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Re: SMALL VESSEL DISEASE

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I've not been diagnosed with it, but I do have the symptoms you

mentioned (weakness in the legs, and terrible memory problems). Do

you mind my asking if there are other symptoms to look for? I don't

want to be a hypochondriac, but I'd hate to miss something so big.

Thanks,

Cheryl

>

>

> Hi everyone!

> Here's a new twist to the fibromyalgia saga for me... I was

diagnosed & nbsp;4 years ago with having " old mini stroke " brain scars,

but nothing was done for it. & nbsp; It wasn't necessary is what the

neurologist told me. & nbsp; I've had worsening symptoms lately

(weakness in the legs, and terrible memory problems) so my doctor

sent me to another neurologist who listened to my corotid artery

blood flow and suggested that I have Small Vessel Disease. & nbsp; I

have to have an ultra sound to confirm, but he seems pretty confident

that's what it is. & nbsp; It doesnt sound terrible until you research

it... it causes strokes, heart attacks... it sounds like I've been a

walking time bomb for the past 4 years and didn't even know it. & nbsp;

Ultimately it ends with Dimentia, and I am 40 years old. & nbsp;

Scared, I am! & nbsp; One cause is muscular conditions (fibromyhellgia)

which causes vessel muscle damage or something to that effect. & nbsp;

Anyway... has anyone else had

> this diagnosis and what can you tell me about it?

> Traci

>

>

>

>

>

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Cheryl,

I'm not really sure, this is brand new to me and I really think it depends on

the doctor you get because the neuro I saw & nbsp;4 years ago said I had mini

stroke scars on my brain but didn't need to do aspirin therapy or

anything. & nbsp; The new neuro I just saw was shocked! & nbsp; He said never ever

stop taking aspirin and begin immediately! & nbsp; I have to have an ultra sound

of my carotid arteries next week, I guess we'll know more then but the one thing

I have learned is we are at the mercy of our physicians and after this

experience that scares the hell out of me!

Traci

From: ttwizzlerr & lt;ttwizzlerr@... & gt;

Subject: Re: SMALL VESSEL DISEASE

To: fibromyalgiacured

Date: Thursday, June 12, 2008, 11:43 AM

I've not been diagnosed with it, but I do have the symptoms you

mentioned (weakness in the legs, and terrible memory problems). Do

you mind my asking if there are other symptoms to look for? I don't

want to be a hypochondriac, but I'd hate to miss something so big.

Thanks,

Cheryl

& gt;

& gt;

& gt; Hi everyone!

& gt; Here's a new twist to the fibromyalgia saga for me... I was

diagnosed & amp;nbsp; 4 years ago with having " old mini stroke " brain scars,

but nothing was done for it. & amp;nbsp; It wasn't necessary is what the

neurologist told me. & amp;nbsp; I've had worsening symptoms lately

(weakness in the legs, and terrible memory problems) so my doctor

sent me to another neurologist who listened to my corotid artery

blood flow and suggested that I have Small Vessel Disease. & amp;nbsp; I

have to have an ultra sound to confirm, but he seems pretty confident

that's what it is. & amp;nbsp; It doesnt sound terrible until you research

it... it causes strokes, heart attacks... it sounds like I've been a

walking time bomb for the past 4 years and didn't even know it. & amp;nbsp;

Ultimately it ends with Dimentia, and I am 40 years old. & amp;nbsp;

Scared, I am! & amp;nbsp; One cause is muscular conditions (fibromyhellgia)

which causes vessel muscle damage or something to that effect. & amp;nbsp;

Anyway... has anyone else had

& gt; this diagnosis and what can you tell me about it?

& gt; Traci

& gt;

& gt;

& gt;

& gt;

& gt;

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Guest guest

Traci, I wonder if this is treatable with herbs, diet, or supplements

the same way that other diseased arteries are treatable. Maybe you

can do some research in that direction, and even get your doctor's ok

when you find herbs or supplements that you think will help. I know

most of my doctors are supportive of me using herbs and supplements

in addition to meds, which is a big change in thinking. Anyway, what

I use for my arteries is hawthorn.

>

>

> Hi everyone!

> Here's a new twist to the fibromyalgia saga for me... I was

diagnosed & nbsp;4 years ago with having " old mini stroke " brain scars,

but nothing was done for it. & nbsp; It wasn't necessary is what the

neurologist told me. & nbsp; I've had worsening symptoms lately

(weakness in the legs, and terrible memory problems) so my doctor

sent me to another neurologist who listened to my corotid artery

blood flow and suggested that I have Small Vessel Disease. & nbsp; I

have to have an ultra sound to confirm, but he seems pretty confident

that's what it is. & nbsp; It doesnt sound terrible until you research

it... it causes strokes, heart attacks... it sounds like I've been a

walking time bomb for the past 4 years and didn't even know it. & nbsp;

Ultimately it ends with Dimentia, and I am 40 years old. & nbsp;

Scared, I am! & nbsp; One cause is muscular conditions (fibromyhellgia)

which causes vessel muscle damage or something to that effect. & nbsp;

Anyway... has anyone else had

> this diagnosis and what can you tell me about it?

> Traci

>

>

>

>

>

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Guest guest

Thanks ! & nbsp; Sorry I didn't respond right away, went to the E.R. Friday

afternoon after talking to my new neuro doctor, lightheadedness for HOURS. & nbsp;

They just let me out FINALLY, after running test after test and finding

nothing. & nbsp; How does a hospital stay where you do nothing but lay around

leave you so exhausted? & nbsp; LOL... anyway they found nothing, just another

" mystery diagnoses " waiting to happen. & nbsp; Ugh.

Traci

From: cathyscrfts & lt;cathyscrfts@... & gt;

Subject: Re: SMALL VESSEL DISEASE

To: fibromyalgiacured

Date: Friday, June 13, 2008, 8:36 AM

Traci, I wonder if this is treatable with herbs, diet, or supplements

the same way that other diseased arteries are treatable. Maybe you

can do some research in that direction, and even get your doctor's ok

when you find herbs or supplements that you think will help. I know

most of my doctors are supportive of me using herbs and supplements

in addition to meds, which is a big change in thinking. Anyway, what

I use for my arteries is hawthorn.

& gt;

& gt;

& gt; Hi everyone!

& gt; Here's a new twist to the fibromyalgia saga for me... I was

diagnosed & amp;nbsp; 4 years ago with having " old mini stroke " brain scars,

but nothing was done for it. & amp;nbsp; It wasn't necessary is what the

neurologist told me. & amp;nbsp; I've had worsening symptoms lately

(weakness in the legs, and terrible memory problems) so my doctor

sent me to another neurologist who listened to my corotid artery

blood flow and suggested that I have Small Vessel Disease. & amp;nbsp; I

have to have an ultra sound to confirm, but he seems pretty confident

that's what it is. & amp;nbsp; It doesnt sound terrible until you research

it... it causes strokes, heart attacks... it sounds like I've been a

walking time bomb for the past 4 years and didn't even know it. & amp;nbsp;

Ultimately it ends with Dimentia, and I am 40 years old. & amp;nbsp;

Scared, I am! & amp;nbsp; One cause is muscular conditions (fibromyhellgia)

which causes vessel muscle damage or something to that effect. & amp;nbsp;

Anyway... has anyone else had

& gt; this diagnosis and what can you tell me about it?

& gt; Traci

& gt;

& gt;

& gt;

& gt;

& gt;

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Guest guest

Traci, That does sound exhausting, and frustrating. I hope your

doctors will be able to help, with everything. Best wishes,

> & gt;

> & gt;

> & gt; Hi everyone!

> & gt; Here's a new twist to the fibromyalgia saga for me... I was

> diagnosed & amp;nbsp; 4 years ago with having " old mini stroke " brain

scars,

> but nothing was done for it. & amp;nbsp; It wasn't necessary is what

the

> neurologist told me. & amp;nbsp; I've had worsening symptoms lately

> (weakness in the legs, and terrible memory problems) so my doctor

> sent me to another neurologist who listened to my corotid artery

> blood flow and suggested that I have Small Vessel

Disease. & amp;nbsp; I

> have to have an ultra sound to confirm, but he seems pretty

confident

> that's what it is. & amp;nbsp; It doesnt sound terrible until you

research

> it... it causes strokes, heart attacks... it sounds like I've been

a

> walking time bomb for the past 4 years and didn't even know

it. & amp;nbsp;

> Ultimately it ends with Dimentia, and I am 40 years old. & amp;nbsp;

> Scared, I am! & amp;nbsp; One cause is muscular conditions

(fibromyhellgia)

> which causes vessel muscle damage or something to that

effect. & amp;nbsp;

> Anyway... has anyone else had

> & gt; this diagnosis and what can you tell me about it?

> & gt; Traci

> & gt;

> & gt;

> & gt;

> & gt;

> & gt;

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  • 4 months later...

Thanks for your reply!  I'm just getting the email now... oddly, sometimes I

dont get these emails for a couple weeks and then they all show up at once.  I

appreciate your getting back to me!

Traci

Subject: Re: Small Vessel Disease

To: fibromyalgiacured

Date: Tuesday, November 4, 2008, 9:22 PM

>

> Hi everyone!

> I was recently diagnosed with small vessel disease of the brain,

have had several mini-strokes because of this.  Since the diagnosis,

I have had a stress test which my doctor said was abnormal so they

will do more testing.  I'm betting I'll be diagnosed with small

vessel disease of the heart as well... I'm getting pretty nervous. 

I'm wondering if the small vessel disease is connected to

fibromyalgia at all.  Any information would be greatly appreciated. ..

I'm not finding much on the net regarding this.  Thanks fibro friends!

> Traci

>

>

>

>

>

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