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Hello all,

My daughter Ellen (7, DS/Autism) has had sleep problems for several

years - waking up 2-4 times per night, insisting that someone lay down

with her until she falls asleep, finding trouble before finding us if

she wakes up, etc... :) We had her on Benadryl (for post-sinus

surgery) as well as melatonin for a while, and are still using the

melatonin. While on the nightly Benadryl dose, she woke up fewer

times. The melatonin by itself only seems to help her get to sleep

initially, but doesn't reduce the frequency of night disturbances. We

just got her to the point of sleeping without overnight diapers, and I

am afraid that if I start her on Benadryl again, we will lose ground

on the overnight potty training bit.

So - question 1: has anyone noticed problems with Benadryl hampering

potty training? Question 2: have any of you tried a different

approach (different medication or something) to sleep problems?

Question 3: does the sleep problem go away or improve with age or any

kind behavior modification training?

Thank you all so much!

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Have you considered a sleep study? We found that the waking up sleep issue

pretty much disappeared after T & A surgery. We do have issues about GOING to

sleep but not staying asleep.

We use Benedryl when Elie goes away to camp to help him get to sleep. At

home, he is a " sundowner " in that he cannot eat dinner until it is dark

outside and cannot sleep until about 2 hours after he eats. Makes for LONG

nites in the summer. In the winter it is much better.

Sara

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Hi ,

My Rochelle had the sleep problems for about a year. We changed her

diet and I made sure she stayed in her bed when she woke up. It took

a week of sleep deprived state. It was very difficult but worked.

She still has bad nights once in a while. Usually when she gets cold

(air conditioner), (hot) or sick. We were ready to put her on

medication but never ended up doing it. At on point I even put her

on the potty everytime she got up and she hated that. I am glad we

don't have to lay with her till she falls asleep. We tried music and

nightlight but she does not require these anymore. I had to be

really firm which is hard to do when you want to sleep.

Good luck, I know you need your sleep. It is a common problem and

quite stressful.

I wish Rochelle was potty trained. She just turned eight. It is very

difficult because she does not talk or try to communicate. She goes

everytime she is on the potty. We just went to underwear. She has

dry days and wet days. Any advice on this would be appreciated.

Diane in VA :)

> Hello all,

>

> My daughter Ellen (7, DS/Autism) has had sleep problems for several

> years - waking up 2-4 times per night, insisting that someone lay

down

> with her until she falls asleep, finding trouble before finding us

if

> she wakes up, etc... :) We had her on Benadryl (for post-sinus

> surgery) as well as melatonin for a while, and are still using the

> melatonin. While on the nightly Benadryl dose, she woke up fewer

> times. The melatonin by itself only seems to help her get to sleep

> initially, but doesn't reduce the frequency of night

disturbances. We

> just got her to the point of sleeping without overnight diapers,

and I

> am afraid that if I start her on Benadryl again, we will lose

ground

> on the overnight potty training bit.

>

> So - question 1: has anyone noticed problems with Benadryl

hampering

> potty training? Question 2: have any of you tried a different

> approach (different medication or something) to sleep problems?

> Question 3: does the sleep problem go away or improve with age or

any

> kind behavior modification training?

>

> Thank you all so much!

>

>

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remember to keep her potty times on a schedule, the exact same times each

day and her bladder will kick in to this. nahtan wasnt potty trained until

around 9yrs, and over the last year or so we even have dry nights, no more

pull-ups, but we still keep some handy. Another thing we use to do and do now if

he does have an accident is he has to wash up, and help clean up his mess, thus

instills cleanlyness/hygeine and figures out that its much easier to use the

toilet than have to shower and change clothing etc. Stick with it, it will

come. shawna

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i agree the sleep study is very important, after we found out nathan had

horrible sleep apnea, an dhe got put ona cpap machine, he goes to sleep no

problem anymore, with in a few minutes after that cpap mask goes on, rather

weird-- no if we could just get him to leave it on ALL nite, he would be fine,

he

does good anywhere from a couple hours to around 5or 6 hours a nite, i keep

reminding him to leave it on unitl his scooby clock goes off, but his last eval

to up the pressure, they said he reemoves it in his sleep so its not

intentional. shawna.

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we occasionally give nathan benedryl if he is very hyper from a movie outing

etc to help him get to sleep and it hasnt hindered his night time potty

training. As for the age thing, i think he understand more, so its not such an

issue, for eg: he knows to stay in his room, and watch his tv or play toys, and

if he is hungry he has learned to come and get me instead of downing all the

milk and juice or bread. We still have a baby monitor in his room so we can

hear him, but he seems to be more independent with age, and more trustworthy.

shawna

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Thanks everyone for the advice on pottying. a I do need to do a

consistant schedule. I just kind of put her on at typical times like

after eating or drinking. The school is not consistant either. I do

think she doesn't void everything each time. She holds back some for

later. Her moods determine what she does. If she is bored or mad

then I can expect accidents. If she has a pee pee accident and I

scold her then she will immediately do a bm on the toilet. She tries

to please.

As for the communication piece, Rochelle is prompted to use pictures

but will never let us know when she has to go. I know she is ready

because she is dry through the night if we put her on right before

bed and right when she gets up.

Thanks again.

Diane

> remember to keep her potty times on a schedule, the exact same

times each

> day and her bladder will kick in to this. nahtan wasnt potty

trained until

> around 9yrs, and over the last year or so we even have dry nights,

no more

> pull-ups, but we still keep some handy. Another thing we use to do

and do now if

> he does have an accident is he has to wash up, and help clean up

his mess, thus

> instills cleanlyness/hygeine and figures out that its much easier

to use the

> toilet than have to shower and change clothing etc. Stick with

it, it will

> come. shawna

>

>

>

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