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Sara,

I live in Montgomery County about two miles from blacksburg.... I know tis

pretty fantastic.. Do you have a contact name to get more information? If not I

can send ya some flyers and stuff... Just let me know.. and again thanks to

all for the support.. I am still floating on cloud nine...:-)

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I do have contact info. I was wondering on how people NOT in that community

see it.

Like fine cream rising to the top....

Sara - Choose to make lemonade, not complain about the lemons.

>From: JustLeahB@...

>Reply-To:

>To:

>Subject: Re: sara

>Date: Wed, 7 Jul 2004 20:49:17 EDT

>

>Sara,

>I live in Montgomery County about two miles from blacksburg.... I know tis

>pretty fantastic.. Do you have a contact name to get more information? If

>not I

>can send ya some flyers and stuff... Just let me know.. and again thanks to

>all for the support.. I am still floating on cloud nine...:-)

>

>

>

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I had a group of clients (5)all mostly severe and profound who did that last

year, had a special house built for them and everything. Parents (and the

young adults now) have known eachother for years and have grown up together,

they went through Opportunity village and had many fund raisers to help raise

the $$$$ for the place and they use their many waiver services and medicaid

and insurance for those who have for their care, and many activities. the

whole community helped and still hleps from what i hear, Its just like living

at

homebut with their lifelong school buddies, and with all the top of the line

techno gadgets etc.

shawna

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<<With all the money coming to PA from gambling and with our wonderful

legislature, I am sure that by the time Elie reaches working age, there will be

PLENTY of waiver funds in PA. Then when MAddie is old enough, she will be able

to

slide right in!!!! So Melmark, Pathway, the home and programs in TROY - we

will just pick what is best for our child - no problem!!Sara>>

Hi, Everyone.....Snicker, snicker....not in our life time, Sara!!! I am sure

that $$$ will go to line the pockets of our 'wonderful' legislators.

Margaret

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  • 4 weeks later...
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Hi Sara,

I bet Elie is enjoying camp having friends that makes him feel

needed/accepted & wanted. That is beautiful that he fits in. I'm

hoping for the same thing when starts attending.

I have visit the Camp will be attending next year if there are

not any changes now that I'm finally making the move of allowing him

to attend. So far all good news from numerous parents.

On the Waiver funds, I believed it was something like 3,600.

Irma,16,DS/ASD

>

> Irma: Sounds like you are going to get the waiver funds that I

have been talking about. HAve they told you if there is a " cap " on

how much you can get for ?

>

> Elie is at camp now. He was supposed to come home today, but his

assistant camp director who is also ELie's habilitation worker called

and asked if Elie could stay at camp during " intercamp " (between

sessions) as everyone was having such a good time and ELie was

behaving so well. Camp is a great growing experience for all of us!

>

>

> Sara - Choose to make lemonade, not complain about the lemons.

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  • 2 months later...

In a message dated 10/12/2004 8:41:26 PM Eastern Daylight Time,

pastmidvale@... writes:

> Today he hit the teacher, the

> teacher's aide, and one other student. Why?? the school haasn't said.

> Elie doesn't understand why????

Hi Sara,

Do you think at the moment Elie knew why he hit? Zeb has pushed and scratched

school staff when pushed to frustration beyond his words. The school staff

always has justification for their so called punishments to push Zeb beyond what

so called normal people would strike back. I usually cannot get any

explanation from Zeb until a few days after an incident and he will recall

events out

of the blue without prompting. I am routinely but politely called a liar by

school staff. The school is asking for revisions to Zeb's BIP. I recently

suggested that they write one for me when I am verbally attacked by school

staff. I

may have to first sped kid to quit school at 16. Needed to vent tonight.

Charlyne

Mom to Zeb 11 DS/OCD/ASD?

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In a message dated 10/16/2004 11:03:28 PM Eastern Daylight Time,

pastmidvale@... writes:

> Can't even be sure that he dislikes school. He loves his bus driver, aide

> and bus ride. I think his teacher is a waste, but I am not sure what he

> thinks. Firedrills are definite melt down time!!

Hi Sara,

Poor Elie, isn't there anything the school can come up with so Elie is spared

the fire drills? Elie probably likes all the things that you mentioned but

not school. Zeb loves his teachers, dislikes the aide, dislikes one of the

lunchaides and dislikes doing schoolwork. The classroom teacher has separated

the

aide from him as much as he can. I don't think he likes her either, LOL. The

lunchaide repeatedly asks Zeb not too talk at lunch, how stupid, he tells her

it's on my IEP( talks anyway) and that is true,LOL. He does the schoolwork but

would rather stay home and watch tv. I bet Elie would too. If I can get Zeb to

stay until age 16, forget 21, it would be a miracle.

Charlyne

Mom to Zeb 11 DS/OCD/ASD?

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  • 3 weeks later...

Hi Sara,

Remarkable job you've accomplished with the school,keeping them

informed of what has worked for Elie. Yep! Its always making sure we

follow up with the school team to make sure it continues. If the

teacher is clueless on how to figure out any other teaching strategy

when all other have failed, they should always be open minded and at

least try it out and not bury a(modified)teaching technique when a

parent is willing to share some information that will be very

helpful for the child. Glad Elie's teacher was willing to listen

after the discovering of the book.

Sad part about this it is usually us parents having to

invent/design/request methods for our children. I for once would

like to hear something from 's teacher telling me something

like " I wanted to try (this or that)or we've been working on this and

it seems like he will succeed in this area once taught, so would you

like for us to continue with this new teaching technique? " " I would

also like to invite you to also observe or willing to have a parent

teacher conference to discuss who, how, when, etc. to reach a goal

for _____. " But, in reality its such a dream. Instead I'm the one

who finds myself yak, yak, yak, asking away.

I may know my son but I know during his middle school years he had

the best years learning and I was content, spoiled and loved it!

Since he is on his second year of High school, I can not afford

battling too much losing any of his time. So my minds spins and

spins with concerns and try not to throw in the towel and continue

pushing in what I believe he can do or learn.

Thanks for sharing your story. That is great to read that Elie can

read.

Are these special books that you've created for him. Would you say

they are similar like Interactive Reading books?

Irma,16,DS/ASD

> We have taken that book and some other special books and

translated them

> into PECS from Writing 2000. then Elie can read them almost alone.

>

> I have decided that teachers are really hired help to do our

bidding (catch

> the negativity???) and therefore. SHE will do what I want. And I

will go

> to school to enforce it!!

>

> So this week, I went to school, asked for the social stories

notebook I have

> laboriously written. It was unearthed from a pile of s--- on the

teacher's

> desk - never used because she didn't know which stories were

helpful and

> which were not. So I went across the hall to the secondary

principal and

> showed her my book. The result was that I will write and send

stories which

> will travel back and forth in the back b=pack. They will be used

> exclusively for reading. If the teacher wants a topic covered,

either she

> must write one or tell me and I will write one. But use it she

will.

>

> SOOOOO I wrote one about Camp next week. Now Elie is reading it

every

> minute he can!! And reminding me that camp is now in 7 days.

> 7-6-5-4-3-2-1- Blast off to Camp!!!

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  • 1 month later...

In a message dated 1/1/2005 12:54:26 PM Eastern Standard Time,

pastmidvale@... writes:

> The only safety that I heardor saw was that " cliients " are not allowed to

> carry or move filled boxes- and that is the only job there that I saw that

> Elie would do.

>

Hi Sara,

Mike must be a special guy. Elie is so lucky to him as a friend and to

experience a normal social life. He ran onto the street to keep Mike on his

toes,LOL.

They most likely are afraid the clients will drop the boxes on the job

coaches. Waiting for the scoop on your meeting.

Charlyne

Mom to Zeb 12 DS/OCD/ASD?

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