Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 JUST TRYING TO SEE IF I CAN GET THIS MESSAGE THROUGH...I HAVE SENT ONE BEFORE AND NEVER SAW IT POSTED . THANKS , PEGGY LAGO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 I got this one Peggy. Louise NEWBIE JUST TRYING TO SEE IF I CAN GET THIS MESSAGE THROUGH...I HAVE SENT ONE BEFORE AND NEVER SAW IT POSTED . THANKS , PEGGY LAGO -------------------------------------------------- Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. http://groups.yahoo.com/group/ -------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 In a message dated 1/13/2005 6:28:31 PM Eastern Standard Time, dspn@... writes: JUST TRYING TO SEE IF I CAN GET THIS MESSAGE THROUGH...I HAVE SENT ONE BEFORE AND NEVER SAW IT POSTED . THANKS , PEGGY LAGO sorry Peggy I didn't see your post. Welcome! Carol Trishasmom She isn't typical, She's Trisha! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 Welcome, Peggy! NEWBIE JUST TRYING TO SEE IF I CAN GET THIS MESSAGE THROUGH...I HAVE SENT ONE BEFORE AND NEVER SAW IT POSTED . THANKS , PEGGY LAGO -------------------------------------------------- Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. http://groups.yahoo.com/group/ -------------------------------------------- ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2005 Report Share Posted February 27, 2005 Kim, Welcome to the group. I understand completely how you feel. I also have a 13 yo daughter with DS/Autism. She is not fully toilet trained either and we are working on that we a behavior consultant. She has several rituals and she tests for being average on having autism yet the school keeps saying it's the DS. We are using total communication with her but her preference right now seems to be sign language. She is also in a self-contained class ever since she started school at 2 1/2. I think having her in the self-contained class actually caused her more delays than her disablity. I am currently working with her at home on several things, reading, writing, numbers, letters, counting and she is a quick learner once she decides to stop being stubborn and sit down to task. Some days we get nothing accomplished because she just refuses to work and other days she zips right on through it. I am now trying to figure out what motivates on some days and not others and see how I can help. Carol Trishasmom She isn't Typical, She's Trisha! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2005 Report Share Posted February 27, 2005 Welcome Kim. This group of people are wonderful and will be there for you. Liz-Mom to Tori 5 yo DS-ASD Newbie Hello Everyone! My name is Kim and I am a SAHM to 4 wonderful kids. My oldest, , is 14 and has DS. I found this group searching Yahoo and thought maybe I could get some answers here. I have often wondered if didn't have some underlying Autism. She is not a high functioning Downs child. She is only half toilet trained, her speech is almost unintelligable to most people (maybe 10-20 intelligable words), and she is VERY routine oriented. I have asked Drs and therapists and they say that she doesn't have all the characteristics of Autism. Is it possible for her to just have a few? When she goes out into public, like to restaurants for example she only orders one thing...Cheeseburgar..I have tried to get her to order something different and she just gets angry and upset. I am currently homeschooling her because the schools have kept her in a contained classroom for years and are now wanting to teach her life skills. I felt I could work on this with her at home. Sometimes I get " depressed " because I watch other kids with Downs that are extremely high functioning, and then I see who can't speak, read, or write...... Sorry to be rambling Thanks for listening! Kim Mom to 14, 12, 10 and 4 www.usbornedreams.com -------------------------------------------------- Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. http://groups.yahoo.com/group/ -------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2005 Report Share Posted February 27, 2005 Welcome Kim and , I want you to know that there are great strategies that will help you and your daughter. She can achieve great things with you as her advocate. This web site and the breadth of knowledge that all the parents have here is a fantastic resource. To answer your question, yes, it is possible to have a few of the characteristics of autism and not all of them. That is why they call it Autistic Spectrum Disorder because children's symptoms fall all over the spectrum. There is a very good comprehensive article on DS and Autism available on the web at www.disabilitysolutions.org/3-5.htm. It's a great place to start. My 14 yo daughter, , has the DS PDD diagnosis. She did not get diagnosed until she was 11 yo. She was given the PDD diagnosis because she exhibited only 50%-60% of the diagnostic criterion for autism. Although since joining this group, I would say that she is very similar to the kids with the DS ASD diagnosis. Few children exhibit all 18 of the diagnostic criterion. My daughter's main symptoms are: 1. She is basically nonverbal and like , she has about 20 words that are intelligible. She lost some language at around 4 yo. She also lost all sign at that time. Now she communicates with PECS, an augmentative comm. Device, a communication book and her limited speech. For us, communication problems are the biggest limiting factor from the autism and they are what we work on the most. We have conquered a lot of the behavioral issues we used to have. 2. She constantly has to have a stim object to dangle, like a piece of rolled fabric, or a dangly toy. Now she will put it away in her backpack when asked. She used to always have to be jumping or spinning but that has lessened with behavior mod. 3. She had a lot of difficulty with transitions and changes in routine but with the diagnosis and visual communication schedules, we have conquered most of those problems. Before, a change in routine with an unexpected transition would send her into near convulsions. 4. She often has to be prompted to engage socially. If given the chance, she prefers to cloister herself alone in her room. Since her diagnosis and the use of visual communication, she will engage spontaneously on occasion now and will generally tolerate others interacting with her. 5. Too much stimulus, crowds, noise etc, would set off horrific tantrums where she would lie on her stomach and scream or drop and spin in circles. This made it difficult to take her to stores, church, etc. Now with the diagnosis, we have also conquered this. She now goes on many community field trips with her class with no problems at all. Actually, it was her current teacher who helped the most with this by taking out in the community three times each week. This was a life skills IEP goal and I think that it has been a lifesaver for our family. I used to discount the value of life skills classes but now I am grateful for them. I think balancing them with academics has made my daughter happier. 6. She, like most kids on this site, will watch the same video over and over if she is allowed. Or get fixated on a certain song etc. She has a few others like food fixations, etc. She attends a visually based communication classroom has made a lot of progress since her diagnosis. She was toilet trained at five but it was very, very difficult and we hired a specialist to help us. She does have a lot of strengths too. She is very artistic and loves to draw. She is sweet and kind and funny. I am rambling on here, but I wanted to give you some information and encouragement. I hope it helps. Therese Mom to 14 yo DS PDD > > > Hello Everyone! > My name is Kim and I am a SAHM to 4 wonderful kids. My oldest, > , is 14 and has DS. I found this group searching Yahoo and > thought maybe I could get some answers here. I have often wondered if > didn't have some underlying Autism. She is not a high > functioning Downs child. She is only half toilet trained, her speech > is almost unintelligable to most people (maybe 10-20 intelligable > words), and she is VERY routine oriented. I have asked Drs and > therapists and they say that she doesn't have all the characteristics > of Autism. Is it possible for her to just have a few? When she goes > out into public, like to restaurants for example she only orders one > thing...Cheeseburgar..I have tried to get her to order something > different and she just gets angry and upset. I am currently > homeschooling her because the schools have kept her in a contained > classroom for years and are now wanting to teach her life skills. I > felt I could work on this with her at home. Sometimes I > get " depressed " because I watch other kids with Downs that are > extremely high functioning, and then I see who can't speak, > read, or write...... > > Sorry to be rambling > > Thanks for listening! > > Kim > Mom to 14, 12, 10 and 4 > > www.usbornedreams.com > > > > > > > -------------------------------------------------- > Checkout our homepage for information, bookmarks, and photos of > our kids. Share favorite bookmarks, ideas, and other information by including > them. Don't forget, messages are a permanent record of the archives for our > list. http://groups.yahoo.com/group/ > -------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2005 Report Share Posted February 28, 2005 In a message dated 2/27/2005 11:33:18 AM Eastern Standard Time, kglenny@... writes: > Sometimes I > get " depressed " because I watch other kids with Downs that are > extremely high functioning, and then I see who can't speak, > read, or write...... Hi Kim, Where are you from? Yes, I think DS kids can have autistic traits but not autism. My son does not have the DX although they was a question of ASD, somedays I think yes others no. The school should have offered an augmentive device so she could communicate. If you do not ask for the schools to teach acaemic skills the minset will be only functional. I am not a big homeschooling fan but if the school districts are that terribel sometimes it's not an option. I suppose you have to pick your battles. Charlyne Mom to Zeb 12 DS/OCD/ASD? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2005 Report Share Posted February 28, 2005 Wow Therese!! Thank you so much for your post. You have described to a " T " ! I am beginning to not feel so crazy. lol. Thank you to everyone for responding! I am looking forward to being a part of this group. Kim www.usbornedreams.com Quote Link to comment Share on other sites More sharing options...
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