Re: what jackson's IEP says and how they twisted it to their adva...

[Guest guest]

In a message dated 10/17/2004 3:27:59 PM Eastern Daylight Time,

jacksonsmom99@... writes:

> At present exhibits considerable delays in speech and language

> skills, cognitive skills, fine and gross motor skills, and socialization

skills.

>

Hi Jayne,

Sounds like my DS child when he starting kindergarten, so what, what are

's strengths? Start with how is successful, what works and what

doesn't. My child was fully included in kindergarten with all the delays you

mentioned above. The school's so called inclusive kindergarten is not a very

good

program. Any child typical or not should never be pulled aside and isolated in

another part of a classroom for instruction. A true inclusive program

intergrates lessons throughout the day to reinforce instuction to all the

students in

a natural setting with related services. The school does not practice a true

inclusive program. Ask the school for to be included with his age

appropriate typical peers throughout the day with a 1-1 aide and sped 1-1

services

with a sped teacher not an aide. An aide is not a teacher and should not be

responsible for 1-1 instruction unless under the direct supervision of a sped

teacher. The program has to be designed to meet the needs of the child not the

child needs to fit into a particular school program or class. Tell the school

what you object to and why. Tell them what your goals are for and see

if you can come to a mutually agreed upon program.

Charlyne

Mom to Zeb 11 DS/OCD/ASD?

[Guest guest]

In a message dated 10/17/2004 3:27:59 PM Eastern Daylight Time,

jacksonsmom99@... writes:

> They say that last year they looked at the kids who were the best

> candidates for inclusion and put them into this one classroom where there is a

reg ed

> teacher, a typical class,and a sped teacher with 5 kids on IEP's integrated.

>

Hi Jayne,

I forgot to mention that inclusion isn't a right for those selected few.

Charlyne

Mom to Zeb 11 DS/OCD/ASD?

[Guest guest]

In a message dated 10/17/2004 8:29:00 PM Eastern Daylight Time,

jacksonsmom99@... writes:

> I'm at a loss for what to do this Wednesday when we meet the sped director

> again.

Hi Jayne,

Lesson learned from a Mom that pioneered the inclusion initiative in my

school district :1. Go the meeting without prejudice. (even though you feel like

choking someone)

2. State your placement and program goals for

3. State 's strengths (build on them)

4. Know the resources in the district

5. Prepare to share with the district what services will

need to support participation in the classroom to achieve agreed upon goals

6. If all else fails, ask the district for an independent

educational consultant to help the district aid in programing for

I usually send in an agenda on the issues to be discussed prior to the

meeting. I make copies for all the team members and pass them out at the

meeting. I

bring a tape recorder and candy for the middle of the table, chocolates,

fudge, something irresistible. I make index cards with notes for myself. I am

sweet

but to the point. I am never without a lose of words for any of the staff

remarks. I do not let them say no. It's better to be friendly with these people

than enemies even if you dislike them, pretend, a learned skill. You will and

can do this, think of the entire meeting time. He will give you

strength. I have done many things involving school that I would have never done

had I

not had Zeb. They call me the bold one and I'm sure a few other things that I

can't repeat.

Charlyne

Mom to Zeb 11 DS/OCD/ASD?

[Guest guest]

In a message dated 10/17/2004 9:45:06 PM Eastern Daylight Time,

jacksonsmom99@... writes:

> I don't think this would happen in NY.

It happens in every state. N.Y. happens to be one of the worst states for

non-compliance of IDEA.

Charlyne

Mom to Zeb 11 DS/OCD/ASD?

[Guest guest]

In a message dated 10/18/2004 1:21:12 AM Eastern Standard Time,

charlyne1121@... writes:

N.Y. happens to be one of the worst states for

non-compliance of IDEA.

Charlyne

Boy, you got that right Char!

Gail :-)

[Guest guest]

In a message dated 10/18/2004 1:15:31 AM Eastern Daylight Time,

charlyne1121@... writes:

1. Go the meeting without prejudice. (even though you feel like

choking someone)

2. State your placement and program goals for

3. State 's strengths (build on them)

4. Know the resources in the district

5. Prepare to share with the district what services will

need to support participation in the classroom to achieve agreed upon goals

6. If all else fails, ask the district for an independent

educational consultant to help the district aid in programing for

All good advice. And remember that wording is crucial. You really do

need to be painstakingly exact.

Donna

[Guest guest]

In a message dated 10/18/2004 12:42:51 PM Eastern Daylight Time,

jacksonsmom99@... writes:

I noticed that when he was on the computer, 3 other boys were hovered around

him and when they got excited they would scream, etc.. I could tell he

didn't like it and wanted to be alone because he kind of cov'd his face with

his

hands at one point. He didn't even focus on the computer game he kept

clicking everywhere and not even paying attention to what the game was doing,

just

click click click - which is odd, he loves to play on the computer.

Where is my child?

Jayne,

We are having similar problems with Maddie at her school. The school

made some horrible decisions and basically, Maddie and her classmates are

suffering. I had a two hour meeting with the principal and behavioral

specialist

last week. They heard me, but things aren't moving fast enough for me.

I've put a call into the CEO of the school (it's a private school) and am

waiting to hear back. Sometimes you just have to go to the top.

In the past, I have gone into her school and literally given them a

program to follow that works well with Maddie (which they don't have

now....told

me it was either thrown out or lost....OKKKKKAAAAYYYY). I have told every

teacher she's had (um, we're on NUMBER TEN...can you tell I'm upset?), as well

as aide (Jeez, can't BEGIN to count them) exactly how to approach

Maddie....I have actually brought one of my other daughters in to *Demonstrate*

for

them (Alison really gets the most out of Maddie). And last but not least, I

had done up a *Maddie book* that was done in the first person...giving Maddie a

voice. It was quite interesting (so they'd WANT to read it) and had

pictures of Maddie in school, at home with her siblings, and at therapy. It

described Maddie's personality, the way she responds to family, to social

situations, to therapy, and HOW she learns. I covered things that upset her

as

well. Methinks I need to do an updated version!!!!!! {{{{Hugs}}}} I'm

right there with ya!!!

Donna

P.S. If you have a fax, I can send it to you.

[Guest guest]

In a message dated 10/18/2004 12:42:38 PM Eastern Daylight Time,

jacksonsmom99@... writes:

> I spent this morning in 's class, I walked away so depressed.

Hi Jayne,

It is depressing to see your child in a school placement that is so blatantly

wrong. Do not dwell on what you saw at school today. Focus on what he can and

has done in the past. Obviously was not comfortable in this

enviroment and showed you. Now go do what you need to do for him. I will be with

you in

thought and prayer on Wednesday. Let us know how you make out.

Charlyne

Mom to Zeb 11 DS/OCD/ASD?

[Guest guest]

In a message dated 10/19/2004 8:54:14 AM Eastern Daylight Time,

jacksonsmom99@... writes:

> Maybe I should take a nice little 8 x 10 glossy of and set that

> up with the chocolates and tape recorder and say " just a reminder, this is who

> we are talking about! "

>

Hi Jayne,

It's a great idea. I'm sorry that I forgot to mention that to you. It is very

important to have 's picture on the table. The USE program is a great

program to learn effective advocacy skills and information on the entire IEP

process. Talking with other parents that share similar experiences always make

our situations bearable. Money, district resources and effective staff

training play an important role in administrative decisions in the IEP process.

You

will do just fine in the meeting.

Charlyne

Mom to Zeb 11 DS/OCD/ASD?

[Guest guest]

Thank you so much Charlyne! I will think of all of you and our children

tomorrow when I walk into that meeting. Maybe I should take a nice little 8 x

10 glossy of and set that up with the chocolates and tape recorder and

say " just a reminder, this is who we are talking about! "

I went to a seminar last night in the next county over called " USE " ,

Understanding Special Education. It was so comforting to talk with other

parents and hear them say the same things you all have been saying, " this is

wrong " . How is it that everyone else can see it but the school? Do you think,

in their hearts, they know this is wrong but it all boils down to dollars and

cents? How do they go to sleep at night knowing these kids deserve so much

more?

I will let you all know how it goes.

Thanks for the support,

Jayne

charlyne1121@... wrote:

In a message dated 10/18/2004 12:42:38 PM Eastern Daylight Time,

jacksonsmom99@... writes:

> I spent this morning in 's class, I walked away so depressed.

Hi Jayne,

It is depressing to see your child in a school placement that is so blatantly

wrong. Do not dwell on what you saw at school today. Focus on what he can and

has done in the past. Obviously was not comfortable in this

enviroment and showed you. Now go do what you need to do for him. I will be with

you in

thought and prayer on Wednesday. Let us know how you make out.

Charlyne

Mom to Zeb 11 DS/OCD/ASD?