Guest guest Posted December 2, 2004 Report Share Posted December 2, 2004 Hello to all, I would like to ask you all how your kids have faired with resp. infections. Will (DS) and Jake got their shots to prevent RSV on Tuesday. Today is Thursday and Will has RSV (not confirmed by sputum). I think we picked it up in the doctor's office as I have taken them no where else. Jake's lungs sound great (thank God) but Will's were so bad last night that we almost made a trip to the ER. Instead, I stayed up all night on the sofa holding him upright and making sure he was breathing. It seemed to hit him so quickly. In the morning he was fussy and by the afternoon he had crakles and wheezes in his lungs. I have a nebulizer from when (2) had RSV at 3 months of age. I gave him Xopenex treatments every four hours which helped. The doctor this morning gave me a new RX for the drug and told me to keep doing it and there was no need for antibiotics. Does your DS child have more resp. trouble than your non DS child? I hope this is not a sign of things to come. He got the antibodies from the shot and has them from my breastmilk, I can't believe he is sick. I look forward to your imput. in VA mom to (5), (2), Will(DS) and Jake(7 weeks) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 That was a wonderful story. Thank you for sharing it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Hi, congratulations on the newest additions to your family! Your family sounds very similiar to ours. I also, have 4 children. Allie had just truned 6 and Cameron had just turned 2 when our fraternal twins Braden (DS) and Grant were born. It's hard to believe that was just 3 years ago in October. At first, of course, I was so worried about how Braden would be accepted - I just assumed that everyone would dote on Grant. My thoughts could not have been farther from the reality. Sometimes I actually feel bad for Grant - our twin without DS. Everyone is always so interested and devoted to Braden. I am glad for Braden but sometimes I feel Grant is thinking " how can I get myself one of those darn extra chromosomes? " Braden has had 2 rounds with RSV. The first year he did not get it I feel in part due to the shots. The next RSV season he came down with it something fierce and was transported via ambulance to Children's Hospital where he spent the next 10 days. He was wheezing so bad you could hear him breathing in his room with the door shut! This past year he got it again the exact same week in February as the year before. This time we were able to treat him at home with albuterol and pulmicort and orapred. I'm hoping this rsv season for it to pass us by. I think every year his lungs get stronger and so I'm hopeful this year that if he does contract rsv, he will not present with wheezing. Outside of rsv, Braden tends to be able to ward off colds and flus better than Grant. He does not tend to get runny noses, has never had a single ear infection, his CBC counts (a check for luekemia) have always been good, and his thyroid is right on the money. I don't think you are guranteed a sickly child just because he has DS. These children are as unique to each other as are typical children. I also just wanted to take a moment and tell you what I wish another mother would have told me after my twins were born: Braden is the most amazing human being I know. My son's beautiful face lights my world and challenges the stereotypes stamped on him by the world. He plays in the sandbox and swims in the ocean. He loves to eat icecream and wrestle with his brothers. He sleeps every night with his favorite bunny and wakes up in the morning and jumps in his bed. He giggles when blowing bubbles and loves to color eggs for Easter. And, like my other children, I have to limit the time he spends watching his favorite movies - Ice Age and Monsters Inc. He squeals with delight as he swings and he gives his twin brother a gentle push down the slide. My heart melts when he calls MaMa and I'm ready to wring his neck when I find him playing with his rubber duck in the toliet! He loves opening presents and blew out his birthday candles with all the wind he could muster. Simply, he is a little boy and does little boy things. He is not Down Syndrome but he HAS Down Syndome. Times have changed and these children born today with DS are born to a world that is more compassionate, more accepting than ever before. His twin Grant may have been the little boy I dreamed of but Braden is the little boy I NEEDED. The one thing I regret was that I met my little boys with tears. If only I could go back to the week of their birth knowing then what I know now... There would be no tears of sadness - only tears of a mother's love for her new bundles of joy! I wish you and your family peace, hope and happiness. Congratulations on your babies! Bethany My email address is tbmirka@... and we have a website where you could check out our little ones http://www.babiesonline.com/babies/l/littlestangels/ > >Reply-To: Multiples-DS >To: Multiples-DS >Subject: RSV >Date: Thu, 02 Dec 2004 23:12:45 -0000 > > > >Hello to all, > I would like to ask you all how your kids have faired with resp. >infections. Will (DS) and Jake got their shots to prevent RSV on >Tuesday. Today is Thursday and Will has RSV (not confirmed by >sputum). I think we picked it up in the doctor's office as I have >taken them no where else. Jake's lungs sound great (thank God) but >Will's were so bad last night that we almost made a trip to the ER. >Instead, I stayed up all night on the sofa holding him upright and >making sure he was breathing. It seemed to hit him so quickly. In >the morning he was fussy and by the afternoon he had crakles and >wheezes in his lungs. I have a nebulizer from when (2) had >RSV at 3 months of age. I gave him Xopenex treatments every four >hours which helped. The doctor this morning gave me a new RX for the >drug and told me to keep doing it and there was no need for >antibiotics. Does your DS child have more resp. trouble than your >non DS child? I hope this is not a sign of things to come. He got >the antibodies from the shot and has them from my breastmilk, I can't >believe he is sick. I look forward to your imput. > > in VA > mom to (5), (2), > Will(DS) and Jake(7 weeks) > > > > > > Quote Link to comment Share on other sites More sharing options...
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