Guest guest Posted January 11, 2005 Report Share Posted January 11, 2005 Carol, I have to agree with you, most of these tests feel very depressing to me and they don't reflect who my girls are or their strengths. Cheryl > We took Trisha to what we thought would be her psycological and educational > eval but turns out it was the pre-meeting to determine what tests to use for > the actual eval. I was given several forms to fill out and return for the > eval next week. One of the forms is the ABAS-II parent form and the other is > Child Behavior Checklist for ages 6-18 and the last one is a one page Behavior > Rating Scall (DSM-IV) Alot of the questions on these forms either do not > pertain to Trisha, or needs modifications or supervision but there is no where > on the form for that other than a small area for comments which is neither > enough room for all the comments nor adequate enough for explanation. When are > they going to come up with a form that is more suitable for our kids? I > realize there is more than just scoring that takes place with these forms but I > also know that these forms really do not give a clear and accurate picture of > our kids. on the ABAS it really was depressing when I looked at the markings > Home Living was 26/75 > Health and Saftey 13/66 > Communication 10/72 > Community use 0/69 > Leisure 14/66 > Self-care 29/72 > Self-direction 9/75 > Social 23/69 > Functional Academics 3/69 > > Under The Child Behavior Checklist > some of the questions were like these: > Acts too young for her age (which age? mental or chronological?) > Sees things that isn't there (considering she is pretty much non- verbal, how > would I know?) > Secretive keeps things to herself, well since she is non-verbal I bet she > can hold a secret pretty good. > Speech problem- again non-verbal > Strange behavior (I guess some of her behavior to others may seem strange > but for us it's the norm) > Stubborness (well heck who isn't from time to time) > Talks about killing self (again non-verbal how would she talk about it if > she doesn't have a way?) > wishes to be of opposite sex( heck she doesn't even know what that means) > worries (and I would know this how?) > I " m sorry, I know that these assessments are a necessary evil but do the > forms have to be so negative. There are enough children with special needs that > they should be able to write a form that is more appropriate to our > children's needs. Most of these forms are written for the speaking world more so > than for the non-verbal. There should at least be a column for non-verbal so > that our kids don't look like they can't do anything. Sorry but these forms > just make me so angry everytime I have to fill them out and so far I have not > really seen an accurate picture of my child described by these professionals > and a working educational plan evolved around these assessments. What I have > seen is the schools being more limiting because of these assessments. I am > also not so sure that even the psycologist all get it, at th e meeting with > the psycologist the special ed director and I were both there and I mentioned > that Trisha was not getting adequate peer role-modeling because all she was > doing was taking up space in the resource classes she wasn't included in the > participation part and the psycologist goes, doesn't she go to music and art, > I'm like yes she goes but she sits in the back with the aid in her own little > world and she is not pulled into the group to be part and to particpate. > Just being in the same room is not beneficial, being included and participating > IS beneficial. When are they going to get that? Sorry this is so long but > boy am I getting fed up! > > Side note: I just heard a car horn, I go to see who it is, and my lovely > daughter (who Ithought was getting dressed after her bath) was sitting in the > driver's seat buck naked trying to put the keys in the ignition. > > Carol > Trishasmom > She isn't typical, She's Trisha! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2005 Report Share Posted January 11, 2005 Carol When reading the questions I could feel my blood pressure rising at yet another stupid form that makes no sense, but usually ends up doing more damage than good for our kids. But... thank you for your " side note " my pressure is now back to normal after the hearty laugh at picturing your the " new driver " in your family!! Psycological Assessment forms depressing... We took Trisha to what we thought would be her psycological and educational eval but turns out it was the pre-meeting to determine what tests to use for the actual eval. I was given several forms to fill out and return for the eval next week. One of the forms is the ABAS-II parent form and the other is Child Behavior Checklist for ages 6-18 and the last one is a one page Behavior Rating Scall (DSM-IV) Alot of the questions on these forms either do not pertain to Trisha, or needs modifications or supervision but there is no where on the form for that other than a small area for comments which is neither enough room for all the comments nor adequate enough for explanation. When are they going to come up with a form that is more suitable for our kids? I realize there is more than just scoring that takes place with these forms but I also know that these forms really do not give a clear and accurate picture of our kids. on the ABAS it really was depressing when I looked at the markings Home Living was 26/75 Health and Saftey 13/66 Communication 10/72 Community use 0/69 Leisure 14/66 Self-care 29/72 Self-direction 9/75 Social 23/69 Functional Academics 3/69 Under The Child Behavior Checklist some of the questions were like these: Acts too young for her age (which age? mental or chronological?) Sees things that isn't there (considering she is pretty much non-verbal, how would I know?) Secretive keeps things to herself, well since she is non-verbal I bet she can hold a secret pretty good. Speech problem- again non-verbal Strange behavior (I guess some of her behavior to others may seem strange but for us it's the norm) Stubborness (well heck who isn't from time to time) Talks about killing self (again non-verbal how would she talk about it if she doesn't have a way?) wishes to be of opposite sex( heck she doesn't even know what that means) worries (and I would know this how?) I " m sorry, I know that these assessments are a necessary evil but do the forms have to be so negative. There are enough children with special needs that they should be able to write a form that is more appropriate to our children's needs. Most of these forms are written for the speaking world more so than for the non-verbal. There should at least be a column for non-verbal so that our kids don't look like they can't do anything. Sorry but these forms just make me so angry everytime I have to fill them out and so far I have not really seen an accurate picture of my child described by these professionals and a working educational plan evolved around these assessments. What I have seen is the schools being more limiting because of these assessments. I am also not so sure that even the psycologist all get it, at th e meeting with the psycologist the special ed director and I were both there and I mentioned that Trisha was not getting adequate peer role-modeling because all she was doing was taking up space in the resource classes she wasn't included in the participation part and the psycologist goes, doesn't she go to music and art, I'm like yes she goes but she sits in the back with the aid in her own little world and she is not pulled into the group to be part and to particpate. Just being in the same room is not beneficial, being included and participating IS beneficial. When are they going to get that? Sorry this is so long but boy am I getting fed up! Side note: I just heard a car horn, I go to see who it is, and my lovely daughter (who Ithought was getting dressed after her bath) was sitting in the driver's seat buck naked trying to put the keys in the ignition. Carol Trishasmom She isn't typical, She's Trisha! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2005 Report Share Posted January 11, 2005 In a message dated 1/11/2005 5:21:49 PM Eastern Standard Time, Csvillars@... writes: > Side note: I just heard a car horn, I go to see who it is, and my lovely > daughter (who Ithought was getting dressed after her bath) was sitting in > the > driver's seat buck naked trying to put the keys in the ignition. Hi Carol, LOL!!! Never a dull moment. It wasn't Zeb so I can laugh, sorry. The psychological testing is only a small piece of the picture. If at anytime you feel that any of the testing is not appropriate for Trisha you have the right to refuse any particular test that you do not agree with. In doing that you should ask the psychologist what other tests would best portray the questions that the team is trying to answer. The psychologists are well versed on various and alternative tests. You do not have to sign or agree to any forms of testing if you feel the team has adequate data on Trisha. Some of the testing is redundant. Trisha is not being appropriately included. Trisha should not be sitting in the back of the class with an aide attached to her hip. I would ask that the team attend inclusive training classes immediately. You also have a right to request the team be trained if they are having difficulty accomodating her in the classroom. I would ask what books on inclusion are available in the school library for the teachers. If no books are available for reference in the school request that the IEP chair order the books. I will supply you with a book list if you are not familiar with any. Insist that seating with her peers during the general ed classes are imperative and the general ed teacher needs to take ownership of Trisha as her student. She is not the aide's student. Trisha's accomodations and modifications in that classroom are the responsibility of the teacher not the special ed dept. Special ed teachers should provide support for the general teacher not Trisha directly. Special education is a service, remind the team. It is Trisha right to be successfully included in the least restrictive enviroment( that is with proper supports). The concept is not new and has been the law for 30 yrs. You need to hold them accountable. Charlyne Mom to Zeb 12 DS/OCD/ASD? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2005 Report Share Posted January 11, 2005 We used the VINELAND assessment for Elie which allowed for age (Mwental and Chron) and started in each area at the earliest level (identifies fingers, reaches for toys, .........plans games) . I found it most useful and have reused it twice. Sara - Choose to make lemonade, not complain about the lemons. > >Reply-To: >To: >Subject: Re: Psycological Assessment forms depressing... >Date: Tue, 11 Jan 2005 23:20:17 -0000 > > > >Carol, >I have to agree with you, most of these tests feel very depressing to >me and they don't reflect who my girls are or their strengths. > >Cheryl > > > > We took Trisha to what we thought would be her psycological and >educational > > eval but turns out it was the pre-meeting to determine what tests >to use for > > the actual eval. I was given several forms to fill out and return >for the > > eval next week. One of the forms is the ABAS-II parent form and >the other is > > Child Behavior Checklist for ages 6-18 and the last one is a one >page Behavior > > Rating Scall (DSM-IV) Alot of the questions on these forms either >do not > > pertain to Trisha, or needs modifications or supervision but there >is no where > > on the form for that other than a small area for comments which is >neither > > enough room for all the comments nor adequate enough for >explanation. When are > > they going to come up with a form that is more suitable for our >kids? I > > realize there is more than just scoring that takes place with >these forms but I > > also know that these forms really do not give a clear and accurate >picture of > > our kids. on the ABAS it really was depressing when I looked at >the markings > > Home Living was 26/75 > > Health and Saftey 13/66 > > Communication 10/72 > > Community use 0/69 > > Leisure 14/66 > > Self-care 29/72 > > Self-direction 9/75 > > Social 23/69 > > Functional Academics 3/69 > > > > Under The Child Behavior Checklist > > some of the questions were like these: > > Acts too young for her age (which age? mental or chronological?) > > Sees things that isn't there (considering she is pretty much non- >verbal, how > > would I know?) > > Secretive keeps things to herself, well since she is non-verbal I >bet she > > can hold a secret pretty good. > > Speech problem- again non-verbal > > Strange behavior (I guess some of her behavior to others may seem >strange > > but for us it's the norm) > > Stubborness (well heck who isn't from time to time) > > Talks about killing self (again non-verbal how would she talk >about it if > > she doesn't have a way?) > > wishes to be of opposite sex( heck she doesn't even know what that >means) > > worries (and I would know this how?) > > I " m sorry, I know that these assessments are a necessary evil but >do the > > forms have to be so negative. There are enough children with >special needs that > > they should be able to write a form that is more appropriate to >our > > children's needs. Most of these forms are written for the >speaking world more so > > than for the non-verbal. There should at least be a column for >non-verbal so > > that our kids don't look like they can't do anything. Sorry but >these forms > > just make me so angry everytime I have to fill them out and so far >I have not > > really seen an accurate picture of my child described by these >professionals > > and a working educational plan evolved around these assessments. >What I have > > seen is the schools being more limiting because of these >assessments. I am > > also not so sure that even the psycologist all get it, at th e >meeting with > > the psycologist the special ed director and I were both there and >I mentioned > > that Trisha was not getting adequate peer role-modeling because >all she was > > doing was taking up space in the resource classes she wasn't >included in the > > participation part and the psycologist goes, doesn't she go to >music and art, > > I'm like yes she goes but she sits in the back with the aid in her >own little > > world and she is not pulled into the group to be part and to >particpate. > > Just being in the same room is not beneficial, being included and >participating > > IS beneficial. When are they going to get that? Sorry this is so >long but > > boy am I getting fed up! > > > > Side note: I just heard a car horn, I go to see who it is, and my >lovely > > daughter (who Ithought was getting dressed after her bath) was >sitting in the > > driver's seat buck naked trying to put the keys in the ignition. > > > > Carol > > Trishasmom > > She isn't typical, She's Trisha! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 In a message dated 1/11/2005 11:53:39 PM Eastern Standard Time, charlyne1121@... writes: The concept is not new and has been the law for 30 yrs. You need to hold them accountable. you have to remember in this county anything under 300 is new! The church I work at was moved from it's orginal location (built in 1630) in 1737 and it's still called the new Church. Carol Trishasmom She isn't typical, She's Trisha! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 In a message dated 1/12/2005 2:57:20 PM Eastern Standard Time, Csvillars@... writes: > you have to remember in this county anything under 300 is new! The church > I > work at was moved from it's orginal location (built in 1630) in 1737 and > it's still called the new Church. > Hi Carol, LOL, I hear you, more reason to insist the staff be retrained. Sit in a PPT with a sped law book it may spark them into doing the right thing,LOL. Ask for an IEE anything that will add additional costs to the district. I seem to find the old school fades fast when it involves the pocketbook. Charlyne Mom to Zeb 12 DS/OCD/ASD? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 In a message dated 1/12/2005 5:18:02 PM Eastern Standard Time, charlyne1121@... writes: LOL, I hear you, more reason to insist the staff be retrained. Sit in a PPT with a sped law book it may spark them into doing the right thing,LOL. Ask for an IEE anything that will add additional costs to the district. I seem to find the old school fades fast when it involves the pocketbook. Well,now that you mentioned it, we are having several evals being done that the school is paying for so we shall see what they do next. Carol Trishasmom She isn't typical, She's Trisha! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 In a message dated 1/12/2005 5:30:25 PM Eastern Standard Time, Csvillars@... writes: > Well,now that you mentioned it, we are having several evals being done > that > the school is paying for so we shall see what they do next. Hi Carol, I'm sure they will provide the staff with helpful information in addition to your asking for staff training on anything you feel that would be helpful for Trisha. Charlyne Mom to Zeb 12 DS/OCD/ASD? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 don't be too sure! I have already contacted the dept of Ed about training for staff and parent in sign language, the special ed director is taking her own sweet time in arranging a time for this to take place, but I'll just keep on after her and if she hasn't set something up by the end of this month, I'll see about filing a state complaint. Carol Trishasmom She isn't typical, She's Trisha! Quote Link to comment Share on other sites More sharing options...
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