immune deficiency

Saving Emma - #9

Best Seller February 2005 http://www.whiskeycreekpress.com

-----Original

Message-----

From: bronchiectasis

[mailto:bronchiectasis ]

On Behalf Of Pat

Sent: Thursday, 19 May 2005 3:58

AM

To: bronch

Subject: immune

deficiency

Hi Cheryl!

I read your post about

working around your tranfusions. Do you do them at home w/sub-q, or

IV. My daughter now does them at a clinic, but we're looking into home

infusion thru sub-q, which sounds so less disruptive. Pat

·

..

May 19, 2005

It`s funny you should say that Cheryl but as you know my Father has intragam at the local day hospital every 4 weeks and he doesn`t even get offered a cup of tea let alone a meal and sometimes he`s there up to 5 hours at a time. from Geelong Australia

-- immune deficiency

Hi Cheryl!

I read your post about working around your tranfusions. Do you do them at home w/sub-q, or IV. My daughter now does them at a clinic, but we're looking into home infusion thru sub-q, which sounds so less disruptive. Pat

· .

May 19, 2005

wrote: It`s

funny you should say that Cheryl but as you know my Father has intragam at the

local day hospital every 4 weeks and he doesn`t even get offered a cup of tea

let alone a meal and sometimes he`s there up to 5 hours at a

time. from Geelong Australia

Hi , I didn’t realise it was Intragam your dad was having.

That’s disgusting that he’s offered nothing. I would have thought

it part of the deal. It certainly is with me. If I remember correctly, you said

he was going to a private hospital; he should be getting the same sort of service

as I do.

I get cups of

tea laid on (if I want them) morning & afternoon tea if I’m there,

plus a light three course lunch. (soup, sandwiches, and fresh fruit.)

I’d be

checking it out. (At the very least, make a complaint with

Veteran’s Affairs. – did I remember that right?)

Cheryl

----------------------------------------------------------------

Cheryl , Award

Winning Australian Author

Saving Emma - #9 Best Seller February 2005 http://www.whiskeycreekpress.com

May 19, 2005

Yes Cheryl, you did remember right, he is with the Veteran`s Affairs, (and by the way he told me to tell you he really enjoyed your book, Saving Emma. I haven`t had a chance to read it yet but I`m looking forward to doing just that.) I might look into this further about the hospital visits. I`ll discuss it with him and see what he says about it all. I did tell him you get cuppas a while back and he told me he gets offered nothing but I didn`t realise you also got a light meal if it was needed. Cheryl, do you get put in the recovery room of the hospital to receive your infusion or somewhere else? Dad receives his in the recovery room and being a small room they fit him in where they can and he has to lie down through the whole process. He said he feels like a nuisance to them. Anyway thanks again Cheryl I`ll look into this further,(depending on what Dad says as he doesn`t like causing trouble)

-- RE: immune deficiency

wrote: It`s funny you should say that Cheryl but as you know my Father has intragam at the local day hospital every 4 weeks and he doesn`t even get offered a cup of tea let alone a meal and sometimes he`s there up to 5 hours at a time. from Geelong Australia

Hi , I didn’t realise it was Intragam your dad was having. That’s disgusting that he’s offered nothing. I would have thought it part of the deal. It certainly is with me. If I remember correctly, you said he was going to a private hospital; he should be getting the same sort of service as I do.

I get cups of tea laid on (if I want them) morning & afternoon tea if I’m there, plus a light three course lunch. (soup, sandwiches, and fresh fruit.)

I’d be checking it out. (At the very least, make a complaint with Veteran’s Affairs. – did I remember that right?)

Cheryl

----------------------------------------------------------------

Cheryl , Award Winning Australian Author

Saving Emma - #9 Best Seller February 2005 http://www.whiskeycreekpress.com

May 19, 2005

, I receive my treatment in the

oncology day ward. The entire dept is for people having transfusions. I know

of other hospital that do the same, and have a dedicated area. It generally

works well.

If you are

there for morning or afternoon tea, or lunch, then you are supposed to be

supplied with it. I should imagine they are breaking some sort of

regulation by not doing so.

I am admitted

into hospital as a day patient every time I go. If the hospital your dad

goes to isn’t admitting him, I suspect they are breaking regulations or

laws about this.

Some of the

patients lay down for treatment, but it’s generally only the very frail

ones with advanced cancer. They did it with me once – because there

were no chairs available, but I try not to have to lie down. Not good for

my back.

I generally

arrive around 10 – 10.30 and leave about 2 – 3pm. I’d kill them if they

didn’t give me a cuppa or lunch!! I’d love to know what they

are charging Vet’s Affairs for, and I’m sure VA would too. I

would definitely follow it up with VA; I’m sure they won’t be happy

to know what’s going on.

Glad your dad enjoyed

Saving Emma – I’ve sold 50 paperback copies in Australia alone since late February, and seem to be selling at least one

copy per week, often more, just from home. Plus what is sold in the US.

I have a couple

of interviews lined up, and some chats, so they will probably also help with

sales. I’ll be doing some library talks later this year too –

they tend to result in sales on the spot, so it’s all good.

Cheryl

----------------------------------------------------------------

Cheryl , Award

Winning Australian Author

Saving Emma - #9 Best Seller February 2005 http://www.whiskeycreekpress.com

-----Original

Message-----

From: bronchiectasis [mailto:bronchiectasis ] On

Behalf Of

Sent: Friday, 20 May 2005 8:11 AM

To: bronchiectasis

Subject: RE:

immune deficiency

Yes Cheryl, you did remember right, he is with the

Veteran`s Affairs, (and by the way he told me to tell you he really enjoyed

your book, Saving Emma. I haven`t had a chance to read it yet but I`m looking

forward to doing just that.) I might look into this further about

the hospital visits. I`ll discuss it with him and see what he says

about it all. I did tell him you get cuppas a while back

and he told me he gets offered nothing but I didn`t realise you also got a

light meal if it was needed. Cheryl, do you get put in the recovery room

of the hospital to receive your infusion or somewhere else? Dad receives

his in the recovery room and being a small room they fit him in where

they can and he has to lie down through the whole process. He said

he feels like a nuisance to them. Anyway thanks again Cheryl I`ll look

into this further,(depending on what Dad says as he doesn`t

like causing trouble)

-- RE: immune deficiency

wrote: It`s funny you should say that Cheryl but as

you know my Father has intragam at the local day hospital every 4 weeks and

he doesn`t even get offered a cup of tea let alone a meal and sometimes he`s

there up to 5 hours at a time. from Geelong Australia

Hi , I

didn’t realise it was Intragam your dad was having. That’s

disgusting that he’s offered nothing. I would have thought it part of

the deal. It certainly is with me. If I remember correctly, you said he was

going to a private hospital; he should be getting the same sort of service as

I do.

I get cups of

tea laid on (if I want them) morning & afternoon tea if I’m there,

plus a light three course lunch. (soup, sandwiches, and fresh fruit.)

I’d be

checking it out. (At the very least, make a complaint with

Veteran’s Affairs. – did I remember that right?)

Cheryl

----------------------------------------------------------------

Cheryl ,

Award Winning Australian Author