains Cocoal mass and two other ingredients. It doesn't contain any sugar whatsover. The second ingredient I didn't recognize so I want to do some research on that this weekend. Unfortunately I LOVE to cook, especially bake. I won a gourmet cookbook from a home show I attended. It came via UPS yesterday. Oh how I want to try some of the baked goods. I think I'll make a few on a Saturday and bring them to church on Sunday. That way, I'll have the satisfaction of having one piece and then sharing it with others. The book did have a great sounding granola recipe and a chicken sausage patty with apple and sage recipe. If anyone is interested, I'll share them with you. The patty one has 82 calories and 2 grams of fat. no sugar added. The granola has 2 tablespoons of honey for the sweetness but the calorie content is not listed. Have a great week everyone. Sorry this post is SO long. Terina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2003 Report Share Posted March 10, 2003 I'm not sure of the rules of posting web addresses here so I won't say who I buy from, but if you do a search for shea butter and essential oils you should find plenty of places to buy it from. You can make your own shea butter products, but I don't believe (correct me if I'm wrong) you can make your own shea butter. > Message: 3 > Date: Mon, 10 Mar 2003 18:55:39 -0000 > From: " tathinina " <tathinina@...> > Subject: Shea Butter > > Does anyone here make shea butter? I usually purchase homemade shea > butter but I would prefer to make my own. Where would I be able to > find the bar (shea butter) and nice oils that I can put in it to give > a nice smell, and canisters(containers) to put the shea butter in. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2003 Report Share Posted May 27, 2003 Sorry I am unavailble until the 9th June, please contact Jackie McFadyen for help or information tel 0141 848 3782 Legal disclaimer -------------------------- The information transmitted is the property of the University of Paisley and is intended only for the person or entity to which it is addressed and may contain confidential and/or privileged material. Statements and opinions expressed in this e-mail may not represent those of the company. Any review, retransmission, dissemination and other use of, or taking of any action in reliance upon, this information by persons or entities other than the intended recipient is prohibited. If you received this in error, please contact the sender immediately and delete the material from any computer. -------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 In a message dated 1/31/04 7:41:04 AM Mountain Standard Time, SSRI medications writes: > These dogs are extremely anxious and suffering, they may even go as far as > to jump out of a window, or break off teeth trying to escape from a crate I'd be biting too if someone stuck me in a crate all day long. The trouble is not with the dogs, it's with the people who own them!!!! Blind Reason a novel of espionage and pharmaceutical intrigue Think your antidepressant is safe? Think again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 In a message dated 1/31/04 7:41:04 AM Mountain Standard Time, SSRI medications writes: > What did she say about 911? > Pippa x > She made some comment about " what was the big deal? " and that all the traffic, congestion, chaos in her neighborhood (which was apparently not that far from the WTC) really inconvenienced her, and that she " couldn't understand what the fuss what about. " Well, those comments caused the movie company to think twice abour releasing her movie Prozac Nation. This chick makes me ill. Blind Reason a novel of espionage and pharmaceutical intrigue Think your antidepressant is safe? Think again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 In a message dated 1/31/04 7:41:04 AM Mountain Standard Time, SSRI medications writes: > What did she say about 911? > Pippa x > She made some comment about " what was the big deal? " and that all the traffic, congestion, chaos in her neighborhood (which was apparently not that far from the WTC) really inconvenienced her, and that she " couldn't understand what the fuss what about. " Well, those comments caused the movie company to think twice abour releasing her movie Prozac Nation. This chick makes me ill. Blind Reason a novel of espionage and pharmaceutical intrigue Think your antidepressant is safe? Think again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2004 Report Share Posted April 10, 2004 Re: Re: update In a message dated 4/7/2004 11:13:16 PM Pacific Standard Time, rlclark77@... writes: Actually, I would not mind the birds as my alarm clock. LOL wow,, you mind waking up at 5am?? me.. a late one!..... rather wake at 9am. Lee Quote Link to comment Share on other sites More sharing options...
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