Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 Hi All, I wanted to tell everyone we left Mic for 24 hours at his respite workers house. This the second time we have ever left him anywhere.He did very well actually his respite worker also was his one to one and now works in his classroom so hes comfortable with her.She said the only problems they had was when they changed environments she took him to her sisters with the other kids and he cried for about 5 minutes, then out to dinner and he cried again for 5 minutes then back to her house and he cried.I bet he thought she was bringing him to us and when we werent there he got upset.My mom is coming to live with us and shes terminally ill I expect to have hospice in the house to help me.Before she gets here we just decided we would go away alone.We went out and danced wow I forgot we used to have fun dancing.We decided theres just something missing when Mics not with us.I called her 5 times but I think it was very good for Mic.When we picked him up he saw me and smiled and ran as fast as he could to Daddy.I expected him to run to me no way hes a daddys boy isnt that so cute.Mic isnt signing or any words or mimicing again he was for 6 weeks now has stopped again and we are losing skills hes still happy though not mean.Hes spinning again and alot of self stim. I am hoping this 3 weeks off from school and then sending him back he might snap out of it.It seems to last about 6 weeks and then he will be fine and we gain back most skills but not progressing ahead.Since My mom is coming we decided not to put him in the ABA program this year its just too much for our family and 3 hours a day about on the bus.I am going to take a look at the school though who knows we may change our minds again after we look at the program.Thanks for the info Irma and Joan hope your feeling great! Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 i think its great you and hubby went out for some you time!! This is very imortant!! DH and I hate to let nathan go, or leave him for rispite or scl, but we have to use at least 3hours a month to keep his MR waiver services, and as he gets older its harder for us to work etc, because there is no one else available to watch him. I am checking out a job that is full time sept through may then prn during summer months which is more of what i need. at this time in our lives. Hugs and prayers for your mom, and for your family. Is mic done with his surgeries? im sure given some time he will keep progressing and stop regressing. Just let him be happy. Although we do want nathan to learn and be independent, his happiness is top on our list. shawna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 In a message dated 6/27/2004 9:08:13 PM Eastern Standard Time, mick8_7@... writes: My mom is coming to live with us and shes terminally ill I expect to have hospice in the house to help me.Before she gets here we just decided we would go away alone.We went out and danced wow I forgot we used to have fun dancing.We decided theres just something missing when Mics not with us.I Good decision Laurie!!!! As hard as it is, it is good to get your respite whenever you can!!! When you do it a few times, it gets easier. I have always said that the best gift I can give my kids is the example of a good relationship. We HAVE to pay attention to each other as well. It's even more challenging for us as parents of kids with DS and autism. I am glad you and hubby went out dancing....sounds super fun!!!!! And I am sorry to hear about your Mom, Laurie. Obviously, you have a rough road ahead of you. You are wise to make decisions right now based on your family situation. I am glad your mom has you and your family to take care of her. {{{{{hugs}}}}}} Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 In a message dated 6/27/2004 9:08:18 PM Eastern Daylight Time, mick8_7@... writes: > My mom is coming to live with us and shes terminally ill I expect to have > hospice in the house to help me.Before she gets here we just decided we would > go away alone. Hi Laurie, Sorry to hear about your Mom. You made a good choice by getting away. Mic sounds like he did very well while you were away. When is Mic's T & A? Prayers all goes well for you and your family. Charlyne Mom to Zeb 11 DS/OCD/ASD? Quote Link to comment Share on other sites More sharing options...
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