Louise/Joni/Robyn

[Guest guest]

<<I was thinking more about this and wondered if we are talking

about the same condition. With the slipped capital femoral epiphysis the top

or ball of the femur is slipping off. Early in growth this is not fused Wish

I could draw you a picture. Does Gareth have this or the ball joint slipping

out? Louise >>

Hi, Everyone....Louise...I have never heard of SCFE. Gareth had a solid

femoral head (ball) that wore away the hip socket because he would sit and pop

it in and out all the time. VERY GROSS sounding!!! Is SCFE the same or is

that a weakened femoral head (ball) itself?

<<At what age were your kids able to handle routine cleanings at the

dentist? Did/do you have to restrain them, or were they able to cooperate? Do

big

jobs like 's, or even simple fillings, generally require the type of

approach we needed to take with ?

Do some kids simply not notice, or seem to respond, to chronic pain or

discomfort? Joni and kids, incl. , 6, Ds and ASD>>

Joni....I just had Gareth (16 y/o) to the dentist for a cleaning. I have

never allowed him to be strapped down, papoosed, or taken back where he could

not be with or see me. Gareth insists that I hold his hand the whole time he's

in the chair. I have walked out of dentists offices if they insist parents

can't go back. When he was younger, it was a major anxiety issue....why in the

world they expect you to leave them is beyond my comprehension. Anyways,

initially, Gareth would have nothing to do with it. We found a ped. dentist in

Ca. that allowed us to bring him in once a week to get use to him and the

place. If I remember correctly (10 yrs. ago) it took him 4 times before he

would even get into the dentist chair!!! Then the dentist gives them the tools

to touch and look at. It was 6 months before that dentist even got to look

into his mouth and clean his teeth. He was sooooooooo patient and I don't

even remember his name!!! All he did was brush them with a strong fluoride

paste, but it was a start. Now, Gareth will allow them to scrape the tarter off

(most of it), put on fluoride, and shine his teeth. Mouth bites for cavities

(X-rays) are impossible because he can't open his mouth wide enough, but he

will stand still and allow them to do a panoramic X-ray of his face. We have

moved a lot and I have always asked the dentists if I am allowed to be with

him. As for the rotten teeth and cavities, Gareth has never had

any.....knock on wood!!!

Robyn....welcome to the group. Gareth is a picky eater, but he will bite

and chew foods. Sorry I can't offer any advice.

Take care, Everyone.

Margaret