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will's at home

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Thank you all for all of your thoughts and prayers. Will and I came

home on tuesday (on oxygen). So glad to be home! He is soooo much

better. I discontinued his O2 today. He kept pulling the cannula

out of his nose and chewing on it. He had pulled off all of the

tape and was CLEARLY not in any distress. I am not looking forward

to doing that again but I fear I will. We go back to our ped on fri

and to the ped pulmonologist in a week. At least April is around

the corner. Thanks again for all of the encouragment. I can't tell

you how much it meant to me.

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