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Dr. Capone?

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Hi All,

I know that a lot of you go to Dr. Capone in Baltimore. As I'm trying to

figure out something that'll work for Hannah, my options are becoming fewer. I

was wondering, do you only go to Dr. Capone when you're at the end of your

rope and are thinking medications might help? Or do you go for other things

other

than meds? I don't think we're at the meds point as Hannah doesn't really

have any self-injurious behaviors, nor is she typically aggressive with anyone

else. I'm wondering could he help us if we have no need for medications?

Also, I've got 2 weeks to use up the rest of my funds before they are cut

by the state so I'm still writing up my special needs shopping list. Got some

good ideas from one of you - any other ideas?

a (Drew 13, Tourette's syndrome, OCD, ADHD; Marissa 10; Hannah 8

DS/Aut)

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In a message dated 3/17/2005 11:11:06 A.M. Eastern Standard Time,

kpblackmail@... writes:

Hi All,

I know that a lot of you go to Dr. Capone in Baltimore. As I'm trying to

figure out something that'll work for Hannah, my options are becoming fewer.

I

was wondering, do you only go to Dr. Capone when you're at the end of your

rope and are thinking medications might help? Or do you go for other things

other

than meds? I don't think we're at the meds point as Hannah doesn't really

have any self-injurious behaviors, nor is she typically aggressive with

anyone

else. I'm wondering could he help us if we have no need for medications?

Also, I've got 2 weeks to use up the rest of my funds before they are cut

by the state so I'm still writing up my special needs shopping list. Got

some

good ideas from one of you - any other ideas?

a

a,

Maddie has been going to Dr. Capone since she was 2. Yes, we were at

the end of our rope at the time. We stopped going for a few years, then hit

the end of that rope again and went back. Maddie was also part of a study

he was doing, so even though he didn't see her as a patient those few years,

we were going back and forth. We didn't decide to go the med route until

two years ago. Dr. Capone had always discussed meds with us, but we told

him from the beginning that we'd only try them if we felt we had to. We did

reach that point. Margaret gave you some really good info on the conference

we attended last Saturday. One of the things Dr. Capone talks about when

considering meds, is to prioritize........think about what behavior is

inhibitive to your child's learning and functioning in the family. For us, it

was

easy....Maddie's behaviors were severely effecting her ability to learn and

function in the family. The stats on the success rate in kids who

started risperdal were HUGE. And talked about the cognitive changes in

kids who started risperdal, and we clearly saw that with Maddie. I remember

saying, " Wow, she seems more lucid, more clear....like the lights are on " .

She's now on abilify. We go back to see next month. I think our

priority now is the obsessive eating.

Good luck,

Donna

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